Guest guest Posted June 8, 2012 Report Share Posted June 8, 2012 This message was accidentally removed. Apologies to the sender. Moderator -------------------- FROM: delphine_payne@... DATE: Fri, 08 Jun 2012 22:52:32 -0000 SUBJECT: Don't know. Hello, I'm new to this group. I live in Australia and my GP felt I was a candidate for Conn's syndrome after an x-ray revealed and adenoma on my left adrenal gland. I went to see an endocrinologist at the hospital and had all the necessary blood and urine tests. I don't have the figures yet, but everything is normal, potassium, renin, aldosterone, hormones etc. and I have been sent away with no answers. I have many of the Conn's syndrome symptoms and have had for most of my life. Now that I am older (58) they seem to be here to stay. I did not have high blood pressure until recently (165/85) am diabetic and have hypothyroidism. Do you have any suggestions as what to try next? The fatigue is difficult, especially as I am my husband's carer due to his illnesses. Look forward to your reply. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2012 Report Share Posted June 9, 2012 Thank you all for your information. My medications are 50ug of thyroxin sodium a day and Janumet 50mg(sitagliptin/metformin) for my diabetes. I also take fish oil and mangesium tablets. I see my GP at the end of the week who is digging and thinking for the answers, seeing I'm 'normal'. > > This message was accidentally removed. Apologies to the sender. > > Moderator > > -------------------- > FROM: delphine_payne@... > DATE: Fri, 08 Jun 2012 22:52:32 -0000 > SUBJECT: Don't know. > > Hello, I'm new to this group. I live in Australia and my GP felt I was a candidate for Conn's syndrome after an x-ray revealed and adenoma on my left adrenal gland. I went to see an endocrinologist at the hospital and had all the necessary blood and urine tests. I don't have the figures yet, but everything is normal, potassium, renin, aldosterone, hormones etc. and I have been sent away with no answers. I have many of the Conn's syndrome symptoms and have had for most of my life. Now that I am older (58) they seem to be here to stay. I did not have high blood pressure until recently (165/85) am diabetic and have hypothyroidism. Do you have any suggestions as what to try next? The fatigue is difficult, especially as I am my husband's carer due to his illnesses. Look forward to your reply. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2012 Report Share Posted June 9, 2012 Did have low potassium once. It was years before I was given thyroid medication because even though I had the symptoms, my levels were normal. > > > From: hyperaldosteronism-owner <hyperaldosteronism-owner > > Subject: Don't know > hyperaldosteronism > Date: Friday, June 8, 2012, 6:22 PM > > > > Â > > > > This message was accidentally removed. Apologies to the sender. > > Moderator > > -------------------- > FROM: delphine_payne@... > DATE: Fri, 08 Jun 2012 22:52:32 -0000 > SUBJECT: Don't know. > > Hello, I'm new to this group. I live in Australia and my GP felt I was a candidate for Conn's syndrome after an x-ray revealed and adenoma on my left adrenal gland. I went to see an endocrinologist at the hospital and had all the necessary blood and urine tests. I don't have the figures yet, but everything is normal, potassium, renin, aldosterone, hormones etc. and I have been sent away with no answers. I have many of the Conn's syndrome symptoms and have had for most of my life. Now that I am older (58) they seem to be here to stay. I did not have high blood pressure until recently (165/85) am diabetic and have hypothyroidism. Do you have any suggestions as what to try next? The fatigue is difficult, especially as I am my husband's carer due to his illnesses. Look forward to your reply. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2012 Report Share Posted June 9, 2012 What do you consider " normal " , please give actual number and range from your lab. (Many w/PA find they need to be above the low end of the range.) > > > > > > From: hyperaldosteronism-owner <hyperaldosteronism-owner > > > Subject: Don't know > > hyperaldosteronism > > Date: Friday, June 8, 2012, 6:22 PM > > > > > > > > Â > > > > > > > > This message was accidentally removed. Apologies to the sender. > > > > Moderator > > > > -------------------- > > FROM: delphine_payne@ > > DATE: Fri, 08 Jun 2012 22:52:32 -0000 > > SUBJECT: Don't know. > > > > Hello, I'm new to this group. I live in Australia and my GP felt I was a candidate for Conn's syndrome after an x-ray revealed and adenoma on my left adrenal gland. I went to see an endocrinologist at the hospital and had all the necessary blood and urine tests. I don't have the figures yet, but everything is normal, potassium, renin, aldosterone, hormones etc. and I have been sent away with no answers. I have many of the Conn's syndrome symptoms and have had for most of my life. Now that I am older (58) they seem to be here to stay. I did not have high blood pressure until recently (165/85) am diabetic and have hypothyroidism. Do you have any suggestions as what to try next? The fatigue is difficult, especially as I am my husband's carer due to his illnesses. Look forward to your reply. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2012 Report Share Posted June 9, 2012 If you just recently developed high blood pressure which is the hallmark for Conn's, what symptons do you have that they think could be conn's? From: delphine_payne <delphine_payne@...>Subject: Re: Don't knowhyperaldosteronism Date: Saturday, June 9, 2012, 4:01 AM Thank you all for your information. My medications are 50ug of thyroxin sodium a day and Janumet 50mg(sitagliptin/metformin) for my diabetes. I also take fish oil and mangesium tablets. I see my GP at the end of the week who is digging and thinking for the answers, seeing I'm 'normal'. >> This message was accidentally removed. Apologies to the sender.> > Moderator> > --------------------> FROM: delphine_payne@... > DATE: Fri, 08 Jun 2012 22:52:32 -0000 > SUBJECT: Don't know. > > Hello, I'm new to this group. I live in Australia and my GP felt I was a candidate for Conn's syndrome after an x-ray revealed and adenoma on my left adrenal gland. I went to see an endocrinologist at the hospital and had all the necessary blood and urine tests. I don't have the figures yet, but everything is normal, potassium, renin, aldosterone, hormones etc. and I have been sent away with no answers. I have many of the Conn's syndrome symptoms and have had for most of my life. Now that I am older (58) they seem to be here to stay. I did not have high blood pressure until recently (165/85) am diabetic and have hypothyroidism. Do you have any suggestions as what to try next? The fatigue is difficult, especially as I am my husband's carer due to his illnesses. Look forward to your reply.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2012 Report Share Posted June 9, 2012 I have had severe fatigue, nauseau, bloating, swollen hands and face, loss of appetite, heart flutterings, mysterious pounding at the base of the skull (had for more than 20 years), what I call a slow brain, feeling like I am going to collapse if I have been on my feet for a couple of hours and finally the adenoma. I have had high blood pressure before (20 or so years agao) but it returned to normal. In the past 3 years I have run out of adrenalin, but it came back, had low potassium but that was fixed with vitamins. At the moment my cortisol levels are a little low, which I know doesn't fit with Conn's. I am insulin resistant, produce a lot of glycogon (dawn syndrome) with my diabetes and that is difficult to control. I don't have figures for my tests but hopefully will on Friday when I see my GP. All major organs have been screened, x-rayed, and generally gone over. Apparently I am fine except for the diabetes and hypothyroidism. > > > > This message was accidentally removed. Apologies to the sender. > > > > Moderator > > > > -------------------- > > FROM: delphine_payne@ > > DATE: Fri, 08 Jun 2012 22:52:32 -0000 > > SUBJECT: Don't know. > > > > Hello, I'm new to this group. I live in Australia and my GP felt I was a candidate for Conn's syndrome after an x-ray revealed and adenoma on my left adrenal gland. I went to see an endocrinologist at the hospital and had all the necessary blood and urine tests. I don't have the figures yet, but everything is normal, potassium, renin, aldosterone, hormones etc. and I have been sent away with no answers. I have many of the Conn's syndrome symptoms and have had for most of my life. Now that I am older (58) they seem to be here to stay. I did not have high blood pressure until recently (165/85) am diabetic and have hypothyroidism. Do you have any suggestions as what to try next? The fatigue is difficult, especially as I am my husband's carer due to his illnesses. Look forward to your reply. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2012 Report Share Posted June 9, 2012 Hmm I was thinking u had high Aldo. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Jun 9, 2012, at 4:01, delphine_payne <delphine_payne@...> wrote: Thank you all for your information. My medications are 50ug of thyroxin sodium a day and Janumet 50mg(sitagliptin/metformin) for my diabetes. I also take fish oil and mangesium tablets. I see my GP at the end of the week who is digging and thinking for the answers, seeing I'm 'normal'. > > This message was accidentally removed. Apologies to the sender. > > Moderator > > -------------------- > FROM: delphine_payne@... > DATE: Fri, 08 Jun 2012 22:52:32 -0000 > SUBJECT: Don't know. > > Hello, I'm new to this group. I live in Australia and my GP felt I was a candidate for Conn's syndrome after an x-ray revealed and adenoma on my left adrenal gland. I went to see an endocrinologist at the hospital and had all the necessary blood and urine tests. I don't have the figures yet, but everything is normal, potassium, renin, aldosterone, hormones etc. and I have been sent away with no answers. I have many of the Conn's syndrome symptoms and have had for most of my life. Now that I am older (58) they seem to be here to stay. I did not have high blood pressure until recently (165/85) am diabetic and have hypothyroidism. Do you have any suggestions as what to try next? The fatigue is difficult, especially as I am my husband's carer due to his illnesses. Look forward to your reply. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2012 Report Share Posted June 9, 2012 Conn's is a common cause of DM. HAVE u read my evolution of Conn's yet?May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Jun 9, 2012, at 17:46, delphine_payne <delphine_payne@...> wrote: I have had severe fatigue, nauseau, bloating, swollen hands and face, loss of appetite, heart flutterings, mysterious pounding at the base of the skull (had for more than 20 years), what I call a slow brain, feeling like I am going to collapse if I have been on my feet for a couple of hours and finally the adenoma. I have had high blood pressure before (20 or so years agao) but it returned to normal. In the past 3 years I have run out of adrenalin, but it came back, had low potassium but that was fixed with vitamins. At the moment my cortisol levels are a little low, which I know doesn't fit with Conn's. I am insulin resistant, produce a lot of glycogon (dawn syndrome) with my diabetes and that is difficult to control. I don't have figures for my tests but hopefully will on Friday when I see my GP. All major organs have been screened, x-rayed, and generally gone over. Apparently I am fine except for the diabetes and hypothyroidism. > > > > This message was accidentally removed. Apologies to the sender. > > > > Moderator > > > > -------------------- > > FROM: delphine_payne@ > > DATE: Fri, 08 Jun 2012 22:52:32 -0000 > > SUBJECT: Don't know. > > > > Hello, I'm new to this group. I live in Australia and my GP felt I was a candidate for Conn's syndrome after an x-ray revealed and adenoma on my left adrenal gland. I went to see an endocrinologist at the hospital and had all the necessary blood and urine tests. I don't have the figures yet, but everything is normal, potassium, renin, aldosterone, hormones etc. and I have been sent away with no answers. I have many of the Conn's syndrome symptoms and have had for most of my life. Now that I am older (58) they seem to be here to stay. I did not have high blood pressure until recently (165/85) am diabetic and have hypothyroidism. Do you have any suggestions as what to try next? The fatigue is difficult, especially as I am my husband's carer due to his illnesses. Look forward to your reply. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2012 Report Share Posted June 9, 2012 Alot of those symptoms mimic so many things, but I wonder how low your K may have gotten at times. I bet it reached dangerous levels. Hey the headaches...you kind of describe what I was getting on the prescirption or IV potassium chloride. They were so severe at times I could not function. But I knew they were not migraines. After I found this list Dr Grim suggested it could be the chloride. I stopped the prescription potassium, started on the potassium gluconate that I buy at wal mart or GNC (you have to take more of it than the prescriptio one) and sure as anything, those headaches, the back of the head pounding through my skull, disappeared. Completely and have never returned. Maybe you can troubleshoot and see if your headaches had any relationship to taking potassium or being given something with chloride in it. Just a thought. -- On Sat, 6/9/12, delphine_payne <delphine_payne@...