Heard back from NIH RE: trial - they say it's secondary not primary...

[Guest guest]

Hi,

So I have been corresponding with Dr. L at NIH about joining their trial for

primary hyperaldosteronism. They have reviewed my films and labs and came back

on Friday and said I am ineligible because they believe I have secondary

hyperaldosteronism. He said that despite the fact that I have an adrenal adenoma

and high aldosterone, my renin is too high for it to be primary. I am so

confused. He said there is another trial they might like to enroll me in and

that the cause of my disease may be genetic. I am so frustrated/worried now

because I thought I was close to getting answers. Does anyone know what the

workup for secondary might involve?? I am just trying to ease my nerves - the

internet can be a scary place when you are looking for medical info Thanks!!!

-D