Jump to content
RemedySpot.com

bad day

Rate this topic


Guest guest

Recommended Posts

Guest guest

Hi all:

Yesterday was a really bad day, would have stayed

in bed if it didn't hurt so much to do that! It

rained all day.

Lucky for me my Pain Management Counselor called

me and wanted to know how I was doing. I explained

the situation to her and now they are going to

try a new med. I tell you there has to be something

out there that works!

I was taking the Morphine 30mg twice a day, but

kept falling asleep during the day. We lowered

the amount to 15mg twice a day, that helped me

to stay awake but it gave the aches time to sneak

back in.

Now we are going to try 15mg three times a day

with 2 Percasets (sp?) on the really bad days.

Those bad days for me are on rainy dark dreary

days. And believe it or not I'm taking Prozac to

help the problem...

Does anyone else have a problem finding a med

to help? I'm not ready for Remicade yet, mine is

more arthritis and a back injury problem. At least

the pain management counselor is doing her best

to help me find relief. No chance of back surgery

due to my heart problem.

God Bless, Bonnie

--------------------------------------------------

ICQ #14826055

Name: nana_bonnie

AIM Name: gmabonny

PalTalk name 007grandma

BeeCall name 007grandma

Birthday 1-16-47

___________________________________________________________________

To get your own FREE ZDNet Onebox - FREE voicemail, email, and fax,

all in one place - sign up today at http://www.zdnetonebox.com

Link to comment
Share on other sites

Guest guest

Bonnie,

Sorry that you had such a bad day yesterday.

I'm happy that you have a pain management counselor and that she is trying

to help you. Don't give up. There are many medications and combinations out

there to try. Many people here struggle with pain and have had or are

currently having trouble finding meds that will work for the pain without

side-effects that are troubling. Keep trying!

Remicade is not FDA approved osteoarthritis (OA). Although the TNF-alpha

that Remicade inhibits does seem to play a significant role in cartilage

destruction, most OA treatment strategies focus on the pain that is caused

by existing damage, not prevention of new damage. I hope someday soon that

changes!

Hope today has been better for you.

----- Original Message -----

From: " Bonnie F. " <007grandma@...>

< >

Sent: Wednesday, June 06, 2001 10:05 AM

Subject: Re: [ ] Bad Day

> Hi all:

> Yesterday was a really bad day, would have stayed

> in bed if it didn't hurt so much to do that! It

> rained all day.

> Lucky for me my Pain Management Counselor called

> me and wanted to know how I was doing. I explained

> the situation to her and now they are going to

> try a new med. I tell you there has to be something

> out there that works!

> I was taking the Morphine 30mg twice a day, but

> kept falling asleep during the day. We lowered

> the amount to 15mg twice a day, that helped me

> to stay awake but it gave the aches time to sneak

> back in.

> Now we are going to try 15mg three times a day

> with 2 Percasets (sp?) on the really bad days.

> Those bad days for me are on rainy dark dreary

> days. And believe it or not I'm taking Prozac to

> help the problem...

> Does anyone else have a problem finding a med

> to help? I'm not ready for Remicade yet, mine is

> more arthritis and a back injury problem. At least

> the pain management counselor is doing her best

> to help me find relief. No chance of back surgery

> due to my heart problem.

> God Bless, Bonnie

Link to comment
Share on other sites

  • 2 months later...

Thanks everyone for your encouragement!

Today is methotrexate day so am spending most of the day in bed

TRYING not to throw up. :o) Gotta smile...crying makes my stomach

hurt. Hope all of your days are good ones!!!!!

Ohh, Ginny...I hope you find a good doc soon!!!!!!!!!!!!!!!!!!!!

Keep the faith!!!

Carla

Link to comment
Share on other sites

  • 5 years later...

-sounds like you are both very sensative to chemical toxins. I have

the same problems around plastics, cloths, perfumes, new shoes and

the list goes on. it might be hard to deturmine what it is thats

getting to you. it's gets so aggervateing, I cant even love on a

little baby because the baby powders and lotions cause reactions, and

I preached pretty hard to my daughters not to use that stuff on the

babies. I held one the other day, he was so cute and was trying very

hard to have a conversation with me, 4 months old. all I could think

of was if these things caused reactions to me, how does it affect the

tiny lungs of a baby. I had to have someone take him because I was

coughing,airways closeing up,getting dizzy,etc. I was afraid i would

drop him because i get very weak very quick. -- In

, Tazin Round <unitedstatesvet@...>

wrote:

>

> Felice,

> I really understand and know what your going through. That is

usually what causes me to sleep alot and get depressed and you won't

hear from me for awhile. I get very reclusive. Honestly I can't see

what the phone would have to do with anything, but sounds like a cool

phone though, and I felt lucky to finally get the crusty ol 2

somthing ghz. LOL I will tell you this. My ex wife and I would fight

badly because i would react from her hairspray or the kids spray

smelly stuff all the time and long after the sent had gone away. ANd

not long ago my mom, dad and I drove back from California from my

grandads funeral. I would literaly throw up and it took quite awhile

even after getting out of the car after the trip to recover from her

hairspray and perfume. But hairspray is the worst for me. I just

cannot take it at all and it seems to stay with me the longest. Not

so much the smell but the tase stays and is awfull. It makes the

already metalic tase in my mouth so much worse. i

> believe that is probobly most of it. I don't know about leather

but as I have mentioned I have had to completley avoid the plastic

aisles in stores because I react to that smell badley. My dad does

not smell it at all but my mom has began smelling what I am talking

about and can now smell the same thing I do as far as the plastics

goes but you may have had a reaction to the leather in the same way

as I do the plastic. That is a good possability, then mixed with the

hairspray I can see that making things feel that much worse. I

noticed yesturday in the doctors office a ladie sat down next to me.

