Guest guest Posted June 1, 2010 Report Share Posted June 1, 2010 ,I wish you the best of luck with your casting tomorrow. The first is the hardest and it does get easier. You are going in with knowledge of the process and that really helped me out a lot. Each day will get better and better and n will amaze you! I miss the skin but really, it has just become a part of our life and we try not to dwell on it. My daughter is still happy and that's all that counts to me. You will do great! Let us know how it all went as soon as you get a minute! Patty, mom of Isabella, 2 years old, in 5th cast (Rochester) & mom to & EvanFrom: shannonclune <shannonclune@...>infantile scoliosis treatment Sent: Mon, May 31, 2010 9:25:22 PMSubject: n's first cast Hi All, Again, I just want to say how wonderful it is to have all your support! This group is godsent. With that said, I was just looking for support tonight. I am packing our bags for our trip to Delaware (AI DuPont Hospital) tomorrow for my son n (14 month old with 79 degree curve) to get his first cast. I feel like this day came so fast. I am happy to get him started with the casting, but sad at the same time. I will miss touching his soft skin and rubbing his back. I keep telling myself it won't last for long, and to just take one day at a time. My son has other issues with his bones that concern me (to put it simply, some bones are not as ossified as they should be). So I can't help to worry. But I find hope and comfort knowing we are heading in the right direction to help him. I know many of you are well on your road to recovery with your children and reading your stories gives me hope and helps me through each day... Thanks, Mommy to n- getting first cast tomorrow Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2010 Report Share Posted June 1, 2010 Good luck tomorrow ! You ARE doing a good thing for n. That first day is hard and will seem like it never ends. Prepare yourself and anyone going with you. BUT know that we have all been there and done it. And lived to tell all about it. It is an emotional day that is for sure! I do not intend to scare you, but only to make you aware and hopefully prepare yourself mentally. He will do GREAT and so will you!!! Keep us posted and update when you can. TashaMommy of 5 year old twin boys- and Fort Worth, Texas is treated at Texas ish Rite Hospital in Dallas, TexasSeries of 6 casts for 14 months followed by bracing since September 2007You can read 's story at.... http://www.infantilescoliosis.org/stories.html From: shannonclune <shannonclune@...>infantile scoliosis treatment Sent: Mon, May 31, 2010 8:25:22 PMSubject: n's first cast Hi All,Again, I just want to say how wonderful it is to have all your support! This group is godsent. With that said, I was just looking for support tonight. I am packing our bags for our trip to Delaware (AI DuPont Hospital) tomorrow for my son n (14 month old with 79 degree curve) to get his first cast. I feel like this day came so fast. I am happy to get him started with the casting, but sad at the same time. I will miss touching his soft skin and rubbing his back. I keep telling myself it won't last for long, and to just take one day at a time. My son has other issues with his bones that concern me (to put it simply, some bones are not as ossified as they should be). So I can't help to worry. But I find hope and comfort knowing we are heading in the right direction to help him. I know many of you are well on your road to recovery with your children and reading your stories gives me hope and helps me through each day...Thanks,Mommy to n- getting first cast tomorrow Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2010 Report Share Posted June 1, 2010 , Thinking of you and your sweet boy tomorrow. Its all for the best. Much love and prayers, shannonclune <shannonclune@...> wrote: >Hi All, >Again, I just want to say how wonderful it is to have all your support! This group is godsent. With that said, I was just looking for support tonight. I am packing our bags for our trip to Delaware (AI DuPont Hospital) tomorrow for my son n (14 month old with 79 degree curve) to get his first cast. I feel like this day came so fast. I am happy to get him started with the casting, but sad at the same time. I will miss touching his soft skin and rubbing his back. I keep telling myself it won't last for long, and to just take one day at a time. My son has other issues with his bones that concern me (to put it simply, some bones are not as ossified as they should be). So I can't help to worry. But I find hope and comfort knowing we are heading in the right direction to help him. I know many of you are well on your road to recovery with your children and reading your stories gives me hope and helps me through each day... > >Thanks, > >Mommy to n- getting first cast tomorrow > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2010 Report Share Posted June 1, 2010 Many prayers for you and your family, little n. You are doing the right thing. It will feel like forever until you touch his skin again, but many will tell you, it's just a fraction of their life when they are better. Good luck! and JimmyMommy and daddy to Grace, 10, Tryston, 5Drue, 1, out of cast #213* out of cast, down from 26*, started at 40*In first braceSt. Louis