Guest guest Posted May 3, 2010 Report Share Posted May 3, 2010 If you don't mind me asking how old is she and what degree is her curve? Tonya Perkins Asheboro,NC mother of ,11 & Nora,4 scoliosis, acid reflux 8th cast, Greenville Shriners,SC From: CBrown <cbrown03287@...>infantile scoliosis treatment Sent: Sun, May 2, 2010 6:47:40 PMSubject: Re: MRI on MONDAY....SCARED Yes we are on singular, inhaler twice a day, and she still has problems. IM just really scared about the whole process! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2010 Report Share Posted May 3, 2010 Very best of luck with the MRI! We've had 3, and our first one was scary going into, but it turned out to be not so bad at all. Heidi, Bexon's Mommy, (2 and a half years old, in 6th cast from Salt Lake City Shriners, currently down from 61 degrees to 25 in cast)From: CBrown <cbrown03287@...>infantile scoliosis treatment Sent: Sun, May 2, 2010 3:47:40 PMSubject: Re: MRI on MONDAY....SCARED Yes we are on singular, inhaler twice a day, and she still has problems. IM just really scared about the whole process! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2010 Report Share Posted May 3, 2010 Hi! I'm Leigh and my 3 yr old son Noah was diagnosed with infantile scoliosis of 18 and 23 degrees just before his first birthday. He was put in his first brace when he was 18 months with the 18-23 hr a day requirement. We were holding steady but unfortunately the brace wasn't changed out soon enough and the curves progressed to 28 and 42. Fortunately though, it hasn't got any worse since then. Somehow the MD never really explained that bracing simply is supposed to keep curves from getting worse and does not correct so soon we'll be going to casting. We have our first MRI tomorrow and like others - I'm worried. Noah doesn't exhibit any problems from the scoliosis and his curve appears minimal to the blind eye so hopefully the MRI reports everything else is ok too... Looking forward to sharing stories and information with everyone here. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2010 Report Share Posted May 3, 2010 Hi! I'm Leigh and my 3 yr old son Noah was diagnosed with infantile scoliosis of 18 and 23 degrees just before his first birthday. He was put in his first brace when he was 18 months with the 18-23 hr a day requirement. We were holding steady but unfortunately the brace wasn't changed out soon enough and the curves progressed to 28 and 42. Fortunately though, it hasn't got any worse since then. Somehow the MD never really explained that bracing simply is supposed to keep curves from getting worse and does not correct so soon we'll be going to casting. We have our first MRI tomorrow and like others - I'm worried. Noah doesn't exhibit any problems from the scoliosis and his curve appears minimal to the blind eye so hopefully the MRI reports everything else is ok too... Looking forward to sharing stories and information with everyone here. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2010 Report Share Posted May 4, 2010 Just wanted to say welcome to CAST! Ask any and all questions you have of this great group! Our son's curve looked minimal to the naked eye, too, at first. The MRI was not so bad, our little boy was up and playing later the same day. Heidi, Bexon's Mommy, (2 and a half years old, in 6th cast from Salt Lake City Shriners, currently down from 61 degrees to 25 in cast) From: Leigh D <leigh_d1971@...>infantile scoliosis treatment Sent: Mon, May 3, 2010 5:19:14 AMSubject: Re: Re: MRI on MONDAY....SCARED Hi!I'm Leigh and my 3 yr old son Noah was diagnosed with infantile scoliosis of 18 and 23 degrees just before his first birthday. He was put in his first brace when he was 18 months with the 18-23 hr a day requirement. We were holding steady but unfortunately the brace wasn't changed out soon enough and the curves progressed to 28 and 42. Fortunately though, it hasn't got any worse since then.Somehow the MD never really explained that bracing simply is supposed to keep curves from getting worse and does not correct so soon we'll be going to casting. We have our first MRI tomorrow and like others - I'm worried. Noah doesn't exhibit any problems from the scoliosis and his curve appears minimal to the blind eye so hopefully the MRI reports everything else is ok too...Looking forward to sharing stories and information with everyone here.Thanks! Quote Link to comment Share on other sites More sharing options...
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