> wrote: From: delphine_payne <delphine_payne@...>Subject: Re: Don't knowhyperaldosteronism Date: Saturday, June 9, 2012, 5:46 PM I have had severe fatigue, nauseau, bloating, swollen hands and face, loss of appetite, heart flutterings, mysterious pounding at the base of the skull (had for more than 20 years), what I call a slow brain, feeling like I am going to collapse if I have been on my feet for a couple of hours and finally the adenoma. I have had high blood pressure before (20 or so years agao) but it returned to normal. In the past 3 years I have run out of adrenalin, but it came back, had low potassium but that was fixed with vitamins. At the moment my cortisol levels are a little low, which I know doesn't fit with Conn's. I am insulin resistant, produce a lot of glycogon (dawn syndrome) with my diabetes and that is difficult to control. I don't have figures for my tests but hopefully will on Friday when I see my GP. All major organs have been screened, x-rayed, and generally gone over. Apparently I am fine except for the diabetes and hypothyroidism. > >> > This message was accidentally removed. Apologies to the sender.> > > > Moderator> > > > --------------------> > FROM: delphine_payne@ > > DATE: Fri, 08 Jun 2012 22:52:32 -0000 > > SUBJECT: Don't know. > > > > Hello, I'm new to this group. I live in Australia and my GP felt I was a candidate for Conn's syndrome after an x-ray revealed and adenoma on my left adrenal gland. I went to see an endocrinologist at the hospital and had all the necessary blood and urine tests. I don't have the figures yet, but everything is normal, potassium, renin, aldosterone, hormones etc. and I have been sent away with no answers. I have many of the Conn's syndrome symptoms and have had for most of my life. Now that I am older (58) they seem to be here to stay. I did not have high blood pressure until recently (165/85) am diabetic and have hypothyroidism. Do you have any suggestions as what to try next? The fatigue is difficult, especially as I am my husband's carer due to his illnesses. Look forward to your reply.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2012 Report Share Posted June 10, 2012 Yes, I have read your evolution of Conn's. The more I read the more confused I get. Everything is normal except how I physically feel. My glucose levels are up and down and I believe this (whatever it is) is what's causing it. Am feeling a tad impatient. > > > > > > > > This message was accidentally removed. Apologies to the sender. > > > > > > > > Moderator > > > > > > > > -------------------- > > > > FROM: delphine_payne@ > > > > DATE: Fri, 08 Jun 2012 22:52:32 -0000 > > > > SUBJECT: Don't know. > > > > > > > > Hello, I'm new to this group. I live in Australia and my GP felt I was a candidate for Conn's syndrome after an x-ray revealed and adenoma on my left adrenal gland. I went to see an endocrinologist at the hospital and had all the necessary blood and urine tests. I don't have the figures yet, but everything is normal, potassium, renin, aldosterone, hormones etc. and I have been sent away with no answers. I have many of the Conn's syndrome symptoms and have had for most of my life. Now that I am older (58) they seem to be here to stay. I did not have high blood pressure until recently (165/85) am diabetic and have hypothyroidism. Do you have any suggestions as what to try next? The fatigue is difficult, especially as I am my husband's carer due to his illnesses. Look forward to your reply. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2012 Report Share Posted June 10, 2012 Will look into the chloride idea - thank you. > > > > > > This message was accidentally removed. Apologies to the sender. > > > > > > Moderator > > > > > > -------------------- > > > FROM: delphine_payne@ > > > DATE: Fri, 08 Jun 2012 22:52:32 -0000 > > > SUBJECT: Don't know. > > > > > > Hello, I'm new to this group. I live in Australia and my GP felt I was a candidate for Conn's syndrome after an x-ray revealed and adenoma on my left adrenal gland. I went to see an endocrinologist at the hospital and had all the necessary blood and urine tests. I don't have the figures yet, but everything is normal, potassium, renin, aldosterone, hormones etc. and I have been sent away with no answers. I have many of the Conn's syndrome symptoms and have had for most of my life. Now that I am older (58) they seem to be here to stay. I did not have high blood pressure until recently (165/85) am diabetic and have hypothyroidism. Do you have any suggestions as what to try next? The fatigue is difficult, especially as I am my husband's carer due to his illnesses. Look forward to your reply. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2012 Report Share Posted June 10, 2012 delphine_payne   is (165/85). Needs a thumbnail. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Clarence Grim Hmm I was thinking u had high Aldo. On Jun 9, 2012, at 4:01, delphine_payne <delphine_payne@...> wrote: Thank you all for your information. My medications are 50ug of thyroxin sodium a day and Janumet 50mg(sitagliptin/metformin) for my diabetes. I also take fish oil and mangesium tablets. I see my GP at the end of the week who is digging and thinking for the answers, seeing I'm 'normal'. >> This message was accidentally removed. Apologies to the sender.> > Moderator> > --------------------> FROM: delphine_payne@... > DATE: Fri, 08 Jun 2012 22:52:32 -0000 > SUBJECT: Don't know. > > Hello, I'm new to this group. I live in Australia and my GP felt I was a candidate for Conn's syndrome after an x-ray revealed and adenoma on my left adrenal gland. I went to see an endocrinologist at the hospital and had all the necessary blood and urine tests. I don't have the figures yet, but everything is normal, potassium, renin, aldosterone, hormones etc. and I have been sent away with no answers. I have many of the Conn's syndrome symptoms and have had for most of my life. Now that I am older (58) they seem to be here to stay. I did not have high blood pressure until recently (165/85) am diabetic and have hypothyroidism. Do you have any suggestions as what to try next? The fatigue is difficult, especially as I am my husband's carer due to his illnesses. Look forward to your reply.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2012 Report Share Posted June 10, 2012 And DASH is a low chloride diet. Indeed there is a urine dipstick u can use to see how u are doing. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Jun 9, 2012, at 23:32, Bingham <jlkbbk2003@...> wrote: Alot of those symptoms mimic so many things, but I wonder how low your K may have gotten at times. I bet it reached dangerous levels. Hey the headaches...you kind of describe what I was getting on the prescirption or IV potassium chloride. They were so severe at times I could not function. But I knew they were not migraines. After I found this list Dr Grim suggested it could be the chloride. I stopped the prescription potassium, started on the potassium gluconate that I buy at wal mart or GNC (you have to take more of it than the prescriptio one) and sure as anything, those headaches, the back of the head pounding through my skull, disappeared. Completely and have never returned. Maybe you can troubleshoot and see if your headaches had any relationship to taking potassium or being given something with chloride in it. Just a thought. -- On Sat, 6/9/12, delphine_payne <delphine_payne@...> wrote: From: delphine_payne <delphine_payne@...>Subject: Re: Don't knowhyperaldosteronism Date: Saturday, June 9, 2012, 5:46 PM I have had severe fatigue, nauseau, bloating, swollen hands and face, loss of appetite, heart flutterings, mysterious pounding at the base of the skull (had for more than 20 years), what I call a slow brain, feeling like I am going to collapse if I have been on my feet for a couple of hours and finally the adenoma. I have had high blood pressure before (20 or so years agao) but it returned to normal. In the past 3 years I have run out of adrenalin, but it came back, had low potassium but that was fixed with vitamins. At the moment my cortisol levels are a little low, which I know doesn't fit with Conn's. I am insulin resistant, produce a lot of glycogon (dawn syndrome) with my diabetes and that is difficult to control. I don't have figures for my tests but hopefully will on Friday when I see my GP. All major organs have been screened, x-rayed, and generally gone over. Apparently I am fine except for the diabetes and hypothyroidism. > >> > This message was accidentally removed. Apologies to the sender.