Sore Stomach & Acid Reducers

[Guest guest]

My daughter has suffered from since she was 10 months old, 6 months ago

she was diagnosed on her 8th birthday. I'm new to this site, but haven't yet

found anyone talking about acid reducers. When she was 7 she was incorrectly

diagnosed with sever acid reflux and given Mylanta before every meal and at

bedtime. When she was hopitalized and diagnosed with a year later, they

took her off Mylanta and put her on a daily dose of Famotidine taken via pill.

This has had as big of an impact on her as Prednisone. She can eat without pain

and doesn't throw-up from fever. Her eating is now great & she enjoys food with

flavor- something new! Is anyone else giving a acid reducer for the

stomachache?

[Guest guest]

We had tried non-dairy and limiting other foods that are not recommended for

people with sensitive digestion, but it didn't change anything. My daughter

already was on a very limited diet of her own choice as anything with additives

or to much sugar would make her stomach worse- especially high fructose corn

syrup. She loves bananas, avocado, papaya, plain noodles, soy beans, white

fish, apples, cooked spinach, berries, rice cereal, etc, all without butter, oil

or seasonings- so I'm not thinking her diet brings on attacks- and neither does

the gastrointestinal specialist. When we are at bday parties with only chips

and hot dogs she will pass on her own choosing. Having 2 other children who

love all the junk food, I think this is due to her not being able to stomach

much. She has had issues with her stomach her whole life, but only since we put

her on the over the counter Fomotidine did she improve and is now nearly pain

free except mildly during episodes. She used to throw-up several times a week

and more with fever, but now she rarely will vomit. She has been suffering from

for 7+ years.

[Guest guest]

Hi hawaii poster,

Just curious, has your child been genetically tested for FMF? I used to read

the FMF boards and the symptoms you are describing ring familiar.

Sent from my BlackBerry® smartphone with SprintSpeed

[Guest guest]

Thanks for the suggestion . Although it has been 5 months since she has

been diagnosed, we are only beginning the process of getting her to see someone

who knows about these syndromes. The ID Dr who diagonsed her noted that her

symptoms resembled FMF, but she has never had a rash, and honestly he didn't

know much about Periodic Fever Syndromes in general. Her official diagnosis is

. She hasn't had any gene testing, and I've only learned through this

group that it is something I should be requesting.

At this point, I wouldn't be suprised if she does have something else & I just

don't have the right resourses to get her diagnosed. I've posted for informtion

on who I can get in touch with, or beter yet, who the Dr who will be caring for

her can communicate with in regards to what happens next. We have been treating

with Predisone, and I scheduled her for a T & A on April 8. Our HMO is looking

outside of their network for a Dr who knows about this, hopefully in our state.

I'm hoping she can see someone before the T & A. We will be in Boston (we summer

in ME) in July-Aug for 6 weeks, so I've asked if she can see someone there. Do

suffers NOT have stomach issues? She also get terrible sores in her mouth

(previously diagnosed with Herpes), and sores on her tonsils (for years she was

diagnosed with Strep throat). She has been hospitalized for severe constipation

and been seening a specialist for cronic acid reflux. She gets terrible

headaches and her whole body aches when fevering (every 28 days). She is small

for her age, but a exceptional athlete when not fevering. Anyone have any other

suggestions of the syndrome this may be as you are all so well informed here?

It would be so helpful to take some info back to my HMO!

[Guest guest]

Hi " Sail "

I am by no means an expert, but I do remember hearing that if there are

significant GI issues then the fever syndrome is probably not . I remember

reading also that those with Hyper IgD syndrome can have terrible problems with

acidity and headaches too. I would continue your research as what you're

dealing with may not be and therefore the chances of a T & A working could

be less.

Take care

Debbie - mum to Hans, 14 years

South of France