What's next?

[Guest guest]

I got my drug free test results back. Serum aldo 24 (0-30) Renin 0.11. Urine

aldo 47 (0-12). Nephro ordered spiro and says no more testing. Is that ok?

Cybil. 5'11 208 lbs

36 y.o. female

FINALLY dx with hyperaldosteronism (although dr. wouldn't go near PA)

Low K+,CA, MG

Dashing with all my heart and still losing wt!

BP down to 140/90 consistently

Sent from my Verizon Wireless Phone

[Guest guest]

Yes you clearly have PA and a trail of DASHing and spiro is indicated. Assume you were on no meds when tested. You need the urine Na and K in the urine that was done for aldo to be able to interpret it correctly.How much spiro did he start?BP is good now so I would start at 25 per day or even 1/2 but dont know your Hx completely.CE Grim MDOn Jun 16, 2012, at 9:30 PM, Cybil wrote: I got my drug free test results back. Serum aldo 24 (0-30) Renin 0.11. Urine aldo 47 (0-12). Nephro ordered spiro and says no more testing. Is that ok? Cybil. 5'11 208 lbs 36 y.o. female FINALLY dx with hyperaldosteronism (although dr. wouldn't go near PA) Low K+,CA, MG Dashing with all my heart and still losing wt! BP down to 140/90 consistently Sent from my Verizon Wireless Phone

[Guest guest]

If sprio and DASH work and you feel good then may not need any more testing.

Only should think about more testing if you want to have surgery to have

possible cure.

>

> > I got my drug free test results back. Serum aldo 24 (0-30) Renin

> > 0.11. Urine aldo 47 (0-12). Nephro ordered spiro and says no more

> > testing. Is that ok?

> >

> > Cybil. 5'11 208 lbs

> > 36 y.o. female

> > FINALLY dx with hyperaldosteronism (although dr. wouldn't go near PA)

> > Low K+,CA, MG

> > Dashing with all my heart and still losing wt!

> > BP down to 140/90 consistently

> >

> > Sent from my Verizon Wireless Phone

> >

> >

>

[Guest guest]

Is there a reason that investigating the possibility of surgery hasn't been

presented to you? I'm not familiar with your history so I don't know if you have

bilateral adenomas.

I'm mentioning this because you are still so young, and I'm assuming you are

nowhere close to menopause yet. Spiro messes with estrogen. When I took it, I

menstruated nonstop. Every. Single. Day. For. Months!!! It also increased my

breast size and caused severe breast pain. These are not uncommon side effects,

but conventional wisdom seems to only mention that the breast issues

(gynecomastia) happen to men. This is completely false - it can happpen to women

as well.

I took spiro twice with the same effects, once in my 30s and once in my 40s. I

never tried eplerenone, which is an option with supposedly fewer side effects.

Just something to keep in mind. If you start spiro now and then decide to pursue

testing to find out if you are a surgical candidate, you will need to stop spiro

for at least 6 weeks before further testing.

-msmith1928

Left laparoscopic adrenalectomy 10/13/11

>

> I got my drug free test results back. Serum aldo 24 (0-30) Renin 0.11.

Urine aldo 47 (0-12). Nephro ordered spiro and says no more testing. Is that

ok?

>

> Cybil. 5'11 208 lbs

> 36 y.o. female

> FINALLY dx with hyperaldosteronism (although dr. wouldn't go near PA)

> Low K+,CA, MG

> Dashing with all my heart and still losing wt!

> BP down to 140/90 consistently

>

> Sent from my Verizon Wireless Phone

>

[Guest guest]

I was wondering this too. Have they done a scan to see if you have a tumor? If

not they should because there is possibility (abet low) that it could be

malginant. They should also recheck it if you have one to ensure it is not

growing. Also, your doctor should give you all the options so you can decide

what is best for you, " wait and see " is not the best option if you are going to

consider it later because the chance of sucess is better the sooner you remove

it.

> >

> > I got my drug free test results back. Serum aldo 24 (0-30) Renin 0.11.

Urine aldo 47 (0-12). Nephro ordered spiro and says no more testing. Is that

ok?

