RE: Melinda & Marly [5 Attachments]

[Guest guest]

Fabulous! Im so glad that ISOP/CAST were there for you in

time of need. Stories like Marly’s are why ISOP/CAST were created,

so this makes me very happy. Im very grateful to parents like you Melinda

and am honoured to be a small part of Marlys life journey. This is what

its all about and I thank you for spreading awareness, raising funds for the

Shriners (who need it bad) and are treating our children, and just being a

scoli advocate. I think you and would make a fabulous team.

She is in Philly, is dedicated to the Shriners and scoli awareness/advocacy and

a real dynamo. I’ll send you her contact info privately if you’re

interested in networking w/ her. Together you 2 would just take it

over!

Thanks hon…

HRH

From:

infantile scoliosis treatment

[mailto:infantile scoliosis treatment ] On Behalf Of Melinda Lee

Sent: Tuesday, June 08, 2010 7:30 PM

infantile scoliosis treatment

Subject: Re: Melinda & Marly [5 Attachments]

[Attachment(s) from Melinda Lee included

below]

,

No

words can explain how greatful I am to you and this group. Everyone here had a

hand in educating me on infantile scoliosis and urged me NOT TO WAIT! As

I said before, I know I dont respond much in posts, but my days and my girls

are so busy, its very difficult to get anything done! But please know, that I

do read keep up on posts and you guys are always in my thoughts. This

group is who helped me get thru the beginning when it was all such a whirlwind,

answered all of my questions, and educated me, and of course, if not for you,

where would we be?! So for that, I will always be greatful!!

We

are going to try to make " Marly Party " and annual event b/c it was

such a huge success. So many people came out, we got loads of donations, and we

need to continue awareness. I attached the flyer we made for the benefit and

some pics from it too.

Talk

to everyone soon!

Melinda

-----

Original Message -----

From: heather@...

infantile scoliosis treatment

Sent: Tuesday, June 08,

2010 8:30 PM

Subject: Re:

Melinda & Marly

Melinda,

I had no idea Marly was going through so much.....And, to accomplish this

while trying to help her! AMAZING! There is no doubt that your efforts

have helped many children. Im blown away really...I cant wait to see the

news coverage! And, I bet the Shriners will do a write up on the event as

well. I wish I could hug you right now. You are an amazing woman

Melinda. This is not easy, but you did it anyway. Good on you scoli

sista!

If you ever do it again , let us know. I'de like to help.

Sincerely,

HRH

> Hi all,

> I havent posted in a long time but I try to keep up on posts! I've been

> extremly busy with Marly who's 1 and 1/2 and Natalya whos 2 and 1/2! They

> are non-stop. Plus Marly's been having alot of issues along with the

> scoliosis, she was thorwing up every day, losing weight, had to see a

> pediatric GI. Then she had a vaginal protrusion and they didnt know if it

> was one og her organs (bladder, uterus, etc) so she had to see a pediatric

> urologist. Everything seems to be ok now, their just keeping an eye on

> everything. I've also been busy coordinating a benefit in honor of

> Marlycia, which took place yesterday.

> asked me to update everyone here on CAST.

> All the proceeds r going to Shriners in Philadelphia (where Marly is

> treated). I handed out ISOP brochures and explained what they did and how

> much of an impact has had on getting Mehta method casting here!!

> We raised $4000 and we were able to get live news coverage. The news aired

> it three times already since last night and I was able to explain the

> seriousness of PIS and how it affects these babies, the treatments, and

> how we need to spread awareness. I told them too many people know nothing

> about it (including the medical community)or dont know how life-threating

> it can be and how early treatment is the best. I made a huge poster with

> her pics in cast, xrays, after OR, etc and the news aired her x-rays and

> pics of her in cast so people can see with their own eyes what these

> babies bones look like. Hopefully with all the people at the benefit and

> it being on the news, this area will be better educated on it now and

> maybe someone elses baby will be helped!

> Talk to everyone soon

>

> Melinda

> Mommy of Marlycia 17 mnths, Natalya 2.5 yrs

> Scranton, PA

>

> wanted me to let everyone know that I

>

>