Re: partial adrenalectomy question

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| partial adrenalectomy question

|

|Hi! I am a 31 year old female who has had unexplained high blood pressure

for

|about 5 years now. It spiked really high after giving birth to my 2nd child

in

|December. A CBC showed low potassium. I finally found a dr. who would do

|further testing.

|

|Long story short an MRI found a 1cm tumor on one of my adrenal glands. I'm

|having adrenal vein sampling done Thursday to see if excess aldosterone is

|coming from the tumor (hoping) or both glands.

|

|If I do need to have an adenalectomy does anyone know how that effects the

|rest of your life - especially having it done at such a young age? Has

anyone

|had or heard of a partial adrenalectomy?

|

|Any help would be appreciated. I'm glad to have found this group so I don't

|feel so alone with this.

|

|

|

[Guest guest]

You might like these stories:

http://hyperaldosteronism.blogspot.ca/2012/01/change-in-nadf-conns-descripti

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| partial adrenalectomy question

|

|Hi! I am a 31 year old female who has had unexplained high blood pressure

for

|about 5 years now. It spiked really high after giving birth to my 2nd child

in

|December. A CBC showed low potassium. I finally found a dr. who would do

|further testing.

|

|Long story short an MRI found a 1cm tumor on one of my adrenal glands. I'm

|having adrenal vein sampling done Thursday to see if excess aldosterone is

|coming from the tumor (hoping) or both glands.

|

|If I do need to have an adenalectomy does anyone know how that effects the

|rest of your life - especially having it done at such a young age? Has

anyone

|had or heard of a partial adrenalectomy?

|

|Any help would be appreciated. I'm glad to have found this group so I don't

|feel so alone with this.

|

|

|

[Guest guest]

You might like these stories:

http://hyperaldosteronism.blogspot.ca/2012/01/change-in-nadf-conns-descripti

on.html

| partial adrenalectomy question

|

|Hi! I am a 31 year old female who has had unexplained high blood pressure

for

|about 5 years now. It spiked really high after giving birth to my 2nd child

in

|December. A CBC showed low potassium. I finally found a dr. who would do

|further testing.

|

|Long story short an MRI found a 1cm tumor on one of my adrenal glands. I'm

|having adrenal vein sampling done Thursday to see if excess aldosterone is

|coming from the tumor (hoping) or both glands.

|

|If I do need to have an adenalectomy does anyone know how that effects the

|rest of your life - especially having it done at such a young age? Has

anyone

|had or heard of a partial adrenalectomy?

|

|Any help would be appreciated. I'm glad to have found this group so I don't

|feel so alone with this.

|

|

|

[Guest guest]

No known long term effects after unilateral Adx. Be sure they use ACTH during AVS. We have a form to calculate results and recommend u send them to us when u get them. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn May 7, 2012, at 14:21, Sara <sara212729@...> wrote:

Hi! I am a 31 year old female who has had unexplained high blood pressure for about 5 years now. It spiked really high after giving birth to my 2nd child in December. A CBC showed low potassium. I finally found a dr. who would do further testing.

Long story short an MRI found a 1cm tumor on one of my adrenal glands. I'm having adrenal vein sampling done Thursday to see if excess aldosterone is coming from the tumor (hoping) or both glands.

If I do need to have an adenalectomy does anyone know how that effects the rest of your life - especially having it done at such a young age? Has anyone had or heard of a partial adrenalectomy?

Any help would be appreciated. I'm glad to have found this group so I don't feel so alone with this.

[Guest guest]

Also any FH of HTN at a young age or strokes in men or low K in anyone ?May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn May 7, 2012, at 18:05, Study Circle <studycircle@...> wrote:

You might like these stories:

http://hyperaldosteronism.blogspot.ca/2012/01/change-in-nadf-conns-descripti

on.html

| partial adrenalectomy question

|

|Hi! I am a 31 year old female who has had unexplained high blood pressure

for

|about 5 years now. It spiked really high after giving birth to my 2nd child

in

|December. A CBC showed low potassium. I finally found a dr. who would do

|further testing.

|

|Long story short an MRI found a 1cm tumor on one of my adrenal glands. I'm

|having adrenal vein sampling done Thursday to see if excess aldosterone is

|coming from the tumor (hoping) or both glands.

|

|If I do need to have an adenalectomy does anyone know how that effects the

|rest of your life - especially having it done at such a young age? Has

anyone

|had or heard of a partial adrenalectomy?

|

|Any help would be appreciated. I'm glad to have found this group so I don't

|feel so alone with this.

|

|

|

[Guest guest]

Some places do partial adrenalectomy. Not commonly done so is limited knowledge

as to outcome.

>

> > Hi! I am a 31 year old female who has had unexplained high blood pressure

for about 5 years now. It spiked really high after giving birth to my 2nd child

in December. A CBC showed low potassium. I finally found a dr. who would do

further testing.

