Re: MANDY__New to the group

[Guest guest]

Hi Mandy,

Welcome to the group... I'm Helen from NW Ohio... You sure have a lot to deal with... Lots of good folks on here suffering some of the same ailments as you... I've never heard of synkensis syndrome, couldn't find much at all about it on the Internet, does it go by another name??? No post too large or too small, venting is great for us all...

((( Welcoming Hugs )))Helen

Hi allI just thought i better say hi and introduce myself,My name is Mandy and i live in England, I suffer from quite a few illnesses. i suffer from fibromyalgia, chronic fatigue, near synkensis syndrome (double vision that will never be cured, Drohn's disease, arthritis and something else which i can't remember.i share my flat with most handsome 3 legged no tail black and white cat called Felix. i'm suppose to be doing a degree to keep brain active but been so sick this year i'm having a break. i'm learning to play the piano/keyboard which is more fun than studying.my family live over 200 miles from me and friends don't seem to care or understand, so computer is sometimes the only contact i have with the outside world when i'm really sick specially with the crohn's disease. and i look forward to making new friends.loveMandy

My Ailments:angelbear1129-Helen 1-F.M.S.--Fibromyalgia 2-C.F.S.--Chronic Fatigue Syndrome 3-S.L.E.--Systematic Lupus Erthematosis 4-M.V.P.--Mitral Valve Prolapse 5-Hypethyroidism/Graves Disease 6-Hyatal Hernia 7-Acid Reflux--(Gerd) 8-Migrains 9-Polyneuropathy 10-Osteoporosis 11-Osteoarthritis 12-Hypertention 13-Degenerative Arthritis in head,neck, shoulders, spinal column, arms 14-R.L.S.--Restless Leg Syndrome 15-Hypoglycymia 16-I.B.S.--Irritable Bowel Syndrome 17-Arrthymia's 18-Emphysema19-M.P.S.--Myofacial Pain Syndrome20-Polymyalgia21-T.M.J.--Temporomandibular Joint Disorder22-Corneal Leukoma23-Chronic Sinusitis24-Idiopathic Edema25-PSVT--Paroxysmal-Supraventricular Tachycardia26-Cataracs-beginning WHAT HAS HAPPENED: Blind in Left Eye--eye accident-age 3 Rheumatic Fever--almost died-age 17 Pericarditis--almost died-age 17Endometriosis--age 13 onLight Stroke--age 27Goiter Bad/Graves Disease--almost died-age 28Full Hysterectomy--age 40 Gall Bladder out Diseased--almost died-age 48Carpal Tunnel, Left Wrist Anemic twice real badNew MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News more. Try it out!

[Guest guest]

Hi Mandy,

Welcome to the group... I'm Helen from NW Ohio... You sure have a lot to deal with... Lots of good folks on here suffering some of the same ailments as you... I've never heard of synkensis syndrome, couldn't find much at all about it on the Internet, does it go by another name??? No post too large or too small, venting is great for us all...

((( Welcoming Hugs )))Helen

Hi allI just thought i better say hi and introduce myself,My name is Mandy and i live in England, I suffer from quite a few illnesses. i suffer from fibromyalgia, chronic fatigue, near synkensis syndrome (double vision that will never be cured, Drohn's disease, arthritis and something else which i can't remember.i share my flat with most handsome 3 legged no tail black and white cat called Felix. i'm suppose to be doing a degree to keep brain active but been so sick this year i'm having a break. i'm learning to play the piano/keyboard which is more fun than studying.my family live over 200 miles from me and friends don't seem to care or understand, so computer is sometimes the only contact i have with the outside world when i'm really sick specially with the crohn's disease. and i look forward to making new friends.loveMandy

