Guest guest Posted May 13, 2010 Report Share Posted May 13, 2010 I am pretty sure this is Darrell and his son(can't remember his name). He is no longer on the group. I just can't see putting my child through that, but of course we never had any problems with smelly casts either. I would for sure talk to my child's doctor before removing a tshirt under a cast. Let us know how it goes. I wish you luck. TashaMommy of 5 year old twin boys- and Fort Worth, Texas is treated at Texas ish Rite Hospital in Dallas, TexasSeries of 6 casts for 14 months followed by bracing since September 2007You can read 's story at.... http://www.infantilescoliosis.org/stories.html From: mcarol595 <mcarol595@...>infantile scoliosis treatment Sent: Wed, May 12, 2010 4:12:49 PMSubject: t-shirt removal I found the following when I was searching for the PSA on YouTube. The "cast" looks different - I don't see any white material on the edges, but perhaps it is covered with black duct tape? But it says 'knitrite' shirt. Anyways, a picture is easier for me to understand then someone trying to 'explain it".Here is the link:http://www.youtube.com/watch?v=dJKzjCxYX0M--- In infantile scoliosis treatment , NIck Guthe <nickguthe@...> wrote:>> It's supposed to rain 2 days that we're there, I hope it's sunny for us, too! Sent you a private email re: t-shirt stuff...> > Heidi, Bexon's Mommy, (2 and a half years old, in 6th cast from Salt Lake City Shriners, currently down from 61 degrees to 25 in cast)> > > > > ________________________________> From: mckinneys <clmckinney64@...>> infantile scoliosis treatment > Sent: Fri, May 7, 2010 8:58:24 PM> Subject: Re: Back from SLC in our 2nd Cast> > > I will try to post some pictures later this weekend - Mike seemed to think the skin would be okay but wanted to keep the next cast to under 10 weeks just so they can keep an eye on it. He thinks she has super sensitive skin - which I kind of agree with. Whatever they use to tape or hold stuff on her face during casting always makes red marks that last for several days - we also used baby lotion and then aquaphor all over her after her bath - I think she may have been sensitive to it also, as she had little red dots all over her belly. Have you changed Bex's shirt while in cast? They gave us another shirt to, but after Mike tried to adjust her cast this morning and petal her - and she was throwing a total fit - he thought we may not be able to. He couldn't even get her completely petaled - she is a very strong opinionated little girl. Hope next week goes well for you. It snowed Thursday while we were there, but was clear and Sunny today - It is so> beautiful there. > > > >> > WOW! That is amazing news about Londynn's results- I am so happy for you! It seems like just yesterday she started casting! Thank you for the info about the yellow, purple is so DIVA cool! if we get Bex purple, he may turn out to be a singer a la Prince : )> > > > The purple marks, hmm, Bex does have red darkened skin that goes away overnight in those areas. Hopefully it is nothing but a normal thing that will go away after the casts are off. > > > > What truly awesome news for your family!!! > >  Heidi, Bexon's Mommy, (2 and a half years old, in 6th cast from Salt Lake City Shriners, currently down from 61 degrees to 25 in cast) > > > > > > > > > > ____________ _________ _________ __> > From: mckinneys <clmckinney64@ ...>> > infantile scoliosis treatment @groups. com> > Sent: Fri, May 7, 2010 8:22:32 PM> > Subject: [infantile_scoliosi s] Back from SLC in our 2nd Cast> > > >  > > We just got back from getting our 2nd Cast - Purple this time instead of Pink. Londynn did well - but I think she has learned that this is a place that they do stuff to her - that she doesn't necessarily like - she was much crankier this time than last. Removing the cast was non eventful - she even laughed thru most of it. She had some purple discoloration (coloration) of her skin in the shape of the opening of the cast on her belly side. They don't normally see this apparently - Dr D took pictures for reference. It looks like a bruise but it is not because when you stretch the skin it is not purple below the surface. Has anyone else had this? Her skin was much drier than we expected - but no breakdown - we got an "A" for cast and skin care - Yeah! One of her ribs seemed to protrude more after the casting but we were not sure if we just thought that or if it was there before. We chose not to use Versed this time and it really seemed to make a difference> > - she was not so out of control and crying after being casted. Definitely the way we will do it from now on. Our only glitch was during her casting her CO2 levels were too high so the anesthesiologist had to hurry them along (did not end up being anything to worrisome - but she did have to stay in recovery a little longer). We got our second "Diva" cast as we call it. One shouldered. It takes away a little bit of the linebacker look but not much. We are so excited about our numbers in this 2nd cast - she is down to 11-12 degrees from 36 - the doctors plans are for us to return in 10 weeks for our next and final cast at which time they will also mold her for a brace. She will wear the next cast for 2 months then go into the brace for a year (one brace change during that years time) We are ecstatic about this news. EDF ET is certainly working for us.