She has a good bit of perfume on (at least for me) and I got up and

went outside immediatly but today when I woke up I was so stuffed up

I could not believe it and did not know why but now that I am

explaining this I remembered that and am certain that had to be what

it was, due to process of elimination of anything that has been

different than usual.

> So based on all that I have said that is what I think happened to

you. Between the two I can understant why you would feel the way you

do. Some sprays of silver hydrosol and soaking my head underwater in

a hot bath usually help with the headache and stufiness for me. Try

that and see what happens. Oh, and stay out of the leather bag

department... Ha ha, I know, ya right...

> Chris...

>

> felice <anupath14@...> wrote:

> the whole day I feel like I have a bad flu and I'm trying

to figure out what triggered it. I'm hoping you guys can help me.

> 2 days ago I went to the mall, (no mask). Yes it was difficult. Was

in the leather bag dept. too long, tried on shoes blah, blah, blah.

Bought that new 5.8 house phone. Didn't feel great that night but

lived through it. Yesterday wasnt bad.

> When I use the phone my mouth gets dry and i get a bit headachy.

(do I just live through that or are there alternatives?)

> so, this am, i stop at my neighbors while walking my dog. she JUST

used hair spray! i feel it in my throat and leave within 30 secs.

Feel a bit dizzy on way home, within the hour, feel the full blown

flu and feel like this all day.

> So, what's your concensus?? Was it the mall 2 days ago? The new

phones? The hair spray?? I actually went to my family physician cause

my chest and ribs hurt thinking I had pneumonia. NOT!

> I had myself a good cry feeling sorry for myself. Now what? I am

still trying the " positive. " seeing the beautiful flowers, I can

stand up, use the computer...

> I need your support adjusting to this quick, strong, illness. I

need HOPE. thank you, felice

>

>

>

>

>

>

> Life is a balance of holding on and letting go...

>

> ---------------------------------

> All-new - Fire up a more powerful email and get things

done faster.

>

>

Link to comment
Share on other sites

WHO--Your story is heartbreaking. Could you make a gift of unscented baby

products to your daughters? They apparently do not understand your situation

very much. And yes I would think scented baby lotion, powder, shampoo, etc.

would have to be overwhelming to a 4 month old. I even saw scented disposable

diapers when I googled unscented baby products. L

who <jeaninem660@...> wrote: -sounds like you are both very

sensative to chemical toxins. I have

the same problems around plastics, cloths, perfumes, new shoes and

the list goes on. it might be hard to deturmine what it is thats

getting to you. it's gets so aggervateing, I cant even love on a

little baby because the baby powders and lotions cause reactions, and

I preached pretty hard to my daughters not to use that stuff on the

babies. I held one the other day, he was so cute and was trying very

hard to have a conversation with me, 4 months old. all I could think

of was if these things caused reactions to me, how does it affect the

tiny lungs of a baby. I had to have someone take him because I was

coughing,airways closeing up,getting dizzy,etc. I was afraid i would

drop him because i get very weak very quick. -- In

, Tazin Round <unitedstatesvet@...>

wrote:

>

> Felice,

> I really understand and know what your going through. That is

usually what causes me to sleep alot and get depressed and you won't

hear from me for awhile. I get very reclusive. Honestly I can't see

what the phone would have to do with anything, but sounds like a cool

phone though, and I felt lucky to finally get the crusty ol 2

somthing ghz. LOL I will tell you this. My ex wife and I would fight

badly because i would react from her hairspray or the kids spray

smelly stuff all the time and long after the sent had gone away. ANd

not long ago my mom, dad and I drove back from California from my

grandads funeral. I would literaly throw up and it took quite awhile

even after getting out of the car after the trip to recover from her

hairspray and perfume. But hairspray is the worst for me. I just

cannot take it at all and it seems to stay with me the longest. Not

so much the smell but the tase stays and is awfull. It makes the

already metalic tase in my mouth so much worse. i

> believe that is probobly most of it. I don't know about leather

but as I have mentioned I have had to completley avoid the plastic

aisles in stores because I react to that smell badley. My dad does

not smell it at all but my mom has began smelling what I am talking

about and can now smell the same thing I do as far as the plastics

goes but you may have had a reaction to the leather in the same way

as I do the plastic. That is a good possability, then mixed with the

hairspray I can see that making things feel that much worse. I

noticed yesturday in the doctors office a ladie sat down next to me.

She has a good bit of perfume on (at least for me) and I got up and

went outside immediatly but today when I woke up I was so stuffed up

I could not believe it and did not know why but now that I am

explaining this I remembered that and am certain that had to be what

it was, due to process of elimination of anything that has been

different than usual.

