Re: Beginner: Help with File infos

[Guest guest]

> I may not have Conn's at all... its very rare.It's not as rare as you think. There about 700 of us just here. And it seems that you do have it :-)Natalia From: catherinekerth1 <catherinekerth@...> hyperaldosteronism Sent: Wednesday, May 23, 2012 12:09 AM Subject: Re: Beginner: Help with File

infos

Oh my 5 medicines! OK, I'm a light weight

I was 31 right after my second pregnancy, my blood pressure shot up. I am 38 now....

PCP, Cariologist tried probably 8 different meds. over 6 years to control my BP. Seemed like nothing worked. Until now, yeah...I have PVC's about 1,600 skipped heart beats a day and took toporal for that for 6 yrs. (can't help but feel that is realted to my endo issues) I have to admit 3 years ago I stopped taking medicine and going to doctors b/c they didn't know what to give me! I was frustrated.

I was swelling very badly starting in Oct. thought it was the norvasc and just lived with it b/c i didn't want them to change my meds. again! but like i said, symptoms have steadily gotten worse over the past seven months. muscle aches, fatigue, dizziness, swelling, tingling in my feet, frequent urination (to the point of freaking out my husband)not being able to live my busy life in general.

Now I lay on the couch

I may not have Conn's at all... its very rare. I just wanted to educate myself as much as possible with the information I had (abnormal high aldostrone)so I can ask better questions at my next Dr. appt. Reading up on ya'lls information, and what I have learned so far I feel a bit more empowered. And I will keep reading the posts too. You guys are full of great info.

> > >

> > > Hello my name is . I am new to the group and was searching everyone's story files looking for support and also lab numbers.

> > > I took my CT scan this morning....

> > > I still haven't been able to obtain my blood work labs from my endo.

> > >

> > > I went to the endo thinking something was wrong with my thyroid. (both my parents and two other sisters are on syntyroid, and I've had an enlarged thyroid all my life) instead he tells me everything is fine but my aldostrone came back abnormally high and started telling me about getting a CT scan for a tumor as soon as possible.

> > > I know he suspected high aldostrone from the start b/c all my symptoms were text book for hyperaldostronism.

> > >

> > > Sorry for the long back story (and thats the short version)

> > >

> > > My question is what is considered a high enough level to call for a scan for a tumor?

> > >

> > > any answer would be helpful. I hope to get my blood work and results of MRA and CT scan soon.

> > >

> > >

> > >

> >

>

[Guest guest]

Who told u it was rare is not up to date. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn May 27, 2012, at 13:45, Natalia Kamneva <natalia_kamneva@...> wrote:

> I may not have Conn's at all... its very rare.It's not as rare as you think. There about 700 of us just here. And it seems that you do have it :-)Natalia From: catherinekerth1 <catherinekerth@...> hyperaldosteronism Sent: Wednesday, May 23, 2012 12:09 AM Subject: Re: Beginner: Help with File

infos

Oh my 5 medicines! OK, I'm a light weight

I was 31 right after my second pregnancy, my blood pressure shot up. I am 38 now....

PCP, Cariologist tried probably 8 different meds. over 6 years to control my BP. Seemed like nothing worked. Until now, yeah...I have PVC's about 1,600 skipped heart beats a day and took toporal for that for 6 yrs. (can't help but feel that is realted to my endo issues) I have to admit 3 years ago I stopped taking medicine and going to doctors b/c they didn't know what to give me! I was frustrated.

I was swelling very badly starting in Oct. thought it was the norvasc and just lived with it b/c i didn't want them to change my meds. again! but like i said, symptoms have steadily gotten worse over the past seven months. muscle aches, fatigue, dizziness, swelling, tingling in my feet, frequent urination (to the point of freaking out my husband)not being able to live my busy life in general.

Now I lay on the couch

I may not have Conn's at all... its very rare. I just wanted to educate myself as much as possible with the information I had (abnormal high aldostrone)so I can ask better questions at my next Dr. appt. Reading up on ya'lls information, and what I have learned so far I feel a bit more empowered. And I will keep reading the posts too. You guys are full of great info.

> > >

> > > Hello my name is . I am new to the group and was searching everyone's story files looking for support and also lab numbers.

> > > I took my CT scan this morning....

> > > I still haven't been able to obtain my blood work labs from my endo.

> > >

> > > I went to the endo thinking something was wrong with my thyroid. (both my parents and two other sisters are on syntyroid, and I've had an enlarged thyroid all my life) instead he tells me everything is fine but my aldostrone came back abnormally high and started telling me about getting a CT scan for a tumor as soon as possible.

> > > I know he suspected high aldostrone from the start b/c all my symptoms were text book for hyperaldostronism.

> > >

> > > Sorry for the long back story (and thats the short version)

> > >

> > > My question is what is considered a high enough level to call for a scan for a tumor?

> > >

> > > any answer would be helpful. I hope to get my blood work and results of MRA and CT scan soon.