> > > > Thank you ISOP for showing us the way.> > > > Note: Heidi if you were thinking of yellow for Bex this cast - they don't have it.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2010 Report Share Posted May 13, 2010 Yep, I think you are right Tasha, that looks like Darrell. Also Heidi, I think that is Neoprene on the cast : ) Love the Video! On Wed, May 12, 2010 at 4:12 PM, mcarol595 <mcarol595@...> wrote: I found the following when I was searching for the PSA on YouTube. The " cast " looks different - I don't see any white material on the edges, but perhaps it is covered with black duct tape? But it says 'knitrite' shirt. Anyways, a picture is easier for me to understand then someone trying to 'explain it " . Here is the link:http://www.youtube.com/watch?v=dJKzjCxYX0M--- In infantile scoliosis treatment , NIck Guthe <nickguthe@...> wrote: >> It's supposed to rain 2 days that we're there, I hope it's sunny for us, too! Sent you a private email re: t-shirt stuff...> > Heidi, Bexon's Mommy, (2 and a half years old, in 6th cast from Salt Lake City Shriners, currently down from 61 degrees to 25 in cast) > > > > > ________________________________> From: mckinneys <clmckinney64@...> > infantile scoliosis treatment > Sent: Fri, May 7, 2010 8:58:24 PM> Subject: Re: Back from SLC in our 2nd Cast > > > I will try to post some pictures later this weekend - Mike seemed to think the skin would be okay but wanted to keep the next cast to under 10 weeks just so they can keep an eye on it. He thinks she has super sensitive skin - which I kind of agree with. Whatever they use to tape or hold stuff on her face during casting always makes red marks that last for several days - we also used baby lotion and then aquaphor all over her after her bath - I think she may have been sensitive to it also, as she had little red dots all over her belly. Have you changed Bex's shirt while in cast? They gave us another shirt to, but after Mike tried to adjust her cast this morning and petal her - and she was throwing a total fit - he thought we may not be able to. He couldn't even get her completely petaled - she is a very strong opinionated little girl. Hope next week goes well for you. It snowed Thursday while we were there, but was clear and Sunny today - It is so > beautiful there. > > > >> > WOW! That is amazing news about Londynn's results- I am so happy for you! It seems like just yesterday she started casting! Thank you for the info about the yellow, purple is so DIVA cool! if we get Bex purple, he may turn out to be a singer a la Prince : ) > > > > The purple marks, hmm, Bex does have red darkened skin that goes away overnight in those areas. Hopefully it is nothing but a normal thing that will go away after the casts are off. > > > > What truly awesome news for your family!!! > >  Heidi, Bexon's Mommy, (2 and a half years old, in 6th cast from Salt Lake City Shriners, currently down from 61 degrees to 25 in cast) > > > > > > > > > > ____________ _________ _________ __> > From: mckinneys <clmckinney64@ ...> > > infantile scoliosis treatment @groups. com> > Sent: Fri, May 7, 2010 8:22:32 PM> > Subject: [infantile_scoliosi s] Back from SLC in our 2nd Cast> > > >  > > We just got back from getting our 2nd Cast - Purple this time instead of Pink. Londynn did well - but I think she has learned that this is a place that they do stuff to her - that she doesn't necessarily like - she was much crankier this time than last. Removing the cast was non eventful - she even laughed thru most of it. She had some purple discoloration (coloration) of her skin in the shape of the opening of the cast on her belly side. They don't normally see this apparently - Dr D took pictures for reference. It looks like a bruise but it is not because when you stretch the skin it is not purple below the surface. Has anyone else had this? Her skin was much drier than we expected - but no breakdown - we got an " A " for cast and skin care - Yeah! One of her ribs seemed to protrude more after the casting but we were not sure if we just thought that or if it was there before. We chose not to use Versed this time and it really seemed to make a difference > > - she was not so out of control and crying after being casted. Definitely the way we will do it from now on. Our only glitch was during her casting her CO2 levels were too high so the anesthesiologist had to hurry them along (did not end up being anything to worrisome - but she did have to stay in recovery a little longer). We got our second " Diva " cast as we call it. One shouldered. It takes away a little bit of the linebacker look but not much. We are so excited about our numbers in this 2nd cast - she is down to 11-12 degrees from 36 - the doctors plans are for us to return in 10 weeks for our next and final cast at which time they will also mold her for a brace. She will wear the next cast for 2 months then go into the brace for a year (one brace change during that years time) We are ecstatic about this news. EDF ET is certainly working for us. > > > > Thank you ISOP for showing us the way.