Guest guest Posted May 25, 2012 Report Share Posted May 25, 2012 I just got a call from my doctors nurse and CT scan came back very normal. no enlarged adrenals and no tumors. That is very good news but I am disappointed, I still have all my symptoms and abnormal blood work. Not sure where to go from here. I have another appt. June 5th. Time to get better at DASHing and maybe my potassium will go up and I'll feel better. I guess I don't have PA afterall. Thanks for the support and I'm going to keep up with the group for Na, K and DASHing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2012 Report Share Posted May 25, 2012 Myself as other members here heard the same story from our PCPs! Maggie and have been told they " have no tumors " yet after they went to NIH the story was completly different (NIH doctors are much better at reading CT/MRI even seeing " bumps " on " NORMAL scan " ). My adrenal CT is " NORMAL " yet I have all PA symptoms. I wish you do not have PA but with your high Aldo/renin ratio I would try to contact the NIH team for admission into protocol 00-CH-0160. http://clinicalstudies.info.nih.gov/cgi/wais/bold032001.pl?A_00-CH-0160.html@NCT\ 00005927 In the mean time try DASHing to feel better. > > I just got a call from my doctors nurse and CT scan came back very normal. no enlarged adrenals and no tumors. That is very good news but I am disappointed, I still have all my symptoms and abnormal blood work. > Not sure where to go from here. I have another appt. June 5th. > > Time to get better at DASHing and maybe my potassium will go up and I'll feel better. > I guess I don't have PA afterall. > Thanks for the support and I'm going to keep up with the group for Na, K > and DASHing. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2012 Report Share Posted May 25, 2012 But did she search it. Bet not. Good judgement on the change in Endo same for cards who usually don't know sqUat about HTN. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn May 25, 2012, at 17:39, lvasiliu@... wrote: You are right that it SHOULD be clinical and biochemical Dx. But ... Unfortunately most doctors don't know it and when you ask about Conn's/PA they do an "adrenal scan" which most of the times do not shows anything (either missread or today scan resolution not enough). The scan is done JUST to convince me, the PT, that I DO NOT have PA. And then the hell starts since you do not have any diagnostic hence they do not prescribe you any meds or advice any lifestyle changes (since you don't have PA it has to be all just in your head, aka anxiety, depression etc). Once the write anxiety in your charts you are being treated as an idiot and this will NEVER change. You can see my frustration but I even tried to suggest my specialist endo a trial of Spiro/Epler (because my biochemical results was borderline) but she just sent me back to cardiology because: "they know better what works for your heart rate". And then they pass you around to another "specialist" and just collect money and hope that you'll get borred seeing them one day and you will go away... BTW, I left her copy of you article on PA but she said "thanks, but I have access to PubMed so I can search it myself" (and that was the last time I saw her). Joining your group helped me more then any doctor I've seen! tiu > > > I just got a call from my doctors nurse and CT scan came back very normal. no enlarged adrenals and no tumors. That is very good news but I am disappointed, I still have all my symptoms and abnormal blood work. > > Not sure where to go from here. I have another appt. June 5th. > > > > Time to get better at DASHing and maybe my potassium will go up and I'll feel better. > > I guess I don't have PA afterall. > > Thanks for the support and I'm going to keep up with the group for Na, K > > and DASHing. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2012 Report Share Posted May 25, 2012 You want to see a Hypertension Specialist certified BY ASH. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn May 25, 2012, at 17:39, lvasiliu@... wrote: You are right that it SHOULD be clinical and biochemical Dx. But ... Unfortunately most doctors don't know it and when you ask about Conn's/PA they do an "adrenal scan" which most of the times do not shows anything (either missread or today scan resolution not enough). The scan is done JUST to convince me, the PT, that I DO NOT have PA. And then the hell starts since you do not have any diagnostic hence they do not prescribe you any meds or advice any lifestyle changes (since you don't have PA it has to be all just in your head, aka anxiety, depression etc). Once the write anxiety in your charts you are being treated as an idiot and this will NEVER change. You can see my frustration but I even tried to suggest my specialist endo a trial of Spiro/Epler (because my biochemical results was borderline) but she just sent me back to cardiology because: "they know better what works for your heart rate". And