Re: Here's one for the Pity Party section!

[Guest guest]

Janet, feel free to rant and rave all you like, were always here to listen. BTW, I love the way you tell it like it is and speak the truth, regardless of how it sounds or what other (snooty) people think! You're my kinda gal!LOL If you're on facebook send me a friend request! )

Tonya Perkins

Asheboro,NC

mother of ,11 &

Nora,4 scoliosis, acid reflux

8th cast, Greenville Shriners,SC

From: Janet <216sa@...>infantile scoliosis treatment Sent: Sun, April 11, 2010 3:19:00 PMSubject: Here's one for the Pity Party section!

O.K, we go back to church for the first time today (well, not the first time-the past two Sunday's we have been at my Mom's church because of special events taking place there), but anyway, today was first day back at MY church, and for some reason my hackles were just up anyway, don't know why, no specific reason, the world and everyone in it was just not sitting right with me today! had to work today, so it was just me and the girls, and Sage was so fidgety, restless, and hot. Tehya was doing her best to be helpful, which just made Sage act out more, and I was ready to pull them both up and storm out. Anyway, we made it to the end, we are leaving, everybody just wanting to talk, catch up, find out what has been going on with us, etc...well, everybody but the ones who, (and you know you have them at your church, too:) wouldn't talk to you if their life depended on it, (you know, the goody goodies, the ones who always want to know about

everybody else's business, but they never call YOU, never ask YOU, how you are, you know the kind! So, anyway, like I said, my hackles are already up, for no apparent reason, and this girl--perfect life, perfect little girl, always dressed to the nines, hides the credit cards from her husband cause she spends so much money on clothes for self and child, doesn't have a clue what it is like to have a child with extra needs (except the extra need of a little discipline:) ), but she IS nice, she does always speak and ask about Sage, etc.Anyway, Sage is having a meltdown in the parking lot, this girl is trying to ask me about Sage, and I am just wanting to scream. So, I end up cutting her a little short, got home, felt bad about being rude, so I called her house to apologize, her husband, (who is my husbands distant cousin) answers the phone and he says "Hey, are y'all coming down?" I say "Um, no, I don't think so. I just called to speak with *****

for a second." He says "Oh, well come on down, we are having **** *****'s party this afternoon." Well, I am sure y'all can take it from there, right?His wife comes and quickly grabs the phone, never mentioning the party, says "Hey, what's up?" I say "Uh, I just called to apologize because I felt that I was rude this morning." She says "Oh, no, I totally understand."Anyway, I hang up thinking, "No, you DON"T understand at all. You DON"T have any idea about the runaway, crazy, unpredictable feelings the parents of special children have. You have the perfect life, (yes y'all, I know that nobody has the "perfect" life, but that's still what I thought anyway), you DON'T the emotions of wanting your child to be treated the same as everyone else, you DON'T have to worry about her not getting invited to birthday parties or other events because other people don't know how to act around her or feel that they can't include her for whatever reason, you

DON'T know the sting of that, you DON'T fluctuate between being strong and being a big cry baby, you DON"T have the knowledge that you have to work extra hard to make sure that your daughter feels worthy and valued and loved and accepted and beautiful and important because you know full well that their are cruel people in this world who love to treat people with disabilities as outcast. Honey, YOU DON'T HAVE A CLUE!!!!" And, I also thought "I bet they were all just standing around waiting for us to leave so they could go party down without us knowing it"---Oh, God, I AM PATHETIC!!!!And, then, after I thought all of that stuff, I sat in the floor and cried, and then, I got up, went outside, and helped my sweet beautiful girls plant a Herb garden, and I was happy:) Anyway, that's it, their is my contribution to the Pity Party Club:)I am such a baby, huh? And, just so you know, I posted a message in my Sage update (the one from the other

day), explaining a bit more about her other medical condition, just in case you're interested:)

[Guest guest]

Janet,

I am sorry you have had a difficult time with this person. I know people can be difficult, especially when we watch them and how they try to manage, or deal with our special children. I cannot understand exactly what you are going through, but as the mom of a special needs child who gets to celebrate birthdays in months, rather than years, I can understand the extra strain and stresses that we mothers face. I also understand melltdowns. When has has his meltdowns, we have had to call the fire department because he has been unable to breathe.

I understand that the grass can always be greener. I know of a 2 moms with their girls in the hospital right now, watching their children fight for their lives. Both were intubated a month ago with a nasty respiratory virus, one is healing from 2 fractures in her leg, which occurred when a physical therapist was strapping the child in a stander. This same little girl, Stella, has been very, very sick with a low heart rate and temperatures at 93. We don't know if she will make it. Stella is 3. She can't talk because of her disease, which causes profound muscle weakness, so could not tell her mommy that the therapist was hurting her. Imagine that mother's grief when she realized she could have been even more forceful when stressing the fragility of her child to the PT. http://www....caringbridge.org/visit/stellaturnbullturnbull

I am thankful my child is alive, and has yet to endure a hospitalization. I never leave the house with my unless it is for a doctors appointment. I am his full time nurse because we do not qualify for nursing care. That means it is 24/7, 365, and at least every 2 hours at night to turn him, and refill his feeding bag. Every night. After went into respiratory arrest last April in the car and we almost lost him, we now have to take all of his equipment with us (CoughAssist, suction, oxygen, emergency bag with resuscitation bag, feeding pump, marine battery, inverter, pulse oximeter, wheelchair). My child will never walk, never be able to sit up on his own, hold his head up or roll. I watch daily as this disease ravages his body, weakening him, causing irreversible contractions of his legs and feet, altering his facial structure to where he cannot close his lips, or his mouth, but can still smile, and for that I am

grateful. I never have a moment when I don't worry about him stopping breathing, and never know when my last day with him will be. But I am blessed beyond measure with this little boy, and would not have it any other way.

I believe that God gives us these daily life challenges because he has chosen us, knowing that we are the type of people who can handle the difficult times. We will stand up for our kids, and protect them in a world that can be very cruel. Our children will be the better for what they have to endure.

I pray that you will find comfort from life's challenges, and that your children, especially Sage, will grow into strong, beautiful people.

Meri

Mommy to , type 1 SMA, 26 months

www.caringbridge.org/visit/aaronphelps

From: Janet <216sa@...>infantile scoliosis treatment Sent: Sun, April 11, 2010 12:19:00 PMSubject: Here's one for the Pity Party section!

