Got a call to go get another test done

May 4, 2012

I went and had some labs done a few weeks ago because my aldo suppressed during

the saline test. Here are the results I have.

fasting at 8am.

DHEA-S 93.3 ug/dl (35-430)Normal

Testosterone total 50.3 ng/dl (20-80)normal

Testosterone free <.15 pg/dl(.04-2.03) normal

11 deoxycortisol 99 ng/dl (<=62) HIGH

deoxycorticosterone- see attached report but did not get a report.

17-Hydroporgesterone- 53 ng/dl (<=285)normal

Androstenedione- 202 ng/dl (47-268) normal

My cortisol level was not checked at that time. It was checked at the time of

saline infusion (done in February) and it was 10.6 ug/dl at 8am.

I get a call today by the medical assistant that the doctor would like me to get

a ACTH stim test done to give her more information as to my high deoxycortisol

test. Said I would have to come off the Spiro for the test, but did not know

for how long. Had to go ask the doctor. I can not find any info on a time

frame anywhere either in regards to this test, just that it can raise cortisol.

Anyone know?

She also said that my testosterone was high normal, but from what I see it is

right in the mid normal range. Any thoughts?

Lastly, from what I am reading with a high Deoxycortisol, one would expect a

high ACTH and therefore the test would be dexa suppression, but I am new to all

of this so not a clue. If anyone has any thoughts, I would appreciate them.

Labs also showing low ferritin and MCV low. Looks like need more iron. My WBC

count has also been going down, 3 years ago was in the 10's now is 5.0. I am

assuming this is from the immune disorder, but can it all be from a cortisol

issue?

Stacey- not dx'd yet. Pheo R/o. MRI of adrenals 1.5 years ago normal. Very Low

Renin, normal aldo, ARR: 27. Hx of Low K+ 2.8-3.7, headache, new onset HBP, 3

meds with labile BP. High PTH, high bone ALK phos, need high doses of vit d and

Magnesium to stay in normal range, Diet: salt under 1500 and K+ near 4700 with

supplementation (feel better, but not myself). sx started 3 years ago: brain

fog, fatigue, pain in joints and muscles, exercise intolerence, light headed,

palpitations and above mentioned. Diagnosed with hypogammaglobulinemia and

getting monthly IVIG infusion. On spiro 50 mg BID and BP is still labile.

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