> So based on all that I have said that is what I think happened to

you. Between the two I can understant why you would feel the way you

do. Some sprays of silver hydrosol and soaking my head underwater in

a hot bath usually help with the headache and stufiness for me. Try

that and see what happens. Oh, and stay out of the leather bag

department... Ha ha, I know, ya right...

> Chris...

>

> felice <anupath14@...> wrote:

> the whole day I feel like I have a bad flu and I'm trying

to figure out what triggered it. I'm hoping you guys can help me.

> 2 days ago I went to the mall, (no mask). Yes it was difficult. Was

in the leather bag dept. too long, tried on shoes blah, blah, blah.

Bought that new 5.8 house phone. Didn't feel great that night but

lived through it. Yesterday wasnt bad.

> When I use the phone my mouth gets dry and i get a bit headachy.

(do I just live through that or are there alternatives?)

> so, this am, i stop at my neighbors while walking my dog. she JUST

used hair spray! i feel it in my throat and leave within 30 secs.

Feel a bit dizzy on way home, within the hour, feel the full blown

flu and feel like this all day.

> So, what's your concensus?? Was it the mall 2 days ago? The new

phones? The hair spray?? I actually went to my family physician cause

my chest and ribs hurt thinking I had pneumonia. NOT!

> I had myself a good cry feeling sorry for myself. Now what? I am

still trying the " positive. " seeing the beautiful flowers, I can

stand up, use the computer...

> I need your support adjusting to this quick, strong, illness. I

need HOPE. thank you, felice

>

>

>

>

>

>

> Life is a balance of holding on and letting go...

>

> ---------------------------------

> All-new - Fire up a more powerful email and get things

done faster.

>

>

Link to comment
Share on other sites

Who--I am very sensitive as well. Where I live the neighbors all treat their

yards and houses and there is so much pollution and mold it is unimaginable. I

hope you recover. Abbie

who <jeaninem660@...> wrote: -sounds like you are both very

sensative to chemical toxins. I have

the same problems around plastics, cloths, perfumes, new shoes and

the list goes on. it might be hard to deturmine what it is thats

getting to you. it's gets so aggervateing, I cant even love on a

little baby because the baby powders and lotions cause reactions, and

I preached pretty hard to my daughters not to use that stuff on the

babies. I held one the other day, he was so cute and was trying very

hard to have a conversation with me, 4 months old. all I could think

of was if these things caused reactions to me, how does it affect the

tiny lungs of a baby. I had to have someone take him because I was

coughing,airways closeing up,getting dizzy,etc. I was afraid i would

drop him because i get very weak very quick. -- In

, Tazin Round <unitedstatesvet@...>

wrote:

>

> Felice,

> I really understand and know what your going through. That is

usually what causes me to sleep alot and get depressed and you won't

hear from me for awhile. I get very reclusive. Honestly I can't see

what the phone would have to do with anything, but sounds like a cool

phone though, and I felt lucky to finally get the crusty ol 2

somthing ghz. LOL I will tell you this. My ex wife and I would fight

badly because i would react from her hairspray or the kids spray

smelly stuff all the time and long after the sent had gone away. ANd

not long ago my mom, dad and I drove back from California from my

grandads funeral. I would literaly throw up and it took quite awhile

even after getting out of the car after the trip to recover from her

hairspray and perfume. But hairspray is the worst for me. I just

cannot take it at all and it seems to stay with me the longest. Not

so much the smell but the tase stays and is awfull. It makes the

already metalic tase in my mouth so much worse. i

> believe that is probobly most of it. I don't know about leather

but as I have mentioned I have had to completley avoid the plastic

aisles in stores because I react to that smell badley. My dad does

not smell it at all but my mom has began smelling what I am talking

about and can now smell the same thing I do as far as the plastics

goes but you may have had a reaction to the leather in the same way

as I do the plastic. That is a good possability, then mixed with the

hairspray I can see that making things feel that much worse. I

noticed yesturday in the doctors office a ladie sat down next to me.

She has a good bit of perfume on (at least for me) and I got up and

went outside immediatly but today when I woke up I was so stuffed up

I could not believe it and did not know why but now that I am

explaining this I remembered that and am certain that had to be what

it was, due to process of elimination of anything that has been

different than usual.

> So based on all that I have said that is what I think happened to

you. Between the two I can understant why you would feel the way you

do. Some sprays of silver hydrosol and soaking my head underwater in

a hot bath usually help with the headache and stufiness for me. Try

that and see what happens. Oh, and stay out of the leather bag

department... Ha ha, I know, ya right...

> Chris...

>

> felice <anupath14@...> wrote:

> the whole day I feel like I have a bad flu and I'm trying

to figure out what triggered it. I'm hoping you guys can help me.

> 2 days ago I went to the mall, (no mask). Yes it was difficult. Was

in the leather bag dept. too long, tried on shoes blah, blah, blah.

Bought that new 5.8 house phone. Didn't feel great that night but

lived through it. Yesterday wasnt bad.

> When I use the phone my mouth gets dry and i get a bit headachy.

(do I just live through that or are there alternatives?)

> so, this am, i stop at my neighbors while walking my dog. she JUST

used hair spray! i feel it in my throat and leave within 30 secs.

Feel a bit dizzy on way home, within the hour, feel the full blown

flu and feel like this all day.

> So, what's your concensus?? Was it the mall 2 days ago? The new

phones? The hair spray?? I actually went to my family physician cause

my chest and ribs hurt thinking I had pneumonia. NOT!