Shriners Hospital>Hi All,>Again, I just want to say how wonderful it is to have all your support! This group is godsent. With that said, I was just looking for support tonight. I am packing our bags for our trip to Delaware (AI DuPont Hospital) tomorrow for my son n (14 month old with 79 degree curve) to get his first cast. I feel like this day came so fast. I am happy to get him started with the casting, but sad at the same time. I will miss touching his soft skin and rubbing his back. I keep telling myself it won't last for long, and to just take one day at a time. My son has other issues with his bones that concern me (to put it simply, some bones are not as ossified as they should be). So I can't help to worry. But I find hope and comfort knowing we are heading in the right direction to help him. I know many of you are well on your road to recovery with your children and reading your stories gives me hope and helps me through each day...>>Thanks,>>Mommy to n- getting first cast tomorrow> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2010 Report Share Posted June 1, 2010 Many prayers for you and your family, little n. You are doing the right thing. It will feel like forever until you touch his skin again, but many will tell you, it's just a fraction of their life when they are better. Good luck! and JimmyMommy and daddy to Grace, 10, Tryston, 5Drue, 1, out of cast #213* out of cast, down from 26*, started at 40*In first braceSt. Louis Shriners Hospital>Hi All,>Again, I just want to say how wonderful it is to have all your support! This group is godsent. With that said, I was just looking for support tonight. I am packing our bags for our trip to Delaware (AI DuPont Hospital) tomorrow for my son n (14 month old with 79 degree curve) to get his first cast. I feel like this day came so fast. I am happy to get him started with the casting, but sad at the same time. I will miss touching his soft skin and rubbing his back. I keep telling myself it won't last for long, and to just take one day at a time. My son has other issues with his bones that concern me (to put it simply, some bones are not as ossified as they should be). So I can't help to worry. But I find hope and comfort knowing we are heading in the right direction to help him. I know many of you are well on your road to recovery with your children and reading your stories gives me hope and helps me through each day...>>Thanks,>>Mommy to n- getting first cast tomorrow> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2010 Report Share Posted June 1, 2010 Hi , I apologize in advance for replying soo late. Please make sure the docs trim the correct windows and are using the correct frame. The windows will help with comfort, rotation correction, and will reduce risk of chest wall deformities. 79 is significant and proper windows will really help with his comfort level and correction. Good luck and please let us know how it goes. Sincerely, HRH > Hi All, > Again, I just want to say how wonderful it is to have all your support! > This group is godsent. With that said, I was just looking for support > tonight. I am packing our bags for our trip to Delaware (AI DuPont > Hospital) tomorrow for my son n (14 month old with 79 degree curve) > to get his first cast. I feel like this day came so fast. I am happy to > get him started with the casting, but sad at the same time. I will miss > touching his soft skin and rubbing his back. I keep telling myself it > won't last for long, and to just take one day at a time. My son has other > issues with his bones that concern me (to put it simply, some bones are > not as ossified as they should be). So I can't help to worry. But I find > hope and comfort knowing we are heading in the right direction to help > him. I know many of you are well on your road to recovery with your > children and reading your stories gives me hope and helps me through each > day... > > Thanks, > > Mommy to n- getting first cast tomorrow > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2010 Report Share Posted June 1, 2010 , My name is Amy and my son Tyler also gets casted at AI Dupont Hospital in Wilimington, Delware. Tyler was casted after it was determined that he had a progressing 62 degree curve with a significant rotation. He began casting at Dupont when he was 13 months old (June 2009). Tyler is now on his fifth cast and is expected to move into a brace the end of June, (his last out of cast xray measured 12 degrees and his rotation is completely resolved). The doctors and the staff at Dupont are amazing and so kind. I hope that you had the same positive expierence that we have had there. The last time we were at Dupont we meet a young boy who went through the same situtation as our son, he had started with a sixty degree curve and has been cast/brace free for over a year and his spine remains straight. Please let me know if you have any questions, we live at the Jersey Shore and travel to Dupont every ten weeks, we may eventually run into each other. Lots of luck to you and your son!! My personal email in case you have any questions is alm2909@... Amy-mommy to Tyler From: shannonclune <shannonclune@...