Guest guest Posted April 27, 2010 Report Share Posted April 27, 2010 Hi ,I was waiting for 's appt last week to send you his story.I was hoping it would be better news for the story, but it is what it is.Do we have a deadline or just when we can get them to you? TashaMommy of 5 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months. Bracing since September 2007 is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantilescoliosis.org/stories.htmlFrom: "heather@..." <heather@...>infantile scoliosis treatment Sent: Tue, April 27, 2010 12:11:10 PMSubject: NEED Stories Hey gang, The IT Director will be updating www.infantilescolio sis.org soon. Please consider sharing your child/families scoliosis journey on our site, as it could provide invaluable experience to another family out there desperately searching for answers (as we once were....and still are). Remember, these stories do not have to be Early Treatment stories only. My plan is to have the IT Director divide the story section into 2 or 3 categories.. ..We'll share ET stories, wait and watch stories, bracing, growing rods (all types), etc...We should also include congenital stories/experiences . Please consider. If you would like to share, please e-mail me at isop06gmail (DOT) com Thanks! HRH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2010 Report Share Posted April 27, 2010 Anytime at all. I know we are all super busy...Thanks T. HRH > Hi , > I was waiting for 's appt last week to send you his story. > I was hoping it would be better news for the story, but it is what it is. > Do we have a deadline or just when we can get them to you? > > > > Tasha > Mommy of 5 year old twin boys- and > Fort Worth, Texas > Series of 6 casts for 14 months. > Bracing since September 2007 > is treated at Texas ish Rite Hospital. > You can read 's story at.... > http://www.infantilescoliosis.org/stories.html > > > > > > > > > ________________________________ > From: " heather@... " <heather@...> > infantile scoliosis treatment > Sent: Tue, April 27, 2010 12:11:10 PM > Subject: NEED Stories > > > Hey gang, > The IT Director will be updating www.infantilescolio sis.org soon. Please > consider sharing your child/families scoliosis journey on our site, as it > could provide invaluable experience to another family out there > desperately searching for answers (as we once were....and still are). > Remember, these stories do not have to be Early Treatment stories only. > My plan is to have the IT Director divide the story section into 2 or 3 > categories.. ..We'll share ET stories, wait and watch stories, bracing, > growing rods (all types), etc...We should also include congenital > stories/experiences . > Please consider. If you would like to share, please e-mail me at > isop06gmail (DOT) com > Thanks! > HRH > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2010 Report Share Posted April 27, 2010 "We should also include congenital stories/experiences ." Thanks for this!! I will do an update on 's story for you. Love ya! Gail "The Earth is the insane asylum for the rest of universe" “Normal is just a setting on the washing machine.†-BumperSnickerz. ********************************************************************Mom to , 11/28/98 - ADHD/ODD/SIDand , 02/02/02 - Congenital Scoliosis, VATER Association (vertebral and renal anomalies), Torticollis, Klippel Feil Syndrome, Fused Ribs, First VEPTR Recipient at Cincinnati Children's Hospital 3/21/05; Spitz Nevus removal: 11/26/07 & 2/11/08; VEPTR Expansions: 11/05, 04/20/06, 6/12/08 and 8/14/09 and EARLY SUMMER 2010; From: heather@... <heather@...>Subject: NEED Storiesinfantile scoliosis treatment Date: Tuesday, April 27, 2010, 1:11 PM Hey gang,The IT Director will be updating www.infantilescolio sis.org soon. Pleaseconsider sharing your child/families scoliosis journey on our site, as itcould provide invaluable experience to another family out theredesperately searching for answers (as we once were....and still are). Remember, these stories do not have to be Early Treatment stories only. My plan is to have the IT Director divide the story section into 2 or 3categories.. ..We'll share ET stories, wait and watch stories, bracing,growing rods (all types), etc...We should also include congenitalstories/experiences .Please consider. If you would like to share, please e-mail me atisop06gmail (DOT) comThanks!HRH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2010 Report Share Posted April 28, 2010 - Dylan's story is already on the site, but it needs updating. He has been out of his cast for 2 years now and is still perfectly straight. From: "heather@..." <heather@...>infantile scoliosis treatment Sent: Tue, April 27, 2010 1:11:10 PMSubject: NEED Stories Hey gang,The IT Director will be updating www.infantilescolio sis.org soon. Pleaseconsider sharing your child/families scoliosis journey on our site, as itcould provide invaluable experience to another family out theredesperately searching for answers (as we once were....and still are). Remember, these stories do not have to be Early Treatment stories only. My plan is to have the IT Director divide the story section into 2 or 3categories.. ..We'll share ET stories, wait and watch stories, bracing,growing rods (all types), etc...We should also include congenitalstories/experiences .Please consider. If you would like to share, please e-mail me atisop06gmail (DOT) comThanks!HRH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2010 Report Share Posted April 28, 2010 That's awesome !!!!On Apr 28, 2010, at 1:11 PM, Dolley <b_dolley@...