O.K, we go back to church for the first time today (well, not the first time-the past two Sunday's we have been at my Mom's church because of special events taking place there), but anyway, today was first day back at MY church, and for some reason my hackles were just up anyway, don't know why, no specific reason, the world and everyone in it was just not sitting right with me today! had to work today, so it was just me and the girls, and Sage was so fidgety, restless, and hot. Tehya was doing her best to be helpful, which just made Sage act out more, and I was ready to pull them both up and storm out. Anyway, we made it to the end, we are leaving, everybody just wanting to talk, catch up, find out what has been going on with us, etc...well, everybody but the ones who, (and you know you have them at your church, too:) wouldn't talk to you if their life depended on it, (you know, the goody goodies, the ones who always want to know about

everybody else's business, but they never call YOU, never ask YOU, how you are, you know the kind! So, anyway, like I said, my hackles are already up, for no apparent reason, and this girl--perfect life, perfect little girl, always dressed to the nines, hides the credit cards from her husband cause she spends so much money on clothes for self and child, doesn't have a clue what it is like to have a child with extra needs (except the extra need of a little discipline:) ), but she IS nice, she does always speak and ask about Sage, etc.Anyway, Sage is having a meltdown in the parking lot, this girl is trying to ask me about Sage, and I am just wanting to scream. So, I end up cutting her a little short, got home, felt bad about being rude, so I called her house to apologize, her husband, (who is my husbands distant cousin) answers the phone and he says "Hey, are y'all coming down?" I say "Um, no, I don't think so. I just called to speak with *****

for a second." He says "Oh, well come on down, we are having **** *****'s party this afternoon." Well, I am sure y'all can take it from there, right?His wife comes and quickly grabs the phone, never mentioning the party, says "Hey, what's up?" I say "Uh, I just called to apologize because I felt that I was rude this morning." She says "Oh, no, I totally understand."Anyway, I hang up thinking, "No, you DON"T understand at all. You DON"T have any idea about the runaway, crazy, unpredictable feelings the parents of special children have. You have the perfect life, (yes y'all, I know that nobody has the "perfect" life, but that's still what I thought anyway), you DON'T the emotions of wanting your child to be treated the same as everyone else, you DON'T have to worry about her not getting invited to birthday parties or other events because other people don't know how to act around her or feel that they can't include her for whatever reason, you

DON'T know the sting of that, you DON'T fluctuate between being strong and being a big cry baby, you DON"T have the knowledge that you have to work extra hard to make sure that your daughter feels worthy and valued and loved and accepted and beautiful and important because you know full well that their are cruel people in this world who love to treat people with disabilities as outcast. Honey, YOU DON'T HAVE A CLUE!!!!" And, I also thought "I bet they were all just standing around waiting for us to leave so they could go party down without us knowing it"---Oh, God, I AM PATHETIC!!!!And, then, after I thought all of that stuff, I sat in the floor and cried, and then, I got up, went outside, and helped my sweet beautiful girls plant a Herb garden, and I was happy:) Anyway, that's it, their is my contribution to the Pity Party Club:)I am such a baby, huh? And, just so you know, I posted a message in my Sage update (the one from the other

day), explaining a bit more about her other medical condition, just in case you're interested:)

[Guest guest]

Janet,

I am sorry you have had a difficult time with this person. I know people can be difficult, especially when we watch them and how they try to manage, or deal with our special children. I cannot understand exactly what you are going through, but as the mom of a special needs child who gets to celebrate birthdays in months, rather than years, I can understand the extra strain and stresses that we mothers face. I also understand melltdowns. When has has his meltdowns, we have had to call the fire department because he has been unable to breathe.

I understand that the grass can always be greener. I know of a 2 moms with their girls in the hospital right now, watching their children fight for their lives. Both were intubated a month ago with a nasty respiratory virus, one is healing from 2 fractures in her leg, which occurred when a physical therapist was strapping the child in a stander. This same little girl, Stella, has been very, very sick with a low heart rate and temperatures at 93. We don't know if she will make it. Stella is 3. She can't talk because of her disease, which causes profound muscle weakness, so could not tell her mommy that the therapist was hurting her. Imagine that mother's grief when she realized she could have been even more forceful when stressing the fragility of her child to the PT. http://www....caringbridge.org/visit/stellaturnbullturnbull

I am thankful my child is alive, and has yet to endure a hospitalization. I never leave the house with my unless it is for a doctors appointment. I am his full time nurse because we do not qualify for nursing care. That means it is 24/7, 365, and at least every 2 hours at night to turn him, and refill his feeding bag. Every night. After went into respiratory arrest last April in the car and we almost lost him, we now have to take all of his equipment with us (CoughAssist, suction, oxygen, emergency bag with resuscitation bag, feeding pump, marine battery, inverter, pulse oximeter, wheelchair). My child will never walk, never be able to sit up on his own, hold his head up or roll. I watch daily as this disease ravages his body, weakening him, causing irreversible contractions of his legs and feet, altering his facial structure to where he cannot close his lips, or his mouth, but can still smile, and for that I am

grateful. I never have a moment when I don't worry about him stopping breathing, and never know when my last day with him will be. But I am blessed beyond measure with this little boy, and would not have it any other way.

I believe that God gives us these daily life challenges because he has chosen us, knowing that we are the type of people who can handle the difficult times. We will stand up for our kids, and protect them in a world that can be very cruel. Our children will be the better for what they have to endure.

I pray that you will find comfort from life's challenges, and that your children, especially Sage, will grow into strong, beautiful people.

Meri

Mommy to , type 1 SMA, 26 months

www.caringbridge.org/visit/aaronphelps

From: Janet <216sa@...>infantile scoliosis treatment Sent: Sun, April 11, 2010 12:19:00 PMSubject: Here's one for the Pity Party section!

O.K, we go back to church for the first time today (well, not the first time-the past two Sunday's we have been at my Mom's church because of special events taking place there), but anyway, today was first day back at MY church, and for some reason my hackles were just up anyway, don't know why, no specific reason, the world and everyone in it was just not sitting right with me today! had to work today, so it was just me and the girls, and Sage was so fidgety, restless, and hot. Tehya was doing her best to be helpful, which just made Sage act out more, and I was ready to pull them both up and storm out. Anyway, we made it to the end, we are leaving, everybody just wanting to talk, catch up, find out what has been going on with us, etc...well, everybody but the ones who, (and you know you have them at your church, too:) wouldn't talk to you if their life depended on it, (you know, the goody goodies, the ones who always want to know about

everybody else's business, but they never call YOU, never ask YOU, how you are, you know the kind! So, anyway, like I said, my hackles are already up, for no apparent reason, and this girl--perfect life, perfect little girl, always dressed to the nines, hides the credit cards from her husband cause she spends so much money on clothes for self and child, doesn't have a clue what it is like to have a child with extra needs (except the extra need of a little discipline:) ), but she IS nice, she does always speak and ask about Sage, etc.Anyway, Sage is having a meltdown in the parking lot, this girl is trying to ask me about Sage, and I am just wanting to scream. So, I end up cutting her a little short, got home, felt bad about being rude, so I called her house to apologize, her husband, (who is my husbands distant cousin) answers the phone and he says "Hey, are y'all coming down?" I say "Um, no, I don't think so. I just called to speak with *****

for a second." He says "Oh, well come on down, we are having **** *****'s party this afternoon." Well, I am sure y'all can take it from there, right?His wife comes and quickly grabs the phone, never mentioning the party, says "Hey, what's up?" I say "Uh, I just called to apologize because I felt that I was rude this morning." She says "Oh, no, I totally understand."Anyway, I hang up thinking, "No, you DON"T understand at all. You DON"T have any idea about the runaway, crazy, unpredictable feelings the parents of special children have. You have the perfect life, (yes y'all, I know that nobody has the "perfect" life, but that's still what I thought anyway), you DON'T the emotions of wanting your child to be treated the same as everyone else, you DON'T have to worry about her not getting invited to birthday parties or other events because other people don't know how to act around her or feel that they can't include her for whatever reason, you

DON'T know the sting of that, you DON'T fluctuate between being strong and being a big cry baby, you DON"T have the knowledge that you have to work extra hard to make sure that your daughter feels worthy and valued and loved and accepted and beautiful and important because you know full well that their are cruel people in this world who love to treat people with disabilities as outcast. Honey, YOU DON'T HAVE A CLUE!!!!" And, I also thought "I bet they were all just standing around waiting for us to leave so they could go party down without us knowing it"---Oh, God, I AM PATHETIC!!!!And, then, after I thought all of that stuff, I sat in the floor and cried, and then, I got up, went outside, and helped my sweet beautiful girls plant a Herb garden, and I was happy:) Anyway, that's it, their is my contribution to the Pity Party Club:)I am such a baby, huh? And, just so you know, I posted a message in my Sage update (the one from the other

day), explaining a bit more about her other medical condition, just in case you're interested:)

[Guest guest]

Hey, Tonya! Yeah, I probably need to learn to not 'tell it like it is quiet so much " !And, sorry, but I am one of the two or three people in the world who doesn't have Facebook:)I feel better already, just for being able to get it out of my system. I know there are not alot of people on here whose child has more than scoliosis, but it still is just good to unload!    

