Does anyone have experience, opinions or advice on Adrenal Vein Sampling?

[Guest guest]

Hello,

It seems very likely that I have Aldosteronism. I am awaiting the

results of my saline infusion test. Unfortunately, I hadn't read the

information about collecting urine during the infusion test

prior...and the hospital I went to didn't collect the urine.

I have a lot to learn and read about PA, and I am so grateful that

I found this group. It is so wonderful to feel part of a group and

not " alone " in this. My major question right now is regarding AVS. Has anyone

had it? Could you share your experience? Do you recommend it? I am a 39 and

3/4 years old female. A CT scan shows a 2.5 cm adenoma on my left adrenal

gland. My doctor said AVS is recommended for patients over 40 years old, but

since I am so close to turning 40, she is not certain which way to go with me.

She explained the

pros and cons of each (cons: blood clots, invasive procedure.....pros:

more certain to remove the CORRECT adrenal gland!). Obviously, we

need to await the final results of my infusion test, and unfortunately

I was 1/2 way through the 4 hour test before they got my initial labs

back that indicated my potassium was very low (2.8) even though we had

it under control (average 3.7) prior to the test...so I may have to

have the infusion test done again. Aaagghhh.

If anyone has any advice or experiences to share, I would greatly

appreciate it. Thank you so much!

D.