> I had myself a good cry feeling sorry for myself. Now what? I am

still trying the " positive. " seeing the beautiful flowers, I can

stand up, use the computer...

> I need your support adjusting to this quick, strong, illness. I

need HOPE. thank you, felice

>

>

>

>

>

>

> Life is a balance of holding on and letting go...

>

> ---------------------------------

> All-new - Fire up a more powerful email and get things

done faster.

>

>

Link to comment
Share on other sites

-Thanks Abbie, you to. I know, it seems imposable to avoid everything

around us. -- In , abbie mccall

<abbiebeam@...> wrote:

>

> Who--I am very sensitive as well. Where I live the neighbors all

treat their yards and houses and there is so much pollution and mold

it is unimaginable. I hope you recover. Abbie

>

> who <jeaninem660@...> wrote: -sounds like you are both

very sensative to chemical toxins. I have

> the same problems around plastics, cloths, perfumes, new shoes and

> the list goes on. it might be hard to deturmine what it is thats

> getting to you. it's gets so aggervateing, I cant even love on a

> little baby because the baby powders and lotions cause reactions,

and

> I preached pretty hard to my daughters not to use that stuff on the

> babies. I held one the other day, he was so cute and was trying

very

> hard to have a conversation with me, 4 months old. all I could

think

> of was if these things caused reactions to me, how does it affect

the

> tiny lungs of a baby. I had to have someone take him because I was

> coughing,airways closeing up,getting dizzy,etc. I was afraid i

would

> drop him because i get very weak very quick. -- In

> , Tazin Round <unitedstatesvet@>

> wrote:

> >

> > Felice,

> > I really understand and know what your going through. That is

> usually what causes me to sleep alot and get depressed and you

won't

> hear from me for awhile. I get very reclusive. Honestly I can't see

> what the phone would have to do with anything, but sounds like a

cool

> phone though, and I felt lucky to finally get the crusty ol 2

> somthing ghz. LOL I will tell you this. My ex wife and I would

fight

> badly because i would react from her hairspray or the kids spray

> smelly stuff all the time and long after the sent had gone away.

ANd

> not long ago my mom, dad and I drove back from California from my

> grandads funeral. I would literaly throw up and it took quite

awhile

> even after getting out of the car after the trip to recover from

her

> hairspray and perfume. But hairspray is the worst for me. I just

> cannot take it at all and it seems to stay with me the longest. Not

> so much the smell but the tase stays and is awfull. It makes the

> already metalic tase in my mouth so much worse. i

> > believe that is probobly most of it. I don't know about leather

> but as I have mentioned I have had to completley avoid the plastic

> aisles in stores because I react to that smell badley. My dad does

> not smell it at all but my mom has began smelling what I am talking

> about and can now smell the same thing I do as far as the plastics

> goes but you may have had a reaction to the leather in the same way

> as I do the plastic. That is a good possability, then mixed with

the

> hairspray I can see that making things feel that much worse. I

> noticed yesturday in the doctors office a ladie sat down next to

me.

> She has a good bit of perfume on (at least for me) and I got up and

> went outside immediatly but today when I woke up I was so stuffed

up

> I could not believe it and did not know why but now that I am

> explaining this I remembered that and am certain that had to be

what

> it was, due to process of elimination of anything that has been

> different than usual.

> > So based on all that I have said that is what I think happened to

> you. Between the two I can understant why you would feel the way

you

> do. Some sprays of silver hydrosol and soaking my head underwater

in

> a hot bath usually help with the headache and stufiness for me. Try

> that and see what happens. Oh, and stay out of the leather bag

> department... Ha ha, I know, ya right...

> > Chris...

> >

> > felice <anupath14@> wrote:

> > the whole day I feel like I have a bad flu and I'm trying

> to figure out what triggered it. I'm hoping you guys can help me.

> > 2 days ago I went to the mall, (no mask). Yes it was difficult.

Was

> in the leather bag dept. too long, tried on shoes blah, blah, blah.

> Bought that new 5.8 house phone. Didn't feel great that night but

> lived through it. Yesterday wasnt bad.

> > When I use the phone my mouth gets dry and i get a bit headachy.

> (do I just live through that or are there alternatives?)

> > so, this am, i stop at my neighbors while walking my dog. she

JUST

> used hair spray! i feel it in my throat and leave within 30 secs.

> Feel a bit dizzy on way home, within the hour, feel the full blown

> flu and feel like this all day.

> > So, what's your concensus?? Was it the mall 2 days ago? The new

> phones? The hair spray?? I actually went to my family physician

cause

> my chest and ribs hurt thinking I had pneumonia. NOT!

> > I had myself a good cry feeling sorry for myself. Now what? I am

> still trying the " positive. " seeing the beautiful flowers, I can

> stand up, use the computer...

> > I need your support adjusting to this quick, strong, illness. I

> need HOPE. thank you, felice

> >

> >

> >

> >

> >

> >

> > Life is a balance of holding on and letting go...

> >

> > ---------------------------------

> > All-new - Fire up a more powerful email and get

things

> done faster.

