Back again!

[Guest guest]

I was posting here in late 2010, as I had been diagnosed with

hyperaldosteronism. It appeared to be secondary aldosteronism caused by the

prescription potassium supplement that I was taking. I was weaned off the

potassium medication and with 2 months the hyperaldosteronism resolved and labs

went back to normal.

I have been having some weird symptoms again, and sure enough the high

aldosterone is back.

Here are the labs that were done:

Sodium 139 (136-145)

Potassium 3.8 (3.5-145)

Chloride 103 (98-107)

CO2 26 (21-32)

Ion Gap 14 (10-18)

BUN 10 (7-18)

Creatinine .49 L (.51-.95)

EST GFR >60 (>60)

Glucose 92 (70-99)

Calcium 7.7 L (8.5-10.1)

Phosphorous 3.8 (2.5-4.9)

Magnesium 1.9 (1.8-2.4)

TSH <.005 L (.358-3.7)

Free T3 3.70 (2.18-3.98)

Free T4 .92 (.76-1.46)

PTH <3 L (14-72)

Vitamin D 49 (30-100)

ACTH Hormone 19 (10-60)

Cortisol AM 13.6 (4.3-22.4)

Cortisol PM 3.4 (3.0-16.7)

Aldosterone 25 H (<21)

Renin 1.4 (NA deplete, upright. Mean 5.9, 2.9-10.8)

(NA replete, upright. Mean 1.0, <.6-3.0)

Has anyone had hyperaldosteronism come and go like this?

Since it seemed to resolve itself I never had a scan done for a tumor; now I'm

wondering if it could be a tumor since it is back but I am no longer taking the

medication that we assumed caused it. The last time I had aldosterone tested was

January of 2011, so between then and now it hasn't been tested. I guess it's

possible it could have been high in the meantime but I didn't know it and it

wasn't being tested. I've felt pretty crappy but I have a lot of other medical

conditions that I blame it on.

Also---does anyone else here with high aldosterone have heat intolerance and red

facial flushing(not rosacea)?

Thank you,

[Guest guest]

Thanks for your response.

I had a total thyroidectomy in 2008 for what turned out to be a benign cyst.

I had normal thyroid function before my thyroidectomy. Unfortunately this

surgery left me with the complication of hypoparathyroidism, hence the low PTH

and low calcium. Regarding my thyroid levels; I am on a T3 medication which

automatically supresses TSH. My endocrinologist is following my T3 and T4

levels, and not the TSH so much. My TSH remains the same even with below range

free t3 and free t4 levels and glaring hypothyroid symptoms.

I suffered on Synthroid for 3 years because I was not converting the

Synthroid(t4) into active T3. So we are comfortable with my thyroid levels and I

feel much better thyroid symptom-wise. There is not much that can be done about

the hypoparathyroidism, low PTH and low calcium; they like my calcium at the

bottom of range or just below and I am fairly symptom-free. Agreed, my Calcium

was a little too low here and I have raised my dose.

I was very sick with hyperaldosterone symptoms( and labs to match) in 2010, and

now aldosterone is raised again and the symptoms are creeping back

in....dizziness, nighttime urination, BP higher than my usual, excessive startle

reflex, headaches....I don't want to be sick again like I was two years ago.

And my potassium began dropping below range again in February. I had a normal

potassium draw for these labs because I was supplementing potassium.

I was just wondering if anyone has had hyperaldosteronism come and go like that.

I guess there is a chance that maybe it didn't go away completely. After my

January 2011 aldosterone test that came back as 28 my doctor never tested it

again until a new doctor tested it last week.

> >

> > I was posting here in late 2010, as I had been diagnosed with

hyperaldosteronism. It appeared to be secondary aldosteronism caused by the

prescription potassium supplement that I was taking. I was weaned off the

potassium medication and with 2 months the hyperaldosteronism resolved and labs

went back to normal.

> > I have been having some weird symptoms again, and sure enough the high

aldosterone is back.

> >

> > Here are the labs that were done:

> >

> > Sodium 139 (136-145)

> > Potassium 3.8 (3.5-145)

> > Chloride 103 (98-107)

> > CO2 26 (21-32)

> > Ion Gap 14 (10-18)

> > BUN 10 (7-18)

> > Creatinine .49 L (.51-.95)

> > EST GFR >60 (>60)

> > Glucose 92 (70-99)

> > Calcium 7.7 L (8.5-10.1)

> > Phosphorous 3.8 (2.5-4.9)

> > Magnesium 1.9 (1.8-2.4)

> >

> > TSH <.005 L (.358-3.7)

> > Free T3 3.70 (2.18-3.98)

> > Free T4 .92 (.76-1.46)

> >

> > PTH <3 L (14-72)

> > Vitamin D 49 (30-100)

> >

> > ACTH Hormone 19 (10-60)

> > Cortisol AM 13.6 (4.3-22.4)

> > Cortisol PM 3.4 (3.0-16.7)

> > Aldosterone 25 H (<21)

> > Renin 1.4 (NA deplete, upright. Mean 5.9, 2.9-10.8)

> > (NA replete, upright. Mean 1.0, <.6-3.0)

> >

> > Has anyone had hyperaldosteronism come and go like this?

