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If anyone can help clarify something for me that would be fantastic. I'm in the

process of my 4th 24 hour urine. During the last two months I have had high

serum aldosterone and high urine aldosterone. Low K+,Mg, CA. The most

bothersome symptom right now for me (besides the uncontrolled BP) are attacks

similiar to those for pheocrytocomia. During some of my testing my

catacholemines were elevated, but my nephro said not elevated enough to worry

about. Can hyperaldo cause these same sort of symptom s: pallor,headache,

anxiety, sky high BP? These attacks are debilitating and scary. My nephro told

me if this last testing is positive for aldo she will change my meds...possibly

try aldactone. Anyone here have symptoms similar? I do not want to be

prescribed a benzo for anxiety attacks. Also, CT was negative but echo showed

significant LVH.

Cybil -36 y.o. female with no real diagnosis of anything but HTN at this time.

Sent from my Verizon Wireless Phone

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Hi Cybal;

I understand what you are going through, and many on this board can relate.

Yes, you can have all those symptoms with PA. I was tested twice for pheo, but

it turned out to be PA. The very best thing you can do to help control your

symptoms and your blood pressure is to start eating DASH diet (get the book by

T. on low salt/ high potassium). I am amazed at how eating this way has

taken away so many symptoms, especially jittery/ adrenaline rush feelings I was

having. Of course everyone is different, but I turned around quite quickly with

the DASH diet.

Please include all drugs you are on under your signature. Also, make sure your

24h testing follows Dr. Grim's protocol. Those tests are not cheap and you

don't want to have to do a 5th one if you don't need to.

>

> If anyone can help clarify something for me that would be fantastic. I'm in

the process of my 4th 24 hour urine. During the last two months I have had high

serum aldosterone and high urine aldosterone. Low K+,Mg, CA. The most

bothersome symptom right now for me (besides the uncontrolled BP) are attacks

similiar to those for pheocrytocomia. During some of my testing my

catacholemines were elevated, but my nephro said not elevated enough to worry

about. Can hyperaldo cause these same sort of symptom s: pallor,headache,

anxiety, sky high BP? These attacks are debilitating and scary. My nephro told

me if this last testing is positive for aldo she will change my meds...possibly

try aldactone. Anyone here have symptoms similar? I do not want to be

prescribed a benzo for anxiety attacks. Also, CT was negative but echo showed

significant LVH.

> Cybil -36 y.o. female with no real diagnosis of anything but HTN at this time.

>

> Sent from my Verizon Wireless Phone

>

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Those things are pretty classic for PA as we can all vouch for. There's of course some variance given we're all individuals, but the things you describe are some of the most common to all of us.

There are some good studies and research on aldosterone and anxiety, but from my personal experience and many others on here, if there is no co-exisiting condition, then the issue causing the bulk of it is the low potassium that kick starts these symptoms, and if a low K likely a low magnesium too. Docs and others discount the potassium but it is an electrolyte invilved in every single aspect of your body. They will brush aside a "borderline" potassium and often it may be very low and not borderline because they do not test it right alot of the time (look back in our files and there is one telling you how to get it done right).

But many of us on here can surely tell you a borderline is not so borderline and we feel the symptoms - anxiety was a big one for me and it got better when my potassium was fixed, and then got even better after I started taking magnesium.

And the chance of a pheo is almost zero (literally). They tend to fixate on a pheo, I am not sure why they fixate to such a degree, but it does have to be ruled out, but I would bet you do not have a pheo as they ARE that rare

From: Cybil <cybil.baker@...>Subject: I'm confused....hyperaldosteronism Date: Wednesday, June 6, 2012, 5:06 PM

If anyone can help clarify something for me that would be fantastic. I'm in the process of my 4th 24 hour urine. During the last two months I have had high serum aldosterone and high urine aldosterone. Low K+,Mg, CA. The most bothersome symptom right now for me (besides the uncontrolled BP) are attacks similiar to those for pheocrytocomia. During some of my testing my catacholemines were elevated, but my nephro said not elevated enough to worry about. Can hyperaldo cause these same sort of symptom s: pallor,headache, anxiety, sky high BP? These attacks are debilitating and scary. My nephro told me if this last testing is positive for aldo she will change my meds...possibly try aldactone. Anyone here have symptoms similar? I do not want to be prescribed a benzo for anxiety attacks. Also, CT was negative but echo showed significant LVH.Cybil -36 y.o. female with no real diagnosis of anything but HTN at this time.Sent from my Verizon

