Guest guest Posted March 19, 2012 Report Share Posted March 19, 2012 Jo, If she was mine I would put all my energies into putting her on a GAPS diet straightaway which includes grain free diet and fermented foods and basic supplements) and get her to go for a poo at least once/day .. In the meantime continue with all the fun interactive play. I wish I had known about this diet when my son was that age . Then look into sunrise or RDI or /VB/ABA. BW Nina > >I don't know how worried to be, really. > > I am keen to start helping her now, whilst we have the benefit of finding out about this early... but I don't really know where to start! > She does have a poo problem where she won't go for 4-5 days and has obvious discomfort even though it is soft. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2012 Report Share Posted March 19, 2012 Jo, If she was mine I would put all my energies into putting her on a GAPS diet straightaway which includes grain free diet and fermented foods and basic supplements) and get her to go for a poo at least once/day .. In the meantime continue with all the fun interactive play. I wish I had known about this diet when my son was that age . Then look into sunrise or RDI or /VB/ABA. BW Nina > >I don't know how worried to be, really. > > I am keen to start helping her now, whilst we have the benefit of finding out about this early... but I don't really know where to start! > She does have a poo problem where she won't go for 4-5 days and has obvious discomfort even though it is soft. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2012 Report Share Posted March 19, 2012 Jo, If she was mine I would put all my energies into putting her on a GAPS diet straightaway which includes grain free diet and fermented foods and basic supplements) and get her to go for a poo at least once/day .. In the meantime continue with all the fun interactive play. I wish I had known about this diet when my son was that age . Then look into sunrise or RDI or /VB/ABA. BW Nina > >I don't know how worried to be, really. > > I am keen to start helping her now, whilst we have the benefit of finding out about this early... but I don't really know where to start! > She does have a poo problem where she won't go for 4-5 days and has obvious discomfort even though it is soft. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2012 Report Share Posted March 19, 2012 Hi, We are north of you in CH.. It is hard to find resources. To help her speech I highly recommend Verbal Behavior. Check out Dr. Barbera's book "The Verbal Behavior Approach". It is easy to read and understand and you can start implementing what she recommends right away. Wishing your family the best, FabienneOn Mar 19, 2012, at 1:52 PM, "joriverss" <j_upton@...> wrote: Hello, I am very new to all this as my 18 month old daughter was only diagnosed with mild-medium autism last week. Since then I have been researching a lot. I have completed an ATEC test where she scored 73 (however as she is only 18 months I feel that many of the points don't apply to her). Her main issues are that she doesn't talk at all, doesn't walk (although she has hypermobility in her joints which is apparently a separate issue), and she doesn't answer to her name or give eye contact on demand. However, she does give eye contact when you sing or make funny noises, and smiles, laughs and plays all the time. She crawls well and is getting more explorative every day. She has just started clapping and will imitate it, we are now trying to get her to wave, which she is starting to do. I don't know how worried to be, really. I am keen to start helping her now, whilst we have the benefit of finding out about this early... but I don't really know where to start! She now goes to nursery 4 mornings a week which has alreay improved her social interaction, and we are beginning physio to help her improve her muscle strength so she will walk. She does have a poo problem where she won't go for 4-5 days and has obvious discomfort even though it is soft. I have been reading about bio-medical approaches and this seems to fit in with the autism, even though I've been told it is due to her lack of muscle tone caused by the hypermobility. Basically, I am asking if there is anyone out there with a similar situation as a lot of information seems to be about older children. Also I am thinking about contacting Dr Grabriella Lesmo in Milan as she is a DAN doctor to see if there is anything worth changing. I am also trying to find a speech therapist to get her talking. I have also looked at ABA but it is hard to find the right resources. Does anyone have any advice or suggestions? Thanks, Jo = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2012 Report Share Posted March 19, 2012 Hi, We are north of you in CH.. It is hard to find resources. To help her speech I highly recommend Verbal Behavior. Check out Dr. Barbera's book "The Verbal Behavior Approach". It is easy to read and understand and you can start implementing what she recommends right away. Wishing your family the best, FabienneOn Mar 19, 2012, at 1:52 PM, "joriverss" <j_upton@...