My Ailments:angelbear1129-Helen 1-F.M.S.--Fibromyalgia 2-C.F.S.--Chronic Fatigue Syndrome 3-S.L.E.--Systematic Lupus Erthematosis 4-M.V.P.--Mitral Valve Prolapse 5-Hypethyroidism/Graves Disease 6-Hyatal Hernia 7-Acid Reflux--(Gerd) 8-Migrains 9-Polyneuropathy 10-Osteoporosis 11-Osteoarthritis 12-Hypertention 13-Degenerative Arthritis in head,neck, shoulders, spinal column, arms 14-R.L.S.--Restless Leg Syndrome 15-Hypoglycymia 16-I.B.S.--Irritable Bowel Syndrome 17-Arrthymia's 18-Emphysema19-M.P.S.--Myofacial Pain Syndrome20-Polymyalgia21-T.M.J.--Temporomandibular Joint Disorder22-Corneal Leukoma23-Chronic Sinusitis24-Idiopathic Edema25-PSVT--Paroxysmal-Supraventricular Tachycardia26-Cataracs-beginning WHAT HAS HAPPENED: Blind in Left Eye--eye accident-age 3 Rheumatic Fever--almost died-age 17 Pericarditis--almost died-age 17Endometriosis--age 13 onLight Stroke--age 27Goiter Bad/Graves Disease--almost died-age 28Full Hysterectomy--age 40 Gall Bladder out Diseased--almost died-age 48Carpal Tunnel, Left Wrist Anemic twice real badNew MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News more. Try it out!

[Guest guest]

Hi Mandy,

Welcome to the group... I'm Helen from NW Ohio... You sure have a lot to deal with... Lots of good folks on here suffering some of the same ailments as you... I've never heard of synkensis syndrome, couldn't find much at all about it on the Internet, does it go by another name??? No post too large or too small, venting is great for us all...

((( Welcoming Hugs )))Helen

Hi allI just thought i better say hi and introduce myself,My name is Mandy and i live in England, I suffer from quite a few illnesses. i suffer from fibromyalgia, chronic fatigue, near synkensis syndrome (double vision that will never be cured, Drohn's disease, arthritis and something else which i can't remember.i share my flat with most handsome 3 legged no tail black and white cat called Felix. i'm suppose to be doing a degree to keep brain active but been so sick this year i'm having a break. i'm learning to play the piano/keyboard which is more fun than studying.my family live over 200 miles from me and friends don't seem to care or understand, so computer is sometimes the only contact i have with the outside world when i'm really sick specially with the crohn's disease. and i look forward to making new friends.loveMandy

My Ailments:angelbear1129-Helen 1-F.M.S.--Fibromyalgia 2-C.F.S.--Chronic Fatigue Syndrome 3-S.L.E.--Systematic Lupus Erthematosis 4-M.V.P.--Mitral Valve Prolapse 5-Hypethyroidism/Graves Disease 6-Hyatal Hernia 7-Acid Reflux--(Gerd) 8-Migrains 9-Polyneuropathy 10-Osteoporosis 11-Osteoarthritis 12-Hypertention 13-Degenerative Arthritis in head,neck, shoulders, spinal column, arms 14-R.L.S.--Restless Leg Syndrome 15-Hypoglycymia 16-I.B.S.--Irritable Bowel Syndrome 17-Arrthymia's 18-Emphysema19-M.P.S.--Myofacial Pain Syndrome20-Polymyalgia21-T.M.J.--Temporomandibular Joint Disorder22-Corneal Leukoma23-Chronic Sinusitis24-Idiopathic Edema25-PSVT--Paroxysmal-Supraventricular Tachycardia26-Cataracs-beginning WHAT HAS HAPPENED: Blind in Left Eye--eye accident-age 3 Rheumatic Fever--almost died-age 17 Pericarditis--almost died-age 17Endometriosis--age 13 onLight Stroke--age 27Goiter Bad/Graves Disease--almost died-age 28Full Hysterectomy--age 40 Gall Bladder out Diseased--almost died-age 48Carpal Tunnel, Left Wrist Anemic twice real badNew MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News more. Try it out!