> > Since it seemed to resolve itself I never had a scan done for a tumor; now

I'm wondering if it could be a tumor since it is back but I am no longer taking

the medication that we assumed caused it. The last time I had aldosterone tested

was January of 2011, so between then and now it hasn't been tested. I guess it's

possible it could have been high in the meantime but I didn't know it and it

wasn't being tested. I've felt pretty crappy but I have a lot of other medical

conditions that I blame it on.

> > Also---does anyone else here with high aldosterone have heat intolerance and

red facial flushing(not rosacea)?

> >

> > Thank you,

> >

> >

>

[Guest guest]

I stayed out of this because of the thyroid issue and it looks like you and

have discussed that. Are you on any MCB (Spiro or Epler)? If you had PA

and if it was resolved and now you feel it is coming back I would blame sodium

(NA) first. Dr. Grim says PA can sometimes be controlled by diet, in fact I

believe is off spiro now. Are you DASHing? DASH like your health

depended on it(or something like that Dr. Grim always says!)

> > >

> > > I was posting here in late 2010, as I had been diagnosed with

hyperaldosteronism. It appeared to be secondary aldosteronism caused by the

prescription potassium supplement that I was taking. I was weaned off the

potassium medication and with 2 months the hyperaldosteronism resolved and labs

went back to normal.

> > > I have been having some weird symptoms again, and sure enough the high

aldosterone is back.

> > >

> > > Here are the labs that were done:

> > >

> > > Sodium 139 (136-145)

> > > Potassium 3.8 (3.5-145)

> > > Chloride 103 (98-107)

> > > CO2 26 (21-32)

> > > Ion Gap 14 (10-18)

> > > BUN 10 (7-18)

> > > Creatinine .49 L (.51-.95)

> > > EST GFR >60 (>60)

> > > Glucose 92 (70-99)

> > > Calcium 7.7 L (8.5-10.1)

> > > Phosphorous 3.8 (2.5-4.9)

> > > Magnesium 1.9 (1.8-2.4)

> > >

> > > TSH <.005 L (.358-3.7)

> > > Free T3 3.70 (2.18-3.98)

> > > Free T4 .92 (.76-1.46)

> > >

> > > PTH <3 L (14-72)

> > > Vitamin D 49 (30-100)

> > >

> > > ACTH Hormone 19 (10-60)

> > > Cortisol AM 13.6 (4.3-22.4)

> > > Cortisol PM 3.4 (3.0-16.7)

> > > Aldosterone 25 H (<21)

> > > Renin 1.4 (NA deplete, upright. Mean 5.9, 2.9-10.8)

> > > (NA replete, upright. Mean 1.0, <.6-3.0)

> > >

> > > Has anyone had hyperaldosteronism come and go like this?

> > > Since it seemed to resolve itself I never had a scan done for a tumor; now

I'm wondering if it could be a tumor since it is back but I am no longer taking

the medication that we assumed caused it. The last time I had aldosterone tested

was January of 2011, so between then and now it hasn't been tested. I guess it's

possible it could have been high in the meantime but I didn't know it and it

wasn't being tested. I've felt pretty crappy but I have a lot of other medical

conditions that I blame it on.

> > > Also---does anyone else here with high aldosterone have heat intolerance

and red facial flushing(not rosacea)?

> > >

> > > Thank you,

> > >

> > >

> >

>

[Guest guest]

Have your wife checked as well identical twins etc. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn May 3, 2012, at 6:58, Dillon <girlcat36@...> wrote:

Thanks for your response.

I had a total thyroidectomy in 2008 for what turned out to be a benign cyst.

I had normal thyroid function before my thyroidectomy. Unfortunately this surgery left me with the complication of hypoparathyroidism, hence the low PTH and low calcium. Regarding my thyroid levels; I am on a T3 medication which automatically supresses TSH. My endocrinologist is following my T3 and T4 levels, and not the TSH so much. My TSH remains the same even with below range free t3 and free t4 levels and glaring hypothyroid symptoms.

I suffered on Synthroid for 3 years because I was not converting the Synthroid(t4) into active T3. So we are comfortable with my thyroid levels and I feel much better thyroid symptom-wise. There is not much that can be done about the hypoparathyroidism, low PTH and low calcium; they like my calcium at the bottom of range or just below and I am fairly symptom-free. Agreed, my Calcium was a little too low here and I have raised my dose.

I was very sick with hyperaldosterone symptoms( and labs to match) in 2010, and now aldosterone is raised again and the symptoms are creeping back in....dizziness, nighttime urination, BP higher than my usual, excessive startle reflex, headaches....I don't want to be sick again like I was two years ago.

And my potassium began dropping below range again in February. I had a normal potassium draw for these labs because I was supplementing potassium.

I was just wondering if anyone has had hyperaldosteronism come and go like that. I guess there is a chance that maybe it didn't go away completely. After my January 2011 aldosterone test that came back as 28 my doctor never tested it again until a new doctor tested it last week.

