Re: gulf shores

[Guest guest]

We could smell the oil on and off. Everyone was very upset about it, but we had not seen each other in 20 years (many of us), so we made sure to make the best of it. My friend''s condo there is a whole floor and the beach was mostly beautiful- we just made it under the wire, I'm sure. My friend who owns the condo has a child with Autism and Downs who is 20 years old, and the experience of loving her daughter has made her without doubt a more beautiful person. She was the most popular girl in my high school, and she glows from the inside, now.

I must say that just personally, it was a break from scoliosis for the most part, and my first vacation that was not a trip to Shriners in quite a long time! 5 years? I can't believe I had the guts to go, I was very scared to leave my boys for a few days. I post this just because it taught me that I was a better and happier mom returning, and I learned a lot about the toughness of women who have also gone through some pretty intense things by age 40. Every one of us (7 women) had big life stories or had been touched by tragedy and hardship in different ways. And we are all still standing. And we had FUN!

Women are incredible. Heidi, Bexon's Mommy, (2 and a half years old, in 7th cast from Salt Lake City Shriners, currently down from 62 degrees to 19.7 in cast)

From: Hyatt <heather@...>infantile scoliosis treatment Sent: Fri, June 11, 2010 8:38:20 AMSubject: RE: guldf shores

You could smell it! ? How upsetting…..Heart is broken for every living thing out there. Horrible.

HRH

From: infantile scoliosis treatment @groups. com [mailto:infantile_ scoliosis] On Behalf Of NIck GutheSent: Wednesday, June 09, 2010 10:25 AMinfantile scoliosis treatment @groups. comSubject: Re: [infantile_scoliosi s] UPDATE ON SIERRA...2ND CASTING ON JUNE 10TH!

Very best of luck with Sierra's MRI and 2nd cast!!! I just got back from Louisiana and Gulf Shores, Alabama. It was beautiful, except for some storms/rain/ lightning, and we did sometimes smell the oil encroaching. My friend got oil on her heel from walking in the ocean. It is terrible, and I am so sad for the people and the sealife- it does and will affect all of us.

Thinking of you!Heidi, Bexon's Mommy, (2 and a half years old, in 7th cast from Salt Lake City Shriners, currently down from 62 degrees to 19.7 in cast)

From: heather@infantilesc oliosis.org <heather@infantilesc oliosis.org>Subject: Re: [infantile_scoliosi s] UPDATE ON SIERRA...2ND CASTING ON JUNE 10TH!infantile scoliosis treatment @groups. comDate: Tuesday, June 8, 2010, 4:47 PM

Hey Kristi!Thanks for the update on Sierra! Im sure she will do just as well in her2nd cast. Good luck on the MRI 2morrow...It will all be fine. Please letus know how it went when you get home.On another note, Im extremely saddened and FURIOUS about whats happeningon the gulf coast and I know Im not the only one. My thoughts are witheveryone affected by this. That would be everyone and everything on theplanet. I took Liv on a hike yesterday (the 1st one post op) and wetalked about how beautiful our Rocky Mountains are and how lucky we are towitness such natural beauty everyday.... .We then talked about the gulf andshe asked me to imagine our mountains covered in oil! The thought made meill (physically/ emotionally) and I cant even imagine what you all are goingthrough. How close are you to the coast? Please share with us (if youwish) how this man made disaster is affecting you and the

people you know.Talk about stories that need to be told! I know this is not the forum totalk about the spill....But, I cant help it. We all need a voice, right!?HRH> HI EVERYONE! WE HAVE KINDA BEEN OFF THE GRID LATELY. SIERRA HAS DONE> AMAZING IN HER CAST. I HAVE BEEN READING ALOT OF THE POST. SEEMS LIKE> THEIR IS A NEW FAMILY JOINING THE GROUP EVERY WEEK OR SO. I PRAY & HOPE> THE WORD CONTINUES TO GET OUT. BE ASSURED ALOT OF DR'S AROUND HERE ARE> AWARE OF IT NOW! WE LIVE ON THE GULF COAST...NEAR GULF SHORES & ORANGE> BEACH. IT IS SOME KIND OF MESS DOWN HERE. I'M AFRAID OUR WAY OF LIFE ON> THE COAST WILL BE CHANGED FOREVER IN A VERY NEGATIVE WAY. ANYWAY, WE ARE> HEADED TO B'HAM ALABAMA ON TUES. THE 8TH. SIERRA IS DUE AT CHILDRENS> HOSPITAL SOUTH FOR CAST REMOVAL AND AN MRI ON JUNE 9TH. SHE HAS NOT HAD AN> MRI BEFORE...DR. K WANTS TO JUST MAKE SURE WE CAN RULE

ANYTHING ELSE OUT> AND HER INFANTILE SCOLIOSIS IS INDEED IDIOPATHIC! I FEEL SURE EVERYTHING> IS FINE BUT WILL BE GLAD TO GET THE MRI BEHIND US! WE THEN GET TO TAKE HER> BACK TO MY AUNT'S HOUSE...GREAT TO HAVE FAMILY & FRIENDS IN THE AREA AND> GIVE HER A WONDERFUL BATH. I GOT ALL THE AVEENO BATH & LOTION SUPPLIES. I> HAVE ALWAYS USED AVEENO PRODUCTS. THIS IS SIERRA'S 7TH WEEK AND WE HAVE> HAD NO BAD SMELL...I'M SURE WHEN THE CAST COMES OFF IT WILL NOT BE TO> PLEASANT. WHAT SHOULD I BE EXPECTING WITH HER SKIN??? WE WILL BE BACK AT> CHILDRENS HOSPITAL IN DOWNTOWN B'HAM AT UAB ON JUNE 10TH @ 6:00 A.M. FOR> AN X-RAY TO DETERMINE THE DEGREE OF HER CURVE AFTER HER SPINE HAS RELAXED> OVER NITE. THEN THE 2ND CAST WILL BE PUT ON....UGH... THE COMING OUT OF> ANATHESIA PART WAS HORRIBLE LAST TIME BUT, ATLEAST WE KNOW WHAT TO EXPECT.> WE ARE GOING TO STAY AN EXTRA DAY JUST TO

MAKE SURE THERE ARE NO ISSUES> WITH PRESSURE POINT OR ANYTHING ELSE FOR THAT MATTER. SIERRA WAS 33 DEGREE> OUT OF CAST WITH A RVAD OF 25. DR. K HAS BEEN HOLDING HER IN CAST AT 25> DEGREES. HOPING AT HER YOUNG AGE OF 13 MO. WE WILL BE DOWN IN THE 20'S> ATLEAST. SORRY, TO BE SO LONG WINDED. JUST GETTING NERVOUS ALL OVER AGAIN.> THANK YOU TO EVERYONE FOR YOU SUPPORT. IT MEANS MORE THAN YOU WILL EVER> KNOW!> KRISTI D. JONES MOMMY TO SIERRA 13 MO. OLD 33 DEGREE OUT OF CAST 25 IN> CAST..DUE FOR 2ND CAST JUNE 10TH!>>