Re: MRI on MONDAY....SCARED

[Guest guest]

Before we started casting Nora had problems with breathing as well and was on Singulair for asthma and allergies. She did fine with the MRI and once casting began her asthma subsided. Her spine pushing against her left lung was actually causeing her breathing difficulties. She still has problems breathing when she's sick or when she overheats from the cast. I'm sorry I haven't been of much help but hopefully some other moms will chime in.

Tonya Perkins

Asheboro,NC

mother of ,11 &

Nora,4 scoliosis, acid reflux

8th cast, Greenville Shriners,SC

From: CBrown <cbrown03287@...>infantile scoliosis treatment Sent: Sun, May 2, 2010 3:35:12 PMSubject: MRI on MONDAY....SCARED

Kiley has really bad asthma..and next monday the 10th she is being put to sleep for her MRI. any other parents be through this?

[Guest guest]

Yes we are on singular, inhaler twice a day, and she still has problems. IM just

really scared about the whole process!

[Guest guest]

My son doesnt have asthma but i know the feeling of being scared from the MRI. Its always so hard to see your child put under and for us his MRI was our 1st experience with it. Due to casting were old pros now!! Just trust in the docs and everything will go as planned. I know im not much help but you will get thru it.

Thinking of you tomorrow!

From: CBrown <cbrown03287@...>Subject: MRI on MONDAY....SCAREDinfantile scoliosis treatment Date: Sunday, May 2, 2010, 2:35 PM

Kiley has really bad asthma..and next monday the 10th she is being put to sleep for her MRI. any other parents be through this?

[Guest guest]

I believe that they do not intubate for MRI's so if that is any consolation. Your child will be breathing on their own. I will be thinking of you and hoping it goes smoothly. Please update when you can

Joanmom to Hayden 339 degrees down from 62Cast number 4Treated at ish Rite Hospital Dallas, TX

From: <missikay10@...>infantile scoliosis treatment Sent: Sun, May 2, 2010 6:33:57 PMSubject: Re: MRI on MONDAY....SCARED

My son doesnt have asthma but i know the feeling of being scared from the MRI. Its always so hard to see your child put under and for us his MRI was our 1st experience with it. Due to casting were old pros now!! Just trust in the docs and everything will go as planned. I know im not much help but you will get thru it.

Thinking of you tomorrow!

From: CBrown <cbrown03287@ aol.com>Subject: [infantile_scoliosi s] MRI on MONDAY....SCAREDinfantile scoliosis treatment @groups. comDate: Sunday, May 2, 2010, 2:35 PM

Kiley has really bad asthma..and next monday the 10th she is being put to sleep for her MRI. any other parents be through this?

[Guest guest]

I remember my son's MRI like it was yesterday! He has allergies, asthma,

chronic ear infections, I could name more. Anyway, he was sedated for his MRI

because he was 2 years old and obviously would not hold still. They'll give

him/her a sedative and then monitor them during the MRI. They are breathing on

their own and end up just sleeping (very soundly). Our son is sensitive to

medications so we were at the hospital for several hours after the MRI until he

woke up.

I am sure the purpose of the MRI is to determine the cause of the scoliosis.

Teathered cord, spinal deformity, etc.

I understand being scared...this is part of the process and it is long.

Remember the MRI's are usually not done that frequently. Hang in there and know

that there are many mom's out there who understand. Ironically, just saw this

message. Haven't been on in long time! My son had the spinal fusion in

November after 11 years in a back brace (well 24 different back braces!) and he

is doing well.

If you have any more questions you can certainly email...or I will check back.

Jen

Mom of Connor 13 (scoliosis...24 or so different braces)

10

>

> If  you don't mind me asking how old is she and what degree is her curve?

>  

> Tonya Perkins

> Asheboro,NC

> mother of ,11 &

> Nora,4 scoliosis, acid reflux

> 8th cast, Greenville Shriners,SC

>

>

>

>

> ________________________________

> From: CBrown <cbrown03287@...>

> infantile scoliosis treatment

> Sent: Sun, May 2, 2010 6:47:40 PM

> Subject: Re: MRI on MONDAY....SCARED

>

>  

> Yes we are on singular, inhaler twice a day, and she still has problems. IM

just really scared about the whole process!

>

[Guest guest]

My daughter has had two MRIs - one with a sedative and one under general

anesthesia. Both went very smoothly, but it's normal to be nervous.

mom to Audrey, 2 years, 1st cast SLC

>

> Kiley has really bad asthma..and next monday the 10th she is being put to

sleep for her MRI. any other parents be through this?

>

[Guest guest]

This is off topic but not sure how to send a private message..I am very curious

as to where you are going for your casting?? We just had an appointment and the

doctor did not seem very confident that casting would produce great results with

my daughter b/c of her age, she is 3 and was just diagnosed with a 45 upper, 35

lower and 21 RVAD...

>

> Hi!

>

> I'm Leigh and my 3 yr old son Noah was diagnosed with infantile scoliosis of

18 and 23 degrees just before his first birthday. He was put in his first brace

when he was 18 months with the 18-23 hr a day requirement. We were holding

steady but unfortunately the brace wasn't changed out soon enough and the curves

progressed to 28 and 42. Fortunately though, it hasn't got any worse since

then.

>

> Somehow the MD never really explained that bracing simply is supposed to keep

curves from getting worse and does not correct so soon we'll be going to

casting.

>

> We have our first MRI tomorrow and like others - I'm worried. Noah doesn't

exhibit any problems from the scoliosis and his curve appears minimal to the

blind eye so hopefully the MRI reports everything else is ok too...

>

> Looking forward to sharing stories and information with everyone here.

>

> Thanks!

>

[Guest guest]

To send a private message I hoover above the senders name and it gives me their

email address and I just email them directly.

As to how much correction you can get, you should also look at whether or not

casting will hold better than a brace will hold and get you some correction

rather than progression with a brace. I think that is something huge to keep in

mind. Lots of parents also see some great correction in the overall shape of

their child's body even when the curve remains high.

Jenn

Mommy to Cole, 2 years old, 5th cast from Rochester, 13 degrees out of cast down

from 47

> >

> > Hi!

> >

> > I'm Leigh and my 3 yr old son Noah was diagnosed with infantile scoliosis of

18 and 23 degrees just before his first birthday. He was put in his first brace

when he was 18 months with the 18-23 hr a day requirement. We were holding

steady but unfortunately the brace wasn't changed out soon enough and the curves

progressed to 28 and 42. Fortunately though, it hasn't got any worse since

then.

> >

> > Somehow the MD never really explained that bracing simply is supposed to

keep curves from getting worse and does not correct so soon we'll be going to

casting.

> >

> > We have our first MRI tomorrow and like others - I'm worried. Noah doesn't

exhibit any problems from the scoliosis and his curve appears minimal to the

blind eye so hopefully the MRI reports everything else is ok too...

> >

> > Looking forward to sharing stories and information with everyone here.

> >

> > Thanks!

> >

>