Re: Got a call to go get another test done

[Guest guest]

I know. I have said as well as the Neuro I see is that all my sxs sound like a

pituitary or hypothalamic issue, but none of the MRI show anything. Now with the

finding of high deoxycortisol, deoxycorticosterone, these are all on the

hypo/pituitary/adrenal axis. I have read that up to 50% of pituitary tumors are

not found on MRI, but I do not know. My docs seem happy with the fact that the

scans were normal.

> > > > >

> > > > >

> > > > > No, just started one morning. I did not have high blood pressure until

> > > then and it went from 120/80 to 160/100 over the next 3 days.

> > > > > Any medicine was added after the symptoms all started.

> > >

> >

>

[Guest guest]

So you have an no pituiary when you say they found nothing?CE Grim MDOn May 10, 2012, at 8:57 AM, StaceyF wrote: I know. I have said as well as the Neuro I see is that all my sxs sound like a pituitary or hypothalamic issue, but none of the MRI show anything. Now with the finding of high deoxycortisol, deoxycorticosterone, these are all on the hypo/pituitary/adrenal axis. I have read that up to 50% of pituitary tumors are not found on MRI, but I do not know. My docs seem happy with the fact that the scans were normal. > > > > > > > > > > > > > > > No, just started one morning. I did not have high blood pressure until > > > then and it went from 120/80 to 160/100 over the next 3 days. > > > > > Any medicine was added after the symptoms all started. > > > > > >

[Guest guest]

Normal scans.

> > > > > > >

> > > > > > >

> > > > > > > No, just started one morning. I did not have high blood

> > pressure until

> > > > > then and it went from 120/80 to 160/100 over the next 3 days.

> > > > > > > Any medicine was added after the symptoms all started.

> > > > >

> > > >

> > >

> >

> >

>

[Guest guest]

Good that is better than nothing. There is a syndrome known as the empty sella syndrome. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn May 11, 2012, at 21:12, StaceyF <ssminnow@...> wrote:

Normal scans.

> > > > > > >

> > > > > > >

> > > > > > > No, just started one morning. I did not have high blood

> > pressure until

> > > > > then and it went from 120/80 to 160/100 over the next 3 days.

> > > > > > > Any medicine was added after the symptoms all started.

> > > > >

> > > >

> > >

> >

> >

>

[Guest guest]

Stacey, where is your calcium? When I had high PTH + high calcium, I had a parathyroid adenoma. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of StaceyFHigh PTH, high bone ALK phos, need high doses of vit d and Magnesium to stay in normal range,

[Guest guest]

Stacey, what Lyme tests? Most docs don't have a clue how/what to test and how to interpret. The fact that you don't make antibodies makes most Lyme tests even less likely to be correct. Mine was diagnosed by DNA in urine. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of StaceyFI do not make many antibodies. True for lyme testing too. I have had 2 negatives on that. >

[Guest guest]

They ranged from 9.1-9.7. When PTH was 146 ca was 9.4. They did sestambini

scan and found no tumor and without high calcium they said that it could not be.

Vit d with supplement at that time was 50 so they could not tell me why it was

this way. Now my PTH is normal but higher range of 50's. They stopped testing

it.

>

> Stacey, where is your calcium? When I had high PTH + high calcium, I had a

> parathyroid adenoma.

>

>

>

> Val

>

>

>

> From: hyperaldosteronism

> [mailto:hyperaldosteronism ] On Behalf Of StaceyF

>

>

>

> High PTH, high bone ALK phos, need high doses of vit d and Magnesium to stay

> in normal range,

>

[Guest guest]

They ranged from 9.1-9.7. When PTH was 146 ca was 9.4. They did sestambini

scan and found no tumor and without high calcium they said that it could not be.

Vit d with supplement at that time was 50 so they could not tell me why it was

this way. Now my PTH is normal but higher range of 50's. They stopped testing

it.

>

> Stacey, where is your calcium? When I had high PTH + high calcium, I had a

> parathyroid adenoma.

>

>

>

> Val

>

>

>

> From: hyperaldosteronism

> [mailto:hyperaldosteronism ] On Behalf Of StaceyF

>

>

>

> High PTH, high bone ALK phos, need high doses of vit d and Magnesium to stay

> in normal range,

>

[Guest guest]

They did the typical western blot. If I remember it is 2 part. If the 1st part

was not high, then they did not test the 2nd part. That would be my case. I

know that most have no clue about it but can not find any doc to go further with

it. How did you get someone to do a DNA on urine?

Stacey

>

> Stacey, what Lyme tests? Most docs don't have a clue how/what to test and

> how to interpret. The fact that you don't make antibodies makes most Lyme

> tests even less likely to be correct. Mine was diagnosed by DNA in urine.

>

>

>

> Val

>

>

>

> From: hyperaldosteronism

> [mailto:hyperaldosteronism ] On Behalf Of StaceyF

>

> I do not make many antibodies. True for lyme testing too. I have had 2

> negatives on that. >

>

[Guest guest]

They did the typical western blot. If I remember it is 2 part. If the 1st part

was not high, then they did not test the 2nd part. That would be my case. I

know that most have no clue about it but can not find any doc to go further with

it. How did you get someone to do a DNA on urine?

Stacey

>

> Stacey, what Lyme tests? Most docs don't have a clue how/what to test and

> how to interpret. The fact that you don't make antibodies makes most Lyme

> tests even less likely to be correct. Mine was diagnosed by DNA in urine.

>

>

>

> Val

>

>

>

> From: hyperaldosteronism

> [mailto:hyperaldosteronism ] On Behalf Of StaceyF

>

> I do not make many antibodies. True for lyme testing too. I have had 2

> negatives on that. >

>

[Guest guest]

Stacey, I see a Lyme-literate MD.http://www.lymediseaseassociation.org/index.php?option=com_content & view=article & id=277 & Itemid=74 Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of StaceyFThey did the typical western blot. If I remember it is 2 part. If the 1st part was not high, then they did not test the 2nd part. That would be my case. I know that most have no clue about it but can not find any doc to go further with it. How did you get someone to do a DNA on urine?>> Stacey, what Lyme tests? Most docs don't have a clue how/what to test and> how to interpret. The fact that you don't make antibodies makes most Lyme> tests even less likely to be correct. Mine was diagnosed by DNA in urine. > [mailto:hyperaldosteronism ] On Behalf Of StaceyF> > I do not make many antibodies. True for lyme testing too. I have had 2> negatives on that. >.

[Guest guest]

Ca disturbances are common in PA. See our files on calcium metabolism problems with PA. Take to your team. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn May 18, 2012, at 14:27, StaceyF <ssminnow@...> wrote:

They ranged from 9.1-9.7. When PTH was 146 ca was 9.4. They did sestambini scan and found no tumor and without high calcium they said that it could not be. Vit d with supplement at that time was 50 so they could not tell me why it was this way. Now my PTH is normal but higher range of 50's. They stopped testing it.

>

> Stacey, where is your calcium? When I had high PTH + high calcium, I had a

> parathyroid adenoma.

>

>

>

> Val

>

>

>

> From: hyperaldosteronism

> [mailto:hyperaldosteronism ] On Behalf Of StaceyF

>

>

>

> High PTH, high bone ALK phos, need high doses of vit d and Magnesium to stay

> in normal range,

>