Wireless Phone

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The better you DASH the better you will feel and less meds you will need.Keep us posted on BP and weight.CE Grim MDOn Jun 6, 2012, at 5:43 PM, Cybil wrote: I don't dash well but I'm trying. We are following Dr. G's testing advice so right now I'm not on anything! I was on 50 Mg of hydrolazine tid and 25 of hctz two weeks ago. Sent from my Verizon Wireless Phone dsmemory <dsmemory@...> wrote: > >Hi Cybal; > >I understand what you are going through, and many on this board can relate. Yes, you can have all those symptoms with PA. I was tested twice for pheo, but it turned out to be PA. The very best thing you can do to help control your symptoms and your blood pressure is to start eating DASH diet (get the book by T. on low salt/ high potassium). I am amazed at how eating this way has taken away so many symptoms, especially jittery/ adrenaline rush feelings I was having. Of course everyone is different, but I turned around quite quickly with the DASH diet. > >Please include all drugs you are on under your signature. Also, make sure your 24h testing follows Dr. Grim's protocol. Those tests are not cheap and you don't want to have to do a 5th one if you don't need to. > > > > > >> >> If anyone can help clarify something for me that would be fantastic. I'm in the process of my 4th 24 hour urine. During the last two months I have had high serum aldosterone and high urine aldosterone. Low K+,Mg, CA. The most bothersome symptom right now for me (besides the uncontrolled BP) are attacks similiar to those for pheocrytocomia. During some of my testing my catacholemines were elevated, but my nephro said not elevated enough to worry about. Can hyperaldo cause these same sort of symptom s: pallor,headache, anxiety, sky high BP? These attacks are debilitating and scary. My nephro told me if this last testing is positive for aldo she will change my meds...possibly try aldactone. Anyone here have symptoms similar? I do not want to be prescribed a benzo for anxiety attacks. Also, CT was negative but echo showed significant LVH. >> Cybil -36 y.o. female with no real diagnosis of anything but HTN at this time. >> >> Sent from my Verizon Wireless Phone >> > >

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and your renin each time was?On Jun 6, 2012, at 5:06 PM, Cybil wrote: If anyone can help clarify something for me that would be fantastic. I'm in the process of my 4th 24 hour urine. During the last two months I have had high serum aldosterone and high urine aldosterone. Low K+,Mg, CA. The most bothersome symptom right now for me (besides the uncontrolled BP) are attacks similiar to those for pheocrytocomia. During some of my testing my catacholemines were elevated, but my nephro said not elevated enough to worry about. Can hyperaldo cause these same sort of symptom s: pallor,headache, anxiety, sky high BP? These attacks are debilitating and scary. My nephro told me if this last testing is positive for aldo she will change my meds...possibly try aldactone. Anyone here have symptoms similar? I do not want to be prescribed a benzo for anxiety attacks. Also, CT was negative but echo showed significant LVH. Cybil -36 y.o. female with no real diagnosis of anything but HTN at this time. Sent from my Verizon Wireless Phone

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Labs with dates.

Renin Activity

Adult Normal Salt Intake:

Upright 1.31-3.95

Supine 0.15-2.33

Salt Excretion

(Na mEq/24 hr):

Na=0-30 8.82-23.86

Na= 30-75 4.09-7.73

Na= 75-150 1.44-2.80

Na= >150 0.39-1.31

My values: 3/20/2012- 6.08

4/3/2012- 7.45

4/28/2012- 1.91

Aldosterone 0-30.0

My values: 3/20/2012 94.3

4/3/2012 23.0

4/3/2012 24.0

Aldosterone 24 hr urine

Low sodium intake 20-80

Normal sodium intake 0-19

High sodium intake 0-12

My values: 3/27/2012 15.2 (on high sodium diet)

4/18/2012 42.27 (on normal sodium diet)

4/28/2012 12,81 (on oral salt load 5000mg salt intake for 3 days)

All these labs were done while I was on HCTZ.

