Guest guest Posted March 14, 2004 Report Share Posted March 14, 2004 The testimony below mentions a supplement I've not heard of. Have any of you tried this with your child with autism? BMJ---Additional information on MMR booster shot---case >Date: Sun, 14 Mar 2004 02:26:37 -0500 >From: Gallup <truegrit@...> http://bmj.bmjjournals.com/cgi/eletters/328/7440/602-c#52948 My reply sent out...should be on there soon...........Ray Gallup Founder of The Autism Autoimmunity Project 45 Iroquois Avenue, Lake Hiawatha, NJ 07034 USA Send response to journal: Re: Re: UNRELIABILITY OF SCIENTIFIC PAPERS AS EVIDENCE Email Gallup In response to Clifford G 's " Unreliability of Scientific Papers As Evidence " , Mr. says the following: " At the time of writing, it is being claimed by a US Board Certified Paediatrician (6) that the IoM and US Courts accept as proof of causation evidence showing a double reaction, first to the initial MMR inoculation and again followed by a reaction to the booster. " Regarding the MMR booster shot, I have heard from a few parents about the adverse effect of a MMR vaccine booster shot but the most striking case is the following from Trina Schmits, RN who lives in upstate New York. Our son Tim, who is now 21 has been ill since Spring of 1994 with an undiagnosed neurological condition. His symptoms include optic neuritis, dizziness, muscle weakness ( tongue, jaw and eyes ) and fatigue. Most alarming has been the deterioration of his cognitive function. Tim had been diagnosed as autistic when he was two years old and when his cognitive function began deteriorating again in 1994 it was like history repeating itself. When Tim was two he developed encephalitis, perhaps as a result of an immunization. Prior to that time he had been a happy and alert baby. At age two he regressed, lost his expressive and receptive language skills and developed autistic features. With intensive intervention Tim recovered completely and by the time he was eight years old, was functioning very well both academically and socially and was considered completely recovered. In June of 1992 Tim had a measles booster shot. This may or may not be significant. Two months later, the first of several episodes of severe eye pain and light sensitivity developed, with no diagnosis. There was a pattern of increasing fatigue and sensory overload. In the Spring of 1994 Tim began to complain of increasing difficulty swallowing. At times his speech would sound mushy. During the Fall and Winter Tim's symptoms became constant. He was loosing weight due to difficulty swallowing and was sleeping most of the time. His eyes were now misaligned, and he was developing tremors in his eyes, eyelids, tongue and jaw. He also suffered from intense itching whenever even slightly overheated. He was worked up extensively for multiple sclerosis, myasthenia gravis and mastocytosis, and felt not to have any of these conditions. In Jan. 1995 Tim was in such distress his neurologist gave him a five day course of IV solu-medrol. His eye symptoms improved dramatically, as did his cognitive functioning but his response was short- lived and by June Tim was again in terrible distress from his symptoms. Let me add that to even the most casual observer, Tim appeared to be very ill. It was then I began researching everything I could find on autism, immunization reactions and demyelinating diseases, hoping I might find a common thread. Months later a possible common thread did emerge and that was an autoimmune process. Independently I read of an environmental physician who was treating some cases of early autism with what he called " antigen feeding " . I read incredible stories about immunization reactions, and the belief by some researchers that atypical forms of autism are increasing and that the antibodies to vaccinations are also attacking the myelin. One MD in California reports he is using IVIG to treat selected cases of autism with success. Because the neuropsychologist who tested Tim believed his test profile was indicative of an early demyelinating disease, I began to read everything I could regarding treatments for MS that were available. That was when I read about Myloral, and antigen desensetization. In August, Tim was doing poorly but his neurologist wanted to wait until Oct. to do another course of Solu-medrol. As it turned out this second course never happened. I told Tim about antigen desensitization and he agreed to take Sphingolin, a food supplement said to contain myelin basic protein. This was all quite casual, with actually little expectation that it would help. Tim began taking eight capsules a day on an empty stomach. The first person to notice an astounding difference was the optometrist who has been doing vision training with Tim. All objective measures of Tim's vision had dramatically improved. Tim was sleeping less, and friends were beginning to remark how much better he looked. The improvement continues to this day. The tremors have diminished to a whisper. Tim can now use his eyes to read for the first time in 2 1/2 years. His slowness in thought and difficulty speaking are completely gone. I am aware that this story regarding Tim proves nothing. We have no diagnosis. The only tests that are positive are the visual evoked potential tests and the BAER. His measles antibody titer is also high. Because no regulated product is yet available, we are giving Tim a " food supplement " that is also poorly defined. Not as a scientist, but as a mother let me say with the certainty that only a mother can have...Tim's recent illness is the same illness that he had when he was two. It looks the same, it feels the same. I also know that Tim has been slowly improving since taking Sphingolin. I have worked very hard to help my son and believe this simple intervention has given Tim back his life. If you could see Tim today and if you could have seen him only two months ago, you would understand why this is potentially such a compelling story. Yours truly, Trina Schmits (Tim's mother) Competing interests: Founder of The Autism Autoimmunity Project and father to , who has regressive autism and tested positive for myelin basic protein antibodies, has elevated measles antibody titers, T-cell abnormalities and colitis. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2004 Report Share Posted March 14, 2004 I had read a little about this and it is from cow spinal cord. YIKES Mad Cow disease. That is the last think my little guy needs. Liz. On 3/14/04 10:53 AM, " Carlson " <ckcarlson@...