Re: Ohio doctors - pneumococcus?

[Guest guest]

Hi

You poor thing, sounds like you had a bad weekend! I live in South Africa so

don't know any Ohio doctors but just wanted to let you know that Emma (21

months) also got one (actually the first ever 11 months ago) fever episode right

after her Prevenar jab. No idea if it's related, apparently stress and jabs can

set off the fever (she didn't get it after ANY of the other ones though). Other

than that the Prevenar jab has worked well i.e. no ear infections or the like

since the jab.

Good luck to you

Inga.

Ohio doctors - pneumococcus?

Hi everyone,

Anyone here worked with a smart, responsive, and knowledgeable

pediatrician in Ohio? We are in the SE corner but would be willing to

travel for the right guy or gal, at least as far as other Ohio

destinations are concerned - and possibly into KY, WV, and PA. But

really, Columbus (OH) would be ideal. We're being told that the

infectious disease docs at Children's Hospital in Columbus would be

the place to start.

We have just come off a hard weekend where we spent Friday night in

the ER at Children's Hospital in Columbus, fending off a CT for

suspected appendicitis. This turned out to be most likely one of

Leo's periodic fevers, which maxed out at 105, plus a gassy belly

that was much better once he could say, " I tootered, Mama! " We were

lucky to be discharged late Saturday afternoon after much stress and

fear.

So now we are thinking we need to do some serious diagnostic work and

nail down a diagnosis before Leo starts glowing unhealthily from

excess radiation. He's had fevers for a year, now, and the weekend's

adventure convinced us that we need to become much more proactive.

On top of the weekend's stress, we learned today that Leo has (had?)

streptococcus pneumoniae (aka pneumococcus) in his blood. It was

cultured on Friday night and results came back this morning. Anyone

have any experience with this? He's now on heavy-duty antibiotics -

and was previously vaccinated with Prevnar - but I'm wondering how

the heck this bacterium got into his blood. I'm also wondering how

this might be related to the weekend's attack, which was different in

some ways (fever for only about 36 hours, plus no obvious throat

involvement. Could the pneumococcal bacteremia have caused the fever

this time? And if so, wouldn't he have been a whole lot sicker,

considering he didn't have any antibiotics until today?

I'll be grateful for any tips. If you don't feel comfortable posting

doctors' names, I'd be glad if you'd contact me off-list. Thanks a

million!

Warmly,

Patty and Leo (3.10, likely ) and Sam (7.5, healthy)

--

R. Stokes, Ph.D.

Instructor, Women's Studies

Ohio University

___________________________________________________________

is the world's favourite email. Don't settle for less, sign up for

your free account today

http://uk.rd./evt=44106/*http://uk.docs./mail/winter07.html

[Guest guest]

If Cincinnati is not too far, I have the best pediatrician in the world for you.

His name is Dr. Nofziger. When my older daughter was born sick...he made sure

she had the best of everything. She was in ICU for 10 weeks and he was there

EVERY day to see her, he even called us on Christmas morning and said to stay

home with our other children, that he would stay at the hospital until we got

there. Another time my older daughter got really sick and he was out of town

and I took her to Children's ER and they couldn't figure it out. On the 3rd

trip I called him and he diagnosed her over the phone! She was kept in the

hospital for 4 days she was so sick. We have not lived in Cincinnat for 10

years, but my 16 year old daughter still talks about how great he is. I called

him to get advice with Sami and he remembered and was so helpful. If her

tonsilectomy does not work to bring down her blood levels, I will be taking her

to Dr. Nofzigner (450 miles away) - He's that

good!!!

Trish

Stokes <patricia.stokes@...> wrote:

Hi everyone,

Anyone here worked with a smart, responsive, and knowledgeable

pediatrician in Ohio? We are in the SE corner but would be willing to

travel for the right guy or gal, at least as far as other Ohio

destinations are concerned - and possibly into KY, WV, and PA. But

really, Columbus (OH) would be ideal. We're being told that the

infectious disease docs at Children's Hospital in Columbus would be

the place to start.

We have just come off a hard weekend where we spent Friday night in

the ER at Children's Hospital in Columbus, fending off a CT for

suspected appendicitis. This turned out to be most likely one of

Leo's periodic fevers, which maxed out at 105, plus a gassy belly

that was much better once he could say, " I tootered, Mama! " We were

lucky to be discharged late Saturday afternoon after much stress and

fear.