Just handed in my last 24 hour urine which I have been med-free for over 2 weeks. Will be excited to see the next results!

From: Clarence Grim <lowerbp2@...>hyperaldosteronism Cc: Clarence Grim <lowerbp2@...> Sent: Thursday, June 7, 2012 12:18 PMSubject: Re: I'm confused....

and your renin each time was?

On Jun 6, 2012, at 5:06 PM, Cybil wrote:

If anyone can help clarify something for me that would be fantastic. I'm in the process of my 4th 24 hour urine. During the last two months I have had high serum aldosterone and high urine aldosterone. Low K+,Mg, CA. The most bothersome symptom right now for me (besides the uncontrolled BP) are attacks similiar to those for pheocrytocomia. During some of my testing my catacholemines were elevated, but my nephro said not elevated enough to worry about. Can hyperaldo cause these same sort of symptom s: pallor,headache, anxiety, sky high BP? These attacks are debilitating and scary. My nephro told me if this last testing is positive for aldo she will change my meds...possibly try aldactone. Anyone here have symptoms similar? I do not want to be prescribed a benzo for anxiety attacks. Also, CT was negative but echo showed significant LVH.Cybil -36 y.o. female with no real diagnosis of anything but HTN at this time.Sent from my Verizon

Wireless Phone

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Of course your team realizes that doing this on HCTZ messes everything up?Unless they have normal values on HCTZ that they use for comparison.Were you on any other drugs or other stuff at any of the testing times. CE Grim MDOn Jun 7, 2012, at 2:16 PM, Cybil Baker wrote: Labs with dates. Renin Activity Adult Normal Salt Intake: Upright 1.31-3.95 Supine 0.15-2.33 Salt Excretion (Na mEq/24 hr): Na=0-30 8.82-23.86 Na= 30-75 4.09-7.73 Na= 75-150 1.44-2.80 Na= >150 0.39-1.31 My values: 3/20/2012- 6.08 4/3/2012- 7.45 4/28/2012- 1.91 Aldosterone 0-30.0 My values: 3/20/2012 94.3 4/3/2012 23.0 4/3/2012 24.0 Aldosterone 24 hr urine Low sodium intake 20-80 Normal sodium intake 0-19 High sodium intake 0-12 My values: 3/27/2012 15.2 (on high sodium diet) 4/18/2012 42.27 (on normal sodium diet) 4/28/2012 12,81 (on oral salt load 5000mg salt intake for 3 days) All these labs were done while I was on HCTZ. Just handed in my last 24 hour urine which I have been med-free for over 2 weeks. Will be excited to see the next results! From: Clarence Grim <lowerbp2@...>hyperaldosteronism Cc: Clarence Grim <lowerbp2@...> Sent: Thursday, June 7, 2012 12:18 PMSubject: Re: I'm confused.... and your renin each time was? On Jun 6, 2012, at 5:06 PM, Cybil wrote: If anyone can help clarify something for me that would be fantastic. I'm in the process of my 4th 24 hour urine. During the last two months I have had high serum aldosterone and high urine aldosterone. Low K+,Mg, CA. The most bothersome symptom right now for me (besides the uncontrolled BP) are attacks similiar to those for pheocrytocomia. During some of my testing my catacholemines were elevated, but my nephro said not elevated enough to worry about. Can hyperaldo cause these same sort of symptom s: pallor,headache, anxiety, sky high BP? These attacks are debilitating and scary. My nephro told me if this last testing is positive for aldo she will change my meds...possibly try aldactone. Anyone here have symptoms similar? I do not want to be prescribed a benzo for anxiety attacks. Also, CT was negative but echo showed significant LVH.Cybil -36 y.o. female with no real diagnosis of anything but HTN at this time.Sent from my Verizon Wireless Phone

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I'm not really sure what my nephrologist knows to be honest. And I dont mean

to be crass. Last time I saw her my BP was 151/116. I was on 25 hydrolazine

and 25 hctz. I asked her about the dash diet and she told me I shouldn't do

anything that drastic!!! As I have stated before I'm so confused! If at 36 I

already have significant LVH shouldn't she be more concerned about controlling

my BP?

I am 5'11 and weigh 217.

Sent from my Verizon Wireless Phone

Clarence Grim <lowerbp2@...> wrote:

>Of course your team realizes that doing this on HCTZ messes everything

>up?