> wrote: > The testimony below mentions a supplement I've not heard of. Have any of you > tried this with your child with autism? > > > > BMJ---Additional information on MMR booster shot---case > >> >Date: Sun, 14 Mar 2004 02:26:37 -0500 >> >From: Gallup <truegrit@...> > > > http://bmj.bmjjournals.com/cgi/eletters/328/7440/602-c#52948 > > My reply sent out...should be on there soon...........Ray Gallup > > Founder of The Autism Autoimmunity Project > 45 Iroquois Avenue, Lake Hiawatha, NJ 07034 USA > > Send response to journal: > Re: Re: UNRELIABILITY OF SCIENTIFIC PAPERS AS EVIDENCE > > > Email Gallup > > > > > > In response to Clifford G 's " Unreliability of Scientific Papers As > Evidence " , Mr. says the following: > > " At the time of writing, it is being claimed by a US Board Certified > Paediatrician (6) that the IoM and US Courts accept as proof of causation > evidence showing a double reaction, first to the initial MMR inoculation > and again followed by a reaction to the booster. " > > Regarding the MMR booster shot, I have heard from a few parents about the > adverse effect of a MMR vaccine booster shot but the most striking case is > the following from Trina Schmits, RN who lives in upstate New York. > > Our son Tim, who is now 21 has been ill since Spring of 1994 with an > undiagnosed neurological condition. His symptoms include optic neuritis, > dizziness, muscle weakness ( tongue, jaw and eyes ) and fatigue. Most > alarming has been the deterioration of his cognitive function. Tim had been > diagnosed as autistic when he was two years old and when his cognitive > function began deteriorating again in 1994 it was like history repeating > itself. When Tim was two he developed encephalitis, perhaps as a result of > an immunization. Prior to that time he had been a happy and alert baby. At > age two he regressed, lost his expressive and receptive language skills and > developed autistic features. With intensive intervention Tim recovered > completely and by the time he was eight years old, was functioning very > well both academically and socially and was considered completely recovered. > > In June of 1992 Tim had a measles booster shot. This may or may not be > significant. Two months later, the first of several episodes of severe eye > pain and light sensitivity developed, with no diagnosis. There was a > pattern of increasing fatigue and sensory overload. In the Spring of 1994 > Tim began to complain of increasing difficulty swallowing. At times his > speech would sound mushy. During the Fall and Winter Tim's symptoms became > constant. He was loosing weight due to difficulty swallowing and was > sleeping most of the time. His eyes were now misaligned, and he was > developing tremors in his eyes, eyelids, tongue and jaw. He also suffered > from intense itching whenever even slightly overheated. He was worked up > extensively for multiple sclerosis, myasthenia gravis and mastocytosis, and > felt not to have any of these conditions. In Jan. 1995 Tim was in such > distress his neurologist gave him a five day course of IV solu-medrol. His > eye symptoms improved dramatically, as did his cognitive functioning but > his response was short- lived and by June Tim was again in terrible > distress from his symptoms. Let me add that to even the most casual > observer, Tim appeared to be very ill. > > It was then I began researching everything I could find on autism, > immunization reactions and demyelinating diseases, hoping I might find a > common thread. Months later a possible common thread did emerge and that > was an autoimmune process. Independently I read of an environmental > physician who was treating some cases of early autism with what he called > " antigen feeding " . I read incredible stories about immunization reactions, > and the belief by some researchers that atypical forms of autism are > increasing and that the antibodies to vaccinations are also attacking the > myelin. One MD in California reports he is using IVIG to treat selected > cases of autism with success. > > Because the neuropsychologist who tested Tim believed his test profile was > indicative of an early demyelinating disease, I began to read everything I > could regarding treatments for MS that were available. That was when I read > about Myloral, and antigen desensetization. In August, Tim was doing poorly > but his neurologist wanted to wait until Oct. to do another course of > Solu-medrol. As it turned out this second course never happened. I told Tim > about antigen desensitization and he agreed to take Sphingolin, a food > supplement said to contain myelin basic protein. This was all quite casual, > with actually little expectation that it would help. Tim began taking eight > capsules a day on an empty stomach. > > The first person to notice an astounding difference was the optometrist > who has been doing vision training with Tim. All objective measures of > Tim's vision had dramatically improved. Tim was sleeping less, and friends > were beginning to remark how much better he looked. The improvement > continues to this day. The tremors have diminished to a whisper. Tim can > now use his eyes to read for the first time in 2 1/2 years. His slowness in > thought and difficulty speaking are completely gone. > > I am aware that this story regarding Tim proves nothing. We have no > diagnosis. The only tests that are positive are the visual evoked potential > tests and the BAER. His measles antibody titer is also high. Because no > regulated product is yet available, we are giving Tim a " food supplement " > that is also poorly defined. > > Not as a scientist, but as a mother let me say with the certainty that > only a mother can have...Tim's recent illness is the same illness that he > had when he was two. It looks the same, it feels the same. I also know that > Tim has been slowly improving since taking Sphingolin. > > I have worked very hard to help my son and believe this simple > intervention has given Tim back his life. If you could see Tim today and if > you could have seen him only two months ago, you would understand why this > is potentially such a compelling story. > > Yours truly, Trina Schmits (Tim's mother) > > Competing interests: Founder of The Autism Autoimmunity Project and father > to , who has regressive autism and tested positive for myelin basic > protein antibodies, has elevated measles antibody titers, T-cell > abnormalities and colitis. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2009 Report Share Posted July 13, 2009 Does anybody use this? Mandi x Quote Link to comment Share on other sites More sharing options...
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