> > >

> > >

> > >

> >

>

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[Guest guest]

That would be most health care providers.

> > > > >

> > > > > Hello my name is . I am new to the group and was searching

everyone's story files looking for support and also lab numbers.

> > > > > I took my CT scan this morning....

> > > > > I still haven't been able to obtain my blood work labs from my endo.

> > > > >

> > > > > I went to the endo thinking something was wrong with my thyroid. (both

my parents and two other sisters are on syntyroid, and I've had an enlarged

thyroid all my life) instead he tells me everything is fine but my aldostrone

came back abnormally high and started telling me about getting a CT scan for a

tumor as soon as possible.

> > > > > I know he suspected high aldostrone from the start b/c all my symptoms

were text book for hyperaldostronism.

> > > > >

> > > > > Sorry for the long back story (and thats the short version)

> > > > >

> > > > > My question is what is considered a high enough level to call for a

scan for a tumor?

> > > > >

> > > > > any answer would be helpful. I hope to get my blood work and results

of MRA and CT scan soon.

> > > > >

> > > > >

> > > > >

> > > >

> > >

> >

> >

> >

> >

> > Reply to sender | Reply to group | Reply via web post | Start a New Topic

> > Messages in this topic (17)

> > RECENT ACTIVITY: New Members 6 New Files 2

> > Visit Your Group

> > Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use

> > .

>

[Guest guest]

Maybe they meant to say it's "rare...that a doctor actually finds it!" From: Natalia Kamneva <natalia_kamneva@...>Subject: Re: Re: Beginner: Help with File infos"hyperaldosteronism " <hyperaldosteronism >Date: Sunday, May 27, 2012, 1:45 PM

> I may not have Conn's at all... its very rare.It's not as rare as you think. There about 700 of us just here. And it seems that you do have it :-)Natalia From: catherinekerth1 <catherinekerth@...> hyperaldosteronism Sent: Wednesday, May 23, 2012 12:09 AM Subject: Re: Beginner: Help with File

infos

Oh my 5 medicines! OK, I'm a light weight

I was 31 right after my second pregnancy, my blood pressure shot up. I am 38 now....

PCP, Cariologist tried probably 8 different meds. over 6 years to control my BP. Seemed like nothing worked. Until now, yeah...I have PVC's about 1,600 skipped heart beats a day and took toporal for that for 6 yrs. (can't help but feel that is realted to my endo issues) I have to admit 3 years ago I stopped taking medicine and going to doctors b/c they didn't know what to give me! I was frustrated.

I was swelling very badly starting in Oct. thought it was the norvasc and just lived with it b/c i didn't want them to change my meds. again! but like i said, symptoms have steadily gotten worse over the past seven months. muscle aches, fatigue, dizziness, swelling, tingling in my feet, frequent urination (to the point of freaking out my husband)not being able to live my busy life in general.

Now I lay on the couch

I may not have Conn's at all... its very rare. I just wanted to educate myself as much as possible with the information I had (abnormal high aldostrone)so I can ask better questions at my next Dr. appt. Reading up on ya'lls information, and what I have learned so far I feel a bit more empowered. And I will keep reading the posts too. You guys are full of great info.

> > >

> > > Hello my name is . I am new to the group and was searching everyone's story files looking for support and also lab numbers.

> > > I took my CT scan this morning....

> > > I still haven't been able to obtain my blood work labs from my endo.

> > >

> > > I went to the endo thinking something was wrong with my thyroid. (both my parents and two other sisters are on syntyroid, and I've had an enlarged thyroid all my life) instead he tells me everything is fine but my aldostrone came back abnormally high and started telling me about getting a CT scan for a tumor as soon as possible.

> > > I know he suspected high aldostrone from the start b/c all my symptoms were text book for hyperaldostronism.

> > >

> > > Sorry for the long back story (and thats the short version)

> > >

> > > My question is what is considered a high enough level to call for a scan for a tumor?

> > >

> > > any answer would be helpful. I hope to get my blood work and results of MRA and CT scan soon.

> > >

> > >

> > >

> >

>

[Guest guest]

,you made me laugh! It's so right! Natalia From: Bingham <jlkbbk2003@...> hyperaldosteronism Sent: Sunday, May 27, 2012 10:35 PM Subject: Re: Re: Beginner: Help with File infos

Maybe they meant to say it's "rare...that a doctor actually finds it!" From: Natalia Kamneva <natalia_kamneva@...>Subject: Re: Re: Beginner: Help with File infos"hyperaldosteronism " <hyperaldosteronism >Date: Sunday, May 27, 2012, 1:45 PM

> I may not have Conn's at all... its very rare.It's not as rare as you think. There about 700 of us just here. And it seems that you do have it :-)Natalia From: catherinekerth1 <catherinekerth@...> hyperaldosteronism Sent: Wednesday, May 23, 2012 12:09 AM Subject: Re: Beginner: Help with File

infos

Oh my 5 medicines! OK, I'm a light weight

I was 31 right after my second pregnancy, my blood pressure shot up. I am 38 now....