> >

> > I was posting here in late 2010, as I had been diagnosed with hyperaldosteronism. It appeared to be secondary aldosteronism caused by the prescription potassium supplement that I was taking. I was weaned off the potassium medication and with 2 months the hyperaldosteronism resolved and labs went back to normal.

> > I have been having some weird symptoms again, and sure enough the high aldosterone is back.

> >

> > Here are the labs that were done:

> >

> > Sodium 139 (136-145)

> > Potassium 3.8 (3.5-145)

> > Chloride 103 (98-107)

> > CO2 26 (21-32)

> > Ion Gap 14 (10-18)

> > BUN 10 (7-18)

> > Creatinine .49 L (.51-.95)

> > EST GFR >60 (>60)

> > Glucose 92 (70-99)

> > Calcium 7.7 L (8.5-10.1)

> > Phosphorous 3.8 (2.5-4.9)

> > Magnesium 1.9 (1.8-2.4)

> >

> > TSH <.005 L (.358-3.7)

> > Free T3 3.70 (2.18-3.98)

> > Free T4 .92 (.76-1.46)

> >

> > PTH <3 L (14-72)

> > Vitamin D 49 (30-100)

> >

> > ACTH Hormone 19 (10-60)

> > Cortisol AM 13.6 (4.3-22.4)

> > Cortisol PM 3.4 (3.0-16.7)

> > Aldosterone 25 H (<21)

> > Renin 1.4 (NA deplete, upright. Mean 5.9, 2.9-10.8)

> > (NA replete, upright. Mean 1.0, <.6-3.0)

> >

> > Has anyone had hyperaldosteronism come and go like this?

> > Since it seemed to resolve itself I never had a scan done for a tumor; now I'm wondering if it could be a tumor since it is back but I am no longer taking the medication that we assumed caused it. The last time I had aldosterone tested was January of 2011, so between then and now it hasn't been tested. I guess it's possible it could have been high in the meantime but I didn't know it and it wasn't being tested. I've felt pretty crappy but I have a lot of other medical conditions that I blame it on.

> > Also---does anyone else here with high aldosterone have heat intolerance and red facial flushing(not rosacea)?

> >

> > Thank you,

> >

> >

>

[Guest guest]

Aldo and salt HTN Aka pa are remarkably SS. So BP can jump around a lot with salt variations in diet. Say doing Applebee'sMay your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn May 3, 2012, at 9:26, <jclark24p@...> wrote:

I stayed out of this because of the thyroid issue and it looks like you and have discussed that. Are you on any MCB (Spiro or Epler)? If you had PA and if it was resolved and now you feel it is coming back I would blame sodium (NA) first. Dr. Grim says PA can sometimes be controlled by diet, in fact I believe is off spiro now. Are you DASHing? DASH like your health depended on it(or something like that Dr. Grim always says!)

> > >

> > > I was posting here in late 2010, as I had been diagnosed with hyperaldosteronism. It appeared to be secondary aldosteronism caused by the prescription potassium supplement that I was taking. I was weaned off the potassium medication and with 2 months the hyperaldosteronism resolved and labs went back to normal.

> > > I have been having some weird symptoms again, and sure enough the high aldosterone is back.

> > >

> > > Here are the labs that were done:

> > >

> > > Sodium 139 (136-145)

> > > Potassium 3.8 (3.5-145)

> > > Chloride 103 (98-107)

> > > CO2 26 (21-32)

> > > Ion Gap 14 (10-18)

> > > BUN 10 (7-18)

> > > Creatinine .49 L (.51-.95)

> > > EST GFR >60 (>60)

> > > Glucose 92 (70-99)

> > > Calcium 7.7 L (8.5-10.1)

> > > Phosphorous 3.8 (2.5-4.9)

> > > Magnesium 1.9 (1.8-2.4)

> > >

> > > TSH <.005 L (.358-3.7)

> > > Free T3 3.70 (2.18-3.98)

> > > Free T4 .92 (.76-1.46)

> > >

> > > PTH <3 L (14-72)

> > > Vitamin D 49 (30-100)

> > >

> > > ACTH Hormone 19 (10-60)

> > > Cortisol AM 13.6 (4.3-22.4)

> > > Cortisol PM 3.4 (3.0-16.7)

> > > Aldosterone 25 H (<21)

> > > Renin 1.4 (NA deplete, upright. Mean 5.9, 2.9-10.8)

> > > (NA replete, upright. Mean 1.0, <.6-3.0)

> > >

> > > Has anyone had hyperaldosteronism come and go like this?

> > > Since it seemed to resolve itself I never had a scan done for a tumor; now I'm wondering if it could be a tumor since it is back but I am no longer taking the medication that we assumed caused it. The last time I had aldosterone tested was January of 2011, so between then and now it hasn't been tested. I guess it's possible it could have been high in the meantime but I didn't know it and it wasn't being tested. I've felt pretty crappy but I have a lot of other medical conditions that I blame it on.

> > > Also---does anyone else here with high aldosterone have heat intolerance and red facial flushing(not rosacea)?

