Guest guest Posted May 4, 2012 Report Share Posted May 4, 2012 I actually did have something like that before my tumor was removed, but I also have malabsorption syndromes to begin with (celiac disease and fructose intolerance). When I had PA, any excess dietary salt would exacerbate this. I can say from years of experience that what you are describing - " the stools are unformed, dusty, with undigested food and sometimes fat " - sounds like a classic malabsorption syndrome. This could mean an intolerance to wheat, lactose, fructose, or a number of other things. So, you might want to take a look at your diet. The good news is that these things are easily treatable - just stop eating the offending foods The hard part? Narrowing down just what those foods are. > > I am struggling lately with bouts of explosive nighttime diarrhea. > > This usually happens only once/week overnight when my PA symptoms are at the absolute worst point. > > I usually wake up every 1-2 hours to pee but during these episodes I am waking startled any my heart is racing and feel bloated with gurgling intestines. Only a trip to the bathroom with an explosive watery diarrhea will relieve the symptoms and after that I usually get a 3-4 hours of straight sleep. > > Is anybody else struggling with diarrhea? This is not like bacterial diarrhea but more like hormonal/enzyme imbalance and my gut is just dumping everything inside (the stools are unformed, dusty, with undigested food and sometimes fat). > > I am at a loss what's causing this since I tried eating only rice and carrots and bananas some days but I still get diarrhea. > > I know that pheo has something like this but I did 4 cats/mets and all have been normal hence I don't have pheo. > > Could K imbalance cause this? I am DASHing and eating VERY low salt intake. Could too low Na intake cause this? > > Thank you for replying. > tiu > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2012 Report Share Posted May 4, 2012 Hmmm do I recall you had surgery? Need thumbnail to help keep the 500 folks here straight.I assume you are not on spiro any longer.If you are losing any weight I would increase salt intake. Best gauge of salt need would be BP seated and then standing for 1 min.Are you taking K tablets or pills?What other meds are you taking?On May 4, 2012, at 2:27 PM, lvasiliu@... wrote: I am struggling lately with bouts of explosive nighttime diarrhea. This usually happens only once/week overnight when my PA symptoms are at the absolute worst point. I usually wake up every 1-2 hours to pee but during these episodes I am waking startled any my heart is racing and feel bloated with gurgling intestines. Only a trip to the bathroom with an explosive watery diarrhea will relieve the symptoms and after that I usually get a 3-4 hours of straight sleep. Is anybody else struggling with diarrhea? This is not like bacterial diarrhea but more like hormonal/enzyme imbalance and my gut is just dumping everything inside (the stools are unformed, dusty, with undigested food and sometimes fat). I am at a loss what's causing this since I tried eating only rice and carrots and bananas some days but I still get diarrhea. I know that pheo has something like this but I did 4 cats/mets and all have been normal hence I don't have pheo. Could K imbalance cause this? I am DASHing and eating VERY low salt intake. Could too low Na intake cause this? Thank you for replying. tiu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2012 Report Share Posted May 4, 2012 No surgery, no spiro, nothing on CT/MRI (but the MRI was NOT done with an adrenal protocol), I am stage 1 by your classification (low normal K, no adrenal growth, DASHing). I DO take K over the counter pills, 5mEq/daily. And I pee >3L/day. On extremely low Na intake I am doing better but I think that I also have a cortisol problem (like JC) because of my problems sleeping and staying asleep and gaining weight (even on DASH). The only pill I am on is Verapamil ER for slower HR and BP control. With insufficient Na intake, would you see standing HYPOtension compared to upright normal BP? > > Hmmm do I recall you had surgery? Need thumbnail to help keep the 500 > folks here straight. > > I assume you are not on spiro any longer. > > If you are losing any weight I would increase salt intake. Best gauge > of salt need would be BP seated and then standing for 1 min. > > Are you taking K tablets or pills? > > What other meds are you taking? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2012 Report Share Posted May 4, 2012 Well at least I am not the only one with this ... As far as intolerances I did have some blood allergy testing last year and everything was negative, weird. I totaly agree about malabsorption syndrome but still no clue about the cause of it since PA itself not causes it. I know I am pre-diabetic now because of PA with reactive hypoglycemia followed by hyperglycemia when eating carbs but this will not explain diarrhea either. It seems that the adrenal hormonal imbalance will cause your body to end up with lots of other problems when trying to compensate for aldo/cortisol excess. > > I actually did have something like that before my tumor was removed, but I also have malabsorption syndromes to begin with (celiac disease and fructose intolerance). When I had PA, any excess dietary salt would exacerbate this. > > I can say from years of experience that what you are describing - " the stools are unformed, dusty, with undigested food and sometimes fat " - sounds like a classic malabsorption syndrome. This could mean an intolerance to wheat, lactose, fructose, or a number of other things. > > So, you might want to take a look at your diet. The good news is that these things are easily treatable - just stop eating the offending foods > > The hard part? Narrowing down just what those foods are. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2012 Report Share Posted May 4, 2012 Allergies are entirely different than intolerances. I test negative on all blood tests for wheat allergy, yet I have celiac disease which is a reaction to the gluten in wheat. > > > > I actually did have something like that before my tumor was removed, but I also have malabsorption syndromes to begin with (celiac disease and fructose intolerance). When I had PA, any excess dietary salt would exacerbate this. > > > > I can say from years of experience that what you are describing - " the stools are unformed, dusty, with undigested food and sometimes fat " - sounds like a classic malabsorption syndrome. This could mean an intolerance to wheat, lactose, fructose, or a number of other things. > > > > So, you might want to take a look at your diet. The good news is that these things are easily treatable - just stop eating the offending foods > > > > The hard part? Narrowing down just what those foods are. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2012 Report Share Posted May 4, 2012 yes sorry BP would fall on standing by at least 20 mm Hg systolic and you might get dizzy. but be certain to support your arm so middle of cuff is at heart level. If arm hangs down at side may miss the drop in BP.Make that no "visible" adrenal bumps with current technology. The OTC K is not worth it. 1 cup of low sodium V8 will give you 4 x that amount. Add a little vodka and BP is better for awhile.I am recalling that stage one is low renin, normal aldo (but less suppressible than before adrenal for you, normal K, and maybe some increased BP for you but not "hypertension". On May 4, 2012, at 5:06 PM, lvasiliu@... wrote: No surgery, no spiro, nothing on CT/MRI (but the MRI was NOT done with an adrenal protocol), I am stage 1 by your classification (low normal K, no adrenal growth, DASHing). I DO take K over the counter pills, 5mEq/daily. And I pee >3L/day. On extremely low Na intake I am doing better but I think that I also have a cortisol problem (like JC) because of my problems sleeping and staying asleep and gaining weight (even on DASH). The only pill I am on is Verapamil ER for slower HR and BP control. With insufficient Na intake, would you see standing HYPOtension compared to upright normal BP? > > Hmmm do I recall you had surgery? Need thumbnail to help keep the 500 > folks here straight. > > I assume you are not on spiro any longer. > > If you are losing any weight I would increase salt intake. Best gauge > of salt need would be BP seated and then standing for 1 min. > > Are you taking K tablets or pills? > > What other meds are you taking? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2012 Report Share Posted May 4, 2012 But fructose problem should not appear suddenly.Trust you are not taking laxatives or any kind. Do stools float?CE Grim MDOn May 4, 2012, at 5:30 PM, lvasiliu@... wrote: Well at least I am not the only one with this ... As far as intolerances I did have some blood allergy testing last year and everything was negative, weird. I totaly agree about malabsorption syndrome but still no clue about the cause of it since PA itself not causes it. I know I am pre-diabetic now because of PA with reactive hypoglycemia followed by hyperglycemia when eating carbs but this will not explain diarrhea either. It seems that the adrenal hormonal imbalance will cause your body to end up with lots of other problems when trying to compensate for aldo/cortisol excess. > > I actually did have something like that before my tumor was removed, but I also have malabsorption syndromes to begin with (celiac disease and fructose intolerance). When I had PA, any excess dietary salt would exacerbate this. > > I can say from years of experience that what you are describing - "the stools are unformed, dusty, with undigested food and sometimes fat" - sounds like a classic malabsorption syndrome. This could mean an intolerance to wheat, lactose, fructose, or a number of other things. > > So, you might want to take a look at your diet. The good news is that these things are easily treatable - just stop eating the offending foods > > The hard part? Narrowing down just what those foods are. