Guest guest Posted June 9, 2010 Report Share Posted June 9, 2010 Melinda, I had no idea Marly was going through so much.....And, to accomplish this while trying to help her! AMAZING! There is no doubt that your efforts have helped many children. Im blown away really...I cant wait to see the news coverage! And, I bet the Shriners will do a write up on the event as well. I wish I could hug you right now. You are an amazing woman Melinda. This is not easy, but you did it anyway. Good on you scoli sista! If you ever do it again , let us know. I'de like to help. Sincerely, HRH > Hi all, > I havent posted in a long time but I try to keep up on posts! I've been > extremly busy with Marly who's 1 and 1/2 and Natalya whos 2 and 1/2! They > are non-stop. Plus Marly's been having alot of issues along with the > scoliosis, she was thorwing up every day, losing weight, had to see a > pediatric GI. Then she had a vaginal protrusion and they didnt know if it > was one og her organs (bladder, uterus, etc) so she had to see a pediatric > urologist. Everything seems to be ok now, their just keeping an eye on > everything. I've also been busy coordinating a benefit in honor of > Marlycia, which took place yesterday. > asked me to update everyone here on CAST. > All the proceeds r going to Shriners in Philadelphia (where Marly is > treated). I handed out ISOP brochures and explained what they did and how > much of an impact has had on getting Mehta method casting here!! > We raised $4000 and we were able to get live news coverage. The news aired > it three times already since last night and I was able to explain the > seriousness of PIS and how it affects these babies, the treatments, and > how we need to spread awareness. I told them too many people know nothing > about it (including the medical community)or dont know how life-threating > it can be and how early treatment is the best. I made a huge poster with > her pics in cast, xrays, after OR, etc and the news aired her x-rays and > pics of her in cast so people can see with their own eyes what these > babies bones look like. Hopefully with all the people at the benefit and > it being on the news, this area will be better educated on it now and > maybe someone elses baby will be helped! > Talk to everyone soon > > Melinda > Mommy of Marlycia 17 mnths, Natalya 2.5 yrs > Scranton, PA > > wanted me to let everyone know that I > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2010 Report Share Posted June 9, 2010 , No words can explain how greatful I am to you and this group. Everyone here had a hand in educating me on infantile scoliosis and urged me NOT TO WAIT! As I said before, I know I dont respond much in posts, but my days and my girls are so busy, its very difficult to get anything done! But please know, that I do read keep up on posts and you guys are always in my thoughts. This group is who helped me get thru the beginning when it was all such a whirlwind, answered all of my questions, and educated me, and of course, if not for you, where would we be?! So for that, I will always be greatful!! We are going to try to make "Marly Party" and annual event b/c it was such a huge success. So many people came out, we got loads of donations, and we need to continue awareness. I attached the flyer we made for the benefit and some pics from it too. Talk to everyone soon! Melinda Re: Melinda & Marly Melinda,I had no idea Marly was going through so much.....And, to accomplish thiswhile trying to help her! AMAZING! There is no doubt that your effortshave helped many children. Im blown away really...I cant wait to see thenews coverage! And, I bet the Shriners will do a write up on the event aswell. I wish I could hug you right now. You are an amazing womanMelinda. This is not easy, but you did it anyway. Good on you scolisista!If you ever do it again , let us know. I'de like to help.Sincerely,HRH> Hi all,> I havent posted in a long time but I try to keep up on posts! I've been> extremly busy with Marly who's 1 and 1/2 and Natalya whos 2 and 1/2! They> are non-stop. Plus Marly's been having alot of issues along with the> scoliosis, she was thorwing up every day, losing weight, had to see a> pediatric GI. Then she had a vaginal protrusion and they didnt know if it> was one og her organs (bladder, uterus, etc) so she had to see a pediatric> urologist. Everything seems to be ok now, their just keeping an eye on> everything. I've also been busy coordinating a benefit in honor of> Marlycia, which took place yesterday.> asked me to update everyone here on CAST.> All the proceeds r going to Shriners in Philadelphia (where Marly is> treated). I handed out ISOP brochures and explained what they did and how> much of an impact has had on getting Mehta method casting here!!