> > > > Note: Heidi if you were thinking of yellow for Bex this cast - they don't have it.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2010 Report Share Posted May 13, 2010 Yep, I think you are right Tasha, that looks like Darrell. Also Heidi, I think that is Neoprene on the cast : ) Love the Video! On Wed, May 12, 2010 at 4:12 PM, mcarol595 <mcarol595@...> wrote: I found the following when I was searching for the PSA on YouTube. The " cast " looks different - I don't see any white material on the edges, but perhaps it is covered with black duct tape? But it says 'knitrite' shirt. Anyways, a picture is easier for me to understand then someone trying to 'explain it " . Here is the link:http://www.youtube.com/watch?v=dJKzjCxYX0M--- In infantile scoliosis treatment , NIck Guthe <nickguthe@...> wrote: >> It's supposed to rain 2 days that we're there, I hope it's sunny for us, too! Sent you a private email re: t-shirt stuff...> > Heidi, Bexon's Mommy, (2 and a half years old, in 6th cast from Salt Lake City Shriners, currently down from 61 degrees to 25 in cast) > > > > > ________________________________> From: mckinneys <clmckinney64@...> > infantile scoliosis treatment > Sent: Fri, May 7, 2010 8:58:24 PM> Subject: Re: Back from SLC in our 2nd Cast > > > I will try to post some pictures later this weekend - Mike seemed to think the skin would be okay but wanted to keep the next cast to under 10 weeks just so they can keep an eye on it. He thinks she has super sensitive skin - which I kind of agree with. Whatever they use to tape or hold stuff on her face during casting always makes red marks that last for several days - we also used baby lotion and then aquaphor all over her after her bath - I think she may have been sensitive to it also, as she had little red dots all over her belly. Have you changed Bex's shirt while in cast? They gave us another shirt to, but after Mike tried to adjust her cast this morning and petal her - and she was throwing a total fit - he thought we may not be able to. He couldn't even get her completely petaled - she is a very strong opinionated little girl. Hope next week goes well for you. It snowed Thursday while we were there, but was clear and Sunny today - It is so > beautiful there. > > > >> > WOW! That is amazing news about Londynn's results- I am so happy for you! It seems like just yesterday she started casting! Thank you for the info about the yellow, purple is so DIVA cool! if we get Bex purple, he may turn out to be a singer a la Prince : ) > > > > The purple marks, hmm, Bex does have red darkened skin that goes away overnight in those areas. Hopefully it is nothing but a normal thing that will go away after the casts are off. > > > > What truly awesome news for your family!!! > >  Heidi, Bexon's Mommy, (2 and a half years old, in 6th cast from Salt Lake City Shriners, currently down from 61 degrees to 25 in cast) > > > > > > > > > > ____________ _________ _________ __> > From: mckinneys <clmckinney64@ ...> > > infantile scoliosis treatment @groups. com> > Sent: Fri, May 7, 2010 8:22:32 PM> > Subject: [infantile_scoliosi s] Back from SLC in our 2nd Cast> > > >  > > We just got back from getting our 2nd Cast - Purple this time instead of Pink. Londynn did well - but I think she has learned that this is a place that they do stuff to her - that she doesn't necessarily like - she was much crankier this time than last. Removing the cast was non eventful - she even laughed thru most of it. She had some purple discoloration (coloration) of her skin in the shape of the opening of the cast on her belly side. They don't normally see this apparently - Dr D took pictures for reference. It looks like a bruise but it is not because when you stretch the skin it is not purple below the surface. Has anyone else had this? Her skin was much drier than we expected - but no breakdown - we got an " A " for cast and skin care - Yeah! One of her ribs seemed to protrude more after the casting but we were not sure if we just thought that or if it was there before. We chose not to use Versed this time and it really seemed to make a difference > > - she was not so out of control and crying after being casted. Definitely the way we will do it from now on. Our only glitch was during her casting her CO2 levels were too high so the anesthesiologist had to hurry them along (did not end up being anything to worrisome - but she did have to stay in recovery a little longer). We got our second " Diva " cast as we call it. One shouldered. It takes away a little bit of the linebacker look but not much. We are so excited about our numbers in this 2nd cast - she is down to 11-12 degrees from 36 - the doctors plans are for us to return in 10 weeks for our next and final cast at which time they will also mold her for a brace. She will wear the next cast for 2 months then go into the brace for a year (one brace change during that years time) We are ecstatic about this news. EDF ET is certainly working for us. > > > > Thank you ISOP for showing us the way.