>infantile scoliosis treatment Sent: Mon, May 31, 2010 9:25:22 PMSubject: n's first cast Hi All,Again, I just want to say how wonderful it is to have all your support! This group is godsent. With that said, I was just looking for support tonight. I am packing our bags for our trip to Delaware (AI DuPont Hospital) tomorrow for my son n (14 month old with 79 degree curve) to get his first cast. I feel like this day came so fast. I am happy to get him started with the casting, but sad at the same time. I will miss touching his soft skin and rubbing his back. I keep telling myself it won't last for long, and to just take one day at a time. My son has other issues with his bones that concern me (to put it simply, some bones are not as ossified as they should be). So I can't help to worry. But I find hope and comfort knowing we are heading in the right direction to help him. I know many of you are well on your road to recovery with your children and reading your stories gives me hope and helps me through each day...Thanks,Mommy to n- getting first cast tomorrow Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2010 Report Share Posted June 1, 2010 , One other thing they do follow Mehta training and my son's casts always have the cut out in the front and in the back. Best of Luck and let me know if you have any questions. Amy From: shannonclune <shannonclune@...>infantile scoliosis treatment Sent: Mon, May 31, 2010 9:25:22 PMSubject: n's first cast Hi All,Again, I just want to say how wonderful it is to have all your support! This group is godsent. With that said, I was just looking for support tonight. I am packing our bags for our trip to Delaware (AI DuPont Hospital) tomorrow for my son n (14 month old with 79 degree curve) to get his first cast. I feel like this day came so fast. I am happy to get him started with the casting, but sad at the same time. I will miss touching his soft skin and rubbing his back. I keep telling myself it won't last for long, and to just take one day at a time. My son has other issues with his bones that concern me (to put it simply, some bones are not as ossified as they should be). So I can't help to worry. But I find hope and comfort knowing we are heading in the right direction to help him. I know many of you are well on your road to recovery with your children and reading your stories gives me hope and helps me through each day...Thanks,Mommy to n- getting first cast tomorrow Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2010 Report Share Posted June 1, 2010 Best of luck tomorrow! > > Hi All, > Again, I just want to say how wonderful it is to have all your support! This group is godsent. With that said, I was just looking for support tonight. I am packing our bags for our trip to Delaware (AI DuPont Hospital) tomorrow for my son n (14 month old with 79 degree curve) to get his first cast. I feel like this day came so fast. I am happy to get him started with the casting, but sad at the same time. I will miss touching his soft skin and rubbing his back. I keep telling myself it won't last for long, and to just take one day at a time. My son has other issues with his bones that concern me (to put it simply, some bones are not as ossified as they should be). So I can't help to worry. But I find hope and comfort knowing we are heading in the right direction to help him. I know many of you are well on your road to recovery with your children and reading your stories gives me hope and helps me through each day... > > Thanks, > > Mommy to n- getting first cast tomorrow > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2010 Report Share Posted June 2, 2010 Thanks for sharing your families experience at Dupont. ISOP is trying to find an effective way to keep track of who is doing ET properly, so this is good info to be aware of...Thank you. HRH > , > > My name is Amy and my son Tyler also gets casted at AI Dupont Hospital in > Wilimington, Delware.  Tyler was casted after it was determined that he > had a progressing 62 degree curve with a significant rotation. He began > casting at Dupont when he was 13 months old (June 2009). Tyler is now on > his fifth cast and is expected to move into a brace the end of June, > (his last out of cast xray measured 12 degrees and his rotation is > completely resolved). > > The doctors and the staff at Dupont are amazing and so kind. I hope that > you had the same positive expierence that we have had there. > > The last time we were at Dupont we meet a young boy who went through the > same situtation as our son, he had started with a sixty degree curve and > has been cast/brace free for over a year and his spine remains straight. > > Please let me know if you have any questions, we live at the Jersey Shore > and travel to Dupont every ten weeks, we may eventually run into each > other. > > Lots of luck to you and your son!! My personal email in case you have any > questions is alm2909@... > > Amy-mommy to Tyler > > > > > ________________________________ > From: shannonclune <shannonclune@...