So now we are thinking we need to do some serious diagnostic work and

nail down a diagnosis before Leo starts glowing unhealthily from

excess radiation. He's had fevers for a year, now, and the weekend's

adventure convinced us that we need to become much more proactive.

On top of the weekend's stress, we learned today that Leo has (had?)

streptococcus pneumoniae (aka pneumococcus) in his blood. It was

cultured on Friday night and results came back this morning. Anyone

have any experience with this? He's now on heavy-duty antibiotics -

and was previously vaccinated with Prevnar - but I'm wondering how

the heck this bacterium got into his blood. I'm also wondering how

this might be related to the weekend's attack, which was different in

some ways (fever for only about 36 hours, plus no obvious throat

involvement. Could the pneumococcal bacteremia have caused the fever

this time? And if so, wouldn't he have been a whole lot sicker,

considering he didn't have any antibiotics until today?

I'll be grateful for any tips. If you don't feel comfortable posting

doctors' names, I'd be glad if you'd contact me off-list. Thanks a

million!

Warmly,

Patty and Leo (3.10, likely ) and Sam (7.5, healthy)

--

R. Stokes, Ph.D.

Instructor, Women's Studies

Ohio University

---------------------------------

Ahhh...imagining that irresistible " new car " smell?

Check outnew cars at Autos.

[Guest guest]

Just Curious, do you know what your son's DnaseB level is? or ASO level? This

has been Sami's problem. Trish

Stokes <patricia.stokes@...> wrote: Hi

everyone,

Anyone here worked with a smart, responsive, and knowledgeable

pediatrician in Ohio? We are in the SE corner but would be willing to

travel for the right guy or gal, at least as far as other Ohio

destinations are concerned - and possibly into KY, WV, and PA. But

really, Columbus (OH) would be ideal. We're being told that the

infectious disease docs at Children's Hospital in Columbus would be

the place to start.

We have just come off a hard weekend where we spent Friday night in

the ER at Children's Hospital in Columbus, fending off a CT for

suspected appendicitis. This turned out to be most likely one of

Leo's periodic fevers, which maxed out at 105, plus a gassy belly

that was much better once he could say, " I tootered, Mama! " We were

lucky to be discharged late Saturday afternoon after much stress and

fear.

So now we are thinking we need to do some serious diagnostic work and

nail down a diagnosis before Leo starts glowing unhealthily from

excess radiation. He's had fevers for a year, now, and the weekend's

adventure convinced us that we need to become much more proactive.

On top of the weekend's stress, we learned today that Leo has (had?)

streptococcus pneumoniae (aka pneumococcus) in his blood. It was

cultured on Friday night and results came back this morning. Anyone

have any experience with this? He's now on heavy-duty antibiotics -

and was previously vaccinated with Prevnar - but I'm wondering how

the heck this bacterium got into his blood. I'm also wondering how

this might be related to the weekend's attack, which was different in

some ways (fever for only about 36 hours, plus no obvious throat

involvement. Could the pneumococcal bacteremia have caused the fever

this time? And if so, wouldn't he have been a whole lot sicker,

considering he didn't have any antibiotics until today?

I'll be grateful for any tips. If you don't feel comfortable posting

doctors' names, I'd be glad if you'd contact me off-list. Thanks a

million!

Warmly,

Patty and Leo (3.10, likely ) and Sam (7.5, healthy)

--

R. Stokes, Ph.D.

Instructor, Women's Studies

Ohio University

---------------------------------

Ahhh...imagining that irresistible " new car " smell?

Check outnew cars at Autos.

[Guest guest]

Hi Inga,

Thanks for your sympathy and the information on the Prevnar reaction.

That is sure strange, but I suppose it could just be coincidence,

too. I'll be wishing good things for Emma!

Take care,

Patty (Leo 3.10, fevering since May 2006)

>Hi

>You poor thing, sounds like you had a bad weekend! I live in South

>Africa so don't know any Ohio doctors but just wanted to let you

>know that Emma (21 months) also got one (actually the first ever 11

>months ago) fever episode right after her Prevenar jab. No idea if

>it's related, apparently stress and jabs can set off the fever (she

>didn't get it after ANY of the other ones though). Other than that

>the Prevenar jab has worked well i.e. no ear infections or the like

>since the jab.

>Good luck to you

>Inga.

>

> Ohio doctors - pneumococcus?

