Guest guest Posted May 8, 2012 Report Share Posted May 8, 2012 My guess is like many of us she has not had K tested right. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Even with this: 11 deoxycortisol 99 ng/dl (<=62) HIGH > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > 11-Deoxycortisol (Compound S) is the immediate precursor of > > > > > > > > > > > > > > > > > cortisol: > > > > > > > > > > > > > > > > > > > 11 beta-hydroxylase > > > > > > > > > > > > > > > > > > > 11-deoxycortisol--------------------------->cortisol > > > > > > > > > > > > > > > > > > > and is typically increased when adrenocorticotropic hormone > > > > > > > > > > > > > > > > > (ACTH) levels are increased (eg, Cushing disease, ACTH-producing > > > > > > > > > > > > > > > > > tumors) or in 11 beta-hydroxylase deficiency, a rare subform of > > > > > > > > > > > > > > > > > congenital adrenal hyperplasia (CAH). In CAH due to 11 beta- > > > > > > > > > > > > > > > > > hydroxylase deficiency, cortisol levels are low, resulting in > > > > > > > > > > > > > > > > > increased pituitary ACTH production and increased serum and urine 11- > > > > > > > > > > > > > > > > > deoxycortisol levels. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I stand by my original post unless you want to screw around with > > > > > > > > > > > > > > > > > it a couple more years! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ÃÆ'Æ'¢ÃÆ'¢â€šÂ¬ÃÆ'‚¦. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > --- In > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2012 Report Share Posted May 8, 2012 , all your symptoms are very familiar to me. Headaches for years, weakness, fatigue, heart palpitations and leg cramps. I fell several times because I was so unsteady on my feet and lightheaded to dizzy to out and out brain not functioning properly. Words would be gone though I knew what I wanted to say, but had to find a simple word to replace a less commonly used "big" word. Handling money? Forget it. At my worst I couldn't make change or balance my checkbook if my life depended on it. Feelings of paralysis, where I knew that I wasn't really paralyzed but felt like it was impossible to get up from a chair, or lift my arms over my head. I believe most all of it was due to low potassium coupled with too much sodium. Even though I took 80mQ of K a day my body leeched it faster than I could get it in me. Spiro stopped the leeching and now I will only get any of those symptoms if I have neglected to get enough natural K (only have pills for emergency) in me. I keep Na in the 1000 to 1500 range. If I go to 1500 I don't feel as well as I do it it's lower, so I keep a head count up to 1000 and stop Na for the day. It gives me leeway for error.Dianne, F-69, bi-lateral adenomas, CKD, 75mg Spiro, 37.5mg Atenolol, Dashing and BP in the 120 to 135/65 to 72 range. yes, i felt like I had the flu but not the respiratory issues (weak, fatigue and heart palpitations), also off balance but not enough that I could not walk. Lightheaded (like your head is not attached to your body, floating). I would turn a corner while walking a patient (I am a physical therapist) and I would fall into the wall sometimes. Also getting up from a chair I would lose my balance. That has improved and the lightheaded feeling is not as frequent, but I do get dizzy at times. As for thinking, since this started, I have the brain fog. I have such terrible word finding problems, like every conversation. People at work constantly finish my sentences for me. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Even with this: 11 deoxycortisol 99 ng/dl (<=62) HIGH > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > 11-Deoxycortisol (Compound S) is the immediate precursor of > > > > > > > > > > > > > > > cortisol: > > > > > > > > > > > > > > > > > 11 beta-hydroxylase > > > > > > > > > > > > > > > > > 11-deoxycortisol--------------------------->cortisol > > > > > > > > > > > > > > > > > and is typically increased when adrenocorticotropic hormone > > > > > > > > > > > > > > > (ACTH) levels are increased (eg, Cushing disease, ACTH-producing > > > > > > > > > > > > > > > tumors) or in 11 beta-hydroxylase deficiency, a rare subform of > > > > > > > > > > > > > > > congenital adrenal hyperplasia (CAH). In CAH due to 11 beta- > > > > > > > > > > > > > > > hydroxylase deficiency, cortisol levels are low, resulting in > > > > > > > > > > > > > > > increased pituitary ACTH production and increased serum and urine 11- > > > > > > > > > > > > > > > deoxycortisol levels. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I stand by my original post unless you want to screw around with > > > > > > > > > > > > > > > it a couple more years! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ÃÆ'¢â‚¬Â¦. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > --- In > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2012 Report Share Posted May 8, 2012 Stacey, your symptoms are eerily like mine. What happened just before you had the " flu " and your BP shot up? Where had you been in the days/weeks prior? The fact that it all came on suddenly should be of great interest to your docs. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of StaceyF yes, i felt like I had the flu but not the respiratory issues (weak, fatigue and heart palpitations), also off balance but not enough that I could not walk. Lightheaded (like your head is not attached to your body, floating). I would turn a corner while walking a patient (I am a physical therapist) and I would fall into the wall sometimes. Also getting up from a chair I would lose my balance. That has improved and the lightheaded feeling is not as frequent, but I do get dizzy at times. As for thinking, since this started, I have the brain fog. I have such terrible word finding problems, like every conversation. People at work constantly finish my sentences for me. > >> > > > No, just started one morning. I did not have high blood pressure until then and it went from 120/80 to 160/100 over the next 3 days.> > Any medicine was added after the symptoms all started. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2012 Report Share Posted May 8, 2012 That's pretty common I think and maybe there's more to it? I am sure they have explored these things but what about PA being related to an autoimmune issues. And are there some who have PA but adrenals seem fine, Dr G, or is it just missed or too small at that point in your experience? Are there many set off by previous/other illness? I know about the lyme connection to autoimmune like issues, but does a different illness seem to set that in motion too according to what we know about it, Val? Something seems like it sets PA in motion, or more often maybe we just get sick, then get in the system and then discover it's been breweing .....I guess? Because most do not regularly check their BP unless they find out they need to. From: Valarie <val@...>Subject: RE: Re: Got a call to go get another test donehyperaldosteronism Date: Tuesday, May 8, 2012, 4:17 PM Stacey, your symptoms are eerily like mine. What happened just before you had the "flu" and your BP shot up? Where had you been in the days/weeks prior? The fact that it all came on suddenly should be of great interest to your docs. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of StaceyF yes, i felt like I had the flu but not the respiratory issues (weak, fatigue and heart palpitations), also off balance but not enough that I could not walk. Lightheaded (like your head is not attached to your body, floating). I would turn a corner while walking a patient (I am a physical therapist) and I would fall into the wall sometimes. Also getting up from a chair I would lose my balance. That has improved and the lightheaded feeling is not as frequent, but I do get dizzy at times. As for thinking, since this started, I have the brain fog. I have such terrible word finding problems, like every conversation. People at work constantly finish my sentences for me. > >> > > > No, just started one morning. I did not have high blood pressure until then and it went from 120/80 to 160/100 over the next 3 days.> > Any medicine was added after the symptoms all started. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2012 Report Share Posted May 8, 2012 , I think there is so much not known about what sets off what. I was acutely aware of my BP as I was on three meds with hyperparathyroidism and after surgery, off all meds for a few years. I watched my BP carefully for several years. I've heard lots of what Lyme does to the immune system but I'm sure there are other triggers. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Bingham I know about the lyme connection to autoimmune like issues, but does a different illness seem to set that in motion too according to what we know about it, Val? Something seems like it sets PA in motion, or more often maybe we just get sick, then get in the system and then discover it's been breweing .....I guess? Because most do not regularly check their BP unless they find out they need to. From: Valarie <val@...