> wrote: - Dylan's story is already on the site, but it needs updating. He has been out of his cast for 2 years now and is still perfectly straight. From: "heatherinfantilescoliosis (DOT) org" <heatherinfantilescoliosis (DOT) org>infantile scoliosis treatment Sent: Tue, April 27, 2010 1:11:10 PMSubject: NEED Stories Hey gang,The IT Director will be updating www.infantilescolio sis.org soon. Pleaseconsider sharing your child/families scoliosis journey on our site, as itcould provide invaluable experience to another family out theredesperately searching for answers (as we once were....and still are). Remember, these stories do not have to be Early Treatment stories only. My plan is to have the IT Director divide the story section into 2 or 3categories.. ..We'll share ET stories, wait and watch stories, bracing,growing rods (all types), etc...We should also include congenitalstories/experiences .Please consider. If you would like to share, please e-mail me atisop06gmail (DOT) comThanks!HRH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2010 Report Share Posted April 28, 2010 That IS awesome, ! I cant believe he's been cast free for 2 yrs already! We def need an update! Proof that Mehtas ET Method w/ EDF IS the Gold Standard for infants w/ PIS. Ya know, I havent updated Livs story since 2006 (i think...) There's so much to update, I am a bit overwhelmed at the thought of it....Writing it out always brings up so many emotions for me. Gotta get it done though.... Thanks! HRH > That's awesome !!!! > > On Apr 28, 2010, at 1:11 PM, Dolley <b_dolley@...> wrote: > > - > > Dylan's story is already on the site, but it needs updating. He has been > out of his cast for 2 years now and is still perfectly straight. > > > > From: " heather@... " <heather@...> > infantile scoliosis treatment > Sent: Tue, April 27, 2010 1:11:10 PM > Subject: NEED Stories > > > Hey gang, > The IT Director will be updating www.infantilescolio sis.org soon. Please > consider sharing your child/families scoliosis journey on our site, as it > could provide invaluable experience to another family out there > desperately searching for answers (as we once were....and still are). > Remember, these stories do not have to be Early Treatment stories only. > My plan is to have the IT Director divide the story section into 2 or 3 > categories.. ..We'll share ET stories, wait and watch stories, bracing, > growing rods (all types), etc...We should also include congenital > stories/experiences . > Please consider. If you would like to share, please e-mail me at > isop06gmail (DOT) com > Thanks! > HRH > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2010 Report Share Posted April 28, 2010 ,That is amazing! What a blessing....congrats on 2 years with a straight spine! TashaMommy of 5 year old twin boys- and Fort Worth, Texas is treated at Texas ish Rite Hospital in Dallas, TexasSeries of 6 casts for 14 months followed by bracing since September 2007You can read 's story at.... http://www.infantilescoliosis.org/stories.htmlFrom: Dolley <b_dolley@...>infantile scoliosis treatment Sent: Wed, April 28, 2010 1:11:27 PMSubject: Re: NEED Stories - Dylan's story is already on the site, but it needs updating. He has been out of his cast for 2 years now and is still perfectly straight. From: "heather@infantiles coliosis. org" <heather@infantilesc oliosis.org>infantile scoliosis treatment @groups. comSent: Tue, April 27, 2010 1:11:10 PMSubject: [infantile_scoliosi s] NEED Stories Hey gang,The IT Director will be updating www.infantilescolio sis.org soon. Pleaseconsider sharing your child/families scoliosis journey on our site, as itcould provide invaluable experience to another family out theredesperately searching for answers (as we once were....and still are). Remember, these stories do not have to be Early Treatment stories only. My plan is to have the IT Director divide the story section into 2 or 3categories.. ..We'll share ET stories, wait and watch stories, bracing,growing rods (all types), etc...We should also include congenitalstories/experiences .Please consider. If you would like to share, please e-mail me atisop06gmail (DOT) comThanks!HRH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2010 Report Share Posted April 29, 2010 It is amazing, ! Heidi, Bexon's Mommy, (2 and a half years old, in 6th cast from Salt Lake City Shriners, currently down from 61 degrees to 25 in cast)From: Tasha Fontenot <ryanswalk@...>infantile scoliosis treatment Sent: Wed, April 28, 2010 1:51:34 PMSubject: Re: NEED Stories ,That is amazing! What a blessing.... congrats on 2 years with a straight spine! TashaMommy of 5 year old twin boys- and Fort Worth, Texas is treated at Texas ish Rite Hospital in Dallas, TexasSeries of 6 casts for 14 months followed by bracing since September 2007You can read 's story at.... http://www.infantil escoliosis. org/stories. htmlFrom: Dolley <b_dolley (DOT) com>infantile scoliosis treatment @groups. comSent: Wed, April 28, 2010 1:11:27 PMSubject: Re: [infantile_scoliosi s] NEED Stories - Dylan's story is already on the site, but it needs updating. He has been out of his cast for 2 years now and is still perfectly straight. From: "heather@infantiles coliosis. org" <heather@infantilesc oliosis.org>infantile scoliosis treatment @groups. comSent: Tue, April 27, 2010 1:11:10 PMSubject: [infantile_scoliosi s] NEED Stories Hey gang,The IT Director will be updating www.infantilescolio sis.org soon. Pleaseconsider sharing your child/families scoliosis journey on our site, as itcould provide invaluable experience to another family out theredesperately searching for answers (as we once were....and still are). Remember, these stories do not have to be Early Treatment stories only. My plan is to have the IT Director divide the story section into 2 or 3categories.. ..We'll share ET stories, wait and watch stories, bracing,growing rods (all types), etc...We should also include congenitalstories/experiences .Please consider. If you would like to share, please e-mail me atisop06gmail (DOT) comThanks!HRH Quote Link to comment Share on other sites More sharing options...
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