>

>Hi everyone,

>

>Anyone here worked with a smart, responsive, and knowledgeable

>pediatrician in Ohio? We are in the SE corner but would be willing to

>travel for the right guy or gal, at least as far as other Ohio

>destinations are concerned - and possibly into KY, WV, and PA. But

>really, Columbus (OH) would be ideal. We're being told that the

>infectious disease docs at Children's Hospital in Columbus would be

>the place to start.

>

>We have just come off a hard weekend where we spent Friday night in

>the ER at Children's Hospital in Columbus, fending off a CT for

>suspected appendicitis. This turned out to be most likely one of

>Leo's periodic fevers, which maxed out at 105, plus a gassy belly

>that was much better once he could say, " I tootered, Mama! " We were

>lucky to be discharged late Saturday afternoon after much stress and

>fear.

>

>So now we are thinking we need to do some serious diagnostic work and

>nail down a diagnosis before Leo starts glowing unhealthily from

>excess radiation. He's had fevers for a year, now, and the weekend's

>adventure convinced us that we need to become much more proactive.

>

>On top of the weekend's stress, we learned today that Leo has (had?)

>streptococcus pneumoniae (aka pneumococcus) in his blood. It was

>cultured on Friday night and results came back this morning. Anyone

>have any experience with this? He's now on heavy-duty antibiotics -

>and was previously vaccinated with Prevnar - but I'm wondering how

>the heck this bacterium got into his blood. I'm also wondering how

>this might be related to the weekend's attack, which was different in

>some ways (fever for only about 36 hours, plus no obvious throat

>involvement. Could the pneumococcal bacteremia have caused the fever

>this time? And if so, wouldn't he have been a whole lot sicker,

>considering he didn't have any antibiotics until today?

>

>I'll be grateful for any tips. If you don't feel comfortable posting

>doctors' names, I'd be glad if you'd contact me off-list. Thanks a

>million!

>

>Warmly,

>Patty and Leo (3.10, likely ) and Sam (7.5, healthy)

>

>--

> R. Stokes, Ph.D.

>Instructor, Women's Studies

>Ohio University

>

>__________________________________________________________

> is the world's favourite email. Don't settle for less, sign up for

>your free account today

><http://uk.rd./evt=44106/*http://uk.docs./mail/winter07.html>\

http://uk.rd./evt=44106/*http://uk.docs./mail/winter07.html

>

>

[Guest guest]

Hi Trish,

Thanks much for the name of your doctor in Cincinnati. I will hang

onto it, in case no one in Columbus can figure things out.

Leo hasn't had those two tests run. Until the last couple of months,

we thought we were simply dealing with repeated strep infections

(despite a number of negative rapid strep tests) - that is, plain old

tonsillitis.

I'll request that those two indicators be checked. Leo *did* have a

couple of confirmed cases of strep early on in our saga, and his

breath during his episodes smells like a kid with strep, according to

our pediatricians. So a connection to strep is plausible.

What he has in his blood is not the same streptococcus that causes

strep throat, however. It's the one that is prevented with the

Prevnar vaccine - in the same family, but implicated more often in

pneumonia and (heaven forbid) meningitis. I'm not sure whether the

DnaseB and ASO tests would reflect the presence of the strep

pneumoniae bug.

I will be hoping that Sami has an easy time with the surgery and

recovery - and I hope the same for you, too! Sometimes I think the

prospect of surgery is harder on us parents than on the kids!!

Take care,

Patty (and Leo 3.10, fevering since May 2006)

>Just Curious, do you know what your son's DnaseB level is? or ASO

>level? This has been Sami's problem. Trish

>

> Stokes

><<mailto:patricia.stokes%40stanfordalumni.org>patricia.stokes@...\

g>

>wrote: Hi everyone,

>

>Anyone here worked with a smart, responsive, and knowledgeable

>pediatrician in Ohio? We are in the SE corner but would be willing to

>travel for the right guy or gal, at least as far as other Ohio

>destinations are concerned - and possibly into KY, WV, and PA. But

>really, Columbus (OH) would be ideal. We're being told that the

>infectious disease docs at Children's Hospital in Columbus would be

>the place to start.

>

>We have just come off a hard weekend where we spent Friday night in

>the ER at Children's Hospital in Columbus, fending off a CT for

>suspected appendicitis. This turned out to be most likely one of

>Leo's periodic fevers, which maxed out at 105, plus a gassy belly

>that was much better once he could say, " I tootered, Mama! " We were

>lucky to be discharged late Saturday afternoon after much stress and

>fear.