> >

> >

Link to comment
Share on other sites

email me sometime if you need you need a shoulder

who <jeaninem660@...> wrote: -Thanks Abbie, you to. I know,

it seems imposable to avoid everything

around us. -- In , abbie mccall

<abbiebeam@...> wrote:

>

> Who--I am very sensitive as well. Where I live the neighbors all

treat their yards and houses and there is so much pollution and mold

it is unimaginable. I hope you recover. Abbie

>

> who <jeaninem660@...> wrote: -sounds like you are both

very sensative to chemical toxins. I have

> the same problems around plastics, cloths, perfumes, new shoes and

> the list goes on. it might be hard to deturmine what it is thats

> getting to you. it's gets so aggervateing, I cant even love on a

> little baby because the baby powders and lotions cause reactions,

and

> I preached pretty hard to my daughters not to use that stuff on the

> babies. I held one the other day, he was so cute and was trying

very

> hard to have a conversation with me, 4 months old. all I could

think

> of was if these things caused reactions to me, how does it affect

the

> tiny lungs of a baby. I had to have someone take him because I was

> coughing,airways closeing up,getting dizzy,etc. I was afraid i

would

> drop him because i get very weak very quick. -- In

> , Tazin Round <unitedstatesvet@>

> wrote:

> >

> > Felice,

> > I really understand and know what your going through. That is

> usually what causes me to sleep alot and get depressed and you

won't

> hear from me for awhile. I get very reclusive. Honestly I can't see

> what the phone would have to do with anything, but sounds like a

cool

> phone though, and I felt lucky to finally get the crusty ol 2

> somthing ghz. LOL I will tell you this. My ex wife and I would

fight

> badly because i would react from her hairspray or the kids spray

> smelly stuff all the time and long after the sent had gone away.

ANd

> not long ago my mom, dad and I drove back from California from my

> grandads funeral. I would literaly throw up and it took quite

awhile

> even after getting out of the car after the trip to recover from

her

> hairspray and perfume. But hairspray is the worst for me. I just

> cannot take it at all and it seems to stay with me the longest. Not

> so much the smell but the tase stays and is awfull. It makes the

> already metalic tase in my mouth so much worse. i

> > believe that is probobly most of it. I don't know about leather

> but as I have mentioned I have had to completley avoid the plastic

> aisles in stores because I react to that smell badley. My dad does

> not smell it at all but my mom has began smelling what I am talking

> about and can now smell the same thing I do as far as the plastics

> goes but you may have had a reaction to the leather in the same way

> as I do the plastic. That is a good possability, then mixed with

the

> hairspray I can see that making things feel that much worse. I

> noticed yesturday in the doctors office a ladie sat down next to

me.

> She has a good bit of perfume on (at least for me) and I got up and

> went outside immediatly but today when I woke up I was so stuffed

up

> I could not believe it and did not know why but now that I am

> explaining this I remembered that and am certain that had to be

what

> it was, due to process of elimination of anything that has been

> different than usual.

> > So based on all that I have said that is what I think happened to

> you. Between the two I can understant why you would feel the way

you

> do. Some sprays of silver hydrosol and soaking my head underwater

in

> a hot bath usually help with the headache and stufiness for me. Try

> that and see what happens. Oh, and stay out of the leather bag

> department... Ha ha, I know, ya right...

> > Chris...

> >

> > felice <anupath14@> wrote:

> > the whole day I feel like I have a bad flu and I'm trying

> to figure out what triggered it. I'm hoping you guys can help me.

> > 2 days ago I went to the mall, (no mask). Yes it was difficult.

Was

> in the leather bag dept. too long, tried on shoes blah, blah, blah.

> Bought that new 5.8 house phone. Didn't feel great that night but

> lived through it. Yesterday wasnt bad.

> > When I use the phone my mouth gets dry and i get a bit headachy.

> (do I just live through that or are there alternatives?)

> > so, this am, i stop at my neighbors while walking my dog. she

JUST

> used hair spray! i feel it in my throat and leave within 30 secs.

> Feel a bit dizzy on way home, within the hour, feel the full blown

> flu and feel like this all day.

> > So, what's your concensus?? Was it the mall 2 days ago? The new

> phones? The hair spray?? I actually went to my family physician

cause

> my chest and ribs hurt thinking I had pneumonia. NOT!

> > I had myself a good cry feeling sorry for myself. Now what? I am

> still trying the " positive. " seeing the beautiful flowers, I can

> stand up, use the computer...

> > I need your support adjusting to this quick, strong, illness. I

> need HOPE. thank you, felice

> >

> >

> >

> >

> >

> >

> > Life is a balance of holding on and letting go...

> >

> > ---------------------------------

> > All-new - Fire up a more powerful email and get

things

> done faster.