> > > > Note: Heidi if you were thinking of yellow for Bex this cast - they don't have it.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2010 Report Share Posted May 13, 2010 Yep, I think you are right Tasha, that looks like Darrell. Also Heidi, I think that is Neoprene on the cast : ) Love the Video! On Wed, May 12, 2010 at 4:12 PM, mcarol595 <mcarol595@...> wrote: I found the following when I was searching for the PSA on YouTube. The " cast " looks different - I don't see any white material on the edges, but perhaps it is covered with black duct tape? But it says 'knitrite' shirt. Anyways, a picture is easier for me to understand then someone trying to 'explain it " . Here is the link:http://www.youtube.com/watch?v=dJKzjCxYX0M--- In infantile scoliosis treatment , NIck Guthe <nickguthe@...> wrote: >> It's supposed to rain 2 days that we're there, I hope it's sunny for us, too! Sent you a private email re: t-shirt stuff...> > Heidi, Bexon's Mommy, (2 and a half years old, in 6th cast from Salt Lake City Shriners, currently down from 61 degrees to 25 in cast) > > > > > ________________________________> From: mckinneys <clmckinney64@...> > infantile scoliosis treatment > Sent: Fri, May 7, 2010 8:58:24 PM> Subject: Re: Back from SLC in our 2nd Cast > > > I will try to post some pictures later this weekend - Mike seemed to think the skin would be okay but wanted to keep the next cast to under 10 weeks just so they can keep an eye on it. He thinks she has super sensitive skin - which I kind of agree with. Whatever they use to tape or hold stuff on her face during casting always makes red marks that last for several days - we also used baby lotion and then aquaphor all over her after her bath - I think she may have been sensitive to it also, as she had little red dots all over her belly. Have you changed Bex's shirt while in cast? They gave us another shirt to, but after Mike tried to adjust her cast this morning and petal her - and she was throwing a total fit - he thought we may not be able to. He couldn't even get her completely petaled - she is a very strong opinionated little girl. Hope next week goes well for you. It snowed Thursday while we were there, but was clear and Sunny today - It is so > beautiful there. > > > >> > WOW! That is amazing news about Londynn's results- I am so happy for you! It seems like just yesterday she started casting! Thank you for the info about the yellow, purple is so DIVA cool! if we get Bex purple, he may turn out to be a singer a la Prince : ) > > > > The purple marks, hmm, Bex does have red darkened skin that goes away overnight in those areas. Hopefully it is nothing but a normal thing that will go away after the casts are off. > > > > What truly awesome news for your family!!! > >  Heidi, Bexon's Mommy, (2 and a half years old, in 6th cast from Salt Lake City Shriners, currently down from 61 degrees to 25 in cast) > > > > > > > > > > ____________ _________ _________ __> > From: mckinneys <clmckinney64@ ...> > > infantile scoliosis treatment @groups. com> > Sent: Fri, May 7, 2010 8:22:32 PM> > Subject: [infantile_scoliosi s] Back from SLC in our 2nd Cast> > > >  > > We just got back from getting our 2nd Cast - Purple this time instead of Pink. Londynn did well - but I think she has learned that this is a place that they do stuff to her - that she doesn't necessarily like - she was much crankier this time than last. Removing the cast was non eventful - she even laughed thru most of it. She had some purple discoloration (coloration) of her skin in the shape of the opening of the cast on her belly side. They don't normally see this apparently - Dr D took pictures for reference. It looks like a bruise but it is not because when you stretch the skin it is not purple below the surface. Has anyone else had this? Her skin was much drier than we expected - but no breakdown - we got an " A " for cast and skin care - Yeah! One of her ribs seemed to protrude more after the casting but we were not sure if we just thought that or if it was there before. We chose not to use Versed this time and it really seemed to make a difference > > - she was not so out of control and crying after being casted. Definitely the way we will do it from now on. Our only glitch was during her casting her CO2 levels were too high so the anesthesiologist had to hurry them along (did not end up being anything to worrisome - but she did have to stay in recovery a little longer). We got our second " Diva " cast as we call it. One shouldered. It takes away a little bit of the linebacker look but not much. We are so excited about our numbers in this 2nd cast - she is down to 11-12 degrees from 36 - the doctors plans are for us to return in 10 weeks for our next and final cast at which time they will also mold her for a brace. She will wear the next cast for 2 months then go into the brace for a year (one brace change during that years time) We are ecstatic about this news. EDF ET is certainly working for us. > > > > Thank you ISOP for showing us the way.