RE: OT: digga, dugga, tooka WAS Autism Speaks Signs

December 3, 2007

Good point. Actually when I read “Strange

Son” by Portia Iverson the MOST interesting part to me was that Tito

could not hear his own voice and could not see and hear at the same time. One

of the studies they did with him they mentioned that they could fix this in

him. But that because of it could be fixed the study would not get published.

HUH?? Is all I thought. Sometimes I hate science because their rules for

publication are so odd. If something could fix this and Tito should them how

why they hell can’t we all see that study?? I’m dying to see the

study that helps these kids process auditory and visual stimuli at the same

time. I have always known that one of CJ’s biggest issues is that he

could not process every word I was saying. He would only get a word here and

there. Because of this he would guess the rest which made his abilities so

uneven. His expressive language is extremely hard fought and best understood

when I show him where the vibrations come from on my face. This however was

not the case before injury. -

From: EOHarm [mailto:EOHarm ] On Behalf Of penelope_fam

Sent: Monday, December 03, 2007

1:52 PM

EOHarm

Subject: OT: digga,

dugga, tooka WAS Autism Speaks Signs

My daughter said " tooka-toooka-tooka " .

One of my past bosses is from Nigeria,

and when he would speak Nigerian

to someone on the phone, it sounded like " ah-booga-booga-boogah "

to me.

My ear could not pick up nuances in his language and it all sounded

alike to me.

Having heard folks speaking in other languages and being painfully aware

of how NOT ABLE I was to process the individual sounds and nuances of

that language I was makes me VERY AWARE of the probability that my

daughter was probably hearing only the " ah-tooka-tooka-tooka " of

what we

were speaking around her in English. For some reason, she just heard

mostly t's and k's and ooooooo sounds, similar to my own situation and

what I thought I was hearing when my boss spoke one of the Nigerian

dialects (he speaks three of them).

I think looking at ESL programs in terms of teaching reading or language

in autism might be one route to take, as our children may be hearing

parents and teachers in what seems like a foreign language to them.

Pen

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December 3, 2007

Around 5:20 is where he does the most “talking”.

Keep in mind when you see this that I had NO idea he had autism at this time.

We were making excuses for everything. Like he was “waving” not stimming.

Ps- if you haven’t seen any of my youtube clips don’t get depressed about this footage.

is 8 now and doing great thanks to biomed and our school district.

On 12/3/07 1:52 PM, " penelope_fam " <p.ray@...> wrote:

My daughter said " tooka-toooka-tooka " .

One of my past bosses is from Nigeria, and when he would speak Nigerian

to someone on the phone, it sounded like " ah-booga-booga-boogah " to me.

My ear could not pick up nuances in his language and it all sounded

alike to me.

Having heard folks speaking in other languages and being painfully aware

of how NOT ABLE I was to process the individual sounds and nuances of

that language I was makes me VERY AWARE of the probability that my

daughter was probably hearing only the " ah-tooka-tooka-tooka " of what we

were speaking around her in English. For some reason, she just heard

mostly t's and k's and ooooooo sounds, similar to my own situation and

what I thought I was hearing when my boss spoke one of the Nigerian

dialects (he speaks three of them).

I think looking at ESL programs in terms of teaching reading or language

in autism might be one route to take, as our children may be hearing

parents and teachers in what seems like a foreign language to them.

Pen

>

> >

I wrote on another board that the night I was sure something was

> > really wrong was the 1st night he ever started running in circles

saying

> > “DIGGA, DIGGA, DIGGA…” He was 21 months when he 1st did this.

December 3, 2007

In a message dated 12/3/2007 9:00:52 PM Eastern Standard Time, joannepriftinicholas@... writes:

mookah

that is sooo great... my son jargoned and jargoned... but soon he was spelling out whole sentences out loud to me... when he saw I could not understand his very bad articulation... at times.. now.. he will say something and I can't quite understand.. he just looks at me and spells it out loud.. and I say.."O... OK>>.. now I understand you.."... LiaCheck out AOL Money Finance's list of the hottest products and top money wasters of 2007.

