Guest guest Posted June 15, 2012 Report Share Posted June 15, 2012 And remember you are always an experiment of one. So tell your team if not feeling well and how you are not feeling well. That is the only way they will know.On Jun 15, 2012, at 8:57 PM, msmith_1928 wrote: Bystolic is a beta blocker - many BBs tend to have the "makes you feel like a slug" side effect. Before learning I had PA, I briefly took Bystolic and felt terrible. I can't advise you whether or not to stop it, but based on my own "experiment of one," I will say that it doesn't work for PA. -msmith1928 Left laparoscopic adrenalectomy 10/13/11 > > Hi everyone. Still waiting for my second blood test to come in to confirm high ratio, low renin. > > For the mean time I am on Nefidipine 30mg and bystolic 5mg. > I noticed that for now it keeps my pressure lower most of the time I have days where my pressure is 175/110 for a few hours and other days where my pressure is 98/58 and I feel like a slug. > Seems there is no rhyme or reason to it. > I want to stop taking it for a few days. I've noticed some unpleasant side affects.... racing heart, anxious, sweating, constipation (thats embarrassing but VERY true) > > is it okay if I just stop taking it for now?.... I've been on them only for 2 weeks. I have an appt. with the Neph on Wed. to go over my blood work and hopefully schedule my saline suppression test.... and i'll make sure to bring this up with him then. but I just DREAD taking those silly pills tonight! > I plan on calling my cardiologist on Monday morning.... > > > 38 yrs female > Renin0.14 low, Aldo ratio 107.1 high (may 9th bloodwork 10am) > nefidipine 30mg (been on for 2 weeks) > Bystolic 5mg (been on it for 4 weeks) > CT scan (normal for now) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2012 Report Share Posted June 15, 2012 Fingers crossed. But tell team how you feel. CE Grim MDOn Jun 15, 2012, at 10:07 PM, catherinekerth1 wrote: I asked the Dr. if they were okay and he didn't seem too concerned about it. I guess we will see on Wed. when the results come back. > > > > Hi everyone. Still waiting for my second blood test to come in to confirm high ratio, low renin. > > > > For the mean time I am on Nefidipine 30mg and bystolic 5mg. > > I noticed that for now it keeps my pressure lower most of the time I have days where my pressure is 175/110 for a few hours and other days where my pressure is 98/58 and I feel like a slug. > > Seems there is no rhyme or reason to it. > > I want to stop taking it for a few days. I've noticed some unpleasant side affects.... racing heart, anxious, sweating, constipation (thats embarrassing but VERY true) > > > > is it okay if I just stop taking it for now?.... I've been on them only for 2 weeks. I have an appt. with the Neph on Wed. to go over my blood work and hopefully schedule my saline suppression test.... and i'll make sure to bring this up with him then. but I just DREAD taking those silly pills tonight! > > I plan on calling my cardiologist on Monday morning.... > > > > > > 38 yrs female > > Renin0.14 low, Aldo ratio 107.1 high (may 9th bloodwork 10am) > > nefidipine 30mg (been on for 2 weeks) > > Bystolic 5mg (been on it for 4 weeks) > > CT scan (normal for now) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2012 Report Share Posted June 15, 2012 Have you read my evolution of PA article which explains why these meds don't work well in PA and take article to your team so they will also understand.CE Grim MDOn Jun 15, 2012, at 10:11 PM, catherinekerth1 wrote: I can't remember all the stuff I've been on for the past 6 years, but it does seem BP meds definitely treat PA people differently. doesn't really help them at all, like they help others....Just seems there is complaint after complaint, and in the end they all stop working... thanks for confirming the sluggish-ness. its ridiculous some days. and the dizzy spells are the worst. i've been having them for 8 months now, but I think the bystolic def. makes them more frequent too. > > > > Hi everyone. Still waiting for my second blood test to come in to confirm high ratio, low renin. > > > > For the mean time I am on Nefidipine 30mg and bystolic 5mg. > > I noticed that for now it keeps my pressure lower most of the time I have days where my pressure is 175/110 for a few hours and other days where my pressure is 98/58 and I feel like a slug. > > Seems there is no rhyme or reason to it. > > I want to stop taking it for a few days. I've noticed some unpleasant side affects.... racing heart, anxious, sweating, constipation (thats embarrassing but VERY true) > > > > is it okay if I just stop taking it for now?.... I've been on them only for 2 weeks. I have an appt. with the Neph on Wed. to go over my blood work and hopefully schedule my saline suppression test.... and i'll make sure to bring this up with