>

>Unless they have normal values on HCTZ that they use for comparison.

>

>Were you on any other drugs or other stuff at any of the testing times.

>

>

>

>CE Grim MD

>On Jun 7, 2012, at 2:16 PM, Cybil Baker wrote:

>

>>

>> Labs with dates.

>>

>> Renin Activity

>> Adult Normal Salt Intake:

>> Upright 1.31-3.95

>> Supine 0.15-2.33

>> Salt Excretion

>> (Na mEq/24 hr):

>> Na=0-30 8.82-23.86

>> Na= 30-75 4.09-7.73

>> Na= 75-150 1.44-2.80

>> Na= >150 0.39-1.31

>> My values: 3/20/2012- 6.08

>> 4/3/2012- 7.45

>> 4/28/2012- 1.91

>>

>> Aldosterone 0-30.0

>> My values: 3/20/2012 94.3

>> 4/3/2012 23.0

>> 4/3/2012 24.0

>>

>> Aldosterone 24 hr urine

>> Low sodium intake 20-80

>> Normal sodium intake 0-19

>> High sodium intake 0-12

>>

>> My values: 3/27/2012 15.2 (on high sodium diet)

>> 4/18/2012 42.27 (on normal sodium diet)

>> 4/28/2012 12,81 (on oral salt load 5000mg salt

>> intake for 3 days)

>>

>> All these labs were done while I was on HCTZ.

>>

>> Just handed in my last 24 hour urine which I have been med-free for

>> over 2 weeks. Will be excited to see the next results!

>>

>>

>> From: Clarence Grim <lowerbp2@...>

>> hyperaldosteronism

>> Cc: Clarence Grim <lowerbp2@...>

>> Sent: Thursday, June 7, 2012 12:18 PM

>> Subject: Re: I'm confused....

>>

>>

>> and your renin each time was?

>> On Jun 6, 2012, at 5:06 PM, Cybil wrote:

>>

>>>

>>> If anyone can help clarify something for me that would be

>>> fantastic. I'm in the process of my 4th 24 hour urine. During the

>>> last two months I have had high serum aldosterone and high urine

>>> aldosterone. Low K+,Mg, CA. The most bothersome symptom right now

>>> for me (besides the uncontrolled BP) are attacks similiar to those

>>> for pheocrytocomia. During some of my testing my catacholemines

>>> were elevated, but my nephro said not elevated enough to worry

>>> about. Can hyperaldo cause these same sort of symptom s:

>>> pallor,headache, anxiety, sky high BP? These attacks are

>>> debilitating and scary. My nephro told me if this last testing is

>>> positive for aldo she will change my meds...possibly try aldactone.

>>> Anyone here have symptoms similar? I do not want to be prescribed a

>>> benzo for anxiety attacks. Also, CT was negative but echo showed

>>> significant LVH.

>>> Cybil -36 y.o. female with no real diagnosis of anything but HTN at

>>> this time.

>>>

>>> Sent from my Verizon Wireless Phone

>>

>>

>>

>>

>>

>

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I presume you mean you were on hydrAlazine and if that is the case it is one of

the meds they use to control BP while testing ARR. If I read the table

correctly (Aldosterone Causes of Hypertension in files) I expect your ARR will

go up so I too will be interested in the results!

I had LVH bad enough that I needed f/t oxygen. When I started Spironlactone

(25mg bid) my BP resolved immediately and it took 10 months for all SXs of PA to

resolve. 12 weeks after all SXs resolved I no longer needed oxygen, right on

schedule according to Dr. Grim!

> >>

> >>>

> >>> If anyone can help clarify something for me that would be

> >>> fantastic. I'm in the process of my 4th 24 hour urine. During the

> >>> last two months I have had high serum aldosterone and high urine

> >>> aldosterone. Low K+,Mg, CA. The most bothersome symptom right now

> >>> for me (besides the uncontrolled BP) are attacks similiar to those

> >>> for pheocrytocomia. During some of my testing my catacholemines

> >>> were elevated, but my nephro said not elevated enough to worry

> >>> about. Can hyperaldo cause these same sort of symptom s:

> >>> pallor,headache, anxiety, sky high BP? These attacks are

> >>> debilitating and scary. My nephro told me if this last testing is

> >>> positive for aldo she will change my meds...possibly try aldactone.