> >

> > Cybil. 5'11 208 lbs

> > 36 y.o. female

> > FINALLY dx with hyperaldosteronism (although dr. wouldn't go near PA)

> > Low K+,CA, MG

> > Dashing with all my heart and still losing wt!

> > BP down to 140/90 consistently

> >

> > Sent from my Verizon Wireless Phone

> >

>

[Guest guest]

I was wondering this too. Have they done a scan to see if you have a tumor? If

not they should because there is possibility (abet low) that it could be

malginant. They should also recheck it if you have one to ensure it is not

growing. Also, your doctor should give you all the options so you can decide

what is best for you, " wait and see " is not the best option if you are going to

consider it later because the chance of sucess is better the sooner you remove

it.

> >

> > I got my drug free test results back. Serum aldo 24 (0-30) Renin 0.11.

Urine aldo 47 (0-12). Nephro ordered spiro and says no more testing. Is that

ok?

> >

> > Cybil. 5'11 208 lbs

> > 36 y.o. female

> > FINALLY dx with hyperaldosteronism (although dr. wouldn't go near PA)

> > Low K+,CA, MG

> > Dashing with all my heart and still losing wt!

> > BP down to 140/90 consistently

> >

> > Sent from my Verizon Wireless Phone

> >

>

[Guest guest]

I have had a ct scan without contrast that was negative. I have also had an

ultrasound /doppler of the kidneys. Nothing significant found there also. My

story is that after 2 years of high BP on hctz my pcp added an ACE. I had an

episode 1 week after starting that in which I got really dizzy and light-headed

and felt like I was going to die. In the ambulance my BP was 188/116. After

nitro my BP did not drop at all. In the hospital I had several iv BB and more

nitro. The lowest my BP got was 150/90. I was realeased on more BB's. Then I

had an anaphylaxis reaction to one of those medications so found myself back in

the ccu of the hospital. NEVER could they get my BP lower than 150/110. But I

was realeased and referred to a nephro. That was 2 months ago and here I stand.

She has not said anything about any further testing. Should I ask her about it?

Cybil 36 y.o. female

Dashing

Low k,Mg,ca

Just dx with hyperaldo (she will not call it PA)

Sent from my Verizon Wireless Phone

<jclark24p@...> wrote:

>I was wondering this too. Have they done a scan to see if you have a tumor?

If not they should because there is possibility (abet low) that it could be

malginant. They should also recheck it if you have one to ensure it is not

growing. Also, your doctor should give you all the options so you can decide

what is best for you, " wait and see " is not the best option if you are going to

consider it later because the chance of sucess is better the sooner you remove

it.

>

>

>> >

>> > I got my drug free test results back. Serum aldo 24 (0-30) Renin 0.11.

Urine aldo 47 (0-12). Nephro ordered spiro and says no more testing. Is that

ok?

>> >

>> > Cybil. 5'11 208 lbs

>> > 36 y.o. female

>> > FINALLY dx with hyperaldosteronism (although dr. wouldn't go near PA)

>> > Low K+,CA, MG

>> > Dashing with all my heart and still losing wt!

>> > BP down to 140/90 consistently

>> >

>> > Sent from my Verizon Wireless Phone

>> >

>>

>

>

[Guest guest]

I have had a ct scan without contrast that was negative. I have also had an

ultrasound /doppler of the kidneys. Nothing significant found there also. My

story is that after 2 years of high BP on hctz my pcp added an ACE. I had an

episode 1 week after starting that in which I got really dizzy and light-headed

and felt like I was going to die. In the ambulance my BP was 188/116. After

nitro my BP did not drop at all. In the hospital I had several iv BB and more

nitro. The lowest my BP got was 150/90. I was realeased on more BB's. Then I

had an anaphylaxis reaction to one of those medications so found myself back in

the ccu of the hospital. NEVER could they get my BP lower than 150/110. But I

was realeased and referred to a nephro. That was 2 months ago and here I stand.

She has not said anything about any further testing. Should I ask her about it?

Cybil 36 y.o. female

Dashing

Low k,Mg,ca

Just dx with hyperaldo (she will not call it PA)

Sent from my Verizon Wireless Phone

<jclark24p@...> wrote:

>I was wondering this too. Have they done a scan to see if you have a tumor?