On Sun, Apr 11, 2010 at 2:31 PM, tonya williams <jamienoramom@...> wrote:

 

Janet, feel free to rant and rave all you like, were always here to listen. BTW, I love the way you tell it like it is and speak the truth, regardless of how it sounds or what other (snooty) people think! You're my kinda gal!LOL If you're on facebook send me a friend request! )

 

Tonya Perkins

Asheboro,NC

mother of ,11 &

Nora,4 scoliosis, acid reflux

8th cast, Greenville Shriners,SC

From: Janet <216sa@...>infantile scoliosis treatment

Sent: Sun, April 11, 2010 3:19:00 PMSubject: Here's one for the Pity Party section!

 

O.K, we go back to church for the first time today (well, not the first time-the past two Sunday's we have been at my Mom's church because of special events taking place there), but anyway, today was first day back at MY church, and for some reason my hackles were just up anyway, don't know why, no specific reason, the world and everyone in it was just not sitting right with me today!

had to work today, so it was just me and the girls, and Sage was so fidgety, restless, and hot. Tehya was doing her best to be helpful, which just made Sage act out more, and I was ready to pull them both up and storm out.

Anyway, we made it to the end, we are leaving, everybody just wanting to talk, catch up, find out what has been going on with us, etc...well, everybody but the ones who, (and you know you have them at your church, too:) wouldn't talk to you if their life depended on it, (you know, the goody goodies, the ones who always want to know about

everybody else's business, but they never call YOU, never ask YOU, how you are, you know the kind! So, anyway, like I said, my hackles are already up, for no apparent reason, and this girl--perfect life, perfect little girl, always dressed to the nines, hides the credit cards from her husband cause she spends so much money on clothes for self and child, doesn't have a clue what it is like to have a child with extra needs (except the extra need of a little discipline:) ), but she IS nice, she does always speak and ask about Sage, etc.

Anyway, Sage is having a meltdown in the parking lot, this girl is trying to ask me about Sage, and I am just wanting to scream. So, I end up cutting her a little short, got home, felt bad about being rude, so I called her house to apologize, her husband, (who is my husbands distant cousin) answers the phone and he says " Hey, are y'all coming down? " I say " Um, no, I don't think so. I just called to speak with *****

for a second. " He says " Oh, well come on down, we are having **** *****'s party this afternoon. " Well, I am sure y'all can take it from there, right?His wife comes and quickly grabs the phone, never mentioning the party, says " Hey, what's up? " I say " Uh, I just called to apologize because I felt that I was rude this morning. " She says " Oh, no, I totally understand. "

Anyway, I hang up thinking, " No, you DON " T understand at all. You DON " T have any idea about the runaway, crazy, unpredictable feelings the parents of special children have. You have the perfect life, (yes y'all, I know that nobody has the " perfect " life, but that's still what I thought anyway), you DON'T the emotions of wanting your child to be treated the same as everyone else, you DON'T have to worry about her not getting invited to birthday parties or other events because other people don't know how to act around her or feel that they can't include her for whatever reason, you

DON'T know the sting of that, you DON'T fluctuate between being strong and being a big cry baby, you DON " T have the knowledge that you have to work extra hard to make sure that your daughter feels worthy and valued and loved and accepted and beautiful and important because you know full well that their are cruel people in this world who love to treat people with disabilities as outcast. Honey, YOU DON'T HAVE A CLUE!!!! "

And, I also thought " I bet they were all just standing around waiting for us to leave so they could go party down without us knowing it " ---Oh, God, I AM PATHETIC!!!!And, then, after I thought all of that stuff, I sat in the floor and cried, and then, I got up, went outside, and helped my sweet beautiful girls plant a Herb garden, and I was happy:)

Anyway, that's it, their is my contribution to the Pity Party Club:)I am such a baby, huh? And, just so you know, I posted a message in my Sage update (the one from the other

day), explaining a bit more about her other medical condition, just in case you're interested:)

[Guest guest]

Hey, Tonya! Yeah, I probably need to learn to not 'tell it like it is quiet so much " !And, sorry, but I am one of the two or three people in the world who doesn't have Facebook:)I feel better already, just for being able to get it out of my system. I know there are not alot of people on here whose child has more than scoliosis, but it still is just good to unload!    

On Sun, Apr 11, 2010 at 2:31 PM, tonya williams <jamienoramom@...> wrote:

 

Janet, feel free to rant and rave all you like, were always here to listen. BTW, I love the way you tell it like it is and speak the truth, regardless of how it sounds or what other (snooty) people think! You're my kinda gal!LOL If you're on facebook send me a friend request! )

 

Tonya Perkins

Asheboro,NC

mother of ,11 &

Nora,4 scoliosis, acid reflux

8th cast, Greenville Shriners,SC

From: Janet <216sa@...>infantile scoliosis treatment

Sent: Sun, April 11, 2010 3:19:00 PMSubject: Here's one for the Pity Party section!

 

O.K, we go back to church for the first time today (well, not the first time-the past two Sunday's we have been at my Mom's church because of special events taking place there), but anyway, today was first day back at MY church, and for some reason my hackles were just up anyway, don't know why, no specific reason, the world and everyone in it was just not sitting right with me today!

had to work today, so it was just me and the girls, and Sage was so fidgety, restless, and hot. Tehya was doing her best to be helpful, which just made Sage act out more, and I was ready to pull them both up and storm out.

Anyway, we made it to the end, we are leaving, everybody just wanting to talk, catch up, find out what has been going on with us, etc...well, everybody but the ones who, (and you know you have them at your church, too:) wouldn't talk to you if their life depended on it, (you know, the goody goodies, the ones who always want to know about

everybody else's business, but they never call YOU, never ask YOU, how you are, you know the kind! So, anyway, like I said, my hackles are already up, for no apparent reason, and this girl--perfect life, perfect little girl, always dressed to the nines, hides the credit cards from her husband cause she spends so much money on clothes for self and child, doesn't have a clue what it is like to have a child with extra needs (except the extra need of a little discipline:) ), but she IS nice, she does always speak and ask about Sage, etc.

Anyway, Sage is having a meltdown in the parking lot, this girl is trying to ask me about Sage, and I am just wanting to scream. So, I end up cutting her a little short, got home, felt bad about being rude, so I called her house to apologize, her husband, (who is my husbands distant cousin) answers the phone and he says " Hey, are y'all coming down? " I say " Um, no, I don't think so. I just called to speak with *****

for a second. " He says " Oh, well come on down, we are having **** *****'s party this afternoon. " Well, I am sure y'all can take it from there, right?His wife comes and quickly grabs the phone, never mentioning the party, says " Hey, what's up? " I say " Uh, I just called to apologize because I felt that I was rude this morning. " She says " Oh, no, I totally understand. "

Anyway, I hang up thinking, " No, you DON " T understand at all. You DON " T have any idea about the runaway, crazy, unpredictable feelings the parents of special children have. You have the perfect life, (yes y'all, I know that nobody has the " perfect " life, but that's still what I thought anyway), you DON'T the emotions of wanting your child to be treated the same as everyone else, you DON'T have to worry about her not getting invited to birthday parties or other events because other people don't know how to act around her or feel that they can't include her for whatever reason, you

DON'T know the sting of that, you DON'T fluctuate between being strong and being a big cry baby, you DON " T have the knowledge that you have to work extra hard to make sure that your daughter feels worthy and valued and loved and accepted and beautiful and important because you know full well that their are cruel people in this world who love to treat people with disabilities as outcast. Honey, YOU DON'T HAVE A CLUE!!!! "

And, I also thought " I bet they were all just standing around waiting for us to leave so they could go party down without us knowing it " ---Oh, God, I AM PATHETIC!!!!And, then, after I thought all of that stuff, I sat in the floor and cried, and then, I got up, went outside, and helped my sweet beautiful girls plant a Herb garden, and I was happy:)

Anyway, that's it, their is my contribution to the Pity Party Club:)I am such a baby, huh? And, just so you know, I posted a message in my Sage update (the one from the other

day), explaining a bit more about her other medical condition, just in case you're interested:)

[Guest guest]

Janet,I am wanting to say ugly words right now about that "girl", but wanted to tell you what a GREAT mom you are to sweet Sage. And such a strong woman!!! I wish I could have been there with you to give you a hug, sit and listen and help with that garden. Working with God's earth always makes me feel better........ahhhh natural therapy. Hope you are feeling better now. TashaMommy of 5 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months. Brace 10 months 23hrs a day. Night bracing from July 08-present. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantilescoliosis.org/stories.htmlFrom: Janet <216sa@...>infantile scoliosis treatment Sent: Sun, April 11, 2010 2:19:00 PMSubject: Here's one for the Pity Party section!

O.K, we go back to church for the first time today (well, not the first time-the past two Sunday's we have been at my Mom's church because of special events taking place there), but anyway, today was first day back at MY church, and for some reason my hackles were just up anyway, don't know why, no specific reason, the world and everyone in it was just not sitting right with me today!

had to work today, so it was just me and the girls, and Sage was so fidgety, restless, and hot. Tehya was doing her best to be helpful, which just made Sage act out more, and I was ready to pull them both up and storm out.

Anyway, we made it to the end, we are leaving, everybody just wanting to talk, catch up, find out what has been going on with us, etc...well, everybody but the ones who, (and you know you have them at your church, too:) wouldn't talk to you if their life depended on it, (you know, the goody goodies, the ones who always want to know about everybody else's business, but they never call YOU, never ask YOU, how you are, you know the kind!

So, anyway, like I said, my hackles are already up, for no apparent reason, and this girl--perfect life, perfect little girl, always dressed to the nines, hides the credit cards from her husband cause she spends so much money on clothes for self and child, doesn't have a clue what it is like to have a child with extra needs (except the extra need of a little discipline:) ), but she IS nice, she does always speak and ask about Sage, etc.

Anyway, Sage is having a meltdown in the parking lot, this girl is trying to ask me about Sage, and I am just wanting to scream. So, I end up cutting her a little short, got home, felt bad about being rude, so I called her house to apologize, her husband, (who is my husbands distant cousin) answers the phone and he says "Hey, are y'all coming down?" I say "Um, no, I don't think so. I just called to speak with ***** for a second." He says "Oh, well come on down, we are having **** *****'s party this afternoon."

Well, I am sure y'all can take it from there, right?

His wife comes and quickly grabs the phone, never mentioning the party, says "Hey, what's up?" I say "Uh, I just called to apologize because I felt that I was rude this morning." She says "Oh, no, I totally understand."

Anyway, I hang up thinking, "No, you DON"T understand at all. You DON"T have any idea about the runaway, crazy, unpredictable feelings the parents of special children have. You have the perfect life, (yes y'all, I know that nobody has the "perfect" life, but that's still what I thought anyway), you DON'T the emotions of wanting your child to be treated the same as everyone else, you DON'T have to worry about her not getting invited to birthday parties or other events because other people don't know how to act around her or feel that they can't include her for whatever reason, you DON'T know the sting of that, you DON'T fluctuate between being strong and being a big cry baby, you DON"T have the knowledge that you have to work extra hard to make sure that your daughter feels worthy and valued and loved and accepted and beautiful and important because you know full well that their are cruel people in this world who love to treat people with disabilities as

outcast. Honey, YOU DON'T HAVE A CLUE!!!!"

And, I also thought "I bet they were all just standing around waiting for us to leave so they could go party down without us knowing it"---Oh, God, I AM PATHETIC!!!!

And, then, after I thought all of that stuff, I sat in the floor and cried, and then, I got up, went outside, and helped my sweet beautiful girls plant a Herb garden, and I was happy:)

Anyway, that's it, their is my contribution to the Pity Party Club:)I am such a baby, huh?

And, just so you know, I posted a message in my Sage update (the one from the other day), explaining a bit more about her other medical condition, just in case you're interested:)

[Guest guest]

Janet,I am wanting to say ugly words right now about that "girl", but wanted to tell you what a GREAT mom you are to sweet Sage. And such a strong woman!!! I wish I could have been there with you to give you a hug, sit and listen and help with that garden. Working with God's earth always makes me feel better........ahhhh natural therapy. Hope you are feeling better now. TashaMommy of 5 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months. Brace 10 months 23hrs a day. Night bracing from July 08-present. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantilescoliosis.org/stories.htmlFrom: Janet <216sa@...>infantile scoliosis treatment Sent: Sun, April 11, 2010 2:19:00 PMSubject: Here's one for the Pity Party section!

O.K, we go back to church for the first time today (well, not the first time-the past two Sunday's we have been at my Mom's church because of special events taking place there), but anyway, today was first day back at MY church, and for some reason my hackles were just up anyway, don't know why, no specific reason, the world and everyone in it was just not sitting right with me today!

had to work today, so it was just me and the girls, and Sage was so fidgety, restless, and hot. Tehya was doing her best to be helpful, which just made Sage act out more, and I was ready to pull them both up and storm out.

Anyway, we made it to the end, we are leaving, everybody just wanting to talk, catch up, find out what has been going on with us, etc...well, everybody but the ones who, (and you know you have them at your church, too:) wouldn't talk to you if their life depended on it, (you know, the goody goodies, the ones who always want to know about everybody else's business, but they never call YOU, never ask YOU, how you are, you know the kind!

So, anyway, like I said, my hackles are already up, for no apparent reason, and this girl--perfect life, perfect little girl, always dressed to the nines, hides the credit cards from her husband cause she spends so much money on clothes for self and child, doesn't have a clue what it is like to have a child with extra needs (except the extra need of a little discipline:) ), but she IS nice, she does always speak and ask about Sage, etc.

Anyway, Sage is having a meltdown in the parking lot, this girl is trying to ask me about Sage, and I am just wanting to scream. So, I end up cutting her a little short, got home, felt bad about being rude, so I called her house to apologize, her husband, (who is my husbands distant cousin) answers the phone and he says "Hey, are y'all coming down?" I say "Um, no, I don't think so. I just called to speak with ***** for a second." He says "Oh, well come on down, we are having **** *****'s party this afternoon."

Well, I am sure y'all can take it from there, right?

His wife comes and quickly grabs the phone, never mentioning the party, says "Hey, what's up?" I say "Uh, I just called to apologize because I felt that I was rude this morning." She says "Oh, no, I totally understand."

Anyway, I hang up thinking, "No, you DON"T understand at all. You DON"T have any idea about the runaway, crazy, unpredictable feelings the parents of special children have. You have the perfect life, (yes y'all, I know that nobody has the "perfect" life, but that's still what I thought anyway), you DON'T the emotions of wanting your child to be treated the same as everyone else, you DON'T have to worry about her not getting invited to birthday parties or other events because other people don't know how to act around her or feel that they can't include her for whatever reason, you DON'T know the sting of that, you DON'T fluctuate between being strong and being a big cry baby, you DON"T have the knowledge that you have to work extra hard to make sure that your daughter feels worthy and valued and loved and accepted and beautiful and important because you know full well that their are cruel people in this world who love to treat people with disabilities as

outcast. Honey, YOU DON'T HAVE A CLUE!!!!"

And, I also thought "I bet they were all just standing around waiting for us to leave so they could go party down without us knowing it"---Oh, God, I AM PATHETIC!!!!

And, then, after I thought all of that stuff, I sat in the floor and cried, and then, I got up, went outside, and helped my sweet beautiful girls plant a Herb garden, and I was happy:)

Anyway, that's it, their is my contribution to the Pity Party Club:)I am such a baby, huh?

And, just so you know, I posted a message in my Sage update (the one from the other day), explaining a bit more about her other medical condition, just in case you're interested:)

[Guest guest]

Janet,Thanks for sharing that story, and I'm glad this is a safe place to vent! We all need it sometimes. Good for you for turning it around and doing something beautiful with your day, the people who don't invite us are really not the ones we want to be friends with, anyway : ) Heidi, Bexon's Mommy, (2 and a half years old, in 6th cast from Salt Lake City Shriners, currently down from 61 degrees to 25 in cast)From: Janet

<216sa@...>infantile scoliosis treatment Sent: Sun, April 11, 2010 12:19:00 PMSubject: Here's one for the Pity Party section!

O.K, we go back to church for the first time today (well, not the first time-the past two Sunday's we have been at my Mom's church because of special events taking place there), but anyway, today was first day back at MY church, and for some reason my hackles were just up anyway, don't know why, no specific reason, the world and everyone in it was just not sitting right with me today!

had to work today, so it was just me and the girls, and Sage was so fidgety, restless, and hot. Tehya was doing her best to be helpful, which just made Sage act out more, and I was ready to pull them both up and storm out.

Anyway, we made it to the end, we are leaving, everybody just wanting to talk, catch up, find out what has been going on with us, etc...well, everybody but the ones who, (and you know you have them at your church, too:) wouldn't talk to you if their life depended on it, (you know, the goody goodies, the ones who always want to know about everybody else's business, but they never call YOU, never ask YOU, how you are, you know the kind!

So, anyway, like I said, my hackles are already up, for no apparent reason, and this girl--perfect life, perfect little girl, always dressed to the nines, hides the credit cards from her husband cause she spends so much money on clothes for self and child, doesn't have a clue what it is like to have a child with extra needs (except the extra need of a little discipline:) ), but she IS nice, she does always speak and ask about Sage, etc.

Anyway, Sage is having a meltdown in the parking lot, this girl is trying to ask me about Sage, and I am just wanting to scream. So, I end up cutting her a little short, got home, felt bad about being rude, so I called her house to apologize, her husband, (who is my husbands distant cousin) answers the phone and he says "Hey, are y'all coming down?" I say "Um, no, I don't think so. I just called to speak with ***** for a second." He says "Oh, well come on down, we are having **** *****'s party this afternoon."

Well, I am sure y'all can take it from there, right?

His wife comes and quickly grabs the phone, never mentioning the party, says "Hey, what's up?" I say "Uh, I just called to apologize because I felt that I was rude this morning." She says "Oh, no, I totally understand."

Anyway, I hang up thinking, "No, you DON"T understand at all. You DON"T have any idea about the runaway, crazy, unpredictable feelings the parents of special children have. You have the perfect life, (yes y'all, I know that nobody has the "perfect" life, but that's still what I thought anyway), you DON'T the emotions of wanting your child to be treated the same as everyone else, you DON'T have to worry about her not getting invited to birthday parties or other events because other people don't know how to act around her or feel that they can't include her for whatever reason, you DON'T know the sting of that, you DON'T fluctuate between being strong and being a big cry baby, you DON"T have the knowledge that you have to work extra hard to make sure that your daughter feels worthy and valued and loved and accepted and beautiful and important because you know full well that their are cruel people in this world who love to treat people with disabilities as

outcast. Honey, YOU DON'T HAVE A CLUE!!!!"

And, I also thought "I bet they were all just standing around waiting for us to leave so they could go party down without us knowing it"---Oh, God, I AM PATHETIC!!!!

And, then, after I thought all of that stuff, I sat in the floor and cried, and then, I got up, went outside, and helped my sweet beautiful girls plant a Herb garden, and I was happy:)

Anyway, that's it, their is my contribution to the Pity Party Club:)I am such a baby, huh?

And, just so you know, I posted a message in my Sage update (the one from the other day), explaining a bit more about her other medical condition, just in case you're interested:)

[Guest guest]

Janet,Thanks for sharing that story, and I'm glad this is a safe place to vent! We all need it sometimes. Good for you for turning it around and doing something beautiful with your day, the people who don't invite us are really not the ones we want to be friends with, anyway : ) Heidi, Bexon's Mommy, (2 and a half years old, in 6th cast from Salt Lake City Shriners, currently down from 61 degrees to 25 in cast)From: Janet

<216sa@...>infantile scoliosis treatment Sent: Sun, April 11, 2010 12:19:00 PMSubject: Here's one for the Pity Party section!

O.K, we go back to church for the first time today (well, not the first time-the past two Sunday's we have been at my Mom's church because of special events taking place there), but anyway, today was first day back at MY church, and for some reason my hackles were just up anyway, don't know why, no specific reason, the world and everyone in it was just not sitting right with me today!

had to work today, so it was just me and the girls, and Sage was so fidgety, restless, and hot. Tehya was doing her best to be helpful, which just made Sage act out more, and I was ready to pull them both up and storm out.

Anyway, we made it to the end, we are leaving, everybody just wanting to talk, catch up, find out what has been going on with us, etc...well, everybody but the ones who, (and you know you have them at your church, too:) wouldn't talk to you if their life depended on it, (you know, the goody goodies, the ones who always want to know about everybody else's business, but they never call YOU, never ask YOU, how you are, you know the kind!

So, anyway, like I said, my hackles are already up, for no apparent reason, and this girl--perfect life, perfect little girl, always dressed to the nines, hides the credit cards from her husband cause she spends so much money on clothes for self and child, doesn't have a clue what it is like to have a child with extra needs (except the extra need of a little discipline:) ), but she IS nice, she does always speak and ask about Sage, etc.

Anyway, Sage is having a meltdown in the parking lot, this girl is trying to ask me about Sage, and I am just wanting to scream. So, I end up cutting her a little short, got home, felt bad about being rude, so I called her house to apologize, her husband, (who is my husbands distant cousin) answers the phone and he says "Hey, are y'all coming down?" I say "Um, no, I don't think so. I just called to speak with ***** for a second." He says "Oh, well come on down, we are having **** *****'s party this afternoon."

Well, I am sure y'all can take it from there, right?

His wife comes and quickly grabs the phone, never mentioning the party, says "Hey, what's up?" I say "Uh, I just called to apologize because I felt that I was rude this morning." She says "Oh, no, I totally understand."

Anyway, I hang up thinking, "No, you DON"T understand at all. You DON"T have any idea about the runaway, crazy, unpredictable feelings the parents of special children have. You have the perfect life, (yes y'all, I know that nobody has the "perfect" life, but that's still what I thought anyway), you DON'T the emotions of wanting your child to be treated the same as everyone else, you DON'T have to worry about her not getting invited to birthday parties or other events because other people don't know how to act around her or feel that they can't include her for whatever reason, you DON'T know the sting of that, you DON'T fluctuate between being strong and being a big cry baby, you DON"T have the knowledge that you have to work extra hard to make sure that your daughter feels worthy and valued and loved and accepted and beautiful and important because you know full well that their are cruel people in this world who love to treat people with disabilities as

outcast. Honey, YOU DON'T HAVE A CLUE!!!!"

And, I also thought "I bet they were all just standing around waiting for us to leave so they could go party down without us knowing it"---Oh, God, I AM PATHETIC!!!!

And, then, after I thought all of that stuff, I sat in the floor and cried, and then, I got up, went outside, and helped my sweet beautiful girls plant a Herb garden, and I was happy:)

Anyway, that's it, their is my contribution to the Pity Party Club:)I am such a baby, huh?

And, just so you know, I posted a message in my Sage update (the one from the other day), explaining a bit more about her other medical condition, just in case you're interested:)

[Guest guest]

Meri,I saw your sweet 's smiling picture on his Caring Bridge page, he's adorable. What a strong, brave mother you are, I admire all that you do for your little boy and pray there is a cure found for SMA very soon.God Bless,Heidi, Bexon's Mommy, (2 and a half years old, in 6th cast from Salt Lake City Shriners, currently down from 61 degrees to 25 in cast)From: Meri Stratton Phelps

<allcreaturesvncs@...>infantile scoliosis treatment Sent: Sun, April 11, 2010 2:09:46 PMSubject: Re: Here's one for the Pity Party section!

Janet,

I am sorry you have had a difficult time with this person. I know people can be difficult, especially when we watch them and how they try to manage, or deal with our special children. I cannot understand exactly what you are going through, but as the mom of a special needs child who gets to celebrate birthdays in months, rather than years, I can understand the extra strain and stresses that we mothers face. I also understand melltdowns. When has has his meltdowns, we have had to call the fire department because he has been unable to breathe.

I understand that the grass can always be greener. I know of a 2 moms with their girls in the hospital right now, watching their children fight for their lives. Both were intubated a month ago with a nasty respiratory virus, one is healing from 2 fractures in her leg, which occurred when a physical therapist was strapping the child in a stander. This same little girl, Stella, has been very, very sick with a low heart rate and temperatures at 93. We don't know if she will make it. Stella is 3. She can't talk because of her disease, which causes profound muscle weakness, so could not tell her mommy that the therapist was hurting her. Imagine that mother's grief when she realized she could have been even more forceful when stressing the fragility of her child to the PT. http://www....caringbridge. org/visit/ stellaturnbullturnbull

I am thankful my child is alive, and has yet to endure a hospitalization. I never leave the house with my unless it is for a doctors appointment. I am his full time nurse because we do not qualify for nursing care. That means it is 24/7, 365, and at least every 2 hours at night to turn him, and refill his feeding bag. Every night. After went into respiratory arrest last April in the car and we almost lost him, we now have to take all of his equipment with us (CoughAssist, suction, oxygen, emergency bag with resuscitation bag, feeding pump, marine battery, inverter, pulse oximeter, wheelchair). My child will never walk, never be able to sit up on his own, hold his head up or roll. I watch daily as this disease ravages his body, weakening him, causing irreversible contractions of his legs and feet, altering his facial structure to where he cannot close his lips, or his mouth, but can still smile, and for that I am

grateful. I never have a moment when I don't worry about him stopping breathing, and never know when my last day with him will be. But I am blessed beyond measure with this little boy, and would not have it any other way.

I believe that God gives us these daily life challenges because he has chosen us, knowing that we are the type of people who can handle the difficult times. We will stand up for our kids, and protect them in a world that can be very cruel. Our children will be the better for what they have to endure.

I pray that you will find comfort from life's challenges, and that your children, especially Sage, will grow into strong, beautiful people.

Meri

Mommy to , type 1 SMA, 26 months

www.caringbridge. org/visit/ aaronphelps

From: Janet <216sa@...>infantile scoliosis treatment @groups. comSent: Sun, April 11, 2010 12:19:00 PMSubject: [infantile_scoliosi s] Here's one for the Pity Party section!

O.K, we go back to church for the first time today (well, not the first time-the past two Sunday's we have been at my Mom's church because of special events taking place there), but anyway, today was first day back at MY church, and for some reason my hackles were just up anyway, don't know why, no specific reason, the world and everyone in it was just not sitting right with me today! had to work today, so it was just me and the girls, and Sage was so fidgety, restless, and hot. Tehya was doing her best to be helpful, which just made Sage act out more, and I was ready to pull them both up and storm out. Anyway, we made it to the end, we are leaving, everybody just wanting to talk, catch up, find out what has been going on with us, etc...well, everybody but the ones who, (and you know you have them at your church, too:) wouldn't talk to you if their life depended on it, (you know, the goody goodies, the ones who always want to know about

everybody else's business, but they never call YOU, never ask YOU, how you are, you know the kind! So, anyway, like I said, my hackles are already up, for no apparent reason, and this girl--perfect life, perfect little girl, always dressed to the nines, hides the credit cards from her husband cause she spends so much money on clothes for self and child, doesn't have a clue what it is like to have a child with extra needs (except the extra need of a little discipline:) ), but she IS nice, she does always speak and ask about Sage, etc.Anyway, Sage is having a meltdown in the parking lot, this girl is trying to ask me about Sage, and I am just wanting to scream. So, I end up cutting her a little short, got home, felt bad about being rude, so I called her house to apologize, her husband, (who is my husbands distant cousin) answers the phone and he says "Hey, are y'all coming down?" I say "Um, no, I don't think so. I just called to speak with *****

for a second." He says "Oh, well come on down, we are having **** *****'s party this afternoon." Well, I am sure y'all can take it from there, right?His wife comes and quickly grabs the phone, never mentioning the party, says "Hey, what's up?" I say "Uh, I just called to apologize because I felt that I was rude this morning." She says "Oh, no, I totally understand."Anyway, I hang up thinking, "No, you DON"T understand at all. You DON"T have any idea about the runaway, crazy, unpredictable feelings the parents of special children have. You have the perfect life, (yes y'all, I know that nobody has the "perfect" life, but that's still what I thought anyway), you DON'T the emotions of wanting your child to be treated the same as everyone else, you DON'T have to worry about her not getting invited to birthday parties or other events because other people don't know how to act around her or feel that they can't include her for whatever reason, you