> > >

> > > Thank you,

> > >

> > >

> >

>

[Guest guest]

Aldo and salt HTN Aka pa are remarkably SS. So BP can jump around a lot with salt variations in diet. Say doing Applebee'sMay your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn May 3, 2012, at 9:26, <jclark24p@...> wrote:

I stayed out of this because of the thyroid issue and it looks like you and have discussed that. Are you on any MCB (Spiro or Epler)? If you had PA and if it was resolved and now you feel it is coming back I would blame sodium (NA) first. Dr. Grim says PA can sometimes be controlled by diet, in fact I believe is off spiro now. Are you DASHing? DASH like your health depended on it(or something like that Dr. Grim always says!)

> > >

> > > I was posting here in late 2010, as I had been diagnosed with hyperaldosteronism. It appeared to be secondary aldosteronism caused by the prescription potassium supplement that I was taking. I was weaned off the potassium medication and with 2 months the hyperaldosteronism resolved and labs went back to normal.

> > > I have been having some weird symptoms again, and sure enough the high aldosterone is back.

> > >

> > > Here are the labs that were done:

> > >

> > > Sodium 139 (136-145)

> > > Potassium 3.8 (3.5-145)

> > > Chloride 103 (98-107)

> > > CO2 26 (21-32)

> > > Ion Gap 14 (10-18)

> > > BUN 10 (7-18)

> > > Creatinine .49 L (.51-.95)

> > > EST GFR >60 (>60)

> > > Glucose 92 (70-99)

> > > Calcium 7.7 L (8.5-10.1)

> > > Phosphorous 3.8 (2.5-4.9)

> > > Magnesium 1.9 (1.8-2.4)

> > >

> > > TSH <.005 L (.358-3.7)

> > > Free T3 3.70 (2.18-3.98)

> > > Free T4 .92 (.76-1.46)

> > >

> > > PTH <3 L (14-72)

> > > Vitamin D 49 (30-100)

> > >

> > > ACTH Hormone 19 (10-60)

> > > Cortisol AM 13.6 (4.3-22.4)

> > > Cortisol PM 3.4 (3.0-16.7)

> > > Aldosterone 25 H (<21)

> > > Renin 1.4 (NA deplete, upright. Mean 5.9, 2.9-10.8)

> > > (NA replete, upright. Mean 1.0, <.6-3.0)

> > >

> > > Has anyone had hyperaldosteronism come and go like this?

> > > Since it seemed to resolve itself I never had a scan done for a tumor; now I'm wondering if it could be a tumor since it is back but I am no longer taking the medication that we assumed caused it. The last time I had aldosterone tested was January of 2011, so between then and now it hasn't been tested. I guess it's possible it could have been high in the meantime but I didn't know it and it wasn't being tested. I've felt pretty crappy but I have a lot of other medical conditions that I blame it on.

> > > Also---does anyone else here with high aldosterone have heat intolerance and red facial flushing(not rosacea)?

> > >

> > > Thank you,

> > >

> > >

> >

>

[Guest guest]

You noted that you did not do well on Synthroid and that you had trouble

converting from T4 to T3 - what are you taking now and was there any explanation

for the problem converting the T4? Have been looking into this as Thyroid

problems have recently been discovered.

My aldo symptoms did fluctuate over the years - never completely going away but

becoming more tolerable. Then coming back with a vengeance for longer and longer

periods of time. Finally I stopped having periods of remission.

The excessive startle reflex has been one of the symptoms that I didn't know was

a symptom for a very long time - and even then felt rather silly reporting it.

For most of my life this has been something that friends, family and co-workers

have been aware of about me. Some, my husband and son included, find great

amusement at my screams and my Heisman trophy stance - I quickly go into flight

mode. I currently work in a prison where we have trusty workers. These trustys

learn quickly to make me aware of their presence when I am working - a blood

curdling female scream does not need to rattle the windows of a Max security

prison.

> > > >

> > > > I was posting here in late 2010, as I had been diagnosed with

hyperaldosteronism. It appeared to be secondary aldosteronism caused by the

prescription potassium supplement that I was taking. I was weaned off the

potassium medication and with 2 months the hyperaldosteronism resolved and labs

went back to normal.

> > > > I have been having some weird symptoms again, and sure enough the high

aldosterone is back.

> > > >

> > > > Here are the labs that were done:

> > > >

> > > > Sodium 139 (136-145)

> > > > Potassium 3.8 (3.5-145)

> > > > Chloride 103 (98-107)

> > > > CO2 26 (21-32)

> > > > Ion Gap 14 (10-18)

> > > > BUN 10 (7-18)

> > > > Creatinine .49 L (.51-.95)

> > > > EST GFR >60 (>60)

> > > > Glucose 92 (70-99)

> > > > Calcium 7.7 L (8.5-10.1)

> > > > Phosphorous 3.8 (2.5-4.9)

> > > > Magnesium 1.9 (1.8-2.4)

> > > >

> > > > TSH <.005 L (.358-3.7)

> > > > Free T3 3.70 (2.18-3.98)

> > > > Free T4 .92 (.76-1.46)

> > > >

> > > > PTH <3 L (14-72)

> > > > Vitamin D 49 (30-100)

> > > >

> > > > ACTH Hormone 19 (10-60)

> > > > Cortisol AM 13.6 (4.3-22.4)

> > > > Cortisol PM 3.4 (3.0-16.7)

> > > > Aldosterone 25 H (<21)

> > > > Renin 1.4 (NA deplete, upright. Mean 5.9, 2.9-10.8)

> > > > (NA replete, upright. Mean 1.0, <.6-3.0)

> > > >

> > > > Has anyone had hyperaldosteronism come and go like this?

