Eiddelyn...no more Mehta doc....HELP!!!

[Guest guest]

Hi everybody,

I have been reading a lot of your posts but very rarely do I get the chance to

send my input. My daughter Eiddelyn is on her Nth ??? cast now. I kind of lost

track about the number. We started last April of 2008 after the 3rd cast she

stayed on the range of 22-25 degrees. The doctor's plan is to wait until she is

old enough to under go surgery for the rod placement or insertion because her

curve is not responding to the cast but at least it is not getting worst. The

target date would be when she is about 10 years old. She will be 6 this

September. I am fortunate enough to be working in the hospital where the only

Mehta trained doctor in California is also working. Unfortunately this doctor

will be leaving our hospital by the end of May; he will be moving to another

state. I believe some of the parents know him because he used to be in Erie I

think. He said that the nearest place where we can get the same treatment would

be in Shriner's in Utah.

Please any parents who bring their child to this hospital-Shriner's in Utah?

I need help as to the contact number and person regarding their scoliosis

treatment. I was told that this hospital does not charge so what is the process

to get in?

To , I wonder if you know of any other Mehta trained doctor here because

I know that when we started last 2008 he is the only doctor here in Southern Ca

who is familiar with Mehta casting. Do you know of any other place where we can

go to? We are in southern California

For members who is much newer than me; my daughter Eiddelyn has

neurofibromatosis which was confirmed few weeks after she was born. Her

scoliosis was found out few months after she had her 2nd birthday. the

scoliosis could be due to her Neurofibromatosis but the ortho doc said that it

could be idiopathic.

Thanks a lot for this group who gives me a sense of not being alone. Thanks a

lot also for the info that I am sure would be coming in soon.

Ethelyn