PCP, Cariologist tried probably 8 different meds. over 6 years to control my BP. Seemed like nothing worked. Until now, yeah...I have PVC's about 1,600 skipped heart beats a day and took toporal for that for 6 yrs. (can't help but feel that is realted to my endo issues) I have to admit 3 years ago I stopped taking medicine and going to doctors b/c they didn't know what to give me! I was frustrated.

I was swelling very badly starting in Oct. thought it was the norvasc and just lived with it b/c i didn't want them to change my meds. again! but like i said, symptoms have steadily gotten worse over the past seven months. muscle aches, fatigue, dizziness, swelling, tingling in my feet, frequent urination (to the point of freaking out my husband)not being able to live my busy life in general.

Now I lay on the couch

I may not have Conn's at all... its very rare. I just wanted to educate myself as much as possible with the information I had (abnormal high aldostrone)so I can ask better questions at my next Dr. appt. Reading up on ya'lls information, and what I have learned so far I feel a bit more empowered. And I will keep reading the posts too. You guys are full of great info.

> > >

> > > Hello my name is . I am new to the group and was searching everyone's story files looking for support and also lab numbers.

> > > I took my CT scan this morning....

> > > I still haven't been able to obtain my blood work labs from my endo.

> > >

> > > I went to the endo thinking something was wrong with my thyroid. (both my parents and two other sisters are on syntyroid, and I've had an enlarged thyroid all my life) instead he tells me everything is fine but my aldostrone came back abnormally high and started telling me about getting a CT scan for a tumor as soon as possible.

> > > I know he suspected high aldostrone from the start b/c all my symptoms were text book for hyperaldostronism.

> > >

> > > Sorry for the long back story (and thats the short version)

> > >

> > > My question is what is considered a high enough level to call for a scan for a tumor?

> > >

> > > any answer would be helpful. I hope to get my blood work and results of MRA and CT scan soon.

> > >

> > >

> > >

> >

>

[Guest guest]

Another good Joke!CE Grim MDOn May 30, 2012, at 1:29 PM, Natalia Kamneva wrote: ,you made me laugh! It's so right! Natalia From: Bingham <jlkbbk2003@...> hyperaldosteronism Sent: Sunday, May 27, 2012 10:35 PM Subject: Re: Re: Beginner: Help with File infos Maybe they meant to say it's "rare...that a doctor actually finds it!" From: Natalia Kamneva <natalia_kamneva@...>Subject: Re: Re: Beginner: Help with File infos"hyperaldosteronism " <hyperaldosteronism >Date: Sunday, May 27, 2012, 1:45 PM > I may not have Conn's at all... its very rare.It's not as rare as you think. There about 700 of us just here. And it seems that you do have it :-)Natalia From: catherinekerth1 <catherinekerth@...> hyperaldosteronism Sent: Wednesday, May 23, 2012 12:09 AM Subject: Re: Beginner: Help with File infos Oh my 5 medicines! OK, I'm a light weight I was 31 right after my second pregnancy, my blood pressure shot up. I am 38 now.... PCP, Cariologist tried probably 8 different meds. over 6 years to control my BP. Seemed like nothing worked. Until now, yeah...I have PVC's about 1,600 skipped heart beats a day and took toporal for that for 6 yrs. (can't help but feel that is realted to my endo issues) I have to admit 3 years ago I stopped taking medicine and going to doctors b/c they didn't know what to give me! I was frustrated. I was swelling very badly starting in Oct. thought it was the norvasc and just lived with it b/c i didn't want them to change my meds. again! but like i said, symptoms have steadily gotten worse over the past seven months. muscle aches, fatigue, dizziness, swelling, tingling in my feet, frequent urination (to the point of freaking out my husband)not being able to live my busy life in general. Now I lay on the couch I may not have Conn's at all... its very rare. I just wanted to educate myself as much as possible with the information I had (abnormal high aldostrone)so I can ask better questions at my next Dr. appt. Reading up on ya'lls information, and what I have learned so far I feel a bit more empowered. And I will keep reading the posts too. You guys are full of great info. > > > > > > Hello my name is . I am new to the group and was searching everyone's story files looking for support and also lab numbers. > > > I took my CT scan this morning.... > > > I still haven't been able to obtain my blood work labs from my endo. > > > > > > I went to the endo thinking something was wrong with my thyroid. (both my parents and two other sisters are on syntyroid, and I've had an enlarged thyroid all my life) instead he tells me everything is fine but my aldostrone came back abnormally high and started telling me about getting a CT scan for a tumor as soon as possible. > > > I know he suspected high aldostrone from the start b/c all my symptoms were text book for hyperaldostronism. > > > > > > Sorry for the long back story (and thats the short version) > > > > > > My question is what is considered a high enough level to call for a scan for a tumor? > > > > > > any answer would be helpful. I hope to get my blood work and results of MRA and CT scan soon. > > > > > > > > > > > >