Guest guest Posted March 15, 2007 Report Share Posted March 15, 2007 Hello everyone- new to the group. I'm the father of a 10yr old girl who was diagnosed about 7yrs ago with . I don't have a lot to say at this moment, except that I'm grateful to the individual who started this so that we all may share our knowledge and experience. What my daughter has experienced, in regard to this disorder, is the same as what I'm sure all of you are already familiar with. The episodes when she was little were severe enough to land her in the hospital with some frequency. She had the regular bouts with it, went through a period a couple of years ago when they lessened in frequency, and then in the last several months seem to pick back up again with the new symptom of joint pain, and more severe mouth ulcers. Her mother (she has born most of the burden-divorced) and I wondered if being pre-pubescent was a factor. The doctor (who mom isn't very happy with) wondered the same thing. So my purpose in being here is to gain any knowledge I can to help this girl. It is frustrating to me that for all our knowledge in the field of medicine, this seems to be something new ; and there seems to be no knowledge as to what causes it. There has to be a cause. What is it? In spite of her suffering, Gracy (our daughter) is doing well. She's been quite the trooper. There are things to be grateful for. until later, Shane --------------------------------- Don't be flakey. Get for Mobile and always stay connected to friends. Quote Link to comment Share on other sites More sharing options...
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