> > > > Since it seemed to resolve itself I never had a scan done for a tumor;

now I'm wondering if it could be a tumor since it is back but I am no longer

taking the medication that we assumed caused it. The last time I had aldosterone

tested was January of 2011, so between then and now it hasn't been tested. I

guess it's possible it could have been high in the meantime but I didn't know it

and it wasn't being tested. I've felt pretty crappy but I have a lot of other

medical conditions that I blame it on.

> > > > Also---does anyone else here with high aldosterone have heat intolerance

and red facial flushing(not rosacea)?

> > > >

> > > > Thank you,

> > > >

> > > >

> > >

> >

>

[Guest guest]

Never been reported a set of identical twins with PA or GRA. Curious as every 50th person you know has a twin. CE Grim MDCE Grim MDOn May 3, 2012, at 5:15 PM, Bingham wrote: They don't seem to parallel each other in many things health wise. They are different eaters and the twin is not in a very happy marriage so she has many more somatic type complaints IF that has anything to do with it. My wife is not a complainer for sure - but you're right about one thing, in their family, HTN and sudden death does exist. I try to get her on DASH with me, but she's not quite there yet. Thanks for your response.I had a total thyroidectomy in 2008 for what turned out to be a benign cyst. I had normal thyroid function before my thyroidectomy. Unfortunately this surgery left me with the complication of hypoparathyroidism, hence the low PTH and low calcium. Regarding my thyroid levels; I am on a T3 medication which automatically supresses TSH. My endocrinologist is following my T3 and T4 levels, and not the TSH so much. My TSH remains the same even with below range free t3 and free t4 levels and glaring hypothyroid symptoms.I suffered on Synthroid for 3 years because I was not converting the Synthroid(t4) into active T3. So we are comfortable with my thyroid levels and I feel much better thyroid symptom-wise. There is not much that can be done about the hypoparathyroidism, low PTH and low calcium; they like my calcium at the bottom of range or just below and I am fairly symptom-free. Agreed, my Calcium was a little too low here and I have raised my dose.I was very sick with hyperaldosterone symptoms( and labs to match) in 2010, and now aldosterone is raised again and the symptoms are creeping back in....dizziness, nighttime urination, BP higher than my usual, excessive startle reflex, headaches....I don't want to be sick again like I was two years ago.And my potassium began dropping below range again in February. I had a normal potassium draw for these labs because I was supplementing potassium.I was just wondering if anyone has had hyperaldosteronism come and go like that. I guess there is a chance that maybe it didn't go away completely. After my January 2011 aldosterone test that came back as 28 my doctor never tested it again until a new doctor tested it last week.> >> > I was posting here in late 2010, as I had been diagnosed with hyperaldosteronism. It appeared to be secondary aldosteronism caused by the prescription potassium supplement that I was taking. I was weaned off the potassium medication and with 2 months the hyperaldosteronism resolved and labs went back to normal. > > I have been having some weird symptoms again, and sure enough the high aldosterone is back.> > > > Here are the labs that were done:> > > > Sodium 139 (136-145)> > Potassium 3.8 (3.5-145)> > Chloride 103 (98-107)> > CO2 26 (21-32)> > Ion Gap 14 (10-18)> > BUN 10 (7-18)> > Creatinine .49 L (.51-.95)> > EST GFR >60 (>60)> > Glucose 92 (70-99)> > Calcium 7.7 L (8.5-10.1)> > Phosphorous 3.8 (2.5-4.9)> > Magnesium 1.9 (1.8-2.4)> > > > TSH <.005 L (.358-3.7)> > Free T3 3.70 (2.18-3.98)> > Free T4 .92 (.76-1.46)> > > > PTH <3 L (14-72)> > Vitamin D 49 (30-100)> > > > ACTH Hormone 19 (10-60)> > Cortisol AM 13.6 (4.3-22.4)> > Cortisol PM 3.4 (3.0-16.7)> > Aldosterone 25 H (<21)> > Renin 1.4 (NA deplete, upright. Mean 5.9, 2.9-10.8)> > (NA replete, upright. Mean 1.0, <.6-3.0)> > > > Has anyone had hyperaldosteronism come and go like this? > > Since it seemed to resolve itself I never had a scan done for a tumor; now I'm wondering if it could be a tumor since it is back but I am no longer taking the medication that we assumed caused it. The last time I had aldosterone tested was January of 2011, so between then and now it hasn't been tested. I guess it's possible it could have been high in the meantime but I didn't know it and it wasn't being tested. I've felt pretty crappy but I have a lot of other medical conditions that I blame it on.> > Also---does anyone else here with high aldosterone have heat intolerance and red facial flushing(not rosacea)?> > > > Thank you, > > > >>