DON'T know the sting of that, you DON'T fluctuate between being strong and being a big cry baby, you DON"T have the knowledge that you have to work extra hard to make sure that your daughter feels worthy and valued and loved and accepted and beautiful and important because you know full well that their are cruel people in this world who love to treat people with disabilities as outcast. Honey, YOU DON'T HAVE A CLUE!!!!" And, I also thought "I bet they were all just standing around waiting for us to leave so they could go party down without us knowing it"---Oh, God, I AM PATHETIC!!!!And, then, after I thought all of that stuff, I sat in the floor and cried, and then, I got up, went outside, and helped my sweet beautiful girls plant a Herb garden, and I was happy:) Anyway, that's it, their is my contribution to the Pity Party Club:)I am such a baby, huh? And, just so you know, I posted a message in my Sage update (the one from the other

day), explaining a bit more about her other medical condition, just in case you're interested:)

[Guest guest]

Meri,I saw your sweet 's smiling picture on his Caring Bridge page, he's adorable. What a strong, brave mother you are, I admire all that you do for your little boy and pray there is a cure found for SMA very soon.God Bless,Heidi, Bexon's Mommy, (2 and a half years old, in 6th cast from Salt Lake City Shriners, currently down from 61 degrees to 25 in cast)From: Meri Stratton Phelps

<allcreaturesvncs@...>infantile scoliosis treatment Sent: Sun, April 11, 2010 2:09:46 PMSubject: Re: Here's one for the Pity Party section!

Janet,

I am sorry you have had a difficult time with this person. I know people can be difficult, especially when we watch them and how they try to manage, or deal with our special children. I cannot understand exactly what you are going through, but as the mom of a special needs child who gets to celebrate birthdays in months, rather than years, I can understand the extra strain and stresses that we mothers face. I also understand melltdowns. When has has his meltdowns, we have had to call the fire department because he has been unable to breathe.

I understand that the grass can always be greener. I know of a 2 moms with their girls in the hospital right now, watching their children fight for their lives. Both were intubated a month ago with a nasty respiratory virus, one is healing from 2 fractures in her leg, which occurred when a physical therapist was strapping the child in a stander. This same little girl, Stella, has been very, very sick with a low heart rate and temperatures at 93. We don't know if she will make it. Stella is 3. She can't talk because of her disease, which causes profound muscle weakness, so could not tell her mommy that the therapist was hurting her. Imagine that mother's grief when she realized she could have been even more forceful when stressing the fragility of her child to the PT. http://www....caringbridge. org/visit/ stellaturnbullturnbull

I am thankful my child is alive, and has yet to endure a hospitalization. I never leave the house with my unless it is for a doctors appointment. I am his full time nurse because we do not qualify for nursing care. That means it is 24/7, 365, and at least every 2 hours at night to turn him, and refill his feeding bag. Every night. After went into respiratory arrest last April in the car and we almost lost him, we now have to take all of his equipment with us (CoughAssist, suction, oxygen, emergency bag with resuscitation bag, feeding pump, marine battery, inverter, pulse oximeter, wheelchair). My child will never walk, never be able to sit up on his own, hold his head up or roll. I watch daily as this disease ravages his body, weakening him, causing irreversible contractions of his legs and feet, altering his facial structure to where he cannot close his lips, or his mouth, but can still smile, and for that I am

grateful. I never have a moment when I don't worry about him stopping breathing, and never know when my last day with him will be. But I am blessed beyond measure with this little boy, and would not have it any other way.

I believe that God gives us these daily life challenges because he has chosen us, knowing that we are the type of people who can handle the difficult times. We will stand up for our kids, and protect them in a world that can be very cruel. Our children will be the better for what they have to endure.

I pray that you will find comfort from life's challenges, and that your children, especially Sage, will grow into strong, beautiful people.

Meri

Mommy to , type 1 SMA, 26 months

www.caringbridge. org/visit/ aaronphelps

From: Janet <216sa@...>infantile scoliosis treatment @groups. comSent: Sun, April 11, 2010 12:19:00 PMSubject: [infantile_scoliosi s] Here's one for the Pity Party section!

O.K, we go back to church for the first time today (well, not the first time-the past two Sunday's we have been at my Mom's church because of special events taking place there), but anyway, today was first day back at MY church, and for some reason my hackles were just up anyway, don't know why, no specific reason, the world and everyone in it was just not sitting right with me today! had to work today, so it was just me and the girls, and Sage was so fidgety, restless, and hot. Tehya was doing her best to be helpful, which just made Sage act out more, and I was ready to pull them both up and storm out. Anyway, we made it to the end, we are leaving, everybody just wanting to talk, catch up, find out what has been going on with us, etc...well, everybody but the ones who, (and you know you have them at your church, too:) wouldn't talk to you if their life depended on it, (you know, the goody goodies, the ones who always want to know about

everybody else's business, but they never call YOU, never ask YOU, how you are, you know the kind! So, anyway, like I said, my hackles are already up, for no apparent reason, and this girl--perfect life, perfect little girl, always dressed to the nines, hides the credit cards from her husband cause she spends so much money on clothes for self and child, doesn't have a clue what it is like to have a child with extra needs (except the extra need of a little discipline:) ), but she IS nice, she does always speak and ask about Sage, etc.Anyway, Sage is having a meltdown in the parking lot, this girl is trying to ask me about Sage, and I am just wanting to scream. So, I end up cutting her a little short, got home, felt bad about being rude, so I called her house to apologize, her husband, (who is my husbands distant cousin) answers the phone and he says "Hey, are y'all coming down?" I say "Um, no, I don't think so. I just called to speak with *****

for a second." He says "Oh, well come on down, we are having **** *****'s party this afternoon." Well, I am sure y'all can take it from there, right?His wife comes and quickly grabs the phone, never mentioning the party, says "Hey, what's up?" I say "Uh, I just called to apologize because I felt that I was rude this morning." She says "Oh, no, I totally understand."Anyway, I hang up thinking, "No, you DON"T understand at all. You DON"T have any idea about the runaway, crazy, unpredictable feelings the parents of special children have. You have the perfect life, (yes y'all, I know that nobody has the "perfect" life, but that's still what I thought anyway), you DON'T the emotions of wanting your child to be treated the same as everyone else, you DON'T have to worry about her not getting invited to birthday parties or other events because other people don't know how to act around her or feel that they can't include her for whatever reason, you

DON'T know the sting of that, you DON'T fluctuate between being strong and being a big cry baby, you DON"T have the knowledge that you have to work extra hard to make sure that your daughter feels worthy and valued and loved and accepted and beautiful and important because you know full well that their are cruel people in this world who love to treat people with disabilities as outcast. Honey, YOU DON'T HAVE A CLUE!!!!" And, I also thought "I bet they were all just standing around waiting for us to leave so they could go party down without us knowing it"---Oh, God, I AM PATHETIC!!!!And, then, after I thought all of that stuff, I sat in the floor and cried, and then, I got up, went outside, and helped my sweet beautiful girls plant a Herb garden, and I was happy:) Anyway, that's it, their is my contribution to the Pity Party Club:)I am such a baby, huh? And, just so you know, I posted a message in my Sage update (the one from the other

day), explaining a bit more about her other medical condition, just in case you're interested:)

[Guest guest]

Don't even give that "girl" a second thought. She has no idea what a wonderful, loving, devoted mother you are and doesn't deserve your friendship. You turned a bad day into a beautiful day with your girls. God Bless. and HUGS to you all. Joanmom to Hayden 339 degrees down from 62Cast number 4Treated at ish Rite Hospital Dallas, TX

From: Janet <216sa@...>infantile scoliosis treatment Sent: Sun, April 11, 2010 2:19:00 PMSubject: Here's one for the Pity Party section!