> wrote: Hello, I am very new to all this as my 18 month old daughter was only diagnosed with mild-medium autism last week. Since then I have been researching a lot. I have completed an ATEC test where she scored 73 (however as she is only 18 months I feel that many of the points don't apply to her). Her main issues are that she doesn't talk at all, doesn't walk (although she has hypermobility in her joints which is apparently a separate issue), and she doesn't answer to her name or give eye contact on demand. However, she does give eye contact when you sing or make funny noises, and smiles, laughs and plays all the time. She crawls well and is getting more explorative every day. She has just started clapping and will imitate it, we are now trying to get her to wave, which she is starting to do. I don't know how worried to be, really. I am keen to start helping her now, whilst we have the benefit of finding out about this early... but I don't really know where to start! She now goes to nursery 4 mornings a week which has alreay improved her social interaction, and we are beginning physio to help her improve her muscle strength so she will walk. She does have a poo problem where she won't go for 4-5 days and has obvious discomfort even though it is soft. I have been reading about bio-medical approaches and this seems to fit in with the autism, even though I've been told it is due to her lack of muscle tone caused by the hypermobility. Basically, I am asking if there is anyone out there with a similar situation as a lot of information seems to be about older children. Also I am thinking about contacting Dr Grabriella Lesmo in Milan as she is a DAN doctor to see if there is anything worth changing. I am also trying to find a speech therapist to get her talking. I have also looked at ABA but it is hard to find the right resources. Does anyone have any advice or suggestions? Thanks, Jo = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2012 Report Share Posted March 19, 2012 Hi, We are north of you in CH.. It is hard to find resources. To help her speech I highly recommend Verbal Behavior. Check out Dr. Barbera's book "The Verbal Behavior Approach". It is easy to read and understand and you can start implementing what she recommends right away. Wishing your family the best, FabienneOn Mar 19, 2012, at 1:52 PM, "joriverss" <j_upton@...> wrote: Hello, I am very new to all this as my 18 month old daughter was only diagnosed with mild-medium autism last week. Since then I have been researching a lot. I have completed an ATEC test where she scored 73 (however as she is only 18 months I feel that many of the points don't apply to her). Her main issues are that she doesn't talk at all, doesn't walk (although she has hypermobility in her joints which is apparently a separate issue), and she doesn't answer to her name or give eye contact on demand. However, she does give eye contact when you sing or make funny noises, and smiles, laughs and plays all the time. She crawls well and is getting more explorative every day. She has just started clapping and will imitate it, we are now trying to get her to wave, which she is starting to do. I don't know how worried to be, really. I am keen to start helping her now, whilst we have the benefit of finding out about this early... but I don't really know where to start! She now goes to nursery 4 mornings a week which has alreay improved her social interaction, and we are beginning physio to help her improve her muscle strength so she will walk. She does have a poo problem where she won't go for 4-5 days and has obvious discomfort even though it is soft. I have been reading about bio-medical approaches and this seems to fit in with the autism, even though I've been told it is due to her lack of muscle tone caused by the hypermobility. Basically, I am asking if there is anyone out there with a similar situation as a lot of information seems to be about older children. Also I am thinking about contacting Dr Grabriella Lesmo in Milan as she is a DAN doctor to see if there is anything worth changing. I am also trying to find a speech therapist to get her talking. I have also looked at ABA but it is hard to find the right resources. Does anyone have any advice or suggestions? Thanks, Jo = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2012 Report Share Posted March 19, 2012 Hi Jo and welcome! Just to say www.treatingautism.co.uk has a very good 'beginners section'Best of luckNatasa From: joriverss <j_upton@...>Reply- "Autism Treatment " <Autism Treatment >Date: Mon, 19 Mar 2012 12:52:55 -0000 "Autism Treatment " <Autism Treatment >Subject: 18 month old new to autism, living in Italy. DAN/ABA? Hello, I am very new to all this as my 18 month old daughter was only diagnosed with mild-medium autism last week. Since then I have been researching a lot. I have completed an ATEC test where she scored 73 (however as she is only 18 months I feel that many of the points don't apply to her). Her main issues are that she doesn't talk at all, doesn't walk (although she has hypermobility in her joints which is apparently a separate issue), and she doesn't answer to her name or give eye contact on demand. However, she does give eye contact when you sing or make funny noises, and smiles, laughs and plays all the time. She crawls well and is getting more explorative every day. She has just started clapping and will imitate it, we are now trying to get her to wave, which she is starting to do. I don't know how worried to be, really. I am keen to start helping her now, whilst we have the benefit of finding out about this early... but I don't really know where to start! She now goes to nursery 4 mornings a week which has alreay improved her social interaction, and we are beginning physio to help her improve her muscle strength so she will walk. She does have a poo problem where she won't go for 4-5 days and has obvious discomfort even though it is soft. I have been reading about bio-medical approaches and this seems to fit in with the autism, even though I've been told it is due to her lack of muscle tone caused by the hypermobility. Basically, I am asking if there is anyone out there with a similar situation as a lot of information seems to be about older children. Also I am thinking about contacting Dr Grabriella Lesmo in Milan as she is a DAN doctor to see if there is anything worth changing. I am also trying to find a speech therapist to get her talking. I have also looked at ABA but it is hard to find the right resources. Does anyone have any advice or suggestions? Thanks, Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2012 Report Share Posted March 20, 2012 I also recommend SCD or GAPS diet. You are so lucky you are starting so early. There is another good doctor in Italy- Nicola Antonucci. For the poo problem SCD may help with it, if not Oxypowder from Mandi mandimart.co.uk helps a lot. All the best, Kasia > > Hello, > I am very new to all this as my 18 month old daughter was only diagnosed with mild-medium autism last week. Since then I have been researching a lot. I have completed an ATEC test where she scored 73 (however as she is only 18 months I feel that many of the points don't apply to her). Her main issues are that she doesn't talk at all, doesn't walk (although she has hypermobility in her joints which is apparently a separate issue), and she doesn't answer to her name or give eye contact on demand. However, she does give eye contact when you sing or make funny noises, and smiles, laughs and plays all the time. She crawls well and is getting more explorative every day. She has just started clapping and will imitate it, we are now trying to get her to wave, which she is starting to do. I don't know how worried to be, really. > > I am keen to start helping her now, whilst we have the benefit of finding out about this early... but I don't really know where to start! She now goes to nursery 4 mornings a week which has alreay improved her social interaction, and we are beginning physio to help her improve her muscle strength so she will walk. > > She does have a poo problem where she won't go for 4-5 days and has obvious discomfort even though it is soft. I have been reading about bio-medical approaches and this seems to fit in with the autism, even though I've been told it is due to her lack of muscle tone caused by the hypermobility. > > Basically, I am asking if there is anyone out there with a similar situation as a lot of information seems to be about older children. Also I am thinking about contacting Dr Grabriella Lesmo in Milan as she is a DAN doctor to see if there is anything worth changing. I am also trying to find a speech therapist to get her talking. I have also looked at ABA but it is hard to find the right resources. Does anyone have any advice or suggestions? > > Thanks, > Jo > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2012 Report Share Posted March 20, 2012 Perhaps it would be helpful also to look at things linked with hypotonia eg test for levels of carnitine and creatinine. Low muscle tone can affect eye muscles, fingers, muscles used in speech, perhaps can contribute to constipation and can be very debilitating and make it appear that the child is not motivated to do some of the things you list but it could just be that its such a big effort. Had you thought of trying krill/fish oils to see if it helps at all with speech. ..... I have been reading about bio-medical approaches and this seems to fit in with the autism, even though I've been told it is due to her lack of muscle tone caused by the hypermobility. ... > > Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2012 Report Share Posted March 21, 2012 Hi, I don't know how this applies to an 18month old, but, hypotonia has been a big issue for my daughter. I have been doing alot to raise her IGF-1 levels as I feel that she had a partial growth hormone deficiency. I have been using a homoeopathic growth hormone patch which makes my daughter feel better, but, the biggest improvement has been NOW foods IGF-1 from deer antler velvet extract. I have always been told by OT's, Dr's etc, that my daughter just needs to exercise and build her muscle up - this has never worked. Now, though she can do exercises to build up her muscles and now they work! IGF-1 builds skeletal muscle something which in hypotonia seems to be a problem. Other supps that have IGF-1 in are whey powder and colostrum - these are not always suitable though. I've never tested my daughter's IGF-1 levels, but, I believe that they can be tested. > > Perhaps it would be helpful also to look at things linked with hypotonia eg test for levels of carnitine and