Help understand impact of curve direction and torticollis on diagnosis

May 18, 2010

Hello, my name is and my wife and I have a 10 month old daughter, Quinn,

that was recently diagnosed with Infant Idiopathic Scoliosis. You can the read

the specifics on my post at

I have been following posts on this group for the past week and am blow away at

the involvement of all the participants! Thank you in advance for any help.

We are in the process of working through a course of treatment for Quinn and

received the diagnosis from University of Chicago. I have also sent my

application to Shriners in Chicago. Today we received a callback from our

doctor at U of Chicago stating that they are going to have a more in depth

conference with the neurologist, radiologist and orthopedic this week. They are

also requesting we come back for a more indepth MRI (apparently the first one

did not include the entire brain). The review of the original MRI did not show

any abnormalities. They expressed concerned over two factors of it being a left

curve and the previous torticollis.

My wife was pretty upset with the call from the doctors wanting to dig deeper

into a potential neurological causes. Thier rational for the further studies

are realted to the left curve (36 degrees cobb) and the torticollis.

Is having a left curve for an infant female really a big flag?

Is the combination of a left curve + torticollis a big concern?

We are awaiting a callback Shriners. While we wait for a response from

Shriners, we are continuing to move forward on the previous front to make sure

we keep all otpions open.

Any advice about how to move forward is greatly appreciated.

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