> >

> >

Link to comment
Share on other sites

-Sorry Leigh, I wasn't clear on my post. my daughters actually are

now understand it all pretty well, it helps that they've seen alot

going on with me, and I talk to them about it a lot,and force them to

listen,lol's.theri youngest ones are now 2+ years old, when they were

babies, I didn't exactly understand why thier smelly stuff caused

this reaction but I knew if it bothered me it had to affect them

somehow.I did gripe at my daughters than and they listened, maybe

because it scared them to see me get sick from smelly baby products,

even though they didn't understand why.

it was someone elses baby I was holding the other day. those baby

wipes are the worst. but you do have a great idea, I know my girls

found some things, unsented diaper wipes and lotion.but without

understanding of this illness I dont know if a unsented basket would

be recieved very well. but this baby is now part of the family by

marrage. no, my daughters are getting it, it's my parents and sisters

and brother that dont understand it but I'm working on them. -- In

, Leigh McCall-Alton <mccallalton@...>

wrote:

>

> WHO--Your story is heartbreaking. Could you make a gift of

unscented baby products to your daughters? They apparently do not

understand your situation very much. And yes I would think scented

baby lotion, powder, shampoo, etc. would have to be overwhelming to a

4 month old. I even saw scented disposable diapers when I googled

unscented baby products. L

>

> who <jeaninem660@...> wrote: -sounds like you are both

very sensative to chemical toxins. I have

> the same problems around plastics, cloths, perfumes, new shoes and

> the list goes on. it might be hard to deturmine what it is thats

> getting to you. it's gets so aggervateing, I cant even love on a

> little baby because the baby powders and lotions cause reactions,

and

> I preached pretty hard to my daughters not to use that stuff on the

> babies. I held one the other day, he was so cute and was trying

very

> hard to have a conversation with me, 4 months old. all I could

think

> of was if these things caused reactions to me, how does it affect

the

> tiny lungs of a baby. I had to have someone take him because I was

> coughing,airways closeing up,getting dizzy,etc. I was afraid i

would

> drop him because i get very weak very quick. -- In

> , Tazin Round <unitedstatesvet@>

> wrote:

> >

> > Felice,

> > I really understand and know what your going through. That is

> usually what causes me to sleep alot and get depressed and you

won't

> hear from me for awhile. I get very reclusive. Honestly I can't see

> what the phone would have to do with anything, but sounds like a

cool

> phone though, and I felt lucky to finally get the crusty ol 2

> somthing ghz. LOL I will tell you this. My ex wife and I would

fight

> badly because i would react from her hairspray or the kids spray

> smelly stuff all the time and long after the sent had gone away.

ANd

> not long ago my mom, dad and I drove back from California from my

> grandads funeral. I would literaly throw up and it took quite

awhile

> even after getting out of the car after the trip to recover from

her

> hairspray and perfume. But hairspray is the worst for me. I just

> cannot take it at all and it seems to stay with me the longest. Not

> so much the smell but the tase stays and is awfull. It makes the

> already metalic tase in my mouth so much worse. i

> > believe that is probobly most of it. I don't know about leather

> but as I have mentioned I have had to completley avoid the plastic

> aisles in stores because I react to that smell badley. My dad does

> not smell it at all but my mom has began smelling what I am talking

> about and can now smell the same thing I do as far as the plastics

> goes but you may have had a reaction to the leather in the same way

> as I do the plastic. That is a good possability, then mixed with

the

> hairspray I can see that making things feel that much worse. I

> noticed yesturday in the doctors office a ladie sat down next to

me.

> She has a good bit of perfume on (at least for me) and I got up and

> went outside immediatly but today when I woke up I was so stuffed

up

> I could not believe it and did not know why but now that I am

> explaining this I remembered that and am certain that had to be

what

> it was, due to process of elimination of anything that has been

> different than usual.

> > So based on all that I have said that is what I think happened to

> you. Between the two I can understant why you would feel the way

you

> do. Some sprays of silver hydrosol and soaking my head underwater

in

> a hot bath usually help with the headache and stufiness for me. Try

> that and see what happens. Oh, and stay out of the leather bag

> department... Ha ha, I know, ya right...

> > Chris...

> >

> > felice <anupath14@> wrote:

> > the whole day I feel like I have a bad flu and I'm trying

> to figure out what triggered it. I'm hoping you guys can help me.

> > 2 days ago I went to the mall, (no mask). Yes it was difficult.

Was

> in the leather bag dept. too long, tried on shoes blah, blah, blah.

> Bought that new 5.8 house phone. Didn't feel great that night but

> lived through it. Yesterday wasnt bad.

> > When I use the phone my mouth gets dry and i get a bit headachy.

> (do I just live through that or are there alternatives?)

> > so, this am, i stop at my neighbors while walking my dog. she

JUST

> used hair spray! i feel it in my throat and leave within 30 secs.

> Feel a bit dizzy on way home, within the hour, feel the full blown

> flu and feel like this all day.

> > So, what's your concensus?? Was it the mall 2 days ago? The new

> phones? The hair spray?? I actually went to my family physician

cause

> my chest and ribs hurt thinking I had pneumonia. NOT!

> > I had myself a good cry feeling sorry for myself. Now what? I am

> still trying the " positive. " seeing the beautiful flowers, I can

> stand up, use the computer...

> > I need your support adjusting to this quick, strong, illness. I

> need HOPE. thank you, felice

> >

> >

> >

> >

> >

> >

> > Life is a balance of holding on and letting go...

> >

> > ---------------------------------

> > All-new - Fire up a more powerful email and get

things

> done faster.

> >

> >

Link to comment
Share on other sites

I think people ethe get t or they don't.

I think it depends how much self esteem they have.