If not they should because there is possibility (abet low) that it could be

malginant. They should also recheck it if you have one to ensure it is not

growing. Also, your doctor should give you all the options so you can decide

what is best for you, " wait and see " is not the best option if you are going to

consider it later because the chance of sucess is better the sooner you remove

it.

>

>

>> >

>> > I got my drug free test results back. Serum aldo 24 (0-30) Renin 0.11.

Urine aldo 47 (0-12). Nephro ordered spiro and says no more testing. Is that

ok?

>> >

>> > Cybil. 5'11 208 lbs

>> > 36 y.o. female

>> > FINALLY dx with hyperaldosteronism (although dr. wouldn't go near PA)

>> > Low K+,CA, MG

>> > Dashing with all my heart and still losing wt!

>> > BP down to 140/90 consistently

>> >

>> > Sent from my Verizon Wireless Phone

>> >

>>

>

>

[Guest guest]

" A physician who remains silent after two months about a patient in dire need of

dx must be placed among jack asses for one whole year and fed the same food as

asses... " [Deut 123:202]

|

...... But I was realeased and referred to a nephro. That was 2 months

|ago and here I stand. She has not said anything about any further testing.

|Should I ask her about it?

|Cybil 36 y.o. female

|Dashing

|Low k,Mg,ca

|Just dx with hyperaldo (she will not call it PA)

|

[Guest guest]

" A physician who remains silent after two months about a patient in dire need of

dx must be placed among jack asses for one whole year and fed the same food as

asses... " [Deut 123:202]

|

...... But I was realeased and referred to a nephro. That was 2 months

|ago and here I stand. She has not said anything about any further testing.

|Should I ask her about it?

|Cybil 36 y.o. female

|Dashing

|Low k,Mg,ca

|Just dx with hyperaldo (she will not call it PA)

|

[Guest guest]

It sounds like they have looked and finding none a MCB would be your choice.

Start on a low dose of Spironolactone and don't be too aggressive increasing it.

If you have any signs of problems or issues switch to Eplerenone. (They had a

" pain " requirement for me and now I am dealing with two long term, probably

permanent, issues!) BTW, if anyone tells you that you don't need androgen (male

sex hormone) they are lying!

> >> >

> >> > I got my drug free test results back. Serum aldo 24 (0-30) Renin 0.11.

Urine aldo 47 (0-12). Nephro ordered spiro and says no more testing. Is that

ok?

> >> >

> >> > Cybil. 5'11 208 lbs

> >> > 36 y.o. female

> >> > FINALLY dx with hyperaldosteronism (although dr. wouldn't go near PA)

> >> > Low K+,CA, MG

> >> > Dashing with all my heart and still losing wt!

> >> > BP down to 140/90 consistently

> >> >

> >> > Sent from my Verizon Wireless Phone

> >> >

> >>

> >

> >

>

[Guest guest]

I don't recall 120 chapters in deuteronomy. That'd be one long read.

From: Study Circle <studycircle@...>Subject: RE: Re: What's next?hyperaldosteronism Date: Sunday, June 17, 2012, 5:06 PM

"A physician who remains silent after two months about a patient in dire need of dx must be placed among jack asses for one whole year and fed the same food as asses..." [Deut 123:202]|..... But I was realeased and referred to a nephro. That was 2 months|ago and here I stand. She has not said anything about any further testing.|Should I ask her about it?|Cybil 36 y.o. female|Dashing|Low k,Mg,ca|Just dx with hyperaldo (she will not call it PA)|

[Guest guest]

Good one. And from the bible May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Jun 17, 2012, at 17:06, Study Circle <studycircle@...> wrote:

"A physician who remains silent after two months about a patient in dire need of dx must be placed among jack asses for one whole year and fed the same food as asses..." [Deut 123:202]

|

...... But I was realeased and referred to a nephro. That was 2 months

|ago and here I stand. She has not said anything about any further testing.

|Should I ask her about it?

|Cybil 36 y.o. female

|Dashing

|Low k,Mg,ca

|Just dx with hyperaldo (she will not call it PA)

|

[Guest guest]

I was released from NIH on April 14 and received the records and scans yesterday

(June 16) - Send that grain to Bethesda! As far as I know my PCP has never

heard from them, how many PCPs will follow the PTN'S instruction 100%?