>

>So now we are thinking we need to do some serious diagnostic work and

>nail down a diagnosis before Leo starts glowing unhealthily from

>excess radiation. He's had fevers for a year, now, and the weekend's

>adventure convinced us that we need to become much more proactive.

>

>On top of the weekend's stress, we learned today that Leo has (had?)

>streptococcus pneumoniae (aka pneumococcus) in his blood. It was

>cultured on Friday night and results came back this morning. Anyone

>have any experience with this? He's now on heavy-duty antibiotics -

>and was previously vaccinated with Prevnar - but I'm wondering how

>the heck this bacterium got into his blood. I'm also wondering how

>this might be related to the weekend's attack, which was different in

>some ways (fever for only about 36 hours, plus no obvious throat

>involvement. Could the pneumococcal bacteremia have caused the fever

>this time? And if so, wouldn't he have been a whole lot sicker,

>considering he didn't have any antibiotics until today?

>

>I'll be grateful for any tips. If you don't feel comfortable posting

>doctors' names, I'd be glad if you'd contact me off-list. Thanks a

>million!

>

>Warmly,

>Patty and Leo (3.10, likely ) and Sam (7.5, healthy)

>

>--

> R. Stokes, Ph.D.

>Instructor, Women's Studies

>Ohio University

>

>---------------------------------

>Ahhh...imagining that irresistible " new car " smell?

>Check outnew cars at Autos.

>

>

[Guest guest]

-

We are working with an immunologist - Lierl - at Cincinnati

Children's for our son's . We live in the Cincinnati area -

she has been wonderful and is very, very interested in and all

the possible treatment options available. She has been great -

always willing to listen and willing to try on new ideas regarding

the treatment of our son! We have some friends, also in Cincinnati,

that went to a different immunologist for their son's cyclic fevers

and were told " There is nothing wrong with your son. He must just

catch lots of viruses. " When our friends brought up the cyclic

nature of his fevers she said " Kids with cyclic fever diseases don't

develop normally. " We have referred them to Dr. Lierl - our son is

developing great! From my perspective - that's what makes a great

doc - willing to learn, willing to explore, willing to listen. Dr.

Lierl fits all of those. Good luck!

Newlon, Ph.D.

Senior Scientist

The Procter and Gamble Company

>

> Hi everyone,

>

> Anyone here worked with a smart, responsive, and knowledgeable

> pediatrician in Ohio? We are in the SE corner but would be willing

to

> travel for the right guy or gal, at least as far as other Ohio

> destinations are concerned - and possibly into KY, WV, and PA. But

> really, Columbus (OH) would be ideal. We're being told that the

> infectious disease docs at Children's Hospital in Columbus would

be

> the place to start.

>

> We have just come off a hard weekend where we spent Friday night

in

> the ER at Children's Hospital in Columbus, fending off a CT for

> suspected appendicitis. This turned out to be most likely one of

> Leo's periodic fevers, which maxed out at 105, plus a gassy belly

> that was much better once he could say, " I tootered, Mama! " We

were

> lucky to be discharged late Saturday afternoon after much stress

and

> fear.

>

> So now we are thinking we need to do some serious diagnostic work

and

> nail down a diagnosis before Leo starts glowing unhealthily from

> excess radiation. He's had fevers for a year, now, and the

weekend's

> adventure convinced us that we need to become much more proactive.

>

> On top of the weekend's stress, we learned today that Leo has

(had?)

> streptococcus pneumoniae (aka pneumococcus) in his blood. It was

> cultured on Friday night and results came back this morning.

Anyone

> have any experience with this? He's now on heavy-duty antibiotics -

> and was previously vaccinated with Prevnar - but I'm wondering how

> the heck this bacterium got into his blood. I'm also wondering how

> this might be related to the weekend's attack, which was different

in

> some ways (fever for only about 36 hours, plus no obvious throat

> involvement. Could the pneumococcal bacteremia have caused the

fever

> this time? And if so, wouldn't he have been a whole lot sicker,

> considering he didn't have any antibiotics until today?

>

> I'll be grateful for any tips. If you don't feel comfortable

posting

> doctors' names, I'd be glad if you'd contact me off-list. Thanks a

> million!

>

> Warmly,

> Patty and Leo (3.10, likely ) and Sam (7.5, healthy)

>

>

> --

> R. Stokes, Ph.D.