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2012 Report Share Posted May 4, 2012 aldo affects smooth muscle cells. Smooth muscle are found in lymphatic vessels, the urinary bladder, uterus, male and female reproductive tracts, gastrointestinal tract, respiratory tract, arrector pili of skin, the ciliary muscle, and iris of the eye. > > > > I actually did have something like that before my tumor was removed, but I also have malabsorption syndromes to begin with (celiac disease and fructose intolerance). When I had PA, any excess dietary salt would exacerbate this. > > > > I can say from years of experience that what you are describing - " the stools are unformed, dusty, with undigested food and sometimes fat " - sounds like a classic malabsorption syndrome. This could mean an intolerance to wheat, lactose, fructose, or a number of other things. > > > > So, you might want to take a look at your diet. The good news is that these things are easily treatable - just stop eating the offending foods > > > > The hard part? Narrowing down just what those foods are. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2012 Report Share Posted May 4, 2012 Actually not true - fructose malabsorption usually shows up in adulthood (unlike HFI, which shows up in childhood). Same goes for lactose intolerance. > > > > > > I actually did have something like that before my tumor was > > removed, but I also have malabsorption syndromes to begin with > > (celiac disease and fructose intolerance). When I had PA, any excess > > dietary salt would exacerbate this. > > > > > > I can say from years of experience that what you are describing - > > " the stools are unformed, dusty, with undigested food and sometimes > > fat " - sounds like a classic malabsorption syndrome. This could mean > > an intolerance to wheat, lactose, fructose, or a number of other > > things. > > > > > > So, you might want to take a look at your diet. The good news is > > that these things are easily treatable - just stop eating the > > offending foods > > > > > > The hard part? Narrowing down just what those foods are. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2012 Report Share Posted May 4, 2012 Guess I was thinking of u WITH HFI?May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn May 4, 2012, at 19:53, msmith_1928 <janeray1940@...> wrote: Actually not true - fructose malabsorption usually shows up in adulthood (unlike HFI, which shows up in childhood). Same goes for lactose intolerance. > > > > > > I actually did have something like that before my tumor was > > removed, but I also have malabsorption syndromes to begin with > > (celiac disease and fructose intolerance). When I had PA, any excess > > dietary salt would exacerbate this. > > > > > > I can say from years of experience that what you are describing - > > "the stools are unformed, dusty, with undigested food and sometimes > > fat" - sounds like a classic malabsorption syndrome. This could mean > > an intolerance to wheat, lactose, fructose, or a number of other > > things. > > > > > > So, you might want to take a look at your diet. The good news is > > that these things are easily treatable - just stop eating the > > offending foods > > > > > > The hard part? Narrowing down just what those foods are. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2012 Report Share Posted May 4, 2012 No laxative, no known food intolerance before. The stools DO floats and looks full of gas/air. And I use to eat really anything and my GI system was really running perfect 2 years ago, guess is excess aldosterone damage? Thank you for reply. tiu > > But fructose problem should not appear suddenly. > Trust you are not taking laxatives or any kind. > Do stools float? > > > CE Grim MD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2012 Report Share Posted May 4, 2012 Thought so There are 2 kinds of fructose intolerances, hereditary and dietary. Dietary can show up at any time but usually happens in adulthood. > > > > > > > > > > I actually did have something like that before my tumor was > > > > removed, but I also have malabsorption syndromes to begin with > > > > (celiac disease and fructose intolerance). When I had PA, any excess > > > > dietary salt would exacerbate this. > > > > > > > > > > I can say from years of experience that what you are describing - > > > > " the stools are unformed, dusty, with undigested food and sometimes > > > > fat " - sounds like a classic malabsorption syndrome. This could mean > > > > an intolerance to wheat, lactose, fructose, or a number of other > > > > things. > > > > > > > > > > So, you might want to take a look at your diet. The good news is > > > > that these things are easily treatable - just stop eating the > > > > offending foods > > > > > > > > > > The hard part? Narrowing down just what those foods are. > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2012 Report Share Posted May 4, 2012 tiu, you are describing steatorrhea: http://en.wikipedia.org/wiki/Steatorrhea - really common with celiac disease, lactose intolerance, and fructose intolerance. I've found that OTC digestive enzymes work wonders for this. tiu does raise an interesting question, whether or not the excess aldo can damage the GI system. Any info on this? One of my doctors suggested that the bouts of low K could affect digestion. > > > > But fructose problem should not appear suddenly. > > Trust you are not taking laxatives or any kind. > > Do stools float? > > > > > > CE Grim MD > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2012 Report