> > infantile scoliosis treatment > Sent: Mon, May 31, 2010 9:25:22 PM > Subject: n's first cast > >  > Hi All, > Again, I just want to say how wonderful it is to have all your support! > This group is godsent. With that said, I was just looking for support > tonight. I am packing our bags for our trip to Delaware (AI DuPont > Hospital) tomorrow for my son n (14 month old with 79 degree curve) > to get his first cast. I feel like this day came so fast. I am happy to > get him started with the casting, but sad at the same time. I will miss > touching his soft skin and rubbing his back. I keep telling myself it > won't last for long, and to just take one day at a time. My son has other > issues with his bones that concern me (to put it simply, some bones are > not as ossified as they should be). So I can't help to worry. But I find > hope and comfort knowing we are heading in the right direction to help > him. I know many of you are well on your road to recovery with your > children and reading your stories gives me hope and helps me through each > day... > > Thanks, > > Mommy to n- getting first cast tomorrow > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2010 Report Share Posted June 2, 2010 Thank you all for the well wishes! Turns out, n didn't get his cast on today. Last night he came down with a stomach bug, so we need to reschedule... I hope we get in soon! On the bright side, we are home now and he is napping and seems to be better. Mom to n who needs to get his first cast on > > > > Hi All, > > Again, I just want to say how wonderful it is to have all your support! This group is godsent. With that said, I was just looking for support tonight. I am packing our bags for our trip to Delaware (AI DuPont Hospital) tomorrow for my son n (14 month old with 79 degree curve) to get his first cast. I feel like this day came so fast. I am happy to get him started with the casting, but sad at the same time. I will miss touching his soft skin and rubbing his back. I keep telling myself it won't last for long, and to just take one day at a time. My son has other issues with his bones that concern me (to put it simply, some bones are not as ossified as they should be). So I can't help to worry. But I find hope and comfort knowing we are heading in the right direction to help him. I know many of you are well on your road to recovery with your children and reading your stories gives me hope and helps me through each day... > > > > Thanks, > > > > Mommy to n- getting first cast tomorrow > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2010 Report Share Posted June 3, 2010 Hi , I would love to talk to you one on one. We are also waiting to have our daughter put into her first cast. I read your post and can relate 100% to what you are saying about being able to touch your baby, etc.. I do agree that we are both heading in the right direction by casting. Only time will tell. I hope that n gets well soon so that he can be on his way! Best of luck to you both. Aimee Mom to Quinn, 10 months, 58* curve yet to be casted. > > Hi All, > Again, I just want to say how wonderful it is to have all your support! This group is godsent. With that said, I was just looking for support tonight. I am packing our bags for our trip to Delaware (AI DuPont Hospital) tomorrow for my son n (14 month old with 79 degree curve) to get his first cast. I feel like this day came so fast. I am happy to get him started with the casting, but sad at the same time. I will miss touching his soft skin and rubbing his back. I keep telling myself it won't last for long, and to just take one day at a time. My son has other issues with his bones that concern me (to put it simply, some bones are not as ossified as they should be). So I can't help to worry. But I find hope and comfort knowing we are heading in the right direction to help him. I know many of you are well on your road to recovery with your children and reading your stories gives me hope and helps me through each day... > > Thanks, > > Mommy to n- getting first cast tomorrow > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2010 Report Share Posted June 3, 2010 Hi , I would love to talk to you one on one. We are also waiting to have our daughter put into her first cast. I read your post and can relate 100% to what you are saying about being able to touch your baby, etc.. I do agree that we are both heading in the right direction by casting. Only time will tell. I hope that n gets well soon so that he can be on his way! Best of luck to you both. Aimee Mom to Quinn, 10 months, 58* curve yet to be casted. > > Hi All, > Again, I just want to say how wonderful it is to have all your support! This group is godsent. With that said, I was just looking for support tonight. I am packing our bags for our trip to Delaware (AI DuPont Hospital) tomorrow for my son n (14 month old with 79 degree curve) to get his first cast. I feel like this day came so fast. I am happy to get him started with the casting, but sad at the same time. I will miss touching his soft skin and rubbing his back. I keep telling myself it won't last for long, and to just take one day at a time. My son has other issues with his bones that concern me (to put it simply, some bones are not as ossified as they should be). So I can't help to worry. But I find hope and comfort knowing we are heading in the right direction to help him. I know many of you are well on your road to recovery with your children and reading your stories gives me hope and helps me through each day... > > Thanks, > > Mommy to n- getting first cast tomorrow > Quote Link to comment Share on other sites More sharing options...
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