People with a lot of self esteem can go without their products.

who <jeaninem660@...> wrote:

-Sorry Leigh, I wasn't clear on my post. my daughters actually are

now understand it all pretty well, it helps that they've seen alot

going on with me, and I talk to them about it a lot,and force them to

listen,lol's.theri youngest ones are now 2+ years old, when they were

babies, I didn't exactly understand why thier smelly stuff caused

this reaction but I knew if it bothered me it had to affect them

somehow.I did gripe at my daughters than and they listened, maybe

because it scared them to see me get sick from smelly baby products,

even though they didn't understand why.

it was someone elses baby I was holding the other day. those baby

wipes are the worst. but you do have a great idea, I know my girls

found some things, unsented diaper wipes and lotion.but without

understanding of this illness I dont know if a unsented basket would

be recieved very well. but this baby is now part of the family by

marrage. no, my daughters are getting it, it's my parents and sisters

and brother that dont understand it but I'm working on them. -- In

, Leigh McCall-Alton <mccallalton@...>

wrote:

>

> WHO--Your story is heartbreaking. Could you make a gift of

unscented baby products to your daughters? They apparently do not

understand your situation very much. And yes I would think scented

baby lotion, powder, shampoo, etc. would have to be overwhelming to a

4 month old. I even saw scented disposable diapers when I googled

unscented baby products. L

>

> who <jeaninem660@...> wrote: -sounds like you are both

very sensative to chemical toxins. I have

> the same problems around plastics, cloths, perfumes, new shoes and

> the list goes on. it might be hard to deturmine what it is thats

> getting to you. it's gets so aggervateing, I cant even love on a

> little baby because the baby powders and lotions cause reactions,

and

> I preached pretty hard to my daughters not to use that stuff on the

> babies. I held one the other day, he was so cute and was trying

very

> hard to have a conversation with me, 4 months old. all I could

think

> of was if these things caused reactions to me, how does it affect

the

> tiny lungs of a baby. I had to have someone take him because I was

> coughing,airways closeing up,getting dizzy,etc. I was afraid i

would

> drop him because i get very weak very quick. -- In

> , Tazin Round <unitedstatesvet@>

> wrote:

> >

> > Felice,

> > I really understand and know what your going through. That is

> usually what causes me to sleep alot and get depressed and you

won't

> hear from me for awhile. I get very reclusive. Honestly I can't see

> what the phone would have to do with anything, but sounds like a

cool

> phone though, and I felt lucky to finally get the crusty ol 2

> somthing ghz. LOL I will tell you this. My ex wife and I would

fight

> badly because i would react from her hairspray or the kids spray

> smelly stuff all the time and long after the sent had gone away.

ANd

> not long ago my mom, dad and I drove back from California from my

> grandads funeral. I would literaly throw up and it took quite

awhile

> even after getting out of the car after the trip to recover from

her

> hairspray and perfume. But hairspray is the worst for me. I just

> cannot take it at all and it seems to stay with me the longest. Not

> so much the smell but the tase stays and is awfull. It makes the

> already metalic tase in my mouth so much worse. i

> > believe that is probobly most of it. I don't know about leather

> but as I have mentioned I have had to completley avoid the plastic

> aisles in stores because I react to that smell badley. My dad does

> not smell it at all but my mom has began smelling what I am talking

> about and can now smell the same thing I do as far as the plastics

> goes but you may have had a reaction to the leather in the same way

> as I do the plastic. That is a good possability, then mixed with

the

> hairspray I can see that making things feel that much worse. I

> noticed yesturday in the doctors office a ladie sat down next to

me.

> She has a good bit of perfume on (at least for me) and I got up and

> went outside immediatly but today when I woke up I was so stuffed

up

> I could not believe it and did not know why but now that I am

> explaining this I remembered that and am certain that had to be

what

> it was, due to process of elimination of anything that has been

> different than usual.

> > So based on all that I have said that is what I think happened to

> you. Between the two I can understant why you would feel the way

you

> do. Some sprays of silver hydrosol and soaking my head underwater

in

> a hot bath usually help with the headache and stufiness for me. Try

> that and see what happens. Oh, and stay out of the leather bag

> department... Ha ha, I know, ya right...

> > Chris...

> >

> > felice <anupath14@> wrote:

> > the whole day I feel like I have a bad flu and I'm trying

> to figure out what triggered it. I'm hoping you guys can help me.

> > 2 days ago I went to the mall, (no mask). Yes it was difficult.

Was

> in the leather bag dept. too long, tried on shoes blah, blah, blah.

> Bought that new 5.8 house phone. Didn't feel great that night but

> lived through it. Yesterday wasnt bad.

> > When I use the phone my mouth gets dry and i get a bit headachy.

> (do I just live through that or are there alternatives?)

> > so, this am, i stop at my neighbors while walking my dog. she

JUST

> used hair spray! i feel it in my throat and leave within 30 secs.

> Feel a bit dizzy on way home, within the hour, feel the full blown

> flu and feel like this all day.

> > So, what's your concensus?? Was it the mall 2 days ago? The new

> phones? The hair spray?? I actually went to my family physician

cause

> my chest and ribs hurt thinking I had pneumonia. NOT!

> > I had myself a good cry feeling sorry for myself. Now what? I am

> still trying the " positive. " seeing the beautiful flowers, I can

> stand up, use the computer...

> > I need your support adjusting to this quick, strong, illness. I

> need HOPE. thank you, felice

> >

> >

> >

> >

> >

> >

> > Life is a balance of holding on and letting go...