> Instructor, Women's Studies

> Ohio University

>

[Guest guest]

Hi ,

I am not sure if this will help you or not, but my 22 month old son

was diagnosed last year w/. I highly reccomend going to the

Children's Hospital's Infectious Disease Clinic in your area. That

is how we finally got our diagnosis. We went to the Children's

Hospital in Little Rock, AR to the Infectious Disease Clinic. It was

great to finally get a diagnosis-after many many many visits to the

ER w/ a fever of 106. and a high white blood cell in his blood. The

doctor said it was bacteria.

Since then everytime he has gotten one of his fevers and I took him

to the pediatrician; they do blood work and it is always the same!

No other physical symptoms, high fever, and high white blood count.

(bacteria) We have chalked it up as part of his fevers, although I

don't understand what causes it. I am going to contact our

Children's Hospital again & ask them about this. I'll keep you

informed.

So, maybe this is why your little guy had the bacteria?? Just

thought I'd let you know that we have experienced the same.

Hope this atleast eases your mind some!

Best Wishes,

Charity Treat

>

> Hi Inga,

>

> Thanks for your sympathy and the information on the Prevnar

reaction.

> That is sure strange, but I suppose it could just be coincidence,

> too. I'll be wishing good things for Emma!

>

> Take care,

> Patty (Leo 3.10, fevering since May 2006)

>

> >Hi

> >You poor thing, sounds like you had a bad weekend! I live in South

> >Africa so don't know any Ohio doctors but just wanted to let you

> >know that Emma (21 months) also got one (actually the first ever

11

> >months ago) fever episode right after her Prevenar jab. No idea if

> >it's related, apparently stress and jabs can set off the fever

(she

> >didn't get it after ANY of the other ones though). Other than that

> >the Prevenar jab has worked well i.e. no ear infections or the

like

> >since the jab.

> >Good luck to you

> >Inga.

> >

> > Ohio doctors - pneumococcus?

> >

> >Hi everyone,

> >

> >Anyone here worked with a smart, responsive, and knowledgeable

> >pediatrician in Ohio? We are in the SE corner but would be willing

to

> >travel for the right guy or gal, at least as far as other Ohio

> >destinations are concerned - and possibly into KY, WV, and PA. But

> >really, Columbus (OH) would be ideal. We're being told that the

> >infectious disease docs at Children's Hospital in Columbus would be

> >the place to start.

> >

> >We have just come off a hard weekend where we spent Friday night in

> >the ER at Children's Hospital in Columbus, fending off a CT for

> >suspected appendicitis. This turned out to be most likely one of

> >Leo's periodic fevers, which maxed out at 105, plus a gassy belly

> >that was much better once he could say, " I tootered, Mama! " We were

> >lucky to be discharged late Saturday afternoon after much stress

and

> >fear.

> >

> >So now we are thinking we need to do some serious diagnostic work

and

> >nail down a diagnosis before Leo starts glowing unhealthily from

> >excess radiation. He's had fevers for a year, now, and the

weekend's

> >adventure convinced us that we need to become much more proactive.

> >

> >On top of the weekend's stress, we learned today that Leo has

(had?)

> >streptococcus pneumoniae (aka pneumococcus) in his blood. It was

> >cultured on Friday night and results came back this morning. Anyone

> >have any experience with this? He's now on heavy-duty antibiotics -

> >and was previously vaccinated with Prevnar - but I'm wondering how

> >the heck this bacterium got into his blood. I'm also wondering how

> >this might be related to the weekend's attack, which was different

in

> >some ways (fever for only about 36 hours, plus no obvious throat

> >involvement. Could the pneumococcal bacteremia have caused the

fever

> >this time? And if so, wouldn't he have been a whole lot sicker,

> >considering he didn't have any antibiotics until today?

> >

> >I'll be grateful for any tips. If you don't feel comfortable

posting

> >doctors' names, I'd be glad if you'd contact me off-list. Thanks a

> >million!

> >

> >Warmly,

> >Patty and Leo (3.10, likely ) and Sam (7.5, healthy)

> >

> >--

> > R. Stokes, Ph.D.

> >Instructor, Women's Studies

> >Ohio University

> >

> >__________________________________________________________

> > is the world's favourite email. Don't settle for less,

sign up for

> >your free account today

>

><http://uk.rd./evt=44106/*http://uk.docs./mail/wint

er07.html>http://uk.rd./evt=44106/*http://uk.docs./m

ail/winter07.html

> >

> >