Guest guest Posted May 10, 2012 Report Share Posted May 10, 2012 I have had exactly the same symptoms before DASHing. This is VERY LIKELY due to low K. All my doctors told me my K was normal although my calves muscle were spasming and felt my leg muscle were paralyzed sometimes (BTW, my incorrectly drawn blood K was never 3.7). Before your start DASHing " as your life depends on it " (like Dr. Grim says) avoid strenuous exercise and start drinking low-sodium V8 for more potassium (OTC K are also somehow useful). You will likely need about 4700mg of K/day if you feel that bad. It will take couple of days to replenish your body with potassium but keep in mind that eating salt will throw K out of your body so if you eat salty foods you will pee more K out of your body (the more salt you eat the more K goes out in PA). So eat below 1500mg on NaCl/day and more K rich foods together with some V8 cans and you will get better in 2-3 days. PS. My doctors also tested me for a zillion other diseases, you name it, yet not ONE doctor recommended DASH. BTW, most likely you will have some mild anemia with low RBCs concentrations due to water retention and blood volume expansion because of high aldo. > > I am in the process of getting test results back. Have had high blood pressure since 28 yrs old (41 now), presented with low K couple months back. Now have severe muscle weakness. Endo ran aldosterone blood test and said it's elevated. Suspects adrenal tumors. Just turned in 24 hour urine test today to rule out pheocromocytoma. CT scan scheduled for Monday morning. I have been having numbness in my head, face, hands, and feet progressively worse for 3 days. Numbness is constant. More on left side but some on right too. Saw endo this morning. He was puzzled. He said it's not related to low K. Testing for pernicious anemia. > > Dr. Grim, do you have an opinion on what the numbness could be related to? Am very weak and dizzy too. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2012 Report Share Posted May 10, 2012 oar likely loq K and alkalosis (high bicard).Trust they aldo dis aldo, Na, K, creatinine and cortisol on that urine. But it is always fun to collect more.Did you see my test ecommendation in our welcome? Have you read the Evolution of PA article in our files and would take to your Endo so all will become clear.I am available to work one on one with you and your team to get you back to health faster. $500 gets one on one with me for 1 year by phone,email , Skype.Send me email and I will send CV for you and team.CE Grim MDOn May 10, 2012, at 11:56 AM, amysfa wrote: I am in the process of getting test results back. Have had high blood pressure since 28 yrs old (41 now), presented with low K couple months back. Now have severe muscle weakness. Endo ran aldosterone blood test and said it's elevated. Suspects adrenal tumors. Just turned in 24 hour urine test today to rule out pheocromocytoma. CT scan scheduled for Monday morning. I have been having numbness in my head, face, hands, and feet progressively worse for 3 days. Numbness is constant. More on left side but some on right too. Saw endo this morning. He was puzzled. He said it's not related to low K. Testing for pernicious anemia. Dr. Grim, do you have an opinion on what the numbness could be related to? Am very weak and dizzy too. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2012 Report Share Posted May 11, 2012 If one has high bicard Does it always show in blood test or is it better to test urine? > > > I am in the process of getting test results back. Have had high > > blood pressure since 28 yrs old (41 now), presented with low K > > couple months back. Now have severe muscle weakness. Endo ran > > aldosterone blood test and said it's elevated. Suspects adrenal > > tumors. Just turned in 24 hour urine test today to rule out > > pheocromocytoma. CT scan scheduled for Monday morning. I have been > > having numbness in my head, face, hands, and feet progressively > > worse for 3 days. Numbness is constant. More on left side but some > > on right too. Saw endo this morning. He was puzzled. He said it's > > not related to low K. Testing for pernicious anemia. > > > > Dr. Grim, do you have an opinion on what the numbness could be > > related to? Am very weak and dizzy too. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2012 Report Share Posted May 11, 2012 Yes? Is it better to test urine Or is blood test as good. > > > > > > > I am in the process of getting test results back. Have had high > > > > blood pressure since 28 yrs old (41 now), presented with low K > > > > couple months back. Now have severe muscle weakness. Endo ran > > > > aldosterone blood test and said it's elevated. Suspects adrenal > > > > tumors. Just turned in 24 hour urine test today to rule out > > > > pheocromocytoma. CT scan scheduled for Monday morning. I have been > > > > having numbness in my head, face, hands, and feet progressively > > > > worse for 3 days. Numbness is constant. More on left side but some > > > > on right too. Saw endo this morning. He was puzzled. He said it's > > > > not related