then they pass you around to another "specialist" and just collect money and hope that you'll get borred seeing them one day and you will go away... BTW, I left her copy of you article on PA but she said "thanks, but I have access to PubMed so I can search it myself" (and that was the last time I saw her). Joining your group helped me more then any doctor I've seen! tiu > > > I just got a call from my doctors nurse and CT scan came back very normal. no enlarged adrenals and no tumors. That is very good news but I am disappointed, I still have all my symptoms and abnormal blood work. > > Not sure where to go from here. I have another appt. June 5th. > > > > Time to get better at DASHing and maybe my potassium will go up and I'll feel better. > > I guess I don't have PA afterall. > > Thanks for the support and I'm going to keep up with the group for Na, K > > and DASHing. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2012 Report Share Posted May 29, 2012 Forget where you live. I may know someone there who knows what is what.CE Grim MDOn May 25, 2012, at 5:39 PM, lvasiliu@... wrote: You are right that it SHOULD be clinical and biochemical Dx. But ... Unfortunately most doctors don't know it and when you ask about Conn's/PA they do an "adrenal scan" which most of the times do not shows anything (either missread or today scan resolution not enough). The scan is done JUST to convince me, the PT, that I DO NOT have PA. And then the hell starts since you do not have any diagnostic hence they do not prescribe you any meds or advice any lifestyle changes (since you don't have PA it has to be all just in your head, aka anxiety, depression etc). Once the write anxiety in your charts you are being treated as an idiot and this will NEVER change. You can see my frustration but I even tried to suggest my specialist endo a trial of Spiro/Epler (because my biochemical results was borderline) but she just sent me back to cardiology because: "they know better what works for your heart rate". And then they pass you around to another "specialist" and just collect money and hope that you'll get borred seeing them one day and you will go away... BTW, I left her copy of you article on PA but she said "thanks, but I have access to PubMed so I can search it myself" (and that was the last time I saw her). Joining your group helped me more then any doctor I've seen! tiu > > > I just got a call from my doctors nurse and CT scan came back very normal. no enlarged adrenals and no tumors. That is very good news but I am disappointed, I still have all my symptoms and abnormal blood work. > > Not sure where to go from here. I have another appt. June 5th. > > > > Time to get better at DASHing and maybe my potassium will go up and I'll feel better. > > I guess I don't have PA afterall. > > Thanks for the support and I'm going to keep up with the group for Na, K > > and DASHing. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2012 Report Share Posted May 30, 2012 Tahoe not scheduled till after first of year and would be on NV side as have NV lic. Have had CA lic but suspect would not have enough business to invest in CA Lic.CE Grim MDOn May 30, 2012, at 2:19 PM, lvasiliu@... wrote: Dr. Grim, I am is San Diego, but I can travel to any PA literate MD in SoCal (even NorCal). Myself I was looking forward for the Skyline/Lake Tahoe clinic ... hope it comes. Thank you for your offer and please let me know if you trust anybody in SoCal. tiu > > > > > > > You are right that it SHOULD be clinical and biochemical Dx. But ... > > > > Unfortunately most doctors don't know it and when you ask about > > Conn's/PA they do an "adrenal scan" which most of the times do not > > shows anything (either missread or today scan resolution not enough). > > > > The scan is done JUST to convince me, the PT, that I DO NOT have PA. > > And then the hell starts since you do not have any diagnostic hence > > they do not prescribe you any meds or advice any lifestyle changes > > (since you don't have PA it has to be all just in your head, aka > > anxiety, depression etc). Once the write anxiety in your charts you > > are being treated as an idiot and this will NEVER change. > > > > You can see my frustration but I even tried to suggest my specialist > > endo a trial of Spiro/Epler (because my biochemical results was > > borderline) but she just sent me back to cardiology because: "they > > know better what works for your heart rate". And then they pass you > > around to another "specialist" and just collect money and hope that > > you'll get borred seeing them one day and you will go away... > > > > BTW, I left her copy of you article on PA but she said "thanks, but > > I have access to PubMed so I can search it myself" (and that was the > > last time I saw her). > > > > Joining your group helped me more then any doctor I've seen! > > tiu Quote Link to comment Share on other sites More sharing options...
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