> > > > Note: Heidi if you were thinking of yellow for Bex this cast - they don't have it.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2010 Report Share Posted May 15, 2010 I never went for the Neoprene, Nick thinks it's a petroleum based product and I felt it had a fume-y smell for a young baby to be covered in. This is just my opinion when I was deciding for Bex, it works great for other parents, I'm sure. I was concered Bex would peel off pieces and eat it at that young age, under 2. Heidi, Bexon's Mommy, (2 and a half years old, in 6th cast from Salt Lake City Shriners, currently down from 61 degrees to 25 in cast) From: Judy Poland <judypoland5@...>infantile scoliosis treatment Sent: Wed, May 12, 2010 10:44:59 PMSubject: Re: t-shirt removal Yep, I think you are right Tasha, that looks like Darrell. Also Heidi, I think that is Neoprene on the cast : ) Love the Video! On Wed, May 12, 2010 at 4:12 PM, mcarol595 wrote: > > > I found the following when I was searching for the PSA on YouTube. The > "cast" looks different - I don't see any white material on the edges, but > perhaps it is covered with black duct tape? But it says 'knitrite' shirt. > Anyways, a picture is easier for me to understand then someone trying to > 'explain it". > Here is the link: > http://www.youtube. com/watch? v=dJKzjCxYX0M > > > > > > > > WOW! That is amazing news about Londynn's results- I am so happy for > you! It seems like just yesterday she started casting! Thank you for the > info about the yellow, purple is so DIVA cool! if we get Bex purple, he may > turn out to be a singer a la Prince : ) > > > > > > The purple marks, hmm, Bex does have red darkened skin that goes away > overnight in those areas. Hopefully it is nothing but a normal thing that > will go away after the casts are off. > > > > > > What truly awesome news for your family!!! > > >  Heidi, Bexon's Mommy, (2 and a half years old, in 6th cast from Salt > Lake City Shriners, currently down from 61 degrees to 25 in cast) > > > > > > > > > > > > > > > ____________ _________ _________ __ > > > From: mckinneys > > > > infantile scoliosis treatment @groups. com > > > Sent: Fri, May 7, 2010 8:22:32 PM > > > Subject: [infantile_scoliosi s] Back from SLC in our 2nd Cast > > > > > >  > > > We just got back from getting our 2nd Cast - Purple this time instead > of Pink. Londynn did well - but I think she has learned that this is a place > that they do stuff to her - that she doesn't necessarily like - she was much > crankier this time than last. Removing the cast was non eventful - she even > laughed thru most of it. She had some purple discoloration (coloration) of > her skin in the shape of the opening of the cast on her belly side. They > don't normally see this apparently - Dr D took pictures for reference. It > looks like a bruise but it is not because when you stretch the skin it is > not purple below the surface. Has anyone else had this? Her skin was much > drier than we expected - but no breakdown - we got an "A" for cast and skin > care - Yeah! One of her ribs seemed to protrude more after the casting but > we were not sure if we just thought that or if it was there before. We chose > not to use Versed this time and it really seemed to make a difference > > > - she was not so out of control and crying after being casted. > Definitely the way we will do it from now on. Our only glitch was during her > casting her CO2 levels were too high so the anesthesiologist had to hurry > them along (did not end up being anything to worrisome - but she did have to > stay in recovery a little longer). We got our second "Diva" cast as we call > it. One shouldered. It takes away a little bit of the linebacker look but > not much. We are so excited about our numbers in this 2nd cast - she is down > to 11-12 degrees from 36 - the doctors plans are for us to return in 10 > weeks for our next and final cast at which time they will also mold her for > a brace. She will wear the next cast for 2 months then go into the brace for > a year (one brace change during that years time) We are ecstatic about this > news. EDF ET is certainly working for us. > > > > > > Thank you ISOP for showing us the way. > > > > > > Note: Heidi if you were thinking of yellow for Bex this cast - they > don't have it. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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