> >

> > Long story short an MRI found a 1cm tumor on one of my adrenal glands. I'm

having adrenal vein sampling done Thursday to see if excess aldosterone is

coming from the tumor (hoping) or both glands.

> >

> > If I do need to have an adenalectomy does anyone know how that effects the

rest of your life - especially having it done at such a young age? Has anyone

had or heard of a partial adrenalectomy?

> >

> > Any help would be appreciated. I'm glad to have found this group so I don't

feel so alone with this.

> >

> >

>

[Guest guest]

If you have ever watched an ADX you come to realize it is a very bloody organ. Taking out 1/2 thru a microscope may be tricky.CE Grim MDOn May 7, 2012, at 6:38 PM, Francis Bill SUSPECTED PA wrote: Some places do partial adrenalectomy. Not commonly done so is limited knowledge as to outcome. > > > Hi! I am a 31 year old female who has had unexplained high blood pressure for about 5 years now. It spiked really high after giving birth to my 2nd child in December. A CBC showed low potassium. I finally found a dr. who would do further testing. > > > > Long story short an MRI found a 1cm tumor on one of my adrenal glands. I'm having adrenal vein sampling done Thursday to see if excess aldosterone is coming from the tumor (hoping) or both glands. > > > > If I do need to have an adenalectomy does anyone know how that effects the rest of your life - especially having it done at such a young age? Has anyone had or heard of a partial adrenalectomy? > > > > Any help would be appreciated. I'm glad to have found this group so I don't feel so alone with this. > > > > >

[Guest guest]

If you have ever watched an ADX you come to realize it is a very bloody organ. Taking out 1/2 thru a microscope may be tricky.CE Grim MDOn May 7, 2012, at 6:38 PM, Francis Bill SUSPECTED PA wrote: Some places do partial adrenalectomy. Not commonly done so is limited knowledge as to outcome. > > > Hi! I am a 31 year old female who has had unexplained high blood pressure for about 5 years now. It spiked really high after giving birth to my 2nd child in December. A CBC showed low potassium. I finally found a dr. who would do further testing. > > > > Long story short an MRI found a 1cm tumor on one of my adrenal glands. I'm having adrenal vein sampling done Thursday to see if excess aldosterone is coming from the tumor (hoping) or both glands. > > > > If I do need to have an adenalectomy does anyone know how that effects the rest of your life - especially having it done at such a young age? Has anyone had or heard of a partial adrenalectomy? > > > > Any help would be appreciated. I'm glad to have found this group so I don't feel so alone with this. > > > > >

[Guest guest]

If you have ever watched an ADX you come to realize it is a very bloody organ. Taking out 1/2 thru a microscope may be tricky.CE Grim MDOn May 7, 2012, at 6:38 PM, Francis Bill SUSPECTED PA wrote: Some places do partial adrenalectomy. Not commonly done so is limited knowledge as to outcome. > > > Hi! I am a 31 year old female who has had unexplained high blood pressure for about 5 years now. It spiked really high after giving birth to my 2nd child in December. A CBC showed low potassium. I finally found a dr. who would do further testing. > > > > Long story short an MRI found a 1cm tumor on one of my adrenal glands. I'm having adrenal vein sampling done Thursday to see if excess aldosterone is coming from the tumor (hoping) or both glands. > > > > If I do need to have an adenalectomy does anyone know how that effects the rest of your life - especially having it done at such a young age? Has anyone had or heard of a partial adrenalectomy? > > > > Any help would be appreciated. I'm glad to have found this group so I don't feel so alone with this. > > > > >

[Guest guest]

I decided to look into this and it looks like there is starting to be more

interest. The first is a review by NIH and gives lot of good data. It will be

interesting to follow over time for long term success and to see if more

adenomas develop. Here are 3 stories:

Partial adrenalectomy: underused first line therapy for small adrenal tumors.

Kaye DR, Storey BB, Pacak K, Pinto PA, Linehan WM, Bratslavsky G.

Source

Urologic Oncology Branch, National Cancer Institute and Section on

Neuroendocrinology, National Institute of Child Health and Human Development

(BBS, KP), National Institutes of Health, Bethesda, land, USA.

Source: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3164765/pdf/nihms-316293.pdf

Robot Assisted Laparoscopic Partial Adrenalectomy: Initial Experience

Source: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3074102/pdf/nihms257096.pdf

Initial experience of transumbilical laparoendoscopic single-site surgery of

partial adrenalectomy in patient with aldosterone-producing adenoma.

Source:

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3000378/pdf/1471-2490-10-19.pdf

> > >

> > > > Hi! I am a 31 year old female who has had unexplained high blood

> > pressure for about 5 years now. It spiked really high after giving

> > birth to my 2nd child in December. A CBC showed low potassium. I

> > finally found a dr. who would do further testing.

> > > >

> > > > Long story short an MRI found a 1cm tumor on one of my adrenal

> > glands. I'm having adrenal vein sampling done Thursday to see if

> > excess aldosterone is coming from the tumor (hoping) or both glands.