to low K. Testing for pernicious anemia. > > > > > > > > Dr. Grim, do you have an opinion on what the numbness could be > > > > related to? Am very weak and dizzy too. > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2012 Report Share Posted May 11, 2012 Are you saying they can mess up CO2 blood test? How should this test be done? > > > > > > > I am in the process of getting test results back. Have had high > > > > blood pressure since 28 yrs old (41 now), presented with low K > > > > couple months back. Now have severe muscle weakness. Endo ran > > > > aldosterone blood test and said it's elevated. Suspects adrenal > > > > tumors. Just turned in 24 hour urine test today to rule out > > > > pheocromocytoma. CT scan scheduled for Monday morning. I have been > > > > having numbness in my head, face, hands, and feet progressively > > > > worse for 3 days. Numbness is constant. More on left side but some > > > > on right too. Saw endo this morning. He was puzzled. He said it's > > > > not related to low K. Testing for pernicious anemia. > > > > > > > > Dr. Grim, do you have an opinion on what the numbness could be > > > > related to? Am very weak and dizzy too. > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2012 Report Share Posted May 11, 2012 Thank you lvasiliu....very informative. I have been diagnosed with low iron as well...scary how everything is related. I will take your advice on the low sodium V8 and look into DASH. Definitely don't like this weak, dizzy, numb feeling. Do you struggle with weakness? Just curious. Also, did you have episodic pain in your left side? I've had a few episodes and wonder if it's a sign of tumors. CT scan Monday so I'll let you know... > > > > I am in the process of getting test results back. Have had high blood pressure since 28 yrs old (41 now), presented with low K couple months back. Now have severe muscle weakness. Endo ran aldosterone blood test and said it's elevated. Suspects adrenal tumors. Just turned in 24 hour urine test today to rule out pheocromocytoma. CT scan scheduled for Monday morning. I have been having numbness in my head, face, hands, and feet progressively worse for 3 days. Numbness is constant. More on left side but some on right too. Saw endo this morning. He was puzzled. He said it's not related to low K. Testing for pernicious anemia. > > > > Dr. Grim, do you have an opinion on what the numbness could be related to? Am very weak and dizzy too. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2012 Report Share Posted May 11, 2012 Yes, pretty much everybody here complained about weakness, numbness, dizziness, brain fog etc. I do have pain on my left, next to the heart but that too I believe it is related to temporary electrolyte imbalance (low K) which also affects the heart. The left pain correlates very well with PA flaring up (after eating out too much salt for me). PA and adrenal tumors gives all sorts of pains but like Dr. Grim said not known/studied correlation with the tumor side (unless is very big but that's most likely a pheo). > > Thank you lvasiliu....very informative. I have been diagnosed with low iron as well...scary how everything is related. I will take your advice on the low sodium V8 and look into DASH. Definitely don't like this weak, dizzy, numb feeling. > > Do you struggle with weakness? Just curious. Also, did you have episodic pain in your left side? I've had a few episodes and wonder if it's a sign of tumors. CT scan Monday so I'll let you know... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2012 Report Share Posted May 11, 2012 For the last 7 years I have participated in a study of one regarding pain relationship to a PA tumor! My pain is in the right flank area and radiates to my right testis. I have an adenom in my right adrenal that is functioning. When I had all PA SX under control with Spironolctone the pain went away (in fact I could tell when I was starting to out salt spiro when the pain started to return!) Now that I have been off spiro for 4+ months the pain is back! The next phase of this test will start Monday when the Eplerenone is scheduled to arrive! This is an ongoing test so you will have to draw your own conclusions! ..... > > > > > > > > I am in the process of getting test results back. Have had high blood pressure since 28 yrs old (41 now), presented with low K couple months back. Now have severe muscle weakness. Endo ran aldosterone blood test and said it's elevated. Suspects adrenal tumors. Just turned in 24 hour urine test today to rule out pheocromocytoma. CT scan scheduled for Monday morning. I have been having numbness in my head, face, hands, and feet progressively worse for 3 days. Numbness is constant. More on left side but some on right too. Saw endo this morning. He was puzzled. He said it's not related to low K. Testing for pernicious anemia. > > > > > > > > Dr. Grim, do you have an opinion on what the numbness could be related to? Am very weak and dizzy too. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2012 Report Share Posted May 11, 2012 I too wonder if there's a relationship between the side of the pain, and the side the tumor is on. My tumor was on my left adrenal, and when my potassium got low (which was all the time, pretty much) my left trapezius muscle went into spasm. Never my right. Now that the tumor is gone, so is the pain. > > > > > > > > > > I am in the process of getting test results back. Have had high blood pressure since 28 yrs old (41 now), presented with low K couple months back. Now have severe muscle weakness. Endo ran aldosterone blood test and said it's elevated. Suspects adrenal tumors. Just turned in 24 hour urine test today to rule out pheocromocytoma. CT scan scheduled for Monday morning. I have been having numbness in my head, face, hands, and feet progressively worse for 3 days. Numbness is constant. More on left side but some on right too. Saw endo this morning. He was puzzled. He said it's not related to low K. Testing for pernicious anemia. > > > > > > > > > > Dr. Grim, do you have an opinion on what the numbness could be related to? Am very weak and dizzy too. > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2012 Report Share Posted May 11, 2012 My tumor is on my left side but pain is always on right side. > > > > > > > > > > > > > > I am in the process of getting test results back. Have had high blood pressure since 28 yrs old (41 now), presented with low K couple months back. Now have severe muscle weakness. Endo ran aldosterone blood test and said it's elevated. Suspects adrenal tumors. Just turned in 24 hour urine test today to rule out pheocromocytoma. CT scan scheduled for Monday morning. I have been having numbness in my head, face, hands, and feet progressively worse for 3 days. Numbness is constant. More on left side but some on right too. Saw endo this morning. He was puzzled. He said it's not related to low K. Testing for pernicious anemia. > > > > > > > > > > > > > > Dr. Grim, do you have an opinion on what the numbness could be related to? Am very weak and dizzy too. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2012 Report Share Posted May 11, 2012 But have you been DXed w/PA? > > > > > > > > > > > > > > > > I am in the process of getting test results back. Have had high blood pressure since 28 yrs old (41 now), presented with low K couple months back. Now have severe muscle weakness. Endo ran aldosterone blood test and said it's elevated. Suspects adrenal tumors. Just turned in 24 hour urine test today to rule out pheocromocytoma. CT scan scheduled for Monday morning. I have been having numbness in my head, face, hands, and feet progressively worse for 3 days. Numbness is constant. More on left side but some on right too. Saw endo this morning. He was puzzled. He said it's not related to low K. Testing for pernicious anemia. > > > > > > > > > > > > > > > > Dr. Grim, do you have an opinion on what the numbness could be related to? Am very weak and dizzy too. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2012 Report Share Posted May 12, 2012 No DX. but if we are looking at tumor is cause of pain then why would not being dx matter? > > > > > > > > > > > > > > > > > > I am in the process of getting test results back. Have had high blood pressure since 28 yrs old (41 now), presented with low K couple months back. Now have severe muscle weakness. Endo ran aldosterone blood test and said it's elevated. Suspects adrenal tumors. Just turned in 24 hour urine test today to rule out pheocromocytoma. CT scan scheduled for Monday morning. I have been having numbness in my head, face, hands, and feet progressively worse for 3 days. Numbness is constant. More on left side but some on right too. Saw endo this morning. He was puzzled. He said it's not related to low K. Testing for pernicious anemia. > > > > > > > > > > > > > > > > > > Dr. Grim, do you have an opinion on what the numbness could be related to? Am very weak and dizzy too. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2012 Report Share Posted May 12, 2012 I contend it is not the tumor that causes the pain but the excess aldostrone. (When the I was on Spiro and the pain was gone I still had the tumor!) In fact I even wrote two doctors at the VA with this theory and they didn't dispute it. > > > > > > > > > > > > > > > > > > > > I am in the process of getting test results back. Have had high blood pressure since 28 yrs old (41 now), presented with low K couple months back. Now have severe muscle weakness. Endo ran aldosterone blood test and said it's elevated. Suspects adrenal tumors. Just turned in 24 hour urine test today to rule out pheocromocytoma. CT scan scheduled for Monday morning. I have been having numbness in my head, face, hands, and feet progressively worse for 3 days. Numbness is constant. More on left side but some on right too. Saw endo this morning. He was puzzled. He said it's not related to low K. Testing for pernicious anemia. > > > > > > > > > > > > > > > > > > > > Dr. Grim, do you have an opinion on what the numbness could be related to? Am very weak and dizzy too. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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