[Guest guest]

I never saw my pathology report from my thyroidectomy in 2008, but was told it

showed a benign nodule. The surgeon told me that she did not touch my

parathyroids; even though I spent a week in the hospital hooked up to IV's of

calcium, magnesium, and potassium immediately after surgery. Many months later,

another doctor told me that there was at least one parathyroid gland in my

pathology. Before this surgery I had completely normal electrolyte levels. No

problems whatsoever. And no parathyroid problems, my CA levels were always

perfect at 9.1. Even my thyroid levels were good prior to surgery.

In 2007 I had 3 doses of Cisplatin chemotherapy agent for tonsil cancer.

Cisplatin is known to cause kidney damage, but my kidney function has always

been fine. I'm not sure if the Cisplatin factors into this, electrolytes were

fine post cancer treatment. I am told that it should not factor in to this

since my kidney function tests always come back normal, but I know kidneys play

a role in electrolyte balance.

So for now, I will increase mag, eat high potassium foods and retest. Depending

upon the results of the bloodwork, I will attack it from the sodium

angle(because I don't want to change too much all at once).

In your opinion, should my doctor order the CT scan of adrenals just to put the

idea of PA to rest? She is really baffled by all of this.

One more symptom I am having that I almost forgot about----I have a nagging left

flank pain both times aldo was high. My doctor said that is meaningless since

adrenal tumors are painless. Is that correct?

> >> >

> >> > > I was posting here in late 2010, as I had been diagnosed with

> >> > > hyperaldosteronism. It appeared to be secondary aldosteronism

> >> caused

> >> > > by the prescription potassium supplement that I was taking. I was

> >> > > weaned off the potassium medication and with 2 months the

> >> > > hyperaldosteronism resolved and labs went back to normal.

> >> > > I have been having some weird symptoms again, and sure enough the

> >> > > high aldosterone is back.

> >> > >

> >> > > Here are the labs that were done:

> >> > >

> >> > > Sodium 139 (136-145)

> >> > > Potassium 3.8 (3.5-145)

> >> > > Chloride 103 (98-107)

> >> > > CO2 26 (21-32)

> >> > > Ion Gap 14 (10-18)

> >> > > BUN 10 (7-18)

> >> > > Creatinine .49 L (.51-.95)

> >> > > EST GFR >60 (>60)

> >> > > Glucose 92 (70-99)

> >> > > Calcium 7.7 L (8.5-10.1)

> >> > > Phosphorous 3.8 (2.5-4.9)

> >> > > Magnesium 1.9 (1.8-2.4)

> >> > >

> >> > > TSH <.005 L (.358-3.7)

> >> > > Free T3 3.70 (2.18-3.98)

> >> > > Free T4 .92 (.76-1.46)

> >> > >

> >> > > PTH <3 L (14-72)

> >> > > Vitamin D 49 (30-100)

> >> > >

> >> > > ACTH Hormone 19 (10-60)

> >> > > Cortisol AM 13.6 (4.3-22.4)

> >> > > Cortisol PM 3.4 (3.0-16.7)

> >> > > Aldosterone 25 H (<21)

> >> > > Renin 1.4 (NA deplete, upright. Mean 5.9, 2.9-10.8)

> >> > > (NA replete, upright. Mean 1.0, <.6-3.0)

> >> > >

> >> > > Has anyone had hyperaldosteronism come and go like this?

> >> > > Since it seemed to resolve itself I never had a scan done for a

> >> > > tumor; now I'm wondering if it could be a tumor since it is

> >> back but

> >> > > I am no longer taking the medication that we assumed caused it.

> >> The

> >> > > last time I had aldosterone tested was January of 2011, so

> >> between

> >> > > then and now it hasn't been tested. I guess it's possible it

> >> could

> >> > > have been high in the meantime but I didn't know it and it wasn't

> >> > > being tested. I've felt pretty crappy but I have a lot of other

> >> > > medical conditions that I blame it on.

> >> > > Also---does anyone else here with high aldosterone have heat

> >> > > intolerance and red facial flushing(not rosacea)?

> >> > >

> >> > > Thank you,

> >> > >

> >> > >

> >> > >

> >> >

> >>

> >

> >

>

[Guest guest]

Here are my labs, including ranges, they were drawn at 8:45 AM(PM cortisol

drawn at 5:30PM), I was on a high potassium, regular sodium diet. Labs were

drawn with a tourniquet and a lot of poking. There was no 24 hour urine testing.