>Stacey, your symptoms are eerily like mine. What happened just before you had the " flu " and your BP shot up? Where had you been in the days/weeks prior? The fact that it all came on suddenly should be of great interest to your docs.From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of StaceyF yes, i felt like I had the flu but not the respiratory issues (weak, fatigue and heart palpitations), also off balance but not enough that I could not walk. Lightheaded (like your head is not attached to your body, floating). I would turn a corner while walking a patient (I am a physical therapist) and I would fall into the wall sometimes. Also getting up from a chair I would lose my balance. That has improved and the lightheaded feeling is not as frequent, but I do get dizzy at times. As for thinking, since this started, I have the brain fog. I have such terrible word finding problems, like every conversation. People at work constantly finish my sentences for me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2012 Report Share Posted May 8, 2012 BP is done poorly in most clinics and suspect in some if the usual pressure had been 120/80 and they take one and it is a lot higher they assume they made a mistake and write down 120/80. Then eventually some realizes the BP is really high and actually record it and bam. Sudden onset. As an example my wife and I just finished a study in 50 people taking at least 15 BPs on each. We never recorded a BP of 120/80. So in 1500 ausculated BPs we never got a 120/80. But then I am a suspicious person. CE Grim MDOn May 8, 2012, at 5:12 PM, Bingham wrote: That's pretty common I think and maybe there's more to it? I am sure they have explored these things but what about PA being related to an autoimmune issues. And are there some who have PA but adrenals seem fine, Dr G, or is it just missed or too small at that point in your experience? Are there many set off by previous/other illness? I know about the lyme connection to autoimmune like issues, but does a different illness seem to set that in motion too according to what we know about it, Val? Something seems like it sets PA in motion, or more often maybe we just get sick, then get in the system and then discover it's been breweing .....I guess? Because most do not regularly check their BP unless they find out they need to. From: Valarie <val@...>Subject: RE: Re: Got a call to go get another test donehyperaldosteronism Date: Tuesday, May 8, 2012, 4:17 PM Stacey, your symptoms are eerily like mine. What happened just before you had the "flu" and your BP shot up? Where had you been in the days/weeks prior? The fact that it all came on suddenly should be of great interest to your docs. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of StaceyF yes, i felt like I had the flu but not the respiratory issues (weak, fatigue and heart palpitations), also off balance but not enough that I could not walk. Lightheaded (like your head is not attached to your body, floating). I would turn a corner while walking a patient (I am a physical therapist) and I would fall into the wall sometimes. Also getting up from a chair I would lose my balance. That has improved and the lightheaded feeling is not as frequent, but I do get dizzy at times. As for thinking, since this started, I have the brain fog. I have such terrible word finding problems, like every conversation. People at work constantly finish my sentences for me. > >> > > > No, just started one morning. I did not have high blood pressure until then and it went from 120/80 to 160/100 over the next 3 days.> > Any medicine was added after the symptoms all started. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2012 Report Share Posted May 9, 2012 At the time the headache started it was tested in the ER and was 3.1. Sorry no thumbnail b/c I was answering a question someone asked. Stacey- not dx'd yet. Pheo R/o. MRI of adrenals 1.5 years ago normal. Very Low Renin, normal aldo, ARR: 27. Hx of Low K+ 2.8-3.7, headache, new onset HBP, 3 meds with labile BP. High PTH, high bone ALK phos, need high doses of vit d and Magnesium to stay in normal range, Diet: salt under 1500 and K+ near 4700 with supplementation (feel better, but not myself). sx started 3 years ago: brain fog, fatigue, pain in joints and muscles, exercise intolerence, light headed, palpitations and above mentioned. Diagnosed with hypogammaglobulinemia and getting monthly IVIG infusion. On spiro 50 mg BID and BP is still labile. My newest K is 4.4 but do not feel any better with headache, but less cramping in my legs. Still fatigue and all the other issues. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Even with this: 11 deoxycortisol 99 ng/dl (<=62) HIGH > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > 11-Deoxycortisol (Compound S) is the immediate precursor of > > > > > > > > > > > > > > > > > cortisol: > > > > > > > > > > > > > > > > > > > 11 beta-hydroxylase > > > > > > > > > > > > > > > > > > > 11-deoxycortisol--------------------------->cortisol > > > > > > > > > > > > > > > > > > > and is typically increased when adrenocorticotropic hormone > > > > > > > > > > > > > > > > > (ACTH) levels are increased (eg, Cushing disease, ACTH-producing > > > > > > > > > > > > > > > > > tumors) or in 11 beta-hydroxylase deficiency, a rare subform of > > > > > > > > > > > > > > > > > congenital adrenal hyperplasia (CAH). In CAH due to 11 beta- > > > > > > > > > > > > > > > > > hydroxylase deficiency, cortisol levels are low, resulting in > > > > > > > > > > > > > > > > > increased pituitary ACTH production and increased serum and urine 11- > > > > > > > > > > > > > > > > > deoxycortisol levels. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I stand by my original post unless you want to screw around with > > > > > > > > > > > > > > > > > it a couple more years! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ÃÆ'Æ'¢ÃÆ'¢â€šÂ¬ÃÆ'‚¦. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > --- In > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2012 Report Share Posted May 9, 2012 I have not had them tested correctly. I bring them the handout to do it right and sometimes they listen. One time, I explained it all and how important it was to not get it out fast and such and she shook the blood instead of slowly inverting it. Tested as 4.7, then the next day done at different lab and it was 4.4. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Even with this: 11 deoxycortisol 99 ng/dl (<=62) HIGH > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > 11-Deoxycortisol (Compound S) is the immediate precursor of > > > > > > > > > > > > > > > > > > cortisol: > > > > > > > > > > > > > > > > > > > > 11 beta-hydroxylase > > > > > > > > > > > > > > > > > > > > 11-deoxycortisol--------------------------->cortisol > > > > > > > > > > > > > > > > > > > > and is typically increased when adrenocorticotropic hormone > > > > > > > > > > > > > > > > > > (ACTH) levels are increased (eg, Cushing disease, ACTH-producing > > > > > > > > > > > > > > > > > > tumors) or in 11 beta-hydroxylase deficiency, a rare subform of > > > > > > > > > > > > > > > > > > congenital adrenal hyperplasia (CAH). In CAH due to 11 beta- > > > > > > > > > > > > > > > > > > hydroxylase deficiency, cortisol levels are low, resulting in > > > > > > > > > > > > > > > > > > increased pituitary ACTH production and increased serum and urine 11- > > > > > > > > > > > > > > > > > > deoxycortisol levels. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I stand by my original post unless you want to screw around with > > > > > > > > > > > > > > > > > > it a couple more years! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ÃÆ'Æ'¢ÃÆ'¢â€šÂ¬ÃÆ'‚¦. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > --- In > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2012 Report Share Posted May 9, 2012 Nothing really happened before, it was Christmas break and the kids were home. A month before that, I hit my head when my 2 year old pulled a chair out from where I was sitting and when I went back to sit down, no chair, goose egg but no did not pass out. I wish that my docs found it interesting, I was asked in the ER if I partied to hard because it was Jan 1 when I went in. I have 5 kids, no partying going on here. The next comment was, you have 5 kids so you must be stressed. I said I had the same 5 kids last week and I was fine. Stacey- not dx'd yet. Pheo R/o. MRI of adrenals 1.5 years ago normal. Very Low Renin, normal aldo, ARR: 27. Hx of Low K+ 2.8-3.7, headache 24/7, new onset HBP, 3 meds with labile BP. High PTH, high bone ALK phos, need high doses of vit d and Magnesium to stay in normal range, Diet: salt under 1500 and K+ near 4700 with supplementation (feel better, but not myself). sx started 3 years ago: brain fog, fatigue, pain in joints and muscles, exercise intolerence, light headed, palpitations and above mentioned. Diagnosed with hypogammaglobulinemia and getting monthly IVIG infusion. On spiro 50 mg BID and BP is still labile. > > > > > > > > > No, just started one morning. I did not have high blood pressure until > then and it went from 120/80 to 160/100 over the next 3 days. > > > Any medicine was added after the symptoms all started. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2012 Report Share Posted May 9, 2012 Autoimmune is a thought. I have hypogammaglobulinemia which effects antibody production. THis was found out in the last 3 years search for answers to what has happened. So the tests for autoimmune disease can be falsely negative because I do not make many antibodies. True for lyme testing too. I have had 2 negatives on that. There is a connection to new daily persistent headache and lyme. This is the diagnosis I have for my constant headache. Also my docs do not believe that it was sudden onset of high BP, but I would check my BP as I work in the hospital so I was well aware of what it was. They did not buy it because my family history of hypertension. Stacey- not dx'd yet. Pheo R/o. MRI of adrenals 1.5 years ago normal. Very Low Renin, normal aldo, ARR: 27. Hx of Low K+ 2.8-3.7, headache, new onset HBP, 3 meds with labile BP. High PTH, high bone ALK phos, need high doses of vit d and Magnesium to stay in normal range, Diet: salt under 1500 and K+ near 4700 with supplementation (feel better, but not myself). sx started 3 years ago: brain fog, fatigue, pain in joints and muscles, exercise intolerence, light headed, palpitations and above mentioned. Diagnosed with hypogammaglobulinemia and getting monthly IVIG infusion. On spiro 50 mg BID and BP is still labile. > > > > > > > > > No, just started one morning. I did not have high blood pressure until then and it went from 120/80 to 160/100 over the next 3 days. > > > Any medicine was added after the symptoms all started. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2012 Report Share Posted May 9, 2012 The K story will never end anytime soon. I was in the hospital feeling pretty well yet my " tourniquet & fist making " drawn K was 3.7. Then I've had a low-K crisis overnight (after peeing >3.5L) and yet NEXT morning (literally 24h apart and AFTER the spell) the incorrectly drawn K was 4.8 according to the nurse!!! Yes, from 3.7 to 4.8 in just 1 day (in a inpatient hospital setting) so I will usually ignore the potassium results and listen to what my body is saying. Isn't " RBC potassium " test a better way to measure potassium in you body? > > I have not had them tested correctly. I bring them the handout to do it right and sometimes they listen. One time, I explained it all and how important it was to not get it out fast and such and she shook the blood instead of slowly inverting it. Tested as 4.7, then the next day done at different lab and it was 4.4 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2012 Report Share Posted May 9, 2012 Good thumbnail. I would avoid IV GG unless there is clear evidence (trials) that people I like u get better after it compared to placebo. May your pressure be low!CE Grim MS, MDSpecializing in DifficultHypertensionOn May 9, 2012, at 17:53, StaceyF <ssminnow@...> wrote: At the time the headache started it was tested in the ER and was 3.1. Sorry no thumbnail b/c I was answering a question someone asked. Stacey- not dx'd yet. Pheo R/o. MRI of adrenals 1.5 years ago normal. Very Low Renin, normal aldo, ARR: 27. Hx of Low K+ 2.8-3.7, headache, new onset HBP, 3 meds with labile BP. High PTH, high bone ALK phos, need high doses of vit d and Magnesium to stay in normal range, Diet: salt under 1500 and K+ near 4700 with supplementation (feel better, but not myself). sx started 3 years ago: brain fog, fatigue, pain in joints and muscles, exercise intolerence, light headed, palpitations and above mentioned. Diagnosed with hypogammaglobulinemia and getting monthly IVIG infusion. On spiro 50 mg BID and BP is still labile. My newest K is 4.4 but do not feel any better with headache, but less cramping in my legs. Still fatigue and all the other issues. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Oh goodness no, on my original I had put them, but they do not seem > > > > > > > > > > > > > > > > > to come with. Levothyroxin, simvastatin, 40 meq potassium, high dose > > > > > > > > > > > > > > > > > magnesium, selenium, wellbutrin xl 450mg, klonopin, alpha lipoic > > > > > > > > > > > > > > > > > acid, nuvigil (to keep me awake), phenergen as needed for nausea, > > > > > > > > > > > > > > > > > fioricet ( for headache) and newly added AMANTADINE for headache. I > > > > > > > > > > > > > > > > > have been on a boat load of meds to prevent the headache which all > > > > > > > > > > > > > > > > > did not work. I was also on ACE inhibitor until July last year and > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2012 Report Share Posted May 9, 2012 Please tell me why you would avoid. My IGG levels were 500 now with IGG they are 760. I have 5 kids and work in a hospital so I figured I should have my immune function improved. I have had less illness since starting but only had 5 doses. He wants me to do it for a year. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Oh goodness no, on my original I had put them, but they do not seem > > > > > > > > > > > > > > > > > > > to come with. Levothyroxin, simvastatin, 40 meq potassium, high dose > > > > > > > > > > > > > > > > > > > magnesium, selenium, wellbutrin xl 450mg, klonopin, alpha lipoic > > > > > > > > > > > > > > > > > > > acid, nuvigil (to keep me awake), phenergen as needed for nausea, > > > > > > > > > > > > > > > > > > > fioricet ( for headache) and newly added AMANTADINE for headache. I > > > > > > > > > > > > > > > > > > > have been on a boat load of meds to prevent the headache which all > > > > > > > > > > > > > > > > > > > did not work. I was also on ACE inhibitor until July last year and > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2012 Report Share Posted May 9, 2012 Can vary this much depending on time of day, eating and how fast you were breathing.CE Grim MDOn May 9, 2012, at 5:56 PM, StaceyF wrote: I have not had them tested correctly. I bring them the handout to do it right and sometimes they listen. One time, I explained it all and how important it was to not get it out fast and such and she shook the blood instead of slowly inverting it. Tested as 4.7, then the next day done at different lab and it was 4.4. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Even with this: 11 deoxycortisol 99 ng/dl (<=62) HIGH > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > 11-Deoxycortisol (Compound S) is the immediate precursor of > > > > > > > > > > > > > > > > > > cortisol: > > > > > > > > > > > > > > > > > > > > 11 beta-hydroxylase > > > > > > > > > > > > > > > > > > > > 11-deoxycortisol--------------------------->cortisol > > > > > > > > > > > > > > > > > > > > and is typically increased when adrenocorticotropic hormone > > > > > > > > > > > > > > > > > > (ACTH) levels are increased (eg, Cushing disease, ACTH-producing > > > > > > > > > > > > > > > > > > tumors) or in 11 beta-hydroxylase deficiency, a rare subform of > > > > > > > > > > > > > > > > > > congenital adrenal hyperplasia (CAH). In CAH due to 11 beta- > > > > > > > > > > > > > > > > > > hydroxylase deficiency, cortisol levels are low, resulting in > > > > > > > > > > > > > > > > > > increased pituitary ACTH production and increased serum and urine 11- > > > > > > > > > > > > > > > > > > deoxycortisol levels. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I stand by my original post unless you want to screw around with > > > > > > > > > > > > > > > > > > it a couple more years! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ÃÆ'Æ'¢ÃÆ'¢â€šÂ¬ÃÆ'‚¦. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > --- In > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2012 Report Share Posted May 9, 2012 Not easily done. K in red cell is much higher and would not reflect depletion as well. Did you read our K drawing guideliness? Maybe take then with you next time to lab to show the director.CE Grim MDOn May 9, 2012, at 6:34 PM, lvasiliu@... wrote: The K story will never end anytime soon. I was in the hospital feeling pretty well yet my "tourniquet & fist making" drawn K was 3.7. Then I've had a low-K crisis overnight (after peeing >3.5L) and yet NEXT morning (literally 24h apart and AFTER the spell) the incorrectly drawn K was 4.8 according to the nurse!!! Yes, from 3.7 to 4.8 in just 1 day (in a inpatient hospital setting) so I will usually ignore the potassium results and listen to what my body is saying. Isn't "RBC potassium" test a better way to measure potassium in you body? > > I have not had them tested correctly. I bring them the handout to do it right and sometimes they listen. One time, I explained it all and how important it was to not get it out fast and such and she shook the blood instead of slowly inverting it. Tested as 4.7, then the next day done at different lab and it was 4.4 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2012 Report Share Posted May 9, 2012 What kind of a degree does he have?Ask for the trial data. CE Grim MDOn May 9, 2012, at 6:40 PM, StaceyF wrote: Please tell me why you would avoid. My IGG levels were 500 now with IGG they are 760. I have 5 kids and work in a hospital so I figured I should have my immune function improved. I have had less illness since starting but only had 5 doses. He wants me to do it for a year. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Oh goodness no, on my original I had put them, but they do not seem > > > > > > > > > > > > > > > > > > > to come with. Levothyroxin, simvastatin, 40 meq potassium, high dose > > > > > > > > > > > > > > > > > > > magnesium, selenium, wellbutrin xl 450mg, klonopin, alpha lipoic > > > > > > > > > > > > > > > > > > > acid, nuvigil (to keep me awake), phenergen as needed for nausea, > > > > > > > > > > > > > > > > > > > fioricet ( for headache) and newly added AMANTADINE for headache. I > > > > > > > > > > > > > > > > > > > have been on a boat load of meds to prevent the headache which all > > > > > > > > > > > > > > > > > > > did not work. I was also on ACE inhibitor until July last year and > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2012 Report Share Posted May 9, 2012 Dr. Penner, M.D. Education: Medical School: University of Michigan, Ann Arbor, Michigan Residency: Internal Medicine, University of Minnesota Hospital, Minneapolis, Minnesota Fellowship: Hematology - University of Michigan, Ann Arbor, Michigan Certification: American Board of Internal Medicine -Internal Medicine -Hematology 1972 – 1980 Professor, Internal Medicine, University of Michigan 1972 – 1980 Director, Hemophilia Center, University of Michigan 1980 – 1993 Director, Hematology/Oncology Division, Department of Internal Medicine, Michigan State University 1993 – pres. Chief, Thrombosis and Hemostasis Division, Department of Internal Medicine, Michigan State University He is suppose to be one of the best hematologists around. Stacey > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Oh goodness no, on my original > > I had put them, but they do not seem > > > > > > > > > > > > > > > > > > > > > to come with. Levothyroxin, > > simvastatin, 40 meq potassium, high dose > > > > > > > > > > > > > > > > > > > > > magnesium, selenium, > > wellbutrin xl 450mg, klonopin, alpha lipoic > > > > > > > > > > > > > > > > > > > > > acid, nuvigil (to keep me > > awake), phenergen as needed for nausea, > > > > > > > > > > > > > > > > > > > > > fioricet ( for headache) and > > newly added AMANTADINE for headache. I > > > > > > > > > > > > > > > > > > > > > have been on a boat load of > > meds to prevent the headache which all > > > > > > > > > > > > > > > > > > > > > did not work. I was also on > > ACE inhibitor until July last year and > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2012 Report Share Posted May 10, 2012 I am not a big fan of chiropractors but there is sometimes a need to see one. You should know better then most what can happed in a fall where the chair is pulled out from under you. Did the bump cause a blood clot that then moved into your brain? > > > > > > > > > > > > No, just started one morning. I did not have high blood pressure until > > then and it went from 120/80 to 160/100 over the next 3 days. > > > > Any medicine was added after the symptoms all started. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2012 Report Share Posted May 10, 2012 I am not a big fan of chiropractors but there is sometimes a need to see one. You should know better then most what can happed in a fall where the chair is pulled out from under you. Did the bump cause a blood clot that then moved into your brain? > > > > > > > > > > > > No, just started one morning. I did not have high blood pressure until > > then and it went from 120/80 to 160/100 over the next 3 days. > > > > Any medicine was added after the symptoms all started. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2012 Report Share Posted May 10, 2012 They checked the pituitary? From: Francis Bill SUSPECTED PA <georgewbill@...>Subject: Re: Got a call to go get another test donehyperaldosteronism Date: Thursday, May 10, 2012, 8:24 AM I am not a big fan of chiropractors but there is sometimes a need to see one. You should know better then most what can happed in a fall where the chair is pulled out from under you. Did the bump cause a blood clot that then moved into your brain? > > > >> > > > > > > > No, just started one morning. I did not have high blood pressure until> > then and it went from 120/80 to 160/100 over the next 3 days.> > > > Any medicine was added after the symptoms all started.