> > > > Moderator> > > > --------------------> > FROM: delphine_payne@ > > DATE: Fri, 08 Jun 2012 22:52:32 -0000 > > SUBJECT: Don't know. > > > > Hello, I'm new to this group. I live in Australia and my GP felt I was a candidate for Conn's syndrome after an x-ray revealed and adenoma on my left adrenal gland. I went to see an endocrinologist at the hospital and had all the necessary blood and urine tests. I don't have the figures yet, but everything is normal, potassium, renin, aldosterone, hormones etc. and I have been sent away with no answers. I have many of the Conn's syndrome symptoms and have had for most of my life. Now that I am older (58) they seem to be here to stay. I did not have high blood pressure until recently (165/85) am diabetic and have hypothyroidism. Do you have any suggestions as what to try next? The fatigue is difficult, especially as I am my husband's carer due to his illnesses. Look forward to your reply.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2012 Report Share Posted June 10, 2012 We have not seen your numbers as I recall. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Jun 10, 2012, at 3:49, delphine_payne <delphine_payne@...> wrote: Yes, I have read your evolution of Conn's. The more I read the more confused I get. Everything is normal except how I physically feel. My glucose levels are up and down and I believe this (whatever it is) is what's causing it. Am feeling a tad impatient. > > > > > > > > This message was accidentally removed. Apologies to the sender. > > > > > > > > Moderator > > > > > > > > -------------------- > > > > FROM: delphine_payne@ > > > > DATE: Fri, 08 Jun 2012 22:52:32 -0000 > > > > SUBJECT: Don't know. > > > > > > > > Hello, I'm new to this group. I live in Australia and my GP felt I was a candidate for Conn's syndrome after an x-ray revealed and adenoma on my left adrenal gland. I went to see an endocrinologist at the hospital and had all the necessary blood and urine tests. I don't have the figures yet, but everything is normal, potassium, renin, aldosterone, hormones etc. and I have been sent away with no answers. I have many of the Conn's syndrome symptoms and have had for most of my life. Now that I am older (58) they seem to be here to stay. I did not have high blood pressure until recently (165/85) am diabetic and have hypothyroidism. Do you have any suggestions as what to try next? The fatigue is difficult, especially as I am my husband's carer due to his illnesses. Look forward to your reply. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2012 Report Share Posted June 10, 2012 Hmm suggest reading it again with a pencil and paper and try to draw the graphs as u read. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn Jun 10, 2012, at 3:49, delphine_payne <delphine_payne@...> wrote: Yes, I have read your evolution of Conn's. The more I read the more confused I get. Everything is normal except how I physically feel. My glucose levels are up and down and I believe this (whatever it is) is what's causing it. Am feeling a tad impatient. > > > > > > > > This message was accidentally removed. Apologies to the sender. > > > > > > > > Moderator > > > > > > > > -------------------- > > > > FROM: delphine_payne@ > > > > DATE: Fri, 08 Jun 2012 22:52:32 -0000 > > > > SUBJECT: Don't know. > > > > > > > > Hello, I'm new to this group. I live in Australia and my GP felt I was a candidate for Conn's syndrome after an x-ray revealed and adenoma on my left adrenal gland. I went to see an endocrinologist at the hospital and had all the necessary blood and urine tests. I don't have the figures yet, but everything is normal, potassium, renin, aldosterone, hormones etc. and I have been sent away with no answers. I have many of the Conn's syndrome symptoms and have had for most of my life. Now that I am older (58) they seem to be here to stay. I did not have high blood pressure until recently (165/85) am diabetic and have hypothyroidism. Do you have any suggestions as what to try next? The fatigue is difficult, especially as I am my husband's carer due to his illnesses. Look forward to your reply. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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