Sodium 139 (136-145)

Potassium 3.8 (3.5-5.1)

Chloride 103 (98-103)

CO2 26 (21-32)

Ion Gap 14 (10-18)

BUN 10 (7-18)

Creatinine .49 L (.51-.95)

EST GFR >60 (>60)

Glucose 92 (70-99)

Calcium 7.7 L (8.5-10.1)

Phosphorous 3.8 (2.5-4.9)

Magnesium 1.9 (1.8-2.4)

TSH <.005 L (.358-3.7)

Free T3 3.70 (2.18-3.98)

Free T4 .92 (.76-1.46)

PTH <3 L (14-60)

Vitamin D 49 (30-100)

ACTH Hormone 19 (10-60)

Cortisol AM 13.6 (4.3-22.4)

Cortisol PM 3.4 (3.0-16.7)

Aldosterone 25 H (<21)

Renin 1.4 (NA deplete, upright. Mean 5.9, 2.9-10.8)

(NA replete, upright. Mean 1.0, <.6-3.0)

***Here are my medications at that time:

Erfa thyroid. 180 mcg

Calcitriol .25 once a week

Claritin

Multivitamin

Evening primrose oil

Vitamin D3 1000 mg

Magnesium 800 mg

Calcium citrate 1000 mg

Glucosamine/ chondroiton/ msm

Iron glycinate 50 mg

***Here are my symptoms:

nighttime urination

Thirst

Hair loss

Cramps in hands/feet ( from low K I presume)

excessive startle reflex

Sporadic elevation of BP

Dizziness

Headaches

***And lastly, my medical history:

My thyroidectomy was a total thyroidectomy. The electrolyte imbalances began

immediately after surgery. My thyroidectomy was in 2008.

In 2007, I had a tonsillectomy that revealed stage 2/3 HPV+ tonsil cancer. I

had three rounds of cisplatin, each three weeks apart. I also had 7 weeks of

bilateral IMRT, 70gy, I believe. I had a feeding tube.

I have endometriosis and ovarian cysts.

I have severe environmental allergies.

I have chronic low white blood cell counts(no reason found)

I have macrocytic anemia of unknown origin. It was not caused by the

chemotherapy, as it was already occuring before the chemo.

I had an endometrial ablation in 2009.

I have a history of sinusitis and migraines.

I have a history of cervical cancer(1991).

My eGFR has been tested about 40 times between 2008 and 2012. It has fluctuated

between 96.6 and 141.2. It didn't start rising up to 141.2 until 2011. It

appears to have been on an upward trend since 2008.

I am not on birth control pills or estrogen, but I have suspected I may have

estrogen dominance because of endometriosis and ovarian cyst problems.

> > > > > >> >

> > > > > >> > > I was posting here in late 2010, as I had been

> > diagnosed with

> > > > > >> > > hyperaldosteronism. It appeared to be secondary

> > aldosteronism

> > > > > >> caused

> > > > > >> > > by the prescription potassium supplement that I was

> > taking.

> > > > I was

> > > > > >> > > weaned off the potassium medication and with 2 months the

> > > > > >> > > hyperaldosteronism resolved and labs went back to normal.

> > > > > >> > > I have been having some weird symptoms again, and sure

> > > > enough the

> > > > > >> > > high aldosterone is back.

> > > > > >> > >

> > > > > >> > > Here are the labs that were done:

> > > > > >> > >

> > > > > >> > > Sodium 139 (136-145)

> > > > > >> > > Potassium 3.8 (3.5-145)

> > > > > >> > > Chloride 103 (98-107)

> > > > > >> > > CO2 26 (21-32)

> > > > > >> > > Ion Gap 14 (10-18)

> > > > > >> > > BUN 10 (7-18)

> > > > > >> > > Creatinine .49 L (.51-.95)

> > > > > >> > > EST GFR >60 (>60)

> > > > > >> > > Glucose 92 (70-99)

> > > > > >> > > Calcium 7.7 L (8.5-10.1)

> > > > > >> > > Phosphorous 3.8 (2.5-4.9)

> > > > > >> > > Magnesium 1.9 (1.8-2.4)

> > > > > >> > >

> > > > > >> > > TSH <.005 L (.358-3.7)

> > > > > >> > > Free T3 3.70 (2.18-3.98)

> > > > > >> > > Free T4 .92 (.76-1.46)

> > > > > >> > >

> > > > > >> > > PTH <3 L (14-72)

> > > > > >> > > Vitamin D 49 (30-100)

> > > > > >> > >

> > > > > >> > > ACTH Hormone 19 (10-60)

> > > > > >> > > Cortisol AM 13.6 (4.3-22.4)

> > > > > >> > > Cortisol PM 3.4 (3.0-16.7)

> > > > > >> > > Aldosterone 25 H (<21)

> > > > > >> > > Renin 1.4 (NA deplete, upright. Mean 5.9, 2.9-10.8)

> > > > > >> > > (NA replete, upright. Mean 1.0, <.6-3.0)

> > > > > >> > >

> > > > > >> > > Has anyone had hyperaldosteronism come and go like this?

> > > > > >> > > Since it seemed to resolve itself I never had a scan done

> > > > for a

> > > > > >> > > tumor; now I'm wondering if it could be a tumor since

> > it is

> > > > > >> back but

> > > > > >> > > I am no longer taking the medication that we assumed

> > caused

> > > > it.