creatinine. Low muscle tone can affect eye muscles, fingers, muscles used in speech, perhaps can contribute to constipation and can be very debilitating and make it appear that the child is not motivated to do some of the things you list but it could just be that its such a big effort. Had you thought of trying krill/fish oils to see if it helps at all with speech. > > ..... I have been reading about bio-medical approaches and this seems to fit in with the autism, even though I've been told it is due to her lack of muscle tone caused by the hypermobility. ... > > > > > > Jo > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2012 Report Share Posted April 1, 2012 Hello, Thank you to everyone for your advice. It is really helpful. I have been looking up the GAPS diet and various other diets, and have got the Verbal Behaviour book. There is so much to find out about! Things have developed a bit, where Holly's tummy has got worse - she has chronic constipation which we now have a bit more under control with 'movocal' and probiotics. I'm testing a dairy free diet first. However she has started these spasms when she is sitting down where her knees pull up and her arms twist back. She has seen a neuro-specialist and they don't think it's neurological. We think it is due to possible pain in her tummy but she does it only when she's sitting, she leans back and looks very uncomfortable whilst her knees pull up and her arms twist back. She does this around 4 times a day and does it nearly constantly for 15-20 mins. If you push her forward, you can often bring her out of it, but often she resists this. She doesn't do it at all when she's sitting on the floor, crawling or playing. It's quite distressing to watch, so I hope that changing her diet could help, but so far it just seems to be getting worse. On the other hand, she is learning well. We aren't doing ABA, but more of an Intensive Interaction approach in conjunction with her nursery, and she is becoming a lot more interactive. I'm also looking into the hypotonia stuff too. Thank you so much to the people who have replied, it is good to hear from other people who know about this. Jo > > > > Perhaps it would be helpful also to look at things linked with hypotonia eg test for levels of carnitine and creatinine. Low muscle tone can affect eye muscles, fingers, muscles used in speech, perhaps can contribute to constipation and can be very debilitating and make it appear that the child is not motivated to do some of the things you list but it could just be that its such a big effort. Had you thought of trying krill/fish oils to see if it helps at all with speech. > > > > ..... I have been reading about bio-medical approaches and this seems to fit in with the autism, even though I've been told it is due to her lack of muscle tone caused by the hypermobility. ... > > > > > > > > > > Jo > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2012 Report Share Posted April 1, 2012 Hello, Thank you to everyone for your advice. It is really helpful. I have been looking up the GAPS diet and various other diets, and have got the Verbal Behaviour book. There is so much to find out about! Things have developed a bit, where Holly's tummy has got worse - she has chronic constipation which we now have a bit more under control with 'movocal' and probiotics. I'm testing a dairy free diet first. However she has started these spasms when she is sitting down where her knees pull up and her arms twist back. She has seen a neuro-specialist and they don't think it's neurological. We think it is due to possible pain in her tummy but she does it only when she's sitting, she leans back and looks very uncomfortable whilst her knees pull up and her arms twist back. She does this around 4 times a day and does it nearly constantly for 15-20 mins. If you push her forward, you can often bring her out of it, but often she resists this. She doesn't do it at all when she's sitting on the floor, crawling or playing. It's quite distressing to watch, so I hope that changing her diet could help, but so far it just seems to be getting worse. On the other hand, she is learning well. We aren't doing ABA, but more of an Intensive Interaction approach in conjunction with her nursery, and she is becoming a lot more interactive. I'm also looking into the hypotonia stuff too. Thank you so much to the people who have replied, it is good to hear from other people who know about this. Jo > > > > Perhaps it would be helpful also to look at things linked with hypotonia eg test for levels of carnitine and creatinine. Low muscle tone can affect eye muscles, fingers, muscles used in speech, perhaps can contribute to constipation and can be very debilitating and make it appear that the child is not motivated to do some of the things you list but it could just be that its such a big effort. Had you thought of trying krill/fish oils to see if it helps at all with speech. > > > > ..... I have been reading about bio-medical approaches and this seems to fit in with the autism, even though I've been told it is due to her lack of muscle tone caused by the hypermobility. ... > > > > > > > > > > Jo > > > Quote Link to comment Share on other sites More sharing options...
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