> We raised $4000 and we were able to get live news coverage. The news aired> it three times already since last night and I was able to explain the> seriousness of PIS and how it affects these babies, the treatments, and> how we need to spread awareness. I told them too many people know nothing> about it (including the medical community)or dont know how life-threating> it can be and how early treatment is the best. I made a huge poster with> her pics in cast, xrays, after OR, etc and the news aired her x-rays and> pics of her in cast so people can see with their own eyes what these> babies bones look like. Hopefully with all the people at the benefit and> it being on the news, this area will be better educated on it now and> maybe someone elses baby will be helped!> Talk to everyone soon>> Melinda> Mommy of Marlycia 17 mnths, Natalya 2.5 yrs> Scranton, PA>> wanted me to let everyone know that I>> 5 of 5 Photo(s) 101_1436.jpg 101_1429.jpg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2010 Report Share Posted June 9, 2010 Melinda, you are one amazing woman and Mommy!!! AWESOME JOB!!!Heidi, Bexon's Mommy, (2 and a half years old, in 7th cast from Salt Lake City Shriners, currently down from 62 degrees to 19.7 in cast) From: heather@... <heather@...>Subject: Re: Melinda & Marlyinfantile scoliosis treatment Date: Tuesday, June 8, 2010, 5:30 PM Melinda,I had no idea Marly was going through so much.....And, to accomplish thiswhile trying to help her! AMAZING! There is no doubt that your effortshave helped many children. Im blown away really...I cant wait to see thenews coverage! And, I bet the Shriners will do a write up on the event aswell. I wish I could hug you right now. You are an amazing womanMelinda. This is not easy, but you did it anyway. Good on you scolisista!If you ever do it again , let us know. I'de like to help.Sincerely,HRH> Hi all,> I havent posted in a long time but I try to keep up on posts! I've been> extremly busy with Marly who's 1 and 1/2 and Natalya whos 2 and 1/2! They> are non-stop. Plus Marly's been having alot of issues along with the> scoliosis, she was thorwing up every day, losing weight, had to see a> pediatric GI. Then she had a vaginal protrusion and they didnt know if it> was one og her organs (bladder, uterus, etc) so she had to see a pediatric> urologist. Everything seems to be ok now, their just keeping an eye on> everything. I've also been busy coordinating a benefit in honor of> Marlycia, which took place yesterday.> asked me to update everyone here on CAST.> All the proceeds r going to Shriners in Philadelphia (where Marly is> treated). I handed out ISOP brochures and explained what they did and how> much of an impact has had on getting Mehta method casting here!!> We raised $4000 and we were able to get live news coverage. The news aired> it three times already since last night and I was able to explain the> seriousness of PIS and how it affects these babies, the treatments, and> how we need to spread awareness. I told them too many people know nothing> about it (including the medical community)or dont know how life-threating> it can be and how early treatment is the best. I made a huge poster with> her pics in cast, xrays, after OR, etc and the news aired her x-rays and> pics of her in cast so people can see with their own eyes what these> babies bones look like. Hopefully with all the people at the benefit and> it being on the news, this area will be better educated on it now and> maybe someone elses baby will be helped!> Talk to everyone soon>> Melinda> Mommy of Marlycia 17 mnths, Natalya 2.5 yrs> Scranton, PA>> wanted me to let everyone know that I>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2010 Report Share Posted June 11, 2010 , I would love to to talk to her!! See what we can do together. Thanks Melinda Re: Melinda & Marly Melinda,I had no idea Marly was going through so much.....And, to accomplish thiswhile trying to help her! AMAZING! There is no doubt that your effortshave helped many children. Im blown away really...I cant wait to see thenews coverage! And, I bet the Shriners will do a write up on the event aswell. I wish I could hug you right now. You are an amazing womanMelinda. This is not easy, but you did it anyway. Good on you scolisista!If you ever do it again , let us know. I'de like to help.Sincerely,HRH> Hi all,> I havent posted in a long time but I try to keep up on posts! I've been> extremly busy with Marly who's 1 and 1/2 and Natalya whos 2 and 1/2! They> are non-stop. Plus Marly's been having alot of issues along with the> scoliosis, she was thorwing up every day, losing weight, had to see a> pediatric GI. Then she had a vaginal protrusion and they didnt know if it> was one og her organs (bladder, uterus, etc) so she had to see a pediatric> urologist. Everything seems to be ok now, their just keeping an eye on> everything. I've also been busy coordinating a benefit in honor of> Marlycia, which took place yesterday.> asked me to update everyone here on CAST.