December 4, 2007

for my guy eekah maah kah mookah maakah was " whole foods "

once i realized he had his own language , my ears perked up

when my kid was 3 & before I figured out biomed prior to GFCF etc

he jargoned a lot

I mean all the time

he had a 15 word NOUN only vocabulary

one day while approaching the downtown train station he was gleefully

shouting

eencha eencha nah ha niiiiey caah go yine

train fanatic that he was, and still is

(wanna see our HO scale train table?!)

he was shouting engine engine number nine..chicago line

had to pull over, crying to myself, my kid is in there & I gotta get

him out. I shortly thereafter prior to gfcf, embarked upon our first

intervention which was an elimination diet, which once begun and

within 5 days, he went from a 15 to a 65 word vocabulary, started to

make eye contact, wanted me to see something on tv & pulled me there

looking right at my eyes the entire time, stopped toe walking, began

to sleep through the night

joanne

> Subject: OT: digga, dugga, tooka WAS Autism Speaks Signs

> My daughter said " tooka-toooka-tooka " .

>

> One of my past bosses is from Nigeria, and when he would speak

Nigerian

> to someone on the phone, it sounded like " ah-booga-booga-boogah " to

me.

> My ear could not pick up nuances in his language and it all sounded

> alike to me.

>

> Having heard folks speaking in other languages and being painfully

aware

> of how NOT ABLE I was to process the individual sounds and nuances

of

> that language I was makes me VERY AWARE of the probability that my

> daughter was probably hearing only the " ah-tooka-tooka-tooka " of

what we

> were speaking around her in English. For some reason, she just heard

> mostly t's and k's and ooooooo sounds, similar to my own situation

and

> what I thought I was hearing when my boss spoke one of the Nigerian

> dialects (he speaks three of them).

>

> I think looking at ESL programs in terms of teaching reading or

language

> in autism might be one route to take, as our children may be hearing

> parents and teachers in what seems like a foreign language to them.

>

December 4, 2007

Allie said diddle-iddle-iddle for six mos before speaking. Lots of

times it was from 2-5am jumping up & down in our bed while I tried to

keep my water breaking from the pregnancy I was experiencing.

When she started talking it was " swinch swies " for french fries. Of

course, one of her first communicative efforts, Mamma jumped the curb

in the '92 Hyundai Elantra to turn into the parking lot to reward her

efforts. Then it turned into screaming " SWINCH SWIES " every time she

saw the golden arches. Once was driving back from ton, SC to

Knoxville, TN. AFTER they put the pictures on the exit signs. You know

how many mcdonalds there are from there to here? I'm thinking AT LEAST

500!!!!!

<g>

December 4, 2007

My son could not really speak at the time. Did lots of

the jargonning, but one day clear as a bell from the

back of the car came " Mcs " ! My mom laughed,

" can't speak but can say that huh? " Needless to say

what we had for lunch.

--- Debi <fightingautism@...> wrote:

> Allie said diddle-iddle-iddle for six mos before

> speaking. Lots of

> times it was from 2-5am jumping up & down in our bed

> while I tried to

> keep my water breaking from the pregnancy I was

> experiencing.

>

> When she started talking it was " swinch swies " for

> french fries. Of

> course, one of her first communicative efforts,

> Mamma jumped the curb

> in the '92 Hyundai Elantra to turn into the parking

> lot to reward her

> efforts. Then it turned into screaming " SWINCH

> SWIES " every time she

> saw the golden arches. Once was driving back from

> ton, SC to

> Knoxville, TN. AFTER they put the pictures on the

> exit signs. You know

> how many mcdonalds there are from there to here? I'm

> thinking AT LEAST

> 500!!!!!

>

> <g>

>

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December 4, 2007

OMG- thanks for the warning. We’re driving to TN next summer (on our cross country trip).

My son used to get up from 2-5am too... That was before “the diet”.

He never slept for more than 8 hours for the first year and a half. Thank god I worked from home.

On 12/3/07 11:53 PM, " Debi " <fightingautism@...> wrote: