Re: Re: talking to the doc...or trying to get in a word

[Guest guest]

Meant to finish that and say I didn't uusally know it was the HCTZ until the last stay in the hospital and then I knew. My instinct knew, but I was always accused of "doctoring myself" and messing with my meds on my own so I tried it to humor them until I knew the HCTZ dropped my K every single time.

Other BP meds did nothing for me as for my BP - and others I notice on here - but no real harm. the BB would lower my heart rate but the HCTZ was the only one causing me harm - dropping my K to really low levels.

, Yes I had surgery on Feb 2nd. The three meds mentioned, along with the hctz were my meds for quite a while. I stopped them all prior to surgery and took verapamil for testing. My BP was the same on this as all 4 of the others. Then started back on the original meds up until surgery. I'm not sure what an MCB is. After surgery, in the hospital i was given all my normal meds, no instructions for managing them at home. I was told that the Endo office would call me shortly after. Which turned out to be three weeks later. my rationale for stopping the meds was my bp was high on them before surgery, plus they made me feel so bad all the time. I've also seen many posts saying that these meds are ineffective in treating this condition. I'm just as confused as you are regarding the lack of follow up by the endo. Honestly being a Kaiser patient you just learn to play doctor on yourself, they just prescribe and send you on your

way.

From: <jclark24p@...>hyperaldosteronism Sent: Friday, March 2, 2012 6:34 PMSubject: Re: talking to the doc...or trying to get in a word

I think I'm getting confused because it looks like we have two cases comingled on this thread. Katt, I think you are the one that had surgery a month ago, right? Were you on a MCB before surgery? I'm not sure why you were on the 3 meds you were on but you changed the playing field by stopping them at the same time unless your doctor told you to. In fact, I'm surprised your Endo is not in charge now that surgery is over but maybe I'm not understnding that!> > > > > > >> > > > > > > From: Dianne strong <dianstrong@>> > > > > > > Subject: Re: Re: adrenal vein testing> > > > > > > hyperaldosteronism > > > > > > > Date: Thursday, March 1, 2012, 1:03 PM> > > > > > >> > > > > > >> > > > > > > I have a great deal of experience in dealing with the Kaiser health > > > > > > > care system, also in the SF Bay Area, and am writing to give you > > > > > > > some of my painfully learned advice.> > > > > > >> > > > > > > 1. Never go to your doctor without a list of notes and specific > > > > > > > questions to ask him/her. Then jot down the answers.> > > > > > > 2. Bring a list/chart of your BP history for the last month with you > > > > > >

> to your appointment.> > > > > > > 3. If at all possible take someone with you to your appointment. It > > > > > > > is sad, but true, that the doctor will pay closer attention to you > > > > > > > within the presence of a witness who appears to be paying close > > > > > > > attention. This witness can be the one jotting down the doctors > > > > > > > answers to your questions.> > > > > > > 4. Bring a copy of Dr. Grim's Evolution of PA paper and a copy of > > > > > > > his CV. Presumably you have already given a copy of his E of PA to > > > > > > > your relevant doctors, but the CV clues them in to the fact that you > > > > > > > are not just getting your ideas from an Internet quack.> > > > > > > 5.

Mention the fact that Dr. Grim trained with Dr. Conn, as in > > > > > > > Conn's Syndrome. Your doctor's eyebrows will rise and his/her ears > > > > > > > will open up. This way if you reference Dr. Grim you will be > > > > > > > listened to.> > > > > > >> > > > > > > Having a "cut and dry" doctor can be a good thing if you are willing > > > > > > > to be a cut and dry patient too. Personally I love a gen

[Guest guest]

, I forget, why were they going to make you go 400 miles for your mammo? Were they just going to make you "pay" for bugging them or was it truly just government red tape?

In other words were they trying to punish you and make you forget about it?

From: <jclark24p@...>Subject: Re: talking to the doc...or trying to get in a wordhyperaldosteronism Date: Saturday, March 3, 2012, 11:11 AM

Katt, now I think we are onto something. MCB = Spironolactone or Eplerenone, the two medicines that work with PA. Verapamil is one of the few meds they use that has less effect on testing for PA and is the med of choice for that purpose at NIH.You are correct that the meds you listed are not effective and now I understand why you stopped them. They should have started you on Spironolactone after testing while you prepared for surgery. This would have been your best bet to get BP in better control and if you added DASH you may have decided to forego the surgery. (This is the first treatment Dr. Grim recommends and it works very well for many.)IMO your Endo should have been involved before and immediately after surgery and continually now until you are well! I know nothing about Kaiser but if I didn't get the service I paid for and deserved I'd be exploring the progression of the chain of command! I needed a mammogram and my provider