> All the proceeds r going to Shriners in Philadelphia (where Marly is> treated). I handed out ISOP brochures and explained what they did and how> much of an impact has had on getting Mehta method casting here!!> We raised $4000 and we were able to get live news coverage. The news aired> it three times already since last night and I was able to explain the> seriousness of PIS and how it affects these babies, the treatments, and> how we need to spread awareness. I told them too many people know nothing> about it (including the medical community)or dont know how life-threating> it can be and how early treatment is the best. I made a huge poster with> her pics in cast, xrays, after OR, etc and the news aired her x-rays and> pics of her in cast so people can see with their own eyes what these> babies bones look like. Hopefully with all the people at the benefit and> it being on the news, this area will be better educated on it now and> maybe someone elses baby will be helped!> Talk to everyone soon>> Melinda> Mommy of Marlycia 17 mnths, Natalya 2.5 yrs> Scranton, PA>> wanted me to let everyone know that I>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2010 Report Share Posted June 13, 2010 You and will move mountains! H. > , > > I would love to to talk to her!! See what we can do together. > > Thanks > Melinda > > Re: Melinda & Marly > > > > > > Melinda, > I had no idea Marly was going through so much.....And, to accomplish > this > while trying to help her! AMAZING! There is no doubt that your efforts > have helped many children. Im blown away really...I cant wait to see > the > news coverage! And, I bet the Shriners will do a write up on the event > as > well. I wish I could hug you right now. You are an amazing woman > Melinda. This is not easy, but you did it anyway. Good on you scoli > sista! > If you ever do it again , let us know. I'de like to help. > Sincerely, > HRH > > Hi all, > > I havent posted in a long time but I try to keep up on posts! I've > been > > extremly busy with Marly who's 1 and 1/2 and Natalya whos 2 and 1/2! > They > > are non-stop. Plus Marly's been having alot of issues along with the > > scoliosis, she was thorwing up every day, losing weight, had to see > a > > pediatric GI. Then she had a vaginal protrusion and they didnt know > if it > > was one og her organs (bladder, uterus, etc) so she had to see a > pediatric > > urologist. Everything seems to be ok now, their just keeping an eye > on > > everything. I've also been busy coordinating a benefit in honor of > > Marlycia, which took place yesterday. > > asked me to update everyone here on CAST. > > All the proceeds r going to Shriners in Philadelphia (where Marly is > > treated). I handed out ISOP brochures and explained what they did > and how > > much of an impact has had on getting Mehta method casting > here!! > > We raised $4000 and we were able to get live news coverage. The news > aired > > it three times already since last night and I was able to explain > the > > seriousness of PIS and how it affects these babies, the treatments, > and > > how we need to spread awareness. I told them too many people know > nothing > > about it (including the medical community)or dont know how > life-threating > > it can be and how early treatment is the best. I made a huge poster > with > > her pics in cast, xrays, after OR, etc and the news aired her x-rays > and > > pics of her in cast so people can see with their own eyes what these > > babies bones look like. Hopefully with all the people at the benefit > and > > it being on the news, this area will be better educated on it now > and > > maybe someone elses baby will be helped! > > Talk to everyone soon > > > > Melinda > > Mommy of Marlycia 17 mnths, Natalya 2.5 yrs > > Scranton, PA > > > > wanted me to let everyone know that I > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2010 Report Share Posted June 15, 2010 Hi and Melinda, I am ready to move those mountains with you, Melinda!! My son has been a patient in Philly since 2004 and I've done some work (fundraising, speaking engagements, etc.) for that particular hospital and for Shriners in general. I am in NY - but regardless of where you are, I would LOVE to brainstorm with you. Thanks for thinking of me. We all make a great team and hopefully will continue to help many, many families find the best care for their children. Please feel free to e-mail me at mariaf305@.... > > You and will move mountains! > H. > > > , > > > > I would love to to talk to her!! See what we can do together. > > > > Thanks > > Melinda > > > > Re: Melinda & Marly > > > > > > > > > > > > Melinda, > > I had no idea Marly was going through so much.....And, to accomplish > > this > > while trying to help her! AMAZING! There is no doubt that your efforts > > have helped many children. Im blown away really...I cant wait to see > > the > > news coverage! And, I bet the Shriners will do a write up on the event > > as > > well. I wish I could hug you right now. You are an amazing woman > > Melinda. This is not easy, but you did it anyway. Good on you scoli > > sista! > > If you ever do it again , let us know. I'de like to help. > > Sincerely, > > HRH > > > Hi all, > > > I havent posted in a long time but I try to keep up on posts! I've > > been > > > extremly busy with Marly who's 1 and 1/2 and Natalya whos 2 and 1/2! > > They > > > are non-stop. Plus Marly's been having alot of issues along with the > > > scoliosis, she was thorwing up every day, losing weight, had to see > > a > > > pediatric GI. Then she had a vaginal protrusion and they didnt know > > if it > > > was one og her organs (bladder, uterus, etc) so she had to see a > > pediatric > > > urologist. Everything seems to be ok now, their just keeping an eye > > on > > > everything. I've also been busy coordinating a benefit in honor of > > > Marlycia, which took place yesterday. > > > asked me to update everyone here on CAST. > > > All the proceeds r going to Shriners in Philadelphia (where Marly is > > > treated). I handed out ISOP brochures and explained what they did > > and how > > > much of an impact has had on getting Mehta method casting > > here!! > > > We raised $4000 and we were able to get live news coverage. The news > > aired > > > it three times already since last night and I was able to explain > > the > > > seriousness of PIS and how it affects these babies, the treatments, > > and > > > how we need to spread awareness. I told them too many people know > > nothing > > > about it (including the medical community)or dont know how > > life-threating > > > it can be and how early treatment is the best. I made a huge poster > > with > > > her pics in cast, xrays, after OR, etc and the news aired her x-rays > > and > > > pics of her in cast so people can see with their own eyes what these > > > babies bones look like. Hopefully with all the people at the benefit > > and > > > it being on the news, this area will be better educated on it now > > and > > > maybe someone elses baby will be helped! > > > Talk to everyone soon > > > > > > Melinda > > > Mommy of Marlycia 17 mnths, Natalya 2.5 yrs > > > Scranton, PA > > > > > > wanted me to let everyone know that I > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2010 Report Share Posted June 15, 2010 Hi and Melinda, I am ready to move those mountains with you, Melinda!! My son has been a patient in Philly since 2004 and I've done some work (fundraising, speaking engagements, etc.) for that particular hospital and for Shriners in general. I am in NY - but regardless of where you are, I would LOVE to brainstorm with you. Thanks for thinking of me. We all make a great team and hopefully will continue to help many, many families find the best care for their children. Please feel free to e-mail me at mariaf305@.... > > You and will move mountains! > H. > > > , > > > > I would love to to talk to her!! See what we can do together. > > > > Thanks > > Melinda > > > > Re: Melinda & Marly > > > > > > > > > > > > Melinda, > > I had no idea Marly was going through so much.....And, to accomplish > > this > > while trying to help her! AMAZING! There is no doubt that your efforts > > have helped many children. Im blown away really...I cant wait to see > > the > > news coverage! And, I bet the Shriners will do a write up on the event > > as > > well. I wish I could hug you right now. You are an amazing woman > > Melinda. This is not easy, but you did it anyway. Good on you scoli > > sista! > > If you ever do it again , let us know. I'de like to help. > > Sincerely, > > HRH > > > Hi all, > > > I havent posted in a long time but I try to keep up on posts! I've > > been > > > extremly busy with Marly who's 1 and 1/2 and Natalya whos 2 and 1/2! > > They > > > are non-stop. Plus Marly's been having alot of issues along with the > > > scoliosis, she was thorwing up every day, losing weight, had to see > > a > > > pediatric GI. Then she had a vaginal protrusion and they didnt know > > if it > > > was one og her organs (bladder, uterus, etc) so she had to see a > > pediatric > > > urologist. Everything seems to be ok now, their just keeping an eye > > on > > > everything. I've also been busy coordinating a benefit in honor of > > > Marlycia, which took place yesterday. > > > asked me to update everyone here on CAST. > > > All the proceeds r going to Shriners in Philadelphia (where Marly is > > > treated). I handed out ISOP brochures and explained what they did > > and how > > > much of an impact has had on getting Mehta method casting > > here!! > > > We raised $4000 and we were able to get live news coverage. The news > > aired > > > it three times already since last night and I was able to explain > > the > > > seriousness of PIS and how it affects these babies, the treatments, > > and > > > how we need to spread awareness. I told them too many people know > > nothing > > > about it (including the medical community)or dont know how > > life-threating > > > it can be and how early treatment is the best. I made a huge poster > > with > > > her pics in cast, xrays, after OR, etc and the news aired her x-rays > > and > > > pics of her in cast so people can see with their own eyes what these > > > babies bones look like. Hopefully with all the people at the benefit > > and > > > it being on the news, this area will be better educated on it now > > and > > > maybe someone elses baby will be helped! > > > Talk to everyone soon > > > > > > Melinda > > > Mommy of Marlycia 17 mnths, Natalya 2.5 yrs > > > Scranton, PA > > > > > > wanted me to let everyone know that I > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2010 Report Share Posted June 15, 2010 Hi and Melinda, I am ready to move those mountains with you, Melinda!! My son has been a patient in Philly since 2004 and I've done some work (fundraising, speaking engagements, etc.) for that particular hospital and for Shriners in general. I am in NY - but regardless of where you are, I would LOVE to brainstorm with you. Thanks for thinking of me. We all make a great team and hopefully will continue to help many, many families find the best care for their children. Please feel free to e-mail me at mariaf305@.... > > You and will move mountains! > H. > > > , > > > > I would love to to talk to her!! See what we can do together. > > > > Thanks > > Melinda > > > > Re: Melinda & Marly > > > > > > > > > > > > Melinda, > > I had no idea Marly was going through so much.....And, to accomplish > > this > > while trying to help her! AMAZING! There is no doubt that your efforts > > have helped many children. Im blown away really...I cant wait to see > > the > > news coverage! And, I bet the Shriners will do a write up on the event > > as > > well. I wish I could hug you right now. You are an amazing woman > > Melinda. This is not easy, but you did it anyway. Good on you scoli > > sista! > > If you ever do it again , let us know. I'de like to help. > > Sincerely, > > HRH > > > Hi all, > > > I havent posted in a long time but I try to keep up on posts! I've > > been > > > extremly busy with Marly who's 1 and 1/2 and Natalya whos 2 and 1/2! > > They > > > are non-stop. Plus Marly's been having alot of issues along with the > > > scoliosis, she was thorwing up every day, losing weight, had to see > > a > > > pediatric GI. Then she had a vaginal protrusion and they didnt know > > if it > > > was one og her organs (bladder, uterus, etc) so she had to see a > > pediatric > > > urologist. Everything seems to be ok now, their just keeping an eye > > on > > > everything. I've also been busy coordinating a benefit in honor of > > > Marlycia, which took place yesterday. > > > asked me to update everyone here on CAST. > > > All the proceeds r going to Shriners in Philadelphia (where Marly is > > > treated). I handed out ISOP brochures and explained what they did > > and how > > > much of an impact has had on getting Mehta method casting > > here!! > > > We raised $4000 and we were able to get live news coverage. The news > > aired > > > it three times already since last night and I was able to explain > > the > > > seriousness of PIS and how it affects these babies, the treatments, > > and > > > how we need to spread awareness. I told them too many people know > > nothing > > > about it (including the medical community)or dont know how > > life-threating > > > it can be and how early treatment is the best. I made a huge poster > > with > > > her pics in cast, xrays, after OR, etc and the news aired her x-rays > > and > > > pics of her in cast so people can see with their own eyes what these > > > babies bones look like. Hopefully with all the people at the benefit > > and > > > it being on the news, this area will be better educated on it now > > and > > > maybe someone elses baby will be helped! > > > Talk to everyone soon > > > > > > Melinda > > > Mommy of Marlycia 17 mnths, Natalya 2.5 yrs > > > Scranton, PA > > > > > > wanted me to let everyone know that I > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2010 Report Share Posted June 15, 2010 I'm sure Shriners would love to do a write-up on this event. There's a quarterly newsletter published by the Philly hospital called Connections - I know the person who puts the stories together and would be happy to intervene to get this published. > > Melinda, > I had no idea Marly was going through so much.....And, to accomplish this > while trying to help her! AMAZING! There is no doubt that your efforts > have helped many children. Im blown away really...I cant wait to see the > news coverage! And, I bet the Shriners will do a write up on the event as > well. I wish I could hug you right now. You are an amazing woman > Melinda. This is not easy, but you did it anyway. Good on you scoli > sista! > If you ever do it again , let us know. I'de like to help. > Sincerely, > HRH > > Hi all, > > I havent posted in a long time but I try to