> >

> > ---------------------------------

> > All-new - Fire up a more powerful email and get

things

> done faster.

> >

> >

Link to comment
Share on other sites

One way to WAKE up your daughter is to tell her that the baby podwer

ingredients aka talc is chemically related to absetos (sic) and ob-gyns

I know during cervical biopsy's have found traces of talc in the tumors.

That is why a lot of them do not recommend talc but corn starch for diaper

rash.

On Tue, 19 Sep 2006, Leigh McCall-Alton wrote:

> Date: Tue, 19 Sep 2006 16:25:32 -0700 (PDT)

> From: Leigh McCall-Alton <mccallalton@...>

> Reply-

>

> Subject: Re: [] Re: bad day

>

> WHO--Your story is heartbreaking. Could you make a gift of unscented baby

products to your daughters? They apparently do not understand your situation

very much. And yes I would think scented baby lotion, powder, shampoo, etc.

would have to be overwhelming to a 4 month old. I even saw scented disposable

diapers when I googled unscented baby products. L

>

> who <jeaninem660@...> wrote: -sounds like you are both very

sensative to chemical toxins. I have

> the same problems around plastics, cloths, perfumes, new shoes and

> the list goes on. it might be hard to deturmine what it is thats

> getting to you. it's gets so aggervateing, I cant even love on a

> little baby because the baby powders and lotions cause reactions, and

> I preached pretty hard to my daughters not to use that stuff on the

> babies. I held one the other day, he was so cute and was trying very

> hard to have a conversation with me, 4 months old. all I could think

> of was if these things caused reactions to me, how does it affect the

> tiny lungs of a baby. I had to have someone take him because I was

> coughing,airways closeing up,getting dizzy,etc. I was afraid i would

> drop him because i get very weak very quick. -- In

> , Tazin Round <unitedstatesvet@...>

> wrote:

>>

>> Felice,

>> I really understand and know what your going through. That is

> usually what causes me to sleep alot and get depressed and you won't

> hear from me for awhile. I get very reclusive. Honestly I can't see

> what the phone would have to do with anything, but sounds like a cool

> phone though, and I felt lucky to finally get the crusty ol 2

> somthing ghz. LOL I will tell you this. My ex wife and I would fight

> badly because i would react from her hairspray or the kids spray

> smelly stuff all the time and long after the sent had gone away. ANd

> not long ago my mom, dad and I drove back from California from my

> grandads funeral. I would literaly throw up and it took quite awhile

> even after getting out of the car after the trip to recover from her

> hairspray and perfume. But hairspray is the worst for me. I just

> cannot take it at all and it seems to stay with me the longest. Not

> so much the smell but the tase stays and is awfull. It makes the

> already metalic tase in my mouth so much worse. i

>> believe that is probobly most of it. I don't know about leather

> but as I have mentioned I have had to completley avoid the plastic

> aisles in stores because I react to that smell badley. My dad does

> not smell it at all but my mom has began smelling what I am talking

> about and can now smell the same thing I do as far as the plastics

> goes but you may have had a reaction to the leather in the same way

> as I do the plastic. That is a good possability, then mixed with the

> hairspray I can see that making things feel that much worse. I

> noticed yesturday in the doctors office a ladie sat down next to me.

> She has a good bit of perfume on (at least for me) and I got up and

> went outside immediatly but today when I woke up I was so stuffed up

> I could not believe it and did not know why but now that I am

> explaining this I remembered that and am certain that had to be what

> it was, due to process of elimination of anything that has been

> different than usual.

>> So based on all that I have said that is what I think happened to

> you. Between the two I can understant why you would feel the way you

> do. Some sprays of silver hydrosol and soaking my head underwater in

> a hot bath usually help with the headache and stufiness for me. Try

> that and see what happens. Oh, and stay out of the leather bag

> department... Ha ha, I know, ya right...

>> Chris...

>>

>> felice <anupath14@...> wrote:

>> the whole day I feel like I have a bad flu and I'm trying

> to figure out what triggered it. I'm hoping you guys can help me.

>> 2 days ago I went to the mall, (no mask). Yes it was difficult. Was

> in the leather bag dept. too long, tried on shoes blah, blah, blah.

> Bought that new 5.8 house phone. Didn't feel great that night but

> lived through it. Yesterday wasnt bad.

>> When I use the phone my mouth gets dry and i get a bit headachy.

> (do I just live through that or are there alternatives?)

>> so, this am, i stop at my neighbors while walking my dog. she JUST

> used hair spray! i feel it in my throat and leave within 30 secs.

> Feel a bit dizzy on way home, within the hour, feel the full blown

> flu and feel like this all day.

>> So, what's your concensus?? Was it the mall 2 days ago? The new

> phones? The hair spray?? I actually went to my family physician cause

> my chest and ribs hurt thinking I had pneumonia. NOT!

>> I had myself a good cry feeling sorry for myself. Now what? I am

> still trying the " positive. " seeing the beautiful flowers, I can

> stand up, use the computer...

>> I need your support adjusting to this quick, strong, illness. I

> need HOPE. thank you, felice

>>

>>

>>

>>

>>

>>

>> Life is a balance of holding on and letting go...

>>

>> ---------------------------------

>> All-new - Fire up a more powerful email and get things

> done faster.

>>

>>

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...