(the VA) required I go 404 miles for it, women can get one within 50 miles of home. Nobody could change that including the Chief of Medical Services. I made one phone call and now there is no longer any gender descrimination! (I simply called my Senator's office, who happens to be on the Armed Services Committee, and offered him an opportunity to Fix it before I filed a Class Action Sexual Descrimination lawsuit!) So far in addition to him thanking me I've had appreatition expressed by my PCP, the Patient Advocate and the Quality Manager at the local VA! (QM even said it had been a problem for a long time! She's lucky I was in one of my calmer moods and need her for my next project so we didn't review her job description!)Stay on them and demand they provide the service you pay fore and deserve. So what if they label you a "Bitch", THEY MADE YOU THAT WAY! Keep us posted, I care!.... > > > > > > > >> >> > > > > > > >> > > Question

regarding avs testing. I had an adenoma on my left > > > > > > > >> gland removed Feb 2nd. Potassium has since returned to normal range > > > > > > > >> 5.0 actually. BP remains on the high side, around 160/105. I never > > > > > > > >> was offered AVS test. Having severe bouts with anxiety, > > > > > > > >> irritability, like PMS times 10, most of the time! My family is fed > > > > > > > >> up, I'm frustrated! Is it posible I had bilateral aldosterone over > > > > > > > >> production? I have endo appt. March 1st. I've requested aldo renin > > > > > > > >> tests again. Anything else I should ask the Endo? Still taking hctz > > > > > > > >> 50 mg. Took myself off Amlodipine10 mg, Lisinopril 20 mg, and >

> > > > > > >> Atenolol 50 mg.> > > > > > > >> > > Thanks guys> > > > > > > >> > >> > > > > > > >> >> > > > > > > >>> > > > > > > >> > > > > > > >> > > > > > > >> > > > > > > >> > > > > > >> > > > > > > > > > > >> > > > >> > > >> > > > > > > > > > > > > > > TODAY(Beta) • Powered by > > > Avril Lavigne debuts sultry new look> > > The singer known for her edgy, skater-girl style surprises fans in a racy new music video.> > > Privacy Policy>

>>

[Guest guest]

, I forget, why were they going to make you go 400 miles for your mammo? Were they just going to make you "pay" for bugging them or was it truly just government red tape?

In other words were they trying to punish you and make you forget about it?

From: <jclark24p@...>Subject: Re: talking to the doc...or trying to get in a wordhyperaldosteronism Date: Saturday, March 3, 2012, 11:11 AM

Katt, now I think we are onto something. MCB = Spironolactone or Eplerenone, the two medicines that work with PA. Verapamil is one of the few meds they use that has less effect on testing for PA and is the med of choice for that purpose at NIH.You are correct that the meds you listed are not effective and now I understand why you stopped them. They should have started you on Spironolactone after testing while you prepared for surgery. This would have been your best bet to get BP in better control and if you added DASH you may have decided to forego the surgery. (This is the first treatment Dr. Grim recommends and it works very well for many.)IMO your Endo should have been involved before and immediately after surgery and continually now until you are well! I know nothing about Kaiser but if I didn't get the service I paid for and deserved I'd be exploring the progression of the chain of command! I needed a mammogram and my provider

(the VA) required I go 404 miles for it, women can get one within 50 miles of home. Nobody could change that including the Chief of Medical Services. I made one phone call and now there is no longer any gender descrimination! (I simply called my Senator's office, who happens to be on the Armed Services Committee, and offered him an opportunity to Fix it before I filed a Class Action Sexual Descrimination lawsuit!) So far in addition to him thanking me I've had appreatition expressed by my PCP, the Patient Advocate and the Quality Manager at the local VA! (QM even said it had been a problem for a long time! She's lucky I was in one of my calmer moods and need her for my next project so we didn't review her job description!)Stay on them and demand they provide the service you pay fore and deserve. So what if they label you a "Bitch", THEY MADE YOU THAT WAY! Keep us posted, I care!.... > > > > > > > >> >> > > > > > > >> > > Question

regarding avs testing. I had an adenoma on my left > > > > > > > >> gland removed Feb 2nd. Potassium has since returned to normal range > > > > > > > >> 5.0 actually. BP remains on the high side, around 160/105. I never > > > > > > > >> was offered AVS test. Having severe bouts with anxiety, > > > > > > > >> irritability, like PMS times 10, most of the time! My family is fed > > > > > > > >> up, I'm frustrated! Is it posible I had bilateral aldosterone over > > > > > > > >> production? I have endo appt. March 1st. I've requested aldo renin > > > > > > > >> tests again. Anything else I should ask the Endo? Still taking hctz > > > > > > > >> 50 mg. Took myself off Amlodipine10 mg, Lisinopril 20 mg, and >

> > > > > > >> Atenolol 50 mg.> > > > > > > >> > > Thanks guys> > > > > > > >> > >> > > > > > > >> >> > > > > > > >>> > > > > > > >> > > > > > > >> > > > > > > >> > > > > > > >> > > > > > >> > > > > > > > > > > >> > > > >> > > >> > > > > > > > > > > > > > > TODAY(Beta) • Powered by > > > Avril Lavigne debuts sultry new look> > > The singer known for her edgy, skater-girl style surprises fans in a racy new music video.> > > Privacy Policy>

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