> > > >

> > > > If I do need to have an adenalectomy does anyone know how that

> > effects the rest of your life - especially having it done at such a

> > young age? Has anyone had or heard of a partial adrenalectomy?

> > > >

> > > > Any help would be appreciated. I'm glad to have found this group

> > so I don't feel so alone with this.

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

Hi,

I had a similar story - mine peaked really high just after having my third baby

when I was 37 (had a history of slightly high side BP but nothing needing meds).

I had an adrenalectomy last year - all great.

I did ask about a partial adrenalectomy at the time i.e. just remove the (in my

case 23mm) tumour and the surgeon just reckoned it complicated the surgery too

much because he couldn't tell where all the blood vessels were lying etc. So it

would become a much longer and more traumatic procedure. He did say he'd

consider once he was in there but I think that was just to keep me quiet - I was

in and out in 45 minutes so I don't think he spent much time considering it!

But I don't think the long term side effects of only one adrenal gland are bad -

the other kicks in and does the work of both. I have a friend who had kidney

cancer at the age of four and had her kidney removed (with, I presume, the

adrenam gland since I don't think it can function alone, floating in space).

She's now a happy, healthy, about to turn 40, mum to four kids so I'd say the

long term prospects are good.

Good luck with the rest of the tests and hope you get a clear cut result,

Hester

>

> Hi! I am a 31 year old female who has had unexplained high blood pressure for

about 5 years now. It spiked really high after giving birth to my 2nd child in

December. A CBC showed low potassium. I finally found a dr. who would do further

testing.

>

> Long story short an MRI found a 1cm tumor on one of my adrenal glands. I'm

having adrenal vein sampling done Thursday to see if excess aldosterone is

coming from the tumor (hoping) or both glands.

>

> If I do need to have an adenalectomy does anyone know how that effects the

rest of your life - especially having it done at such a young age? Has anyone

had or heard of a partial adrenalectomy?

>

> Any help would be appreciated. I'm glad to have found this group so I don't

feel so alone with this.

>

[Guest guest]

In many cases with kidney cancer they take both the adrenal and the kidney in one fell swoop. Adrenal can be left but tricky as it drains into the renal vein on the L. So they clamp that off first to prevent Ca cells from going into body when they take the kidney.CE Grim MDOn May 8, 2012, at 10:13 AM, hesterfenwick wrote: Hi, I had a similar story - mine peaked really high just after having my third baby when I was 37 (had a history of slightly high side BP but nothing needing meds). I had an adrenalectomy last year - all great. I did ask about a partial adrenalectomy at the time i.e. just remove the (in my case 23mm) tumour and the surgeon just reckoned it complicated the surgery too much because he couldn't tell where all the blood vessels were lying etc. So it would become a much longer and more traumatic procedure. He did say he'd consider once he was in there but I think that was just to keep me quiet - I was in and out in 45 minutes so I don't think he spent much time considering it! But I don't think the long term side effects of only one adrenal gland are bad - the other kicks in and does the work of both. I have a friend who had kidney cancer at the age of four and had her kidney removed (with, I presume, the adrenam gland since I don't think it can function alone, floating in space). She's now a happy, healthy, about to turn 40, mum to four kids so I'd say the long term prospects are good. Good luck with the rest of the tests and hope you get a clear cut result, Hester > > Hi! I am a 31 year old female who has had unexplained high blood pressure for about 5 years now. It spiked really high after giving birth to my 2nd child in December. A CBC showed low potassium. I finally found a dr. who would do further testing. > > Long story short an MRI found a 1cm tumor on one of my adrenal glands. I'm having adrenal vein sampling done Thursday to see if excess aldosterone is coming from the tumor (hoping) or both glands. > > If I do need to have an adenalectomy does anyone know how that effects the rest of your life - especially having it done at such a young age? Has anyone had or heard of a partial adrenalectomy? > > Any help would be appreciated. I'm glad to have found this group so I don't feel so alone with this. >

[Guest guest]

Thank you for looking into that for me. I will definitely be considering

both options.

> > > >

> > > > > Hi! I am a 31 year old female who has had unexplained high blood

> > > pressure for about 5 years now. It spiked really high after giving

> > > birth to my 2nd child in December. A CBC showed low potassium. I

> > > finally found a dr. who would do further testing.

> > > > >

> > > > > Long story short an MRI found a 1cm tumor on one of my adrenal

> > > glands. I'm having adrenal vein sampling done Thursday to see if

> > > excess aldosterone is coming from the tumor (hoping) or both glands.

> > > > >

> > > > > If I do need to have an adenalectomy does anyone know how that

> > > effects the rest of your life - especially having it done at such a

> > > young age? Has anyone had or heard of a partial adrenalectomy?

> > > > >

> > > > > Any help would be appreciated. I'm glad to have found this group

> > > so I don't feel so alone with this.

> > > > >

> > > > >

> > > >

> > >

> > >

> >

>