[Guest guest]

Hi Helen

you may not find it on the internet as it is a very rare eye condition, there is only 10 sufferers in the world and two of them in the uk and we both live in the same town.

its constant double vision and there is no cure.

i went to bed with most terrible headache and next day had double vision friend rushed me to the eye unit in the townthey couldn't find a cause for the double vision i had many brain scans to find out, they tried to correct the double vision by operating but it went wrong.

they finallly decided that my muscles in the eyes have decided too not work together and cause the double vision also the muscle in one eye don't want to workeven on their own. i may see double but at least i can still see even if it is all muddled up and a bit hazy.

my consultant thinks there are more suffererers in the world but doctors don't regconise the illness.

thank-you for the welcome

love

Mandy

[Guest guest]

Hi Mandy,

Must be hard to cope with... I did continue looking and still didn't find anything... Hopefully soon they will learn more on this ailment that you have... Keep us posted as how your doing... We are here for you...

((( Smiling Hugs )))Helen

Hi Helen

you may not find it on the internet as it is a very rare eye condition, there is only 10 sufferers in the world and two of them in the uk and we both live in the same town.

its constant double vision and there is no cure.

i went to bed with most terrible headache and next day had double vision friend rushed me to the eye unit in the townthey couldn't find a cause for the double vision i had many brain scans to find out, they tried to correct the double vision by operating but it went wrong.

they finallly decided that my muscles in the eyes have decided too not work together and cause the double vision also the muscle in one eye don't want to workeven on their own. i may see double but at least i can still see even if it is all muddled up and a bit hazy.

my consultant thinks there are more suffererers in the world but doctors don't regconise the illness.

thank-you for the welcome

love

Mandy

"When life's problems seem overwhelming, look around and see what other people are coping with. You may consider yourself fortunate."New MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News more. Try it out!

[Guest guest]

Hi Mandy,

Must be hard to cope with... I did continue looking and still didn't find anything... Hopefully soon they will learn more on this ailment that you have... Keep us posted as how your doing... We are here for you...

((( Smiling Hugs )))Helen

Hi Helen

you may not find it on the internet as it is a very rare eye condition, there is only 10 sufferers in the world and two of them in the uk and we both live in the same town.

its constant double vision and there is no cure.

i went to bed with most terrible headache and next day had double vision friend rushed me to the eye unit in the townthey couldn't find a cause for the double vision i had many brain scans to find out, they tried to correct the double vision by operating but it went wrong.

they finallly decided that my muscles in the eyes have decided too not work together and cause the double vision also the muscle in one eye don't want to workeven on their own. i may see double but at least i can still see even if it is all muddled up and a bit hazy.

my consultant thinks there are more suffererers in the world but doctors don't regconise the illness.

thank-you for the welcome

love

Mandy

"When life's problems seem overwhelming, look around and see what other people are coping with. You may consider yourself fortunate."New MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News more. Try it out!

[Guest guest]

Hi Helen

sorry i haven't answered you before today but i just spent 11 days in hospital on a iv drip for 10 of those 11 days actually though i'm home today is my first day of the drip, they sent me home because there is a bug on ward i was in and its safer at home with the district nurses. i didn't think i was going to make it. the infection was bad but they had awful job with my veins kept collapsing on them i'm covered in bruises. but it is good to be home. i'm still at risk because of certain levels that have to be checked weekly and hopefully will improve as the steriods go down. i hate crohns never realised how ill it can make you.

love

mandy

[Guest guest]

Hey Mandy!!!! *waves* Good to see ya on here too! Love ya, Shan :)On Tue, Oct 21, 2008 at 3:59 PM, <amandanewell06@...> wrote:

Hi Helen

sorry i haven't answered you before today but i just spent 11 days in hospital on a iv drip for 10 of those 11 days actually though i'm home today is my first day of the drip, they sent me home because there is a bug on ward i was in and its safer at home with the district nurses. i didn't think i was going to make it. the infection was bad but they had awful job with my veins kept collapsing on them i'm covered in bruises. but it is good to be home. i'm still at risk because of certain levels that have to be checked weekly and hopefully will improve as the steriods go down. i hate crohns never realised how ill it can make you.

love

mandy

[Guest guest]

Mandy,

Welcome Home. I pray in the near future that you

will be a little better.

