Update on Girls

[Guest guest]

Hi Everyone,

I haven't posted in a while. We have been sooo busy with everything. This post

may end up being too long because I have several things I want to cover.

I took the girls to the DS clinic at Vanderbilt about a month ago. It was great!

We got lots of advice and help. The girls have appointments for a pschological

evaluation (SP?) on the 22nd of this month. They will be tested to see what age

level they are at. Hannah is going to be tested for AHD and is going to

be tested for ASD. The doctor they seen said both girls show traits of ASD but

shows stronger ones. Anyway I will be glad to get a diagnosis so we can

improve their IEP's and goals.

Ok. This is something I need some help and advice on. Hannah is getting into

trouble at school. Her teacher has called me several times to tell me her

behaviour is inappropriate. She called me yesterday to tell me Hannah had pulled

someones hair, scratched an aide on purpose, throwing toys and walked up to two

other students and put her hands around their necks and choked them. She only

behaves this way in her mainstream classes. She will act this way a couple of

days then stop. Wait a few days then do it again. Have or are any of you having

behaviour problems like this with your child? HELP!!!!

Also, I am having some problems with the girls teacher. They got a new teacher

over the Christmas holidays. They had a wonderful young teacher but she moved to

another school. I cried when she left. Anyway the new teracher is an older lady

and from the " old " school. She does not need to be teaching special ed. I have

went and sat in to observe a few times and she does nothing with the girls. The

iep's are not being followed. The aides do all the work. I requested she get

something for the girls to write on that the OT had suggested a month ago and it

is still not in the class. She has no desire to help the girls. She is teaching

them whole class to counts by tens and most of them cannnot even count to 10!

She spends only about 45 minutes out of the whole day with the class. There is

no one on one time. I think I am going to the board about her. I wish their were

a DS school around here.

Back to Hannah's behaviour. The school is wanting permission to paddle on. This

may or may not help. She does get spankings at home and it does help for that

moment but she continues later on doing whatever she got spanked for. Any

suggestions????? At school they scold her real good and put heer in time out. Do

you think paddling would help??

is making no progress at school. The only thing she made progress on is

stacking 3 blocks. Something has got to change. I think pecs would help with her

also. especially if she has an ASD. Poor little thing. I feel so helpless

because I don't know what to do to help her. She still isn't potty trained

either. She could care less if she pees all over herself or poops on her self.

She puts her hands down in her diaper when she poops and thinks it's funny. It

is so gross! Why can't she understand?

is not as destructed as Hannah is. Hannah does things she know she is not

suppose to do then she just laughs about it. These girls are a mess!!! But they

are my mess.

I hope I was making sense here. I just need some advice on Hannah and her

behaviour and what to do abnout their teacher. I know some of you ahve

experience with all of this because you ahve already been there and done that.

What if they do diagnose Hannah as being hyper then what? I will know more about

on the 22. If she is diagnosed with ASD then her IEP will change.

Some days I just want to say forget about it. Just send them to school and let

them take care of it. But there are so many parents who do that. Most all of

them I might add. I am the only mother who keeps a close eye out at school. I am

the only one who sits in the class and watched or helps out. I keep in touch

with the aides and teacher(who don't like!) But some days I just want to

scream! After all the poop and pee messes I ahve cleaned up over the years, the

numerous doctor visits, the hospital stays, getting my hair pulled out of my

head, back pain from lifting them and cleaning up vomot all over the place, I

must say one big smile and hug and kiss makes it all worht it. And when they

make just an inch of progress it is like a mile to me. I do love them with all

my heart and never knew what love was not really until I had them.

Thanks everyone for listening. Y'all are the greatest group of mothers and

fathers and I know most of you know what I am talking about. So I can't wait to

read what you think.

HUGS

Pam mom to Hannah and age 6 with DS, Josh age 20 and Dusty age 15

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