> >>> Anyone here have symptoms similar? I do not want to be prescribed a

> >>> benzo for anxiety attacks. Also, CT was negative but echo showed

> >>> significant LVH.

> >>> Cybil -36 y.o. female with no real diagnosis of anything but HTN at

> >>> this time.

> >>>

> >>> Sent from my Verizon Wireless Phone

> >>

> >>

> >>

> >>

> >>

> >

>

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That's a little scary about the nephrologist. BTW they "tried" me on hctz a few times and I knew it wouldn't work but someone would lecture me or my wife would about me "doctoring myself" and being sick and desperate I would say okay I'll try it again, but everytime I ended u in the hospital with low potassium. Thats not what got me to the hospital - the low K - but the headaches, the fatigue, the cramps, the fog, etc, and of course the severe HTN. htcz can really make low potassium a lot worse

>>>>>>>> If anyone can help clarify something for me that would be >>> fantastic. I'm in the process of my 4th 24 hour urine. During the >>> last two months I have had high serum aldosterone and high urine >>> aldosterone. Low K+,Mg, CA. The most bothersome symptom right now >>> for me (besides the uncontrolled BP) are attacks similiar to those >>> for pheocrytocomia. During some of my testing my catacholemines >>> were elevated, but my nephro said not elevated enough to worry >>> about. Can hyperaldo cause these same sort of symptom s: >>> pallor,headache, anxiety, sky high BP? These attacks are >>>

debilitating and scary. My nephro told me if this last testing is >>> positive for aldo she will change my meds...possibly try aldactone. >>> Anyone here have symptoms similar? I do not want to be prescribed a >>> benzo for anxiety attacks. Also, CT was negative but echo showed >>> significant LVH.>>> Cybil -36 y.o. female with no real diagnosis of anything but HTN at >>> this time.>>>>>> Sent from my Verizon Wireless Phone>>>>>>>>>> >

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DASH does magic to my BP if I stick to it.

Once in a while my BP is so good that I almost forget and I go and eat out and I

can tell you that every time I do that my BP skyrocket!

Low K, Mg Ca are part of PA gifts! And I also DO have those " pheo like " attacks

and I believe those are consequces of electrolyte imbalance (but I might be

wrong too!).

I am not saying that you don't have a pheo (I am not a doctor) but low K does

strange things to your body (BTW, low Mg, Ca does too).

BTW my echo last year said mild LVH but my last echo no LVH noted!

So try to DASH (<1.5g Na) and magically LVH will disappear!

PS. If CATS/METS elevated, from what I've read in pheo these are >2-3X

the upper limit to diagnose pheo.

tiu

>

> If anyone can help clarify something for me that would be fantastic. I'm in

the process of my 4th 24 hour urine. During the last two months I have had high

serum aldosterone and high urine aldosterone. Low K+,Mg, CA. The most

bothersome symptom right now for me (besides the uncontrolled BP) are attacks

similiar to those for pheocrytocomia. During some of my testing my

catacholemines were elevated, but my nephro said not elevated enough to worry

about. Can hyperaldo cause these same sort of symptom s: pallor,headache,

anxiety, sky high BP? These attacks are debilitating and scary. My nephro told

me if this last testing is positive for aldo she will change my meds...possibly

try aldactone. Anyone here have symptoms similar? I do not want to be

prescribed a benzo for anxiety attacks. Also, CT was negative but echo showed

significant LVH.

> Cybil -36 y.o. female with no real diagnosis of anything but HTN at this time.

>

> Sent from my Verizon Wireless Phone

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Thank you so much to everyone for your advice/support. It is really helping me

cope with this journey I am on! I will report back my " non medicated " results

as soon as I get them. Also in response to ...it is hydralazine thank you!!

But she only had me on this because I had an anaphylaxis reaction while on an

ACE and BB. I don't think it had anything to do with the testing..not sure. It

has no real effect on my BP however. I am on 25 tid and in fact sometimes after

I take it my BP goes up! Nephro doesn't believe me however....) :

Sent from my Verizon Wireless Phone

lvasiliu@... wrote:

>

>

>DASH does magic to my BP if I stick to it.