him then. but I just DREAD taking those silly pills tonight! > > I plan on calling my cardiologist on Monday morning.... > > > > > > 38 yrs female > > Renin0.14 low, Aldo ratio 107.1 high (may 9th bloodwork 10am) > > nefidipine 30mg (been on for 2 weeks) > > Bystolic 5mg (been on it for 4 weeks) > > CT scan (normal for now) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2012 Report Share Posted June 15, 2012 Yes many physicians who I have asked to read it need to do it more than once.CE Grim MDOn Jun 15, 2012, at 10:32 PM, catherinekerth1 wrote: I read it yesterday and again tonight. I have to admit a few things went over my head but it sunk in the third time I read it thanks, makes perfect sense! > > > > > > > > Hi everyone. Still waiting for my second blood test to come in > > to confirm high ratio, low renin. > > > > > > > > For the mean time I am on Nefidipine 30mg and bystolic 5mg. > > > > I noticed that for now it keeps my pressure lower most of the > > time I have days where my pressure is 175/110 for a few hours and > > other days where my pressure is 98/58 and I feel like a slug. > > > > Seems there is no rhyme or reason to it. > > > > I want to stop taking it for a few days. I've noticed some > > unpleasant side affects.... racing heart, anxious, sweating, > > constipation (thats embarrassing but VERY true) > > > > > > > > is it okay if I just stop taking it for now?.... I've been on > > them only for 2 weeks. I have an appt. with the Neph on Wed. to go > > over my blood work and hopefully schedule my saline suppression > > test.... and i'll make sure to bring this up with him then. but I > > just DREAD taking those silly pills tonight! > > > > I plan on calling my cardiologist on Monday morning.... > > > > > > > > > > > > 38 yrs female > > > > Renin0.14 low, Aldo ratio 107.1 high (may 9th bloodwork 10am) > > > > nefidipine 30mg (been on for 2 weeks) > > > > Bystolic 5mg (been on it for 4 weeks) > > > > CT scan (normal for now) > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2012 Report Share Posted June 15, 2012 DASHing and MCBs help many here.CE Grim MDOn Jun 15, 2012, at 10:36 PM, catherinekerth1 wrote: Is it a little wrong to hope for the blood work to come back all screwy again? selfish and strange i know....but then they can fix me I'll be like new again with the right treatment! > > > > > > > > Hi everyone. Still waiting for my second blood test to come in > > to confirm high ratio, low renin. > > > > > > > > For the mean time I am on Nefidipine 30mg and bystolic 5mg. > > > > I noticed that for now it keeps my pressure lower most of the > > time I have days where my pressure is 175/110 for a few hours and > > other days where my pressure is 98/58 and I feel like a slug. > > > > Seems there is no rhyme or reason to it. > > > > I want to stop taking it for a few days. I've noticed some > > unpleasant side affects.... racing heart, anxious, sweating, > > constipation (thats embarrassing but VERY true) > > > > > > > > is it okay if I just stop taking it for now?.... I've been on > > them only for 2 weeks. I have an appt. with the Neph on Wed. to go > > over my blood work and hopefully schedule my saline suppression > > test.... and i'll make sure to bring this up with him then. but I > > just DREAD taking those silly pills tonight! > > > > I plan on calling my cardiologist on Monday morning.... > > > > > > > > > > > > 38 yrs female > > > > Renin0.14 low, Aldo ratio 107.1 high (may 9th bloodwork 10am) > > > > nefidipine 30mg (been on for 2 weeks) > > > > Bystolic 5mg (been on it for 4 weeks) > > > > CT scan (normal for now) > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2012 Report Share Posted June 15, 2012 Check BP before and about 2 hrs after each to see what is happening.CE Grim MDOn Jun 15, 2012, at 10:39 PM, catherinekerth1 wrote: oh, they told me when prescribing i can take them how i like. i just started taking them together b/c its hard for me to remember to take pills every 12 hrs. > > > > > > > > > Hi everyone. Still waiting for my second blood test to come in to > > > confirm high ratio, low renin. > > > > > > For the mean time I am on Nefidipine 30mg and bystolic 5mg. > > > I noticed that for now it keeps my pressure lower most of the time I > > > have days where my pressure is 175/110 for a few hours and other > > > days where my pressure is 98/58 and I feel like a slug. > > > Seems there is no rhyme or reason to it. > > > I want to stop taking it for a few days. I've noticed some > > > unpleasant side affects.... racing heart, anxious, sweating, > > > constipation (thats embarrassing but VERY true) > > > > > > is it okay if I just stop taking it for now?.... I've been on them > > > only for 2 weeks. I have an appt. with the Neph on Wed. to go over > > > my blood work and hopefully schedule my saline suppression