O.K, we go back to church for the first time today (well, not the first time-the past two Sunday's we have been at my Mom's church because of special events taking place there), but anyway, today was first day back at MY church, and for some reason my hackles were just up anyway, don't know why, no specific reason, the world and everyone in it was just not sitting right with me today! had to work today, so it was just me and the girls, and Sage was so fidgety, restless, and hot. Tehya was doing her best to be helpful, which just made Sage act out more, and I was ready to pull them both up and storm out. Anyway, we made it to the end, we are leaving, everybody just wanting to talk, catch up, find out what has been going on with us, etc...well, everybody but the ones who, (and you know you have them at your church, too:) wouldn't talk to you if their life depended on it, (you know, the goody goodies, the ones who always want to know about

everybody else's business, but they never call YOU, never ask YOU, how you are, you know the kind! So, anyway, like I said, my hackles are already up, for no apparent reason, and this girl--perfect life, perfect little girl, always dressed to the nines, hides the credit cards from her husband cause she spends so much money on clothes for self and child, doesn't have a clue what it is like to have a child with extra needs (except the extra need of a little discipline:) ), but she IS nice, she does always speak and ask about Sage, etc.Anyway, Sage is having a meltdown in the parking lot, this girl is trying to ask me about Sage, and I am just wanting to scream. So, I end up cutting her a little short, got home, felt bad about being rude, so I called her house to apologize, her husband, (who is my husbands distant cousin) answers the phone and he says "Hey, are y'all coming down?" I say "Um, no, I don't think so. I just called to speak with *****

for a second." He says "Oh, well come on down, we are having **** *****'s party this afternoon." Well, I am sure y'all can take it from there, right?His wife comes and quickly grabs the phone, never mentioning the party, says "Hey, what's up?" I say "Uh, I just called to apologize because I felt that I was rude this morning." She says "Oh, no, I totally understand."Anyway, I hang up thinking, "No, you DON"T understand at all. You DON"T have any idea about the runaway, crazy, unpredictable feelings the parents of special children have. You have the perfect life, (yes y'all, I know that nobody has the "perfect" life, but that's still what I thought anyway), you DON'T the emotions of wanting your child to be treated the same as everyone else, you DON'T have to worry about her not getting invited to birthday parties or other events because other people don't know how to act around her or feel that they can't include her for whatever reason, you

DON'T know the sting of that, you DON'T fluctuate between being strong and being a big cry baby, you DON"T have the knowledge that you have to work extra hard to make sure that your daughter feels worthy and valued and loved and accepted and beautiful and important because you know full well that their are cruel people in this world who love to treat people with disabilities as outcast. Honey, YOU DON'T HAVE A CLUE!!!!" And, I also thought "I bet they were all just standing around waiting for us to leave so they could go party down without us knowing it"---Oh, God, I AM PATHETIC!!!!And, then, after I thought all of that stuff, I sat in the floor and cried, and then, I got up, went outside, and helped my sweet beautiful girls plant a Herb garden, and I was happy:) Anyway, that's it, their is my contribution to the Pity Party Club:)I am such a baby, huh? And, just so you know, I posted a message in my Sage update (the one from the other

day), explaining a bit more about her other medical condition, just in case you're interested:)

[Guest guest]

Don't even give that "girl" a second thought. She has no idea what a wonderful, loving, devoted mother you are and doesn't deserve your friendship. You turned a bad day into a beautiful day with your girls. God Bless. and HUGS to you all. Joanmom to Hayden 339 degrees down from 62Cast number 4Treated at ish Rite Hospital Dallas, TX

From: Janet <216sa@...>infantile scoliosis treatment Sent: Sun, April 11, 2010 2:19:00 PMSubject: Here's one for the Pity Party section!

O.K, we go back to church for the first time today (well, not the first time-the past two Sunday's we have been at my Mom's church because of special events taking place there), but anyway, today was first day back at MY church, and for some reason my hackles were just up anyway, don't know why, no specific reason, the world and everyone in it was just not sitting right with me today! had to work today, so it was just me and the girls, and Sage was so fidgety, restless, and hot. Tehya was doing her best to be helpful, which just made Sage act out more, and I was ready to pull them both up and storm out. Anyway, we made it to the end, we are leaving, everybody just wanting to talk, catch up, find out what has been going on with us, etc...well, everybody but the ones who, (and you know you have them at your church, too:) wouldn't talk to you if their life depended on it, (you know, the goody goodies, the ones who always want to know about

everybody else's business, but they never call YOU, never ask YOU, how you are, you know the kind! So, anyway, like I said, my hackles are already up, for no apparent reason, and this girl--perfect life, perfect little girl, always dressed to the nines, hides the credit cards from her husband cause she spends so much money on clothes for self and child, doesn't have a clue what it is like to have a child with extra needs (except the extra need of a little discipline:) ), but she IS nice, she does always speak and ask about Sage, etc.Anyway, Sage is having a meltdown in the parking lot, this girl is trying to ask me about Sage, and I am just wanting to scream. So, I end up cutting her a little short, got home, felt bad about being rude, so I called her house to apologize, her husband, (who is my husbands distant cousin) answers the phone and he says "Hey, are y'all coming down?" I say "Um, no, I don't think so. I just called to speak with *****

for a second." He says "Oh, well come on down, we are having **** *****'s party this afternoon." Well, I am sure y'all can take it from there, right?His wife comes and quickly grabs the phone, never mentioning the party, says "Hey, what's up?" I say "Uh, I just called to apologize because I felt that I was rude this morning." She says "Oh, no, I totally understand."Anyway, I hang up thinking, "No, you DON"T understand at all. You DON"T have any idea about the runaway, crazy, unpredictable feelings the parents of special children have. You have the perfect life, (yes y'all, I know that nobody has the "perfect" life, but that's still what I thought anyway), you DON'T the emotions of wanting your child to be treated the same as everyone else, you DON'T have to worry about her not getting invited to birthday parties or other events because other people don't know how to act around her or feel that they can't include her for whatever reason, you

DON'T know the sting of that, you DON'T fluctuate between being strong and being a big cry baby, you DON"T have the knowledge that you have to work extra hard to make sure that your daughter feels worthy and valued and loved and accepted and beautiful and important because you know full well that their are cruel people in this world who love to treat people with disabilities as outcast. Honey, YOU DON'T HAVE A CLUE!!!!" And, I also thought "I bet they were all just standing around waiting for us to leave so they could go party down without us knowing it"---Oh, God, I AM PATHETIC!!!!And, then, after I thought all of that stuff, I sat in the floor and cried, and then, I got up, went outside, and helped my sweet beautiful girls plant a Herb garden, and I was happy:) Anyway, that's it, their is my contribution to the Pity Party Club:)I am such a baby, huh? And, just so you know, I posted a message in my Sage update (the one from the other

day), explaining a bit more about her other medical condition, just in case you're interested:)