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NIH -- Budget Cuts

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Hi Fran -- Somehow I missed your posting yesterday. Not sure how I

did that. So you've already heard ... please do keep us informed.

Today I emailed Dr. Song and Dr. Kastner to find out. Dr. Song

replied very immediately saying she hadn't heard anything ... Dr.

Kastner didn't respond yet. I also asked them questions in regards

to why we still haven't received Mason's last genetic tests because

now I'm wondering if that last test was ever even sent out ... plus,

we need to know if they still have Mason in the Protocol because he

needs to have this Card 15 gene test yet.

Its sad to think that the government would cut costs for such

programs that help our children. I am very upset. Currently, my son

is not taking any meds. that they provide but for those children that

do, it is awful to hear they can't get their meds.

I plan on writing some letters and making some phone calls to

legislators on this as soon as I find out whether or not my son is

still in the protocol, because if he's no longer a part I plan on

writing to our local papers who already are aware of my son's

illnesses.

Heidi

Mommy of Mason

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