Heidi-sharing story

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Heidi,

That makes me feel so good! And makes me smile. It is 5:30AM as I am reading this. I want to share it with Brant and scream, WE HAVE DONE THE RIGHT THING! I think right now he might get a little mad though.

My point is, this is such a long journey. For us it is far from over, but I know we have done everything we can for . At this point and when I wrote his story and when I share it, all I want to do help another parent and child.

I am happy to have helped your family in a small way.

((HUGS)) TashaMommy of 5 year old twin boys- and Fort Worth, Texas is treated at Texas ish Rite Hospital in Dallas, TexasSeries of 6 casts for 14 months followed by bracing since September 2007You can read 's story at.... http://www.infantilescoliosis.org/stories.html

From: NIck Guthe <nickguthe@...>infantile scoliosis treatment Sent: Fri, May 14, 2010 10:46:16 PMSubject: Re: Makenna's 3rd Cast

Tasha,

Telling your story helped us and continues to, I still remember reading 's story on ISOP and the pics. And I heard your words (from earlier posts) in my ear a lot in SLC this week. This is OUR life and we CAN handle it! : ) I know there are at least 2 or 3 other phrases I kept telling Nick that Tasha said. Heidi, Bexon's Mommy, (2 and a half years old, in 6th cast from Salt Lake City Shriners, currently down from 61 degrees to 25 in cast)

From: Tasha Fontenot <ryanswalk (DOT) com>infantile scoliosis treatment @groups. comSent: Fri, May 14, 2010 1:30:40 PMSubject: Re: [infantile_scoliosi s] Makenna's 3rd Cast

Amy,

Wonderful news about your little sweetheart! 14 degrees out of cast is GREAT!

I echo everything you said about sharing your child's story. A stunned, shocked parent is going to be searching the net for answers and come across ISOP and the stories. That mom or dad is going to read "your" story and things you say and tell about your journey will strike a chord with them. They will immediately feel a connection. Every child, family and situation is different, but bits and pieces of your story is sure to relate to another family. I have always said the same as you did Amy, We never know who will benefit from us sharing our child's story.

GOOD FOR YOU for sharing Makenna's story!! It is hard sometimes, at least for me, because not everyone seems so interested in hearing it. BUT at least I know I tried and put that bug in their ear.

TashaMommy of 5 year old twin boys- and Fort Worth, Texas is treated at Texas ish Rite Hospital in Dallas, TexasSeries of 6 casts for 14 months followed by bracing since September 2007You can read 's story at.... http://www.infantil escoliosis. org/stories. html

From: Amy <amscales11 (DOT) com>infantile scoliosis treatment @groups. comSent: Fri, May 14, 2010 3:03:02 PMSubject: [infantile_scoliosi s] Makenna's 3rd Cast

We returned Monday from Makenna's 3rd cast. Her correction looks really good. Her out of cast curve measure 14* (down from 21)!!! We are all very excited and needed that little glimpse heading into the long summer. She continues to amaze me with her adaptability and resilience. I am so grateful to have found ISOP and ET. I mention Makenna's story to anyone who will listen - you never know who may benefit. I am getting calling cards made for her as well which will have her website and ISOP'S info as well. In meeting some new people I hesitated to tell them about Makenna right away, but ended up doing so...turns out in each case they had a child with scoliosis! they were older but I still had plenty of info to pass along! Too coincidental to actually be a coincidence. We have to keep telling our kids story to whoever will listen!! I have submitted Makenna's story to for the ISOP website and I encourage all of you to do the same - it will reach

someone who needs to hear it :)Amymom to Makenna (3 yrs old, 3rd cast. treated at chicago)