Share Posted May 5, 2012 Are you on Spiro? I had a lot of gastric issues when I was on it if I went above 25mg bid. In fact, even at 25mg twice a day I had to be careful to dose pretty much exactly 12 hours apart. Just a thought. > > > > But fructose problem should not appear suddenly. > > Trust you are not taking laxatives or any kind. > > Do stools float? > > > > > > CE Grim MD > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2012 Report Share Posted May 5, 2012 tiu, for what it's worth I had the problem you have described for quite a few years before my PA diagnosis and adhering to a low Na, high K diet. I had also had my gall bladder removed some years before due to a medical mistake (there was nothing wrong with my gall bladder), so I thought it was an inability to handle fats due to that. Apparently not so.The problem was solved with Spiro and Dashing. I don't know if it was one or the other or both together, but it's no longer a problem. If I had to say what helped it I would put my money on K, but of course without Spiro I couldn't seem to get, or keep, enough K.Dianne, F-69, bi-lateral adenomas, CKD, DashingFrom: msmith_1928 <janeray1940@...>Subject: Re: anyone with diarrhea in PA?hyperaldosteronism Date: Friday, May 4, 2012, 10:12 PM tiu, you are describing steatorrhea: http://en.wikipedia.org/wiki/Steatorrhea - really common with celiac disease, lactose intolerance, and fructose intolerance. I've found that OTC digestive enzymes work wonders for this. tiu does raise an interesting question, whether or not the excess aldo can damage the GI system. Any info on this? One of my doctors suggested that the bouts of low K could affect digestion. > > > > But fructose problem should not appear suddenly. > > Trust you are not taking laxatives or any kind. > > Do stools float? > > > > > > CE Grim MD > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2012 Report Share Posted May 5, 2012 Not likely an aldo problem.Losing weight?Any Hx of pancreas problems? EtOH,cirrhosis?CE GrimOn May 4, 2012, at 11:59 PM, lvasiliu@... wrote: No laxative, no known food intolerance before. The stools DO floats and looks full of gas/air. And I use to eat really anything and my GI system was really running perfect 2 years ago, guess is excess aldosterone damage? Thank you for reply. tiu > > But fructose problem should not appear suddenly. > Trust you are not taking laxatives or any kind. > Do stools float? > > > CE Grim MD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2012 Report Share Posted May 5, 2012 yes some have real GI problems with spiro. Try taking with foods and or splitting dose. It has a long MCB action so splitting should not change the BP K effect. On May 5, 2012, at 6:35 AM, wrote: Are you on Spiro? I had a lot of gastric issues when I was on it if I went above 25mg bid. In fact, even at 25mg twice a day I had to be careful to dose pretty much exactly 12 hours apart. Just a thought. > > > > But fructose problem should not appear suddenly. > > Trust you are not taking laxatives or any kind. > > Do stools float? > > > > > > CE Grim MD > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2012 Report Share Posted May 5, 2012 Good to hear from you Dianne. Do we have an updated DASH success story in our files. Yours is one of the best.CE GrimMDOn May 5, 2012, at 11:20 AM, Dianne strong wrote: tiu, for what it's worth I had the problem you have described for quite a few years before my PA diagnosis and adhering to a low Na, high K diet. I had also had my gall bladder removed some years before due to a medical mistake (there was nothing wrong with my gall bladder), so I thought it was an inability to handle fats due to that. Apparently not so.The problem was solved with Spiro and Dashing. I don't know if it was one or the other or both together, but it's no longer a problem. If I had to say what helped it I would put my money on K, but of course without Spiro I couldn't seem to get, or keep, enough K.Dianne, F-69, bi-lateral adenomas, CKD, DashingFrom: msmith_1928 <janeray1940@...>Subject: Re: anyone with diarrhea in PA?hyperaldosteronism Date: Friday, May 4, 2012, 10:12 PM tiu, you are describing steatorrhea: http://en.wikipedia.org/wiki/Steatorrhea - really common with celiac disease, lactose intolerance, and fructose intolerance. I've found that OTC digestive enzymes work wonders for this. tiu does raise an interesting question, whether or not the excess aldo can damage the GI system. Any info on this? One of my doctors suggested that the bouts of low K could affect digestion. > > > > But fructose problem should not appear suddenly. > > Trust you are not taking laxatives or any kind. > > Do stools float? > > > > > > CE Grim MD > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2012 Report Share Posted May 7, 2012 Got it, thank you! Incidentally I am on the low side of B12 (but not below) but Celiac has been ruled out last year. Guess I will have to talk to the GI doctor about food intolerances! > > Allergies are entirely different than intolerances. I test negative on all blood tests for wheat allergy, yet I have celiac disease which is a reaction to the gluten in wheat. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2012 Report Share Posted May 7, 2012 Bill, thanks this gets very interesting! When I have bad PA symptoms (eg after eating out) I do have, maybe not coincidentally: armpit lymph pain, lots of sweating, pain on urination, GI pain, nighttime wheezing (maybe due to respiratory muscle constricting?), problem focusing my eyes at the distance. All these are controlled by smooth muscles! But again it can also be just a consequence of low K in the muscles. > > aldo affects smooth muscle cells. Smooth muscle are found in lymphatic vessels, the urinary bladder, uterus, male and female reproductive tracts, gastrointestinal tract, respiratory tract, arrector pili of skin, the ciliary muscle, and iris of the eye. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2012 Report Share Posted May 7, 2012 , I am ONLY on Verapamil ER (not Spiro). As MS suggested I will try some OTC enzymes. The point is that Spiro being an MCRB, will block Aldo receptors and likely your body will end up producing MORE Aldo (in the short term). I can almost certainly say from my experience that excess Aldo will wreak havoc into one's digestive system, regardless of Spiro. > > Are you on Spiro? I had a lot of gastric issues when I was on it if I went above 25mg bid. In fact, even at 25mg twice a day I had to be careful to dose pretty much exactly 12 hours apart. Just a thought. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2012 Report Share Posted May 7, 2012 I have the same symptoms. I connect it with salt consumption - more salt, more diarrhea, but I am not sure. Sometimes I think that it's eplerenone that causes it. Natalia From: "lvasiliu@..." <lvasiliu@...> hyperaldosteronism Sent: Friday, May 4, 2012 2:27 PM Subject: anyone with diarrhea in PA? I am struggling lately with bouts of explosive nighttime diarrhea. This usually happens only once/week overnight when my PA symptoms are at the absolute worst point. I usually wake up every 1-2 hours to pee but during these episodes I am waking startled any my heart is racing and feel bloated with gurgling intestines. Only a trip to the bathroom with an explosive watery diarrhea will relieve the symptoms and after that I usually get a 3-4 hours of straight sleep. Is anybody else struggling with diarrhea? This is not like bacterial diarrhea but more like hormonal/enzyme imbalance and my gut is just dumping everything inside (the stools are unformed, dusty, with undigested food and sometimes fat). I am at a loss what's causing this since I tried eating only rice and carrots and bananas some days but I still get diarrhea. I know that pheo has something like this but I did 4 cats/mets and all have been normal hence I don't have pheo. Could K imbalance cause this? I am DASHing and eating VERY low salt intake. Could too low Na intake cause this? Thank you for replying. tiu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2012 Report Share Posted May 7, 2012 and you are on no other meds. Need thumbnail please!CE Rrim MDOn May 7, 2012, at 1:55 PM, lvasiliu@... wrote: Bill, thanks this gets very interesting! When I have bad PA symptoms (eg after eating out) I do have, maybe not coincidentally: armpit lymph pain, lots of sweating, pain on urination, GI pain, nighttime wheezing (maybe due to respiratory muscle constricting?), problem focusing my eyes at the distance. All these are controlled by smooth muscles! But again it can also be just a consequence of low K in the muscles. > > aldo affects smooth muscle cells. Smooth muscle are found in lymphatic vessels, the urinary bladder, uterus, male and female reproductive tracts, gastrointestinal tract, respiratory tract, arrector pili of skin, the ciliary muscle, and iris of the eye. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2012 Report Share Posted May 7, 2012 Hmm. usually the aldo does not go up much over the long haul. If you DASH you block most of the aldo effects even without the spiro. Or at least come can.. On May 7, 2012, at 2:07 PM, lvasiliu@... wrote: , I am ONLY on Verapamil ER (not Spiro). As MS suggested I will try some OTC enzymes. The point is that Spiro being an MCRB, will block Aldo receptors and likely your body will end up producing MORE Aldo (in the short term). I can almost certainly say from my experience that excess Aldo will wreak havoc into one's digestive system, regardless of Spiro. > > Are you on Spiro? I had a lot of gastric issues when I was on it if I went above 25mg bid. In fact, even at 25mg twice a day I had to be careful to dose pretty much exactly 12 hours apart. Just a thought. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2012 Report Share Posted May 7, 2012 Nope, none of those problems that I am aware. I am actually gaining weight (only on Verapamil ER). Maybe not an aldo problem " per se " but something derived from it. My aldo is normal yet my renin is very low so my ARR=41. Could it be another symptom of low K? Diarrhea induced by electrolyte imbalance maybe? Ar maybe water retention diarrhea? Thank you. tiu > > Not likely an aldo problem. > > Losing weight? > > Any Hx of pancreas problems? EtOH,cirrhosis? Quote Link to comment Share on other sites More sharing options...
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