Guest guest Posted April 18, 2012 Report Share Posted April 18, 2012 I have spent some time this morning trying to learn more about NIH, the protocol I am enrolled in and what makes Dr. Stratakis tick. I was constantly reminded of suggestions that NIH be used as a resource to DX PA. As you investigate this you need to consider this statement that appears on many of their pages. " NICHD does not provide specific medical advice, but rather provides users with information to better understand their health and their diagnosed disorders. The staff of the NICHD cannot give medical advice or diagnoses; the Institute urges you to consult with a qualified physician for diagnosis and for answers to your personal health questions. " If you think you have something they want and are ready to commit by all means apply. If you are simply looking for a DX there are doctors that can do that, you need to keep them focused and listen when they rule something out or suggest something. Am I perfect? A long way from it but I have learned a lot in the last 18 days! (And a DX of PA is a small part of my concerns/questions today.) Hope this helps, keep them honest and good luck. (I used to think luck didn't enter into it but now I think I " lucked " into the wrong protocol and got the right answer - What a RUSH!) Quote Link to comment Share on other sites More sharing options...
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