Re: Eiddelyn...no more Mehta doc....HELP!!!

[Guest guest]

Hi Ethelyn,We go to SLC, alivingston@... is Angie Livingston's email, she is the Care Coordinator at Shriners SLC and she is the point person, she is lovely! As far as I know, yes, SLC is the closest place for you to go now. We love it there. You do have to apply to be in the Shriners system, you can do that by phone, fax or online. I would also send a letter telling your child's story so far, recent films- X-ray/MRI on disc...and a couple of photos if you can, including back/curve and one of your child's cute face! You can email me at bexonsmama@... for the doc's name. Heidi, Bexon's Mommy, (2 and a half years old, in 6th cast from Salt Lake City Shriners, currently down from 61 degrees to 25 in cast)From: ethelyn_ph <Ethelyn_ph@...>infantile scoliosis treatment Sent: Tue, April 20, 2010 5:44:39 PMSubject: Eiddelyn...no more Mehta doc....HELP!!!

Hi everybody,

I have been reading a lot of your posts but very rarely do I get the chance to send my input. My daughter Eiddelyn is on her Nth ??? cast now. I kind of lost track about the number. We started last April of 2008 after the 3rd cast she stayed on the range of 22-25 degrees. The doctor's plan is to wait until she is old enough to under go surgery for the rod placement or insertion because her curve is not responding to the cast but at least it is not getting worst. The target date would be when she is about 10 years old. She will be 6 this September. I am fortunate enough to be working in the hospital where the only Mehta trained doctor in California is also working. Unfortunately this doctor will be leaving our hospital by the end of May; he will be moving to another state. I believe some of the parents know him because he used to be in Erie I think. He said that the nearest place where we can get the same treatment would be in Shriner's in

Utah.

Please any parents who bring their child to this hospital-Shriner' s in Utah? I need help as to the contact number and person regarding their scoliosis treatment. I was told that this hospital does not charge so what is the process to get in?

To , I wonder if you know of any other Mehta trained doctor here because I know that when we started last 2008 he is the only doctor here in Southern Ca who is familiar with Mehta casting. Do you know of any other place where we can go to? We are in southern California

For members who is much newer than me; my daughter Eiddelyn has neurofibromatosis which was confirmed few weeks after she was born. Her scoliosis was found out few months after she had her 2nd birthday. the scoliosis could be due to her Neurofibromatosis but the ortho doc said that it could be idiopathic.

Thanks a lot for this group who gives me a sense of not being alone. Thanks a lot also for the info that I am sure would be coming in soon.

Ethelyn