Jo Lynne

Just Kidding...Laughter is the best Medicine

Re: MANDY__New to the group

Hi Helen

sorry i haven't answered you before today but i just spent 11 days in hospital on a iv drip for 10 of those 11 days actually though i'm home today is my first day of the drip, they sent me home because there is a bug on ward i was in and its safer at home with the district nurses. i didn't think i was going to make it. the infection was bad but they had awful job with my veins kept collapsing on them i'm covered in bruises. but it is good to be home. i'm still at risk because of certain levels that have to be checked weekly and hopefully will improve as the steriods go down. i hate crohns never realised how ill it can make you.

love

mandy

[Guest guest]

thank-you ling

i hurt all over but feel better being home i can just potter around and rest when i want without having to push an iv pump and drips around with me. or the nurse check eveytime i had a bowel movement or obs every 4 hours. i look like i been in a fight with all my bruises my right little finger is numb still and my left hand is still swollen since it swelled up friday afternoon they assure me it will all be normal by friday.

i lost 9lbs in 10 days,not a good idea when you have crohns.

love

mandy

[Guest guest]

Hi Mandy,

I'm so sorry to hear what you had been through. Please take care and I hope you will feel much better real soon!Ling

From: Jo Lynne <jolynne4@...> Sent: Wednesday, 22 October 2008 1:48:46Subject: Re: MANDY__New to the group

Mandy,

Welcome Home. I pray in the near future that you

will be a little better.

Jo Lynne

Just Kidding...Laughter is the best Medicine

Re: MANDY__New to the group

Hi Helen

sorry i haven't answered you before today but i just spent 11 days in hospital on a iv drip for 10 of those 11 days actually though i'm home today is my first day of the drip, they sent me home because there is a bug on ward i was in and its safer at home with the district nurses. i didn't think i was going to make it. the infection was bad but they had awful job with my veins kept collapsing on them i'm covered in bruises. but it is good to be home. i'm still at risk because of certain levels that have to be checked weekly and hopefully will improve as the steriods go down. i hate crohns never realised how ill it can make you.

love

mandy

What do you consider a Singaporean? Check it out quick on Answers!

[Guest guest]

Dear Mandy,

*Hugs* Hang on, ok?

Ling

From: "amandanewell06@..." <amandanewell06@...> Sent: Wednesday, 22 October 2008 10:18:05Subject: Re: MANDY__New to the group

thank-you ling

i hurt all over but feel better being home i can just potter around and rest when i want without having to push an iv pump and drips around with me. or the nurse check eveytime i had a bowel movement or obs every 4 hours. i look like i been in a fight with all my bruises my right little finger is numb still and my left hand is still swollen since it swelled up friday afternoon they assure me it will all be normal by friday.

i lost 9lbs in 10 days,not a good idea when you have crohns.

love

mandy

New Email addresses available on Get the Email name you've always wanted on the new @ymail and @rocketmail.

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[Guest guest]

Hi Mandy,

So sorry to hear of your long hospital stay... Hopefully you are doing much better at home... Sometimes just being home is more restful than the hospital... Keep us updated as best as you can...

((( Prayerful Hugs )))Helen

Hi Helen

sorry i haven't answered you before today but i just spent 11 days in hospital on a iv drip for 10 of those 11 days actually though i'm home today is my first day of the drip, they sent me home because there is a bug on ward i was in and its safer at home with the district nurses. i didn't think i was going to make it. the infection was bad but they had awful job with my veins kept collapsing on them i'm covered in bruises. but it is good to be home. i'm still at risk because of certain levels that have to be checked weekly and hopefully will improve as the steriods go down. i hate crohns never realised how ill it can make you.

love

mandy

"When life's problems seem overwhelming, look around and see what other people are coping with. You may consider yourself fortunate."Play online games for FREE at Games.com! All of your favorites, no registration required and great graphics – check it out!