> > > > > >> The

> > > > > >> > > last time I had aldosterone tested was January of 2011,

> > so

> > > > > >> between

> > > > > >> > > then and now it hasn't been tested. I guess it's

> > possible it

> > > > > >> could

> > > > > >> > > have been high in the meantime but I didn't know it and

> > it

> > > > wasn't

> > > > > >> > > being tested. I've felt pretty crappy but I have a lot of

> > > > other

> > > > > >> > > medical conditions that I blame it on.

> > > > > >> > > Also---does anyone else here with high aldosterone have

> > heat

> > > > > >> > > intolerance and red facial flushing(not rosacea)?

> > > > > >> > >

> > > > > >> > > Thank you,

> > > > > >> > >

> > > > > >> > >

> > > > > >> > >

> > > > > >> >

> > > > > >>

> > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

I just wanted to add to my last post from last night, my doctor has ordered a 24

hour urine test but has only ordered aldosterone and creatinine; are there other

levels in the 24 hour urine that she should be checking besides aldo and creat?

I wouldn't want to have to repeat the 24 hour test.

In addition to the 24 hour urine, serum labs ordered are aldosterone, renin,

magnesium and basic metabolic panel.

Thanks,

> > > > > > >> >

> > > > > > >> > > I was posting here in late 2010, as I had been

> > > diagnosed with

> > > > > > >> > > hyperaldosteronism. It appeared to be secondary

> > > aldosteronism

> > > > > > >> caused

> > > > > > >> > > by the prescription potassium supplement that I was

> > > taking.

> > > > > I was

> > > > > > >> > > weaned off the potassium medication and with 2 months the

> > > > > > >> > > hyperaldosteronism resolved and labs went back to normal.

> > > > > > >> > > I have been having some weird symptoms again, and sure

> > > > > enough the

> > > > > > >> > > high aldosterone is back.

> > > > > > >> > >

> > > > > > >> > > Here are the labs that were done:

> > > > > > >> > >

> > > > > > >> > > Sodium 139 (136-145)

> > > > > > >> > > Potassium 3.8 (3.5-145)

> > > > > > >> > > Chloride 103 (98-107)

> > > > > > >> > > CO2 26 (21-32)

> > > > > > >> > > Ion Gap 14 (10-18)

> > > > > > >> > > BUN 10 (7-18)

> > > > > > >> > > Creatinine .49 L (.51-.95)

> > > > > > >> > > EST GFR >60 (>60)

> > > > > > >> > > Glucose 92 (70-99)

> > > > > > >> > > Calcium 7.7 L (8.5-10.1)

> > > > > > >> > > Phosphorous 3.8 (2.5-4.9)

> > > > > > >> > > Magnesium 1.9 (1.8-2.4)

> > > > > > >> > >

> > > > > > >> > > TSH <.005 L (.358-3.7)

> > > > > > >> > > Free T3 3.70 (2.18-3.98)

> > > > > > >> > > Free T4 .92 (.76-1.46)

> > > > > > >> > >

> > > > > > >> > > PTH <3 L (14-72)

> > > > > > >> > > Vitamin D 49 (30-100)

> > > > > > >> > >

> > > > > > >> > > ACTH Hormone 19 (10-60)

> > > > > > >> > > Cortisol AM 13.6 (4.3-22.4)

> > > > > > >> > > Cortisol PM 3.4 (3.0-16.7)

> > > > > > >> > > Aldosterone 25 H (<21)

> > > > > > >> > > Renin 1.4 (NA deplete, upright. Mean 5.9, 2.9-10.8)

> > > > > > >> > > (NA replete, upright. Mean 1.0, <.6-3.0)

> > > > > > >> > >

> > > > > > >> > > Has anyone had hyperaldosteronism come and go like this?

> > > > > > >> > > Since it seemed to resolve itself I never had a scan done

> > > > > for a

> > > > > > >> > > tumor; now I'm wondering if it could be a tumor since

> > > it is

> > > > > > >> back but

> > > > > > >> > > I am no longer taking the medication that we assumed

> > > caused

> > > > > it.

> > > > > > >> The

> > > > > > >> > > last time I had aldosterone tested was January of 2011,

> > > so

> > > > > > >> between

> > > > > > >> > > then and now it hasn't been tested. I guess it's

> > > possible it

> > > > > > >> could

> > > > > > >> > > have been high in the meantime but I didn't know it and

> > > it

> > > > > wasn't

> > > > > > >> > > being tested. I've felt pretty crappy but I have a lot of

> > > > > other

> > > > > > >> > > medical conditions that I blame it on.

> > > > > > >> > > Also---does anyone else here with high aldosterone have

> > > heat

> > > > > > >> > > intolerance and red facial flushing(not rosacea)?

> > > > > > >> > >

> > > > > > >> > > Thank you,

> > > > > > >> > >

> > > > > > >> > >

> > > > > > >> > >

> > > > > > >> >

> > > > > > >>

> > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > > >

> > > >

> > >

> > >

> >

>