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2012 Report Share Posted May 10, 2012 Some info on traumatic pituitary injuries. I had 3 concussions in '08 alone (fall from a tree hanging a swing, rollover car wreck, and pull up bar broke) and many bad ones in my 30's and in my teens from basketball and football so I had some worries about them. I got them to check mine early one when the PA was diagnosed and all is well, but can happen. http://www.lapublishing.com/blog/2009/traumatic-brain-injury-pituitary-hormones/ From: Francis Bill SUSPECTED PA <georgewbill@...>Subject: Re: Got a call to go get another test donehyperaldosteronism Date: Thursday, May 10, 2012, 8:24 AM I am not a big fan of chiropractors but there is sometimes a need to see one. You should know better then most what can happed in a fall where the chair is pulled out from under you. Did the bump cause a blood clot that then moved into your brain? > > > >> > > > > > > > No, just started one morning. I did not have high blood pressure until> > then and it went from 120/80 to 160/100 over the next 3 days.> > > > Any medicine was added after the symptoms all started.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2012 Report Share Posted May 10, 2012 Some info on traumatic pituitary injuries. I had 3 concussions in '08 alone (fall from a tree hanging a swing, rollover car wreck, and pull up bar broke) and many bad ones in my 30's and in my teens from basketball and football so I had some worries about them. I got them to check mine early one when the PA was diagnosed and all is well, but can happen. http://www.lapublishing.com/blog/2009/traumatic-brain-injury-pituitary-hormones/ From: Francis Bill SUSPECTED PA <georgewbill@...>Subject: Re: Got a call to go get another test donehyperaldosteronism Date: Thursday, May 10, 2012, 8:24 AM I am not a big fan of chiropractors but there is sometimes a need to see one. You should know better then most what can happed in a fall where the chair is pulled out from under you. Did the bump cause a blood clot that then moved into your brain? > > > >> > > > > > > > No, just started one morning. I did not have high blood pressure until> > then and it went from 120/80 to 160/100 over the next 3 days.> > > > Any medicine was added after the symptoms all started.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2012 Report Share Posted May 10, 2012 Not a fan of them either. I did see a osteomanipulative medicine physician which is like a chiro but different training. I went through cranio sacral therapy which I am not a believer in either but after 3 months with her, no help and she decided that it was not related to my neck and or muscles. I went to a Neurologist as my first doc 2 months after it started, and they did MRI, MRA, MRV to be sure that I did not have a hemmorage and no signs of it. No signs of any brain defect either. > > > > > > > > > > > > > > > No, just started one morning. I did not have high blood pressure until > > > then and it went from 120/80 to 160/100 over the next 3 days. > > > > > Any medicine was added after the symptoms all started. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2012 Report Share Posted May 10, 2012 Not a fan of them either. I did see a osteomanipulative medicine physician which is like a chiro but different training. I went through cranio sacral therapy which I am not a believer in either but after 3 months with her, no help and she decided that it was not related to my neck and or muscles. I went to a Neurologist as my first doc 2 months after it started, and they did MRI, MRA, MRV to be sure that I did not have a hemmorage and no signs of it. No signs of any brain defect either. > > > > > > > > > > > > > > > No, just started one morning. I did not have high blood pressure until > > > then and it went from 120/80 to 160/100 over the next 3 days. > > > > > Any medicine was added after the symptoms all started. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2012 Report Share Posted May 10, 2012 I know. I have said as well as the Neuro I see is that all my sxs sound like a pituitary or hypothalamic issue, but none of the MRI show anything. Now with the finding of high deoxycortisol, deoxycorticosterone, these are all on the hypo/pituitary/adrenal axis. I have read that up to 50% of pituitary tumors are not found on MRI, but I do not know. My docs seem happy with the fact that the scans were normal. > > > > > > > > > > > > > > > No, just started one morning. I did not have high blood pressure until > > > then and it went from 120/80 to 160/100 over the next 3 days. > > > > > Any medicine was added after the symptoms all started. > > > > > > Quote Link to comment Share on other sites More sharing options...
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