a bit of success!

[Guest guest]

Just thought I'd update my saga...and a bit of success of late. I was able to

convince Doc 1 (endo) to write a letter of referral to NIH where they are

providing free evaluation and treatment of PA and other endocrine issues if you

participate in their clinical trial protocol. I read about it and signed on.

None of my other drs. wanted to write the letter or work with NIH, so that was a

minor miracle to get one to write the letter, and I did. Yippee!

The day prior to NIH calling to invite me to particpate, I took a dose of Epler

and within 24 hours, my BP had a below normal reading. First I've seen in

months.

However, the dr. at NIH wanted me to discontinue Epler and start verapamil and

hydralazine until the eval since it will mess with the labs. So, I called the

referring doc and asked her to write it since NIH can't since I am not yet their

patient. She said since she wrote the letter, she transferred my care of BP to

them and she did not want to write the script. So I called the cardiologist,

who was confused, but finally called me back and called the NIH doctor, called

me back in full support of the NIH plan and called in the scripts.

So, now, I am set to get a good evaluation, and have a doctor willing to work

with them and I am sooo relieved. I obviously have PA, even have the official

diagnosis with cardio, but have no good labs and no eval of tumors. Now I will

and soon can have a treatment plan. A miracle and bit of success, I think.