>

> " A physician who remains silent after two months about a patient in dire need

of dx must be placed among jack asses for one whole year and fed the same food

as asses... " [Deut 123:202]

>

> |

> ..... But I was realeased and referred to a nephro. That was 2 months

> |ago and here I stand. She has not said anything about any further testing.

> |Should I ask her about it?

> |Cybil 36 y.o. female

> |Dashing

> |Low k,Mg,ca

> |Just dx with hyperaldo (she will not call it PA)

> |

>

[Guest guest]

With a negative CT assuming it was read correctly and I have picked up missed one's by looking at the CT. Then I recommend a trial of Spiro and DASH. READ my evolution article now. Please give use names of all drugs. The anaphylaxis most like due to an ACE. BUT we and your family need the exact names. It is a matter of life and death. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Jun 17, 2012, at 16:32, Cybil <cybil.baker@...> wrote:

I have had a ct scan without contrast that was negative. I have also had an ultrasound /doppler of the kidneys. Nothing significant found there also. My story is that after 2 years of high BP on hctz my pcp added an ACE. I had an episode 1 week after starting that in which I got really dizzy and light-headed and felt like I was going to die. In the ambulance my BP was 188/116. After nitro my BP did not drop at all. In the hospital I had several iv BB and more nitro. The lowest my BP got was 150/90. I was realeased on more BB's. Then I had an anaphylaxis reaction to one of those medications so found myself back in the ccu of the hospital. NEVER could they get my BP lower than 150/110. But I was realeased and referred to a nephro. That was 2 months ago and here I stand. She has not said anything about any further testing. Should I ask her about it?

Cybil 36 y.o. female

Dashing

Low k,Mg,ca

Just dx with hyperaldo (she will not call it PA)

Sent from my Verizon Wireless Phone

<jclark24p@...> wrote:

>I was wondering this too. Have they done a scan to see if you have a tumor? If not they should because there is possibility (abet low) that it could be malginant. They should also recheck it if you have one to ensure it is not growing. Also, your doctor should give you all the options so you can decide what is best for you, "wait and see" is not the best option if you are going to consider it later because the chance of sucess is better the sooner you remove it.

>

>

>> >

>> > I got my drug free test results back. Serum aldo 24 (0-30) Renin 0.11. Urine aldo 47 (0-12). Nephro ordered spiro and says no more testing. Is that ok?

>> >

>> > Cybil. 5'11 208 lbs

>> > 36 y.o. female

>> > FINALLY dx with hyperaldosteronism (although dr. wouldn't go near PA)

>> > Low K+,CA, MG

>> > Dashing with all my heart and still losing wt!

>> > BP down to 140/90 consistently

>> >

>> > Sent from my Verizon Wireless Phone

>> >

>>

>

>

[Guest guest]

Better. CHeck it out as I have never heard it either. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Jun 17, 2012, at 18:20, Bingham <jlkbbk2003@...> wrote:

I don't recall 120 chapters in deuteronomy. That'd be one long read.

From: Study Circle <studycircle@...>Subject: RE: Re: What's next?hyperaldosteronism Date: Sunday, June 17, 2012, 5:06 PM

"A physician who remains silent after two months about a patient in dire need of dx must be placed among jack asses for one whole year and fed the same food as asses..." [Deut 123:202]|..... But I was realeased and referred to a nephro. That was 2 months|ago and here I stand. She has not said anything about any further testing.|Should I ask her about it?|Cybil 36 y.o. female|Dashing|Low k,Mg,ca|Just dx with hyperaldo (she will not call it PA)|

[Guest guest]

I was referred from a GP to an endocrinologist with raging BP about 200/100.  It took two months to get into see her.  When I told her about PA and Dr. Grim, she muttered something under her breath about "other patients."  I honestly don't think she knew anything about PA prior to my mention.  She gave me spiro, as I asked.  When my heartbeaty went erratic (via my husband's listening), she called in Toprol.  Never did she ever listen to my heart.  Then, she referred me to a shrink.  I don't believe I've ever seen a doctor more incredibly incompetent.  She got her MD from the University of Lahore in Pakistan.ValFrom: Study Circle <studycircle@...>

 

"A physician who remains silent after two months about a patient in dire need of dx must be placed among jack asses for one whole year and fed the same food as asses..."

Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use

.

[Guest guest]

The meds I was on before my anaphylaxis were as follows

Lisinopril 10 qd

Metoprolol 25 bid

Hctz 25

Ibuprofen 800 prn for back pain

After hospitalization

Hydrolazine 25 tid

Hctz 25

Zyrtec 10 qd

Clatiron 10 qd

Allegra 220 qd

Flonase

Advair

Sent from my Verizon Wireless Phone

Clarence Grim <lowerbp2@...> wrote:

>With a negative CT assuming it was read correctly and I have picked up missed

one's by looking at the CT. Then I recommend a trial of Spiro and DASH. READ my

evolution article now. Please give use names of all drugs. The anaphylaxis most

like due to an ACE. BUT we and your family need the exact names. It is a matter

of life and death.

>

>

>

>May your pressure be low!

>

>CE Grim MS, MD

>Specializing in Difficult

>Hypertension

>

>On Jun 17, 2012, at 16:32, Cybil <cybil.baker@...> wrote:

>

>> I have had a ct scan without contrast that was negative. I have also had an

ultrasound /doppler of the kidneys. Nothing significant found there also. My

story is that after 2 years of high BP on hctz my pcp added an ACE. I had an

episode 1 week after starting that in which I got really dizzy and light-headed

and felt like I was going to die. In the ambulance my BP was 188/116. After

nitro my BP did not drop at all. In the hospital I had several iv BB and more

nitro. The lowest my BP got was 150/90. I was realeased on more BB's. Then I had

an anaphylaxis reaction to one of those medications so found myself back in the

ccu of the hospital. NEVER could they get my BP lower than 150/110. But I was

realeased and referred to a nephro. That was 2 months ago and here I stand. She

has not said anything about any further testing. Should I ask her about it?

>> Cybil 36 y.o. female

>> Dashing

>> Low k,Mg,ca

>> Just dx with hyperaldo (she will not call it PA)

>>

>> Sent from my Verizon Wireless Phone

>>

>> <jclark24p@...> wrote:

>>

>> >I was wondering this too. Have they done a scan to see if you have a tumor?

If not they should because there is possibility (abet low) that it could be

malginant. They should also recheck it if you have one to ensure it is not

growing. Also, your doctor should give you all the options so you can decide

what is best for you, " wait and see " is not the best option if you are going to

consider it later because the chance of sucess is better the sooner you remove

it.

>> >

>> >

>> >> >

>> >> > I got my drug free test results back. Serum aldo 24 (0-30) Renin 0.11.

Urine aldo 47 (0-12). Nephro ordered spiro and says no more testing. Is that ok?

>> >> >

>> >> > Cybil. 5'11 208 lbs

>> >> > 36 y.o. female

>> >> > FINALLY dx with hyperaldosteronism (although dr. wouldn't go near PA)

>> >> > Low K+,CA, MG

>> >> > Dashing with all my heart and still losing wt!

>> >> > BP down to 140/90 consistently

>> >> >

>> >> > Sent from my Verizon Wireless Phone

>> >> >

>> >>

>> >

>> >

>>

[Guest guest]

Ah yes u can pay for your degree in Pakistan. Trust the fires missed u?May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Jun 17, 2012, at 19:26, 11981198 <val@...> wrote:

I was referred from a GP to an endocrinologist with raging BP about 200/100. It took two months to get into see her. When I told her about PA and Dr. Grim, she muttered something under her breath about "other patients." I honestly don't think she knew anything about PA prior to my mention. She gave me spiro, as I asked. When my heartbeaty went erratic (via my husband's listening), she called in Toprol. Never did she ever listen to my heart. Then, she referred me to a shrink. I don't believe I've ever seen a doctor more incredibly incompetent. She got her MD from the University of Lahore in Pakistan.ValFrom: Study Circle <studycircle@...>

"A physician who remains silent after two months about a patient in dire need of dx must be placed among jack asses for one whole year and fed the same food as asses..."

Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use

.

[Guest guest]

Endos don't listen to the heart. It is not an Endo organ except for ANP. THAT HAS TO DO with saleAnp has to do with salt. Most Endos don't know s about salt. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Jun 17, 2012, at 19:26, 11981198 <val@...> wrote:

I was referred from a GP to an endocrinologist with raging BP about 200/100. It took two months to get into see her. When I told her about PA and Dr. Grim, she muttered something under her breath about "other patients." I honestly don't think she knew anything about PA prior to my mention. She gave me spiro, as I asked. When my heartbeaty went erratic (via my husband's listening), she called in Toprol. Never did she ever listen to my heart. Then, she referred me to a shrink. I don't believe I've ever seen a doctor more incredibly incompetent. She got her MD from the University of Lahore in Pakistan.ValFrom: Study Circle <studycircle@...>

"A physician who remains silent after two months about a patient in dire need of dx must be placed among jack asses for one whole year and fed the same food as asses..."

Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use

.

[Guest guest]

I imagine not too many doctors of whatever specialty call in Toprol and propranolol without ever listening to one's heart.  She even asked me which one I wanted.  I went back to see her after I went to Mayo.  She couldn't find my electronic medical record so we visited a bit and I left.  Never went back.Val----- Original Message -----From: hyperaldosteronism  

Endos don't listen to the heart. It is not an Endo organ except for ANP. THAT HAS TO DO with saleAnp has to do with salt. Most Endos don't know s about salt. On Jun 17, 2012, at 19:26, 11981198 <val@...> wrote: 

I was referred from a GP to an endocrinologist with raging BP about 200/100.  It took two months to get into see her.  When I told her about PA and Dr. Grim, she muttered something under her breath about "other patients."  I honestly don't think she knew anything about PA prior to my mention.  She gave me spiro, as I asked.  When my heartbeaty went erratic (via my husband's listening), she called in Toprol.  Never did she ever listen to my heart.  Then, she referred me to a shrink.  I don't believe I've ever seen a doctor more incredibly incompetent.  She got her MD from the University of Lahore in Pakistan.ValFrom: Study Circle <studycircle@...>

 

"A physician who remains silent after two months about a patient in dire need of dx must be placed among jack asses for one whole year and fed the same food as asses..."

Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use

.

[Guest guest]

If we did this we would soon run out of food to feed them. I having to get a DX

for 6 years with no results. they are very good at running the same test over

and over but not very good of thinking what other tests to do.

>

> " A physician who remains silent after two months about a patient in dire need

of dx must be placed among jack asses for one whole year and fed the same food

as asses... " [Deut 123:202]

>

> |

> ..... But I was realeased and referred to a nephro. That was 2 months

> |ago and here I stand. She has not said anything about any further testing.

> |Should I ask her about it?

> |Cybil 36 y.o. female

> |Dashing

> |Low k,Mg,ca

> |Just dx with hyperaldo (she will not call it PA)

> |

>

[Guest guest]

Lisinopril gave me angioedema. In fact, I see a lot of

African-Americans coming into the ER with their tongues sticking out

of their mouths because of Lisinopril.

I have never seen a Caucasian react to Lisinopril. I mean get

angioedema where their tongue, lips and throat swell.

Phyllis

On 6/17/2012 8:44 PM, Cybil wrote:

The meds I was on before my anaphylaxis were as follows

Lisinopril 10 qd

Metoprolol 25 bid

Hctz 25

Ibuprofen 800 prn for back pain

After hospitalization

Hydrolazine 25 tid

Hctz 25

Zyrtec 10 qd

Clatiron 10 qd

Allegra 220 qd

Flonase

Advair

Sent from my Verizon Wireless Phone

Clarence Grim <lowerbp2@...>

wrote:

>With a negative CT assuming it was read correctly and

I have picked up missed one's by looking at the CT. Then I

recommend a trial of Spiro and DASH. READ my evolution

article now. Please give use names of all drugs. The

anaphylaxis most like due to an ACE. BUT we and your

family need the exact names. It is a matter of life and

death.

>

>

>

>May your pressure be low!

>

>CE Grim MS, MD

>Specializing in Difficult

>Hypertension

>

>On Jun 17, 2012, at 16:32, Cybil <cybil.baker@...>

wrote:

>

>> I have had a ct scan without contrast that was

negative. I have also had an ultrasound /doppler of the

kidneys. Nothing significant found there also. My story is

that after 2 years of high BP on hctz my pcp added an ACE.

I had an episode 1 week after starting that in which I got

really dizzy and light-headed and felt like I was going to

die. In the ambulance my BP was 188/116. After nitro my BP

did not drop at all. In the hospital I had several iv BB

and more nitro. The lowest my BP got was 150/90. I was

realeased on more BB's. Then I had an anaphylaxis reaction

to one of those medications so found myself back in the

ccu of the hospital. NEVER could they get my BP lower than

150/110. But I was realeased and referred to a nephro.

That was 2 months ago and here I stand. She has not said

anything about any further testing. Should I ask her about

it?

>> Cybil 36 y.o. female

>> Dashing

>> Low k,Mg,ca

>> Just dx with hyperaldo (she will not call it PA)

>>

>> Sent from my Verizon Wireless Phone

>>

>> <jclark24p@...>

wrote:

>>

>> >I was wondering this too. Have they done a

scan to see if you have a tumor? If not they should

because there is possibility (abet low) that it could be

malginant. They should also recheck it if you have one to

ensure it is not growing. Also, your doctor should give

you all the options so you can decide what is best for

you, "wait and see" is not the best option if you are

going to consider it later because the chance of sucess is

better the sooner you remove it.

>> >

>> >

>> >> >

>> >> > I got my drug free test results

back. Serum aldo 24 (0-30) Renin 0.11. Urine aldo 47

(0-12). Nephro ordered spiro and says no more testing. Is

that ok?

>> >> >

>> >> > Cybil. 5'11 208 lbs

>> >> > 36 y.o. female

>> >> > FINALLY dx with hyperaldosteronism

(although dr. wouldn't go near PA)

>> >> > Low K+,CA, MG

>> >> > Dashing with all my heart and still

losing wt!

>> >> > BP down to 140/90 consistently

>> >> >

>> >> > Sent from my Verizon Wireless Phone

>> >> >

>> >>

>> >

>> >

>>

[Guest guest]

The fires are about 45 miles away but we're keeping a careful watch on my son's house.That endo might have killed me had I not had Dr. Grim's wonderful advice about sodium.  When I got to Mayo (an awful experience), my urinary sodium was "too low to quantitate."  Dr. Young said he'd never seen sodium that low.  I would think an expert would have seen someone who controlled dietary sodium.Val----- Original Message -----From: hyperaldosteronism

Ah yes u can pay for your degree in Pakistan. Trust the fires missed u?On Jun 17, 2012, at 19:26, 11981198 <val@...> wrote: 

I was referred from a GP to an endocrinologist with raging BP about 200/100.  It took two months to get into see her.  When I told her about PA and Dr. Grim, she muttered something under her breath about "other patients."  I honestly don't think she knew anything about PA prior to my mention.  She gave me spiro, as I asked.  When my heartbeaty went erratic (via my husband's listening), she called in Toprol.  Never did she ever listen to my heart.  Then, she referred me to a shrink.  I don't believe I've ever seen a doctor more incredibly incompetent.  She got her MD from the University of Lahore in Pakistan.ValFrom: Study Circle <studycircle@...>

 

"A physician who remains silent after two months about a patient in dire need of dx must be placed among jack asses for one whole year and fed the same food as asses..."

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.

[Guest guest]

Our astute group here ferreted out a biblical quote hoax here. May Deuteronomy 28:27 come to the perp.;-) English Standard Version (ESV)27 The Lord will strike you with the boils of Egypt, and with tumors and scabs and itch, of which you cannot be healed.May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Jun 17, 2012, at 21:34, Francis Bill SUSPECTED PA <georgewbill@...> wrote:

If we did this we would soon run out of food to feed them. I having to get a DX for 6 years with no results. they are very good at running the same test over and over but not very good of thinking what other tests to do.

>

> "A physician who remains silent after two months about a patient in dire need of dx must be placed among jack asses for one whole year and fed the same food as asses..." [Deut 123:202]

>

> |

> ..... But I was realeased and referred to a nephro. That was 2 months

> |ago and here I stand. She has not said anything about any further testing.

> |Should I ask her about it?

> |Cybil 36 y.o. female

> |Dashing

> |Low k,Mg,ca

> |Just dx with hyperaldo (she will not call it PA)

> |

>