keep up on posts! I've been > > extremly busy with Marly who's 1 and 1/2 and Natalya whos 2 and 1/2! They > > are non-stop. Plus Marly's been having alot of issues along with the > > scoliosis, she was thorwing up every day, losing weight, had to see a > > pediatric GI. Then she had a vaginal protrusion and they didnt know if it > > was one og her organs (bladder, uterus, etc) so she had to see a pediatric > > urologist. Everything seems to be ok now, their just keeping an eye on > > everything. I've also been busy coordinating a benefit in honor of > > Marlycia, which took place yesterday. > > asked me to update everyone here on CAST. > > All the proceeds r going to Shriners in Philadelphia (where Marly is > > treated). I handed out ISOP brochures and explained what they did and how > > much of an impact has had on getting Mehta method casting here!! > > We raised $4000 and we were able to get live news coverage. The news aired > > it three times already since last night and I was able to explain the > > seriousness of PIS and how it affects these babies, the treatments, and > > how we need to spread awareness. I told them too many people know nothing > > about it (including the medical community)or dont know how life-threating > > it can be and how early treatment is the best. I made a huge poster with > > her pics in cast, xrays, after OR, etc and the news aired her x-rays and > > pics of her in cast so people can see with their own eyes what these > > babies bones look like. Hopefully with all the people at the benefit and > > it being on the news, this area will be better educated on it now and > > maybe someone elses baby will be helped! > > Talk to everyone soon > > > > Melinda > > Mommy of Marlycia 17 mnths, Natalya 2.5 yrs > > Scranton, PA > > > > wanted me to let everyone know that I > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2010 Report Share Posted June 15, 2010 I'm sure Shriners would love to do a write-up on this event. There's a quarterly newsletter published by the Philly hospital called Connections - I know the person who puts the stories together and would be happy to intervene to get this published. > > Melinda, > I had no idea Marly was going through so much.....And, to accomplish this > while trying to help her! AMAZING! There is no doubt that your efforts > have helped many children. Im blown away really...I cant wait to see the > news coverage! And, I bet the Shriners will do a write up on the event as > well. I wish I could hug you right now. You are an amazing woman > Melinda. This is not easy, but you did it anyway. Good on you scoli > sista! > If you ever do it again , let us know. I'de like to help. > Sincerely, > HRH > > Hi all, > > I havent posted in a long time but I try to keep up on posts! I've been > > extremly busy with Marly who's 1 and 1/2 and Natalya whos 2 and 1/2! They > > are non-stop. Plus Marly's been having alot of issues along with the > > scoliosis, she was thorwing up every day, losing weight, had to see a > > pediatric GI. Then she had a vaginal protrusion and they didnt know if it > > was one og her organs (bladder, uterus, etc) so she had to see a pediatric > > urologist. Everything seems to be ok now, their just keeping an eye on > > everything. I've also been busy coordinating a benefit in honor of > > Marlycia, which took place yesterday. > > asked me to update everyone here on CAST. > > All the proceeds r going to Shriners in Philadelphia (where Marly is > > treated). I handed out ISOP brochures and explained what they did and how > > much of an impact has had on getting Mehta method casting here!! > > We raised $4000 and we were able to get live news coverage. The news aired > > it three times already since last night and I was able to explain the > > seriousness of PIS and how it affects these babies, the treatments, and > > how we need to spread awareness. I told them too many people know nothing > > about it (including the medical community)or dont know how life-threating > > it can be and how early treatment is the best. I made a huge poster with > > her pics in cast, xrays, after OR, etc and the news aired her x-rays and > > pics of her in cast so people can see with their own eyes what these > > babies bones look like. Hopefully with all the people at the benefit and > > it being on the news, this area will be better educated on it now and > > maybe someone elses baby will be helped! > > Talk to everyone soon > > > > Melinda > > Mommy of Marlycia 17 mnths, Natalya 2.5 yrs > > Scranton, PA > > > > wanted me to let everyone know that I > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2010 Report Share Posted June 15, 2010 I'm sure Shriners would love to do a write-up on this event. There's a quarterly newsletter published by the Philly hospital called Connections - I know the person who puts the stories together and would be happy to intervene to get this published. > > Melinda, > I