test.... > > > and i'll make sure to bring this up with him then. but I just DREAD > > > taking those silly pills tonight! > > > I plan on calling my cardiologist on Monday morning.... > > > > > > > > > 38 yrs female > > > Renin0.14 low, Aldo ratio 107.1 high (may 9th bloodwork 10am) > > > nefidipine 30mg (been on for 2 weeks) > > > Bystolic 5mg (been on it for 4 weeks) > > > CT scan (normal for now) > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2012 Report Share Posted June 16, 2012 Yes. Big brain fog. My husband is a patient man I am always " out of it " To: hyperaldosteronism From: georgewbill@...Date: Sat, 16 Jun 2012 12:48:54 +0000Subject: Re: BP meds advice Do you have brain fog? --- In hyperaldosteronism , " catherinekerth1 " <catherinekerth@...> wrote: > > I can't remember all the stuff I've been on for the past 6 years, but it does seem BP meds definitely treat PA people differently. doesn't really help them at all, like they help others....Just seems there is complaint after complaint, and in the end they all stop working... thanks for confirming the sluggish-ness. its ridiculous some days. and the dizzy spells are the worst. i've been having them for 8 months now, but I think the bystolic def. makes them more frequent too. > > --- In hyperaldosteronism , " msmith_1928 " <janeray1940@> wrote: > > > > Bystolic is a beta blocker - many BBs tend to have the " makes you feel like a slug " side effect. Before learning I had PA, I briefly took Bystolic and felt terrible. I can't advise you whether or not to stop it, but based on my own " experiment of one, " I will say that it doesn't work for PA. > > > > -msmith1928 > > Left laparoscopic adrenalectomy 10/13/11 > > > > --- In hyperaldosteronism , " catherinekerth1 " <catherinekerth@> wrote: > > > > > > Hi everyone. Still waiting for my second blood test to come in to confirm high ratio, low renin. > > > > > > For the mean time I am on Nefidipine 30mg and bystolic 5mg. > > > I noticed that for now it keeps my pressure lower most of the time I have days where my pressure is 175/110 for a few hours and other days where my pressure is 98/58 and I feel like a slug. > > > Seems there is no rhyme or reason to it. > > > I want to stop taking it for a few days. I've noticed some unpleasant side affects.... racing heart, anxious, sweating, constipation (thats embarrassing but VERY true) > > > > > > is it okay if I just stop taking it for now?.... I've been on them only for 2 weeks. I have an appt. with the Neph on Wed. to go over my blood work and hopefully schedule my saline suppression test.... and i'll make sure to bring this up with him then. but I just DREAD taking those silly pills tonight! > > > I plan on calling my cardiologist on Monday morning.... > > > > > > > > > 38 yrs female > > > Renin0.14 low, Aldo ratio 107.1 high (may 9th bloodwork 10am) > > > nefidipine 30mg (been on for 2 weeks) > > > Bystolic 5mg (been on it for 4 weeks) > > > CT scan (normal for now) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2012 Report Share Posted June 16, 2012 Can you describe what brain fog means to you. Thanks. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Jun 16, 2012, at 10:51, Kerth <catherinekerth@...> wrote: Yes. Big brain fog. My husband is a patient man I am always "out of it" hyperaldosteronism From: georgewbill@...Date: Sat, 16 Jun 2012 12:48:54 +0000Subject: Re: BP meds advice Do you have brain fog? > > > > > > Hi everyone. Still waiting for my second blood test to come in to confirm high ratio, low renin. > > > > > > For the mean time I am on Nefidipine 30mg and bystolic 5mg. > > > I noticed that for now it keeps my pressure lower most of the time I have days where my pressure is 175/110 for a few hours and other days where my pressure is 98/58 and I feel like a slug. > > > Seems there is no rhyme or reason to it. > > > I want to stop taking it for a few days. I've noticed some unpleasant side affects.... racing heart, anxious, sweating, constipation (thats embarrassing but VERY true) > > > > > > is it okay if I just stop taking it for now?.... I've been on them only for 2 weeks. I have an appt. with the Neph on Wed. to go over my blood work and hopefully schedule my saline suppression test.... and i'll make sure to bring this up with him then. but I just DREAD taking those silly pills tonight! > > > I plan on calling my cardiologist on Monday morning.... > > > > > > > > > 38 yrs female > > > Renin0.14 low, Aldo ratio 107.1 high (may 9th bloodwork 10am) > > > nefidipine 30mg (been on for 2 weeks) > > > Bystolic 5mg (been on it for 4 weeks) > > > CT scan (normal for now) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2012 Report Share Posted June 16, 2012 I'm slow on comprehension. I have to ask my husband to repeat himself . Others too. That's been going on since before Christmas.Not quick to react to things..General space cadet ;)To: hyperaldosteronism From: lowerbp2@...Date: Sat, 16 Jun 2012 17:11:05 -0500Subject: Re: Re: BP meds advice Can you describe what brain fog means to you. Thanks. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Jun 16, 2012, at 10:51, Kerth <catherinekerth@...> wrote: Yes. Big brain fog. My husband is a patient man I am always " out of it " To: hyperaldosteronism From: georgewbill@...Date: Sat, 16 Jun 2012 12:48:54 +0000Subject: Re: BP meds advice Do you have brain fog? --- In hyperaldosteronism , " catherinekerth1 " <catherinekerth@...> wrote: > > I can't remember all the stuff I've been on for the past 6 years, but it does seem BP meds definitely treat PA people differently. doesn't really help them at all, like they help others....Just seems there is complaint after complaint, and in the end they all stop working... thanks for confirming the sluggish-ness. its ridiculous some days. and the dizzy spells are the worst. i've been having them for 8 months now, but I think the bystolic def. makes them more frequent too. > > --- In hyperaldosteronism , " msmith_1928 " <janeray1940@> wrote: > > > > Bystolic is a beta blocker - many BBs tend to have the " makes you feel like a slug " side effect. Before learning I had PA, I briefly took Bystolic and felt terrible. I can't advise you whether or not to stop it, but based on my own " experiment of one, " I will say that it doesn't work for PA. > > > > -msmith1928 > > Left laparoscopic adrenalectomy 10/13/11 > > > > --- In hyperaldosteronism , " catherinekerth1 " <catherinekerth@> wrote: > > > > > > Hi everyone. Still waiting for my second blood test to come in to confirm high ratio, low renin. > > > > > > For the mean time I am on Nefidipine 30mg and bystolic 5mg. > > > I noticed that for now it keeps my pressure lower most of the time I have days where my pressure is 175/110 for a few hours and other days where my pressure is 98/58 and I feel like a slug. > > > Seems there is no rhyme or reason to it. > > > I want to stop taking it for a few days. I've noticed some unpleasant side affects.... racing heart, anxious, sweating, constipation (thats embarrassing but VERY true) > > > > > > is it okay if I just stop taking it for now?.... I've been on them only for 2 weeks. I have an appt. with the Neph on Wed. to go over my blood work and hopefully schedule my saline suppression test.... and i'll make sure to bring this up with him then. but I just DREAD taking those silly pills tonight! > > > I plan on calling my cardiologist on Monday morning.... > > > > > > > > > 38 yrs female > > > Renin0.14 low, Aldo ratio 107.1 high (may 9th bloodwork 10am) > > > nefidipine 30mg (been on for 2 weeks) > > > Bystolic 5mg (been on it for 4 weeks) > > > CT scan (normal for now) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2012 Report Share Posted June 16, 2012 And does it vary with you K?CE Grim MDOn Jun 16, 2012, at 8:34 PM, Kerth wrote: I'm slow on comprehension. I have to ask my husband to repeat himself . Others too. That's been going on since before Christmas.Not quick to react to things..General space cadet hyperaldosteronism From: lowerbp2@...Date: Sat, 16 Jun 2012 17:11:05 -0500Subject: Re: Re: BP meds advice Can you describe what brain fog means to you. Thanks. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Jun 16, 2012, at 10:51, Kerth <catherinekerth@...> wrote: Yes. Big brain fog. My husband is a patient man I am always "out of it" hyperaldosteronism From: georgewbill@...Date: Sat, 16 Jun 2012 12:48:54 +0000Subject: Re: BP meds advice Do you have brain fog? > > > > > > Hi everyone. Still waiting for my second blood test to come in to confirm high ratio, low renin. > > > > > > For the mean time I am on Nefidipine 30mg and bystolic 5mg. > > > I noticed that for now it keeps my pressure lower most of the time I have days where my pressure is 175/110 for a few hours and other days where my pressure is 98/58 and I feel like a slug. > > > Seems there is no rhyme or reason to it. > > > I want to stop taking it for a few days. I've noticed some unpleasant side affects.... racing heart, anxious, sweating, constipation (thats embarrassing but VERY true) > > > > > > is it okay if I just stop taking it for now?.... I've been on them only for 2 weeks. I have an appt. with the Neph on Wed. to go over my blood work and hopefully schedule my saline suppression test.... and i'll make sure to bring this up with him then. but I just DREAD taking those silly pills tonight! > > > I plan on calling my cardiologist on Monday morning.... > > > > > > > > > 38 yrs female > > > Renin0.14 low, Aldo ratio 107.1 high (may 9th bloodwork 10am) > > > nefidipine 30mg (been on for 2 weeks) > > > Bystolic 5mg (been on it for 4 weeks) > > > CT scan (normal for now) > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.