>Once in a while my BP is so good that I almost forget and I go and eat out and

I can tell you that every time I do that my BP skyrocket!

>

>Low K, Mg Ca are part of PA gifts! And I also DO have those " pheo like " attacks

and I believe those are consequces of electrolyte imbalance (but I might be

wrong too!).

>

>I am not saying that you don't have a pheo (I am not a doctor) but low K does

strange things to your body (BTW, low Mg, Ca does too).

>

>BTW my echo last year said mild LVH but my last echo no LVH noted!

>So try to DASH (<1.5g Na) and magically LVH will disappear!

>

>PS. If CATS/METS elevated, from what I've read in pheo these are >2-3X

>the upper limit to diagnose pheo.

>tiu

>

>

>

>>

>> If anyone can help clarify something for me that would be fantastic. I'm in

the process of my 4th 24 hour urine. During the last two months I have had high

serum aldosterone and high urine aldosterone. Low K+,Mg, CA. The most

bothersome symptom right now for me (besides the uncontrolled BP) are attacks

similiar to those for pheocrytocomia. During some of my testing my

catacholemines were elevated, but my nephro said not elevated enough to worry

about. Can hyperaldo cause these same sort of symptom s: pallor,headache,

anxiety, sky high BP? These attacks are debilitating and scary. My nephro told

me if this last testing is positive for aldo she will change my meds...possibly

try aldactone. Anyone here have symptoms similar? I do not want to be

prescribed a benzo for anxiety attacks. Also, CT was negative but echo showed

significant LVH.

>> Cybil -36 y.o. female with no real diagnosis of anything but HTN at this

time.

>>

>> Sent from my Verizon Wireless Phone

>

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About the BP going up after taking BP meds: When I was first diagnosed with high BP at age 44 (69 now), my doctor prescribed a mild diuretic - I think hydralazine, but it was a long time ago. The first thing that happened was that my BP went up. I look back and think "how dumb were you?" because at that time I thought to myself "Oh, good thing I'm on this BP med, because think how high it would be without it".Now, of course, I realize that was the beginning of my PA, but as my BP rose and they gave me more and more meds to control it, none of them ever really worked. In fact I always felt that my body was fighting against them, but the doctor knew best, right? Wrong! Listen to your body.Thank God for this group and Dr. Grim. You have all saved my life and given me the ability to understand what is, and was,

happening to me and how to genuinely treat it.Dianne F-69, bi-lateral adenomas, CKD, 50mg Spiro, 25 mg Atenolol.

>

>

>DASH does magic to my BP if I stick to it.

>Once in a while my BP is so good that I almost forget and I go and eat out and I can tell you that every time I do that my BP skyrocket!

>

>Low K, Mg Ca are part of PA gifts! And I also DO have those "pheo like" attacks and I believe those are consequces of electrolyte imbalance (but I might be wrong too!).

>

>I am not saying that you don't have a pheo (I am not a doctor) but low K does strange things to your body (BTW, low Mg, Ca does too).

>

>BTW my echo last year said mild LVH but my last echo no LVH noted!

>So try to DASH (<1.5g Na) and magically LVH will disappear!

>

>PS. If CATS/METS elevated, from what I've read in pheo these are >2-3X

>the upper limit to diagnose pheo.

>tiu

>

>

>

>>

>> If anyone can help clarify something for me that would be fantastic. I'm in the process of my 4th 24 hour urine. During the last two months I have had high serum aldosterone and high urine aldosterone. Low K+,Mg, CA. The most bothersome symptom right now for me (besides the uncontrolled BP) are attacks similiar to those for pheocrytocomia. During some of my testing my catacholemines were elevated, but my nephro said not elevated enough to worry about. Can hyperaldo cause these same sort of symptom s: pallor,headache, anxiety, sky high BP? These attacks are debilitating and scary. My nephro told me if this last testing is positive for aldo she will change my meds...possibly try aldactone. Anyone here have symptoms similar? I do not want to be prescribed a benzo for anxiety attacks. Also, CT was negative but echo showed significant LVH.

>> Cybil -36 y.o. female with no real diagnosis of anything but HTN at this time.

>>

>> Sent from my Verizon Wireless Phone

>

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