had no idea Marly was going through so much.....And, to accomplish this > while trying to help her! AMAZING! There is no doubt that your efforts > have helped many children. Im blown away really...I cant wait to see the > news coverage! And, I bet the Shriners will do a write up on the event as > well. I wish I could hug you right now. You are an amazing woman > Melinda. This is not easy, but you did it anyway. Good on you scoli > sista! > If you ever do it again , let us know. I'de like to help. > Sincerely, > HRH > > Hi all, > > I havent posted in a long time but I try to keep up on posts! I've been > > extremly busy with Marly who's 1 and 1/2 and Natalya whos 2 and 1/2! They > > are non-stop. Plus Marly's been having alot of issues along with the > > scoliosis, she was thorwing up every day, losing weight, had to see a > > pediatric GI. Then she had a vaginal protrusion and they didnt know if it > > was one og her organs (bladder, uterus, etc) so she had to see a pediatric > > urologist. Everything seems to be ok now, their just keeping an eye on > > everything. I've also been busy coordinating a benefit in honor of > > Marlycia, which took place yesterday. > > asked me to update everyone here on CAST. > > All the proceeds r going to Shriners in Philadelphia (where Marly is > > treated). I handed out ISOP brochures and explained what they did and how > > much of an impact has had on getting Mehta method casting here!! > > We raised $4000 and we were able to get live news coverage. The news aired > > it three times already since last night and I was able to explain the > > seriousness of PIS and how it affects these babies, the treatments, and > > how we need to spread awareness. I told them too many people know nothing > > about it (including the medical community)or dont know how life-threating > > it can be and how early treatment is the best. I made a huge poster with > > her pics in cast, xrays, after OR, etc and the news aired her x-rays and > > pics of her in cast so people can see with their own eyes what these > > babies bones look like. Hopefully with all the people at the benefit and > > it being on the news, this area will be better educated on it now and > > maybe someone elses baby will be helped! > > Talk to everyone soon > > > > Melinda > > Mommy of Marlycia 17 mnths, Natalya 2.5 yrs > > Scranton, PA > > > > wanted me to let everyone know that I > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2010 Report Share Posted June 15, 2010 , Sounds great! I hope I can help you help Shriners. I actually spoke with S, PR at Shriners, Philly. She wanted to interview me when we go down next wk. Marlycia is going back next Tues 6/22 for an x-ray/check up to see how her back is holding on the brace. I am bringing the check with me and they want to take a pic. Rita called me too and asked if we could come down this Thurs 6/17 and meet with the board members, do a formal check presentation, etc. We're not able to make it. My husband cant get work off and we cant change our appt from 6/22 to 6/17 so I told her we are so greatful for the gesture. She invited us next mnth or in Aug. But are these the ladies you were thinking of? Melinda Re: Melinda & Marly> >> >> >> >> >> > Melinda,> > I had no idea Marly was going through so much.....And, to accomplish> > this> > while trying to help her! AMAZING! There is no doubt that your efforts> > have helped many children. Im blown away really...I cant wait to see> > the> > news coverage! And, I bet the Shriners will do a write up on the event> > as> > well. I wish I could hug you right now. You are an amazing woman> > Melinda. This is not easy, but you did it anyway. Good on you scoli> > sista!> > If you ever do it again , let us know. I'de like to help.> > Sincerely,> > HRH> > > Hi all,> > > I havent posted in a long time but I try to keep up on posts! I've> > been> > > extremly busy with Marly who's 1 and 1/2 and Natalya whos 2 and 1/2!> > They> > > are non-stop. Plus Marly's been having alot of issues along with the> > > scoliosis, she was thorwing up every day, losing weight, had to see> > a> > > pediatric GI. Then she had a vaginal protrusion and they didnt know> > if it> > > was one og her organs (bladder, uterus, etc) so she had to see a> > pediatric> > > urologist. Everything seems to be ok now, their just keeping an eye> > on> > > everything. I've also been busy coordinating a benefit in honor of> > > Marlycia, which took place yesterday.> > > asked me to update everyone here on CAST.> > > All the proceeds r going to Shriners in Philadelphia (where Marly is> > > treated). I handed out ISOP brochures and explained what they did> > and how> > > much of an impact has had on getting Mehta method casting> > here!!