Re: [infantile_scolisos) Patty

May 26, 2010

Thanks you for sharing this experience with everyone on CAST. Im real

sorry about lil Isabellas arm....Im sure you are at the hosp. right now.

This is a lot for you and Iz to go through Patty.....You are sooo on top

of things...Please know we are all thinking of you guys this morn and if

you need anything, you better let us know...Please.

Im afraid your experience w/ the ortho is becoming quite typical. ET is

now the hot topic in the ped ortho community and I am hearing many stories

just like yours. I wont assume what the docs are doing/thinking but my

guess is that its all due to lack of knowledge on Dr. M's Et Method of

EDF. Most docs in the U.S. have not been trained in EDF, only Risser.

Risser is 2 dimensional correction/maintenance and not specific to a

childs small, rapidly growing body. The doc may be acheiving great

results initially and thats great........But, I wonder if rotation is

being addressed...My guess would be no, since they dont have a 3

dimensional, ped. sized frame, nor does he understand the necessity of

properly trimmed windows...In front or back. The windows are crucial for

properly applied ET w/ EDF and so is the frame. If they dont understand

the importance of rotation correction, the frame, windows or the need to

treat under 2 & under 50 degrees.....They are not applying ET w/ EDF as

good as they could....Please tell them to contact ISOP for training and

frame purchase.

Thanks for putting this out there. Our children have a window of time to

benefit from properly applied ET w/ EDF....Lets try and prevent families

from missing that window of time with an inexperienced doc/facilty.

HRH

> and all,

>

> I will post pics of Isabella as soon as she gets the arm casted.

> Unfortunately, we went to a ped ortho Tuesday here were we live and he

> said that it needs to be reset and she will not be able to handle the pain

> so we must go back in the morning to have her sedated to get the arm fixed

> and the cast on. Something came up though while we were talking to the

> doc. Isabella was seeing another man at this practice last year who

> eventually referred us to Dr. S. in Rochester. I told this new guy about

> her being casted for scoli and he asked me where we go. I explained that

> his partner referred us after seeing that bracing wasn't going to do the

> job. He proceeds to tell me that since then, he has started casting kids

> and has about 8 patients that he casts. I said we were referred b/c they

> were not trained and didn't have the proper table and he tells me that you

> don't need the table. He asked to see her cast and wanted to know why the

> cutout was the way it

> was in the front and why there was one at all in the back. Then he

> showed me xrays of a child that he casted and that this particular child

> went from 72 degrees to 35 in cast and that it's working. I have a

> feeling that he is going to try and talk me into doing the casting with

> him but apparently he hasn't been properly trained and so naturally I

> don't want to do it. My husband on the other hand thinks it's great (mind

> you he hasn't researched this the way I have) and I wouldn't have to

> travel anymore. Sorry to ramble on... , do you know of anyone

> that went to Children's Hospital in Pittsburgh to do any training? This

> is a tremendous hospital and this man and the other who treated Isabella

> last year are top notch but sorry, it doesn't sound like a good idea to

> me!

> Patty, mom of Isabella, 2 years old, in 5th cast (Rochester) & mom to

> & Evan

>

> ________________________________

> From: " heather@... " <heather@...>

> infantile scoliosis treatment

> Sent: Tue, May 25, 2010 12:14:41 PM

> Subject: Re: back to posting Patty

>

> We will be waiting to hear all about it. I wonder if your doc has ever

> seen a kiddo with and EDf and limb cast? What a little tough girl

> Isabella must be! Please show us pics..I just gotta see her.

> HRH

>

>> She doesn't seem to be in too much pain but that will all change today

>> when we go to our local ped ortho. We're holding up well (thanks for

>> asking) but it's so hard to keep her from bumping that arm... I'll be

>> glad

>> when it's protected with the cast. I will let everyone know how it goes

>> and will post pics as soon as I can.

>> Patty, mom of Isabella, 2 years old, in 5th cast (Rochester) & mom to

>> & Evan

>>

>> ________________________________

>> From: Hyatt <heather@...>

>> infantile scoliosis treatment

>> Sent: Mon, May 24, 2010 12:34:06 PM

>> Subject: RE: back to posting

>>

>> Oh no!!! I hope she is not in much pain! This is a new one to

>> me. Ive never seen a baby in an EDF have to get a limb casted, as well.

>> How are

>> you both holding up? Please let us know how the arm casting goes and

>> pls

>> share

>> pics! Just gotta see that!

>> HRH

>>

>> From:infantile scoliosis treatment @groups. com

>> [mailto:infantile_ scoliosis] On Behalf Of Patty Bowen

>> Sent: Sunday, May 23, 2010 11:35 AM

>> infantile scoliosis treatment @groups. com

>> Subject: [infantile_scoliosi s] back to posting

>>

>> Hey everyone! I feel so bad because I've been absent

>> around here since Isabella's last casting in early April. I've been

>> working so many hours and then there's your normal household stuff that

>> I

>> keep

>> getting backed up on, the kids, and then knowing how far behind on posts

>> that I

>> am that I'll never catch up. I've decided to start with Friday's

>> postings

>> and get to the older ones as time allows. Update on our life...

>> Isabella

>> was at a party yesterday and fell while trying to kick a ball and ended

>> up

>> in

>> the ER. She broke her arm in 2 places (I guess from the weight of the

>> cast) and so we will be going in this week as soon as they can get us in

>> to

>> have her arm casted. How fun this will be to have 2 casts on her?!

>>

>> Patty, mom of Isabella, 2 years old, in 5th cast (Rochester)

>> & mom to & Evan

>>

>

May 27, 2010

Thanks ! It was all I could do to keep from yelling at this doc about the importance of the 3d table. I actually printed out a previous post from you with all the info on the table, the importance of the windows, etc., etc., and am giving it to him when he checks on Isabella's arm next week. All went well with Isabella's casting and she is now in a hot pink arm cast (much higher up than I anticipated) and the only thing we are dealing with is the pain. She's such a trooper... I'm amazed by her everyday! I'm attaching a picture... hopefully it goes through! Patty, mom of Isabella, 2 years old, in 5th cast (Rochester) & mom to & EvanFrom: "heather@..." <heather@...>infantile scoliosis treatment Sent: Wed, May 26, 2010 11:18:39 AMSubject: Re: [infantile_scolisos) Patty