> > > We raised $4000 and we were able to get live news coverage. The news> > aired> > > it three times already since last night and I was able to explain> > the> > > seriousness of PIS and how it affects these babies, the treatments,> > and> > > how we need to spread awareness. I told them too many people know> > nothing> > > about it (including the medical community)or dont know how> > life-threating> > > it can be and how early treatment is the best. I made a huge poster> > with> > > her pics in cast, xrays, after OR, etc and the news aired her x-rays> > and> > > pics of her in cast so people can see with their own eyes what these> > > babies bones look like. Hopefully with all the people at the benefit> > and> > > it being on the news, this area will be better educated on it now> > and> > > maybe someone elses baby will be helped!> > > Talk to everyone soon> > >> > > Melinda> > > Mommy of Marlycia 17 mnths, Natalya 2.5 yrs> > > Scranton, PA> > >> > > wanted me to let everyone know that I> > >> > >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2010 Report Share Posted June 16, 2010 Hi Melinda, Yes, , Rita and Terry are the wonderful ladies I was referring to. (PR) is the one who often contacts me about events. In fact, for anyone who can be in Manhattan EARLY on the morning of Monday, June 28th, (around 7 a.m.) the Early Show on CBS is going to interview some Shriners on the Plaza and they want supporters (patients, families, etc.) to join them. If anyone is interested, please contact me at mariaf305@... and I'll forward the flyer that sent me. I would post the flyer here as an attachment but I don't know how!! Terry is the Director of Development and Rita works with her. I often ask them to meet and greet new families that I refer to the hosptial just so that folks have a friendly face to see, especially on their first visit - and these ladies never disappoint! I call them the Welcome Wagon. I look forward to hearing from you, Melinda - please e-mail me anytime. I have a feeling we may be working together in the future and I very much look forward to it! > > > > You and will move mountains! > > H. > > > > > , > > > > > > I would love to to talk to her!! See what we can do together. > > > > > > Thanks > > > Melinda > > > > > > Re: Melinda & Marly > > > > > > > > > > > > > > > > > > Melinda, > > > I had no idea Marly was going through so much.....And, to accomplish > > > this > > > while trying to help her! AMAZING! There is no doubt that your efforts > > > have helped many children. Im blown away really...I cant wait to see > > > the > > > news coverage! And, I bet the Shriners will do a write up on the event > > > as > > > well. I wish I could hug you right now. You are an amazing woman > > > Melinda. This is not easy, but you did it anyway. Good on you scoli > > > sista! > > > If you ever do it again , let us know. I'de like to help. > > > Sincerely, > > > HRH > > > > Hi all, > > > > I havent posted in a long time but I try to keep up on posts! I've > > > been > > > > extremly busy with Marly who's 1 and 1/2 and Natalya whos 2 and 1/2! > > > They > > > > are non-stop. Plus Marly's been having alot of issues along with the > > > > scoliosis, she was thorwing up every day, losing weight, had to see > > > a > > > > pediatric GI. Then she had a vaginal protrusion and they didnt know > > > if it > > > > was one og her organs (bladder, uterus, etc) so she had to see a > > > pediatric > > > > urologist. Everything seems to be ok now, their just keeping an eye > > > on > > > > everything. I've also been busy coordinating a benefit in honor of > > > > Marlycia, which took place yesterday. > > > > asked me to update everyone here on CAST. > > > > All the proceeds r going to Shriners in Philadelphia (where Marly is > > > > treated). I handed out ISOP brochures and explained what they did > > > and how > > > > much of an impact has had on getting Mehta method casting > > > here!! > > > > We raised $4000 and we were able to get live news coverage. The news > > > aired > > > > it three times already since last night and I was able to explain > > > the > > > > seriousness of PIS and how it affects these babies, the treatments, > > > and > > > > how we need to spread awareness. I told them too many people know > > > nothing > > > > about it (including the medical community)or dont know how > > > life-threating > > > > it can be and how early treatment is the best. I made a huge poster > > > with > > > > her pics in cast, xrays, after OR, etc and the news aired her x-rays > > > and > > > > pics of her in cast so people can see with their own eyes what these > > > > babies bones look like. Hopefully with all the people at the benefit > > > and > > > > it being on the news, this area will be better educated on it now > > > and > > > > maybe someone elses baby will be helped! > > > > Talk to everyone soon > > > > > > > > Melinda > > > > Mommy of Marlycia 17 mnths, Natalya 2.5 yrs > > > > Scranton, PA > > > > > > > > wanted me to let everyone know that I > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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