4 year old with periodic fevers

[Guest guest]

Hi Robin,

It would be a bit of a drive for you from Sonoma county, but Stanford has

excellent pediatric rheumatologists and infectious disease specialists who treat

kids with . Let me know if you want specific contact info.

BTW, it has now been 6.5 weeks since Sammy's last fever. The cimetidine we

started in September seems to be working great.

--Lori (mom to Sammy, 7, JRA/uveitis/)

[Guest guest]

Hi Robin - welcome to the group! I hope you find the answers you need

here . . . sounds to me like your son could have a PFS - but you have

to get the doctors to look into it as well . . .

I'm sorry I can't help with any docs in CA - but hopefully someone

else will be able to.

Hang in there and prayers for all!

Hannah

Aidan - 3 fevering 20 months

Sid - 5

[Guest guest]

>Hi Lori,

I would definitely like the contact information for the specialists

at Stanford, it is a bit of a drive but worth it to be able to see

people who have dealt with .

He started another fever cycle yesterday, and we had trouble

controlling it even with the Motrin and Tylenol last night, so the

doctor had us move up to every two hours and do another luke warm

bath. Doing better this morning.

Thank you for your help,

Robin

>

Hi Robin,

>

> It would be a bit of a drive for you from Sonoma county, but

Stanford has

> excellent pediatric rheumatologists and infectious disease

specialists who treat

> kids with . Let me know if you want specific contact info.

>

> BTW, it has now been 6.5 weeks since Sammy's last fever. The

cimetidine we

> started in September seems to be working great.

>

> --Lori (mom to Sammy, 7, JRA/uveitis/)

>

>

>

[Guest guest]

HI Robin,

My son went to UCSF childrens hospital, and saw Dr. Shaney. They were very

knowledgeable and did all the genetic testing. At the time my son had only had

a history of six fevers at the time and they didn't think it was enough to give

him a diagnosis. I know they have a lot of experience. I have not been

back there as we changed insurance and my son is now seeing a doc at CPMC

(california pacific) Dr. Keong-Ponce who gave him the diagnosis. I am not

totally in love with her, but she does know what she is doing, and the plan is

that if he contines to have fevers until he is four we will try taking his

tonsils out. Right now he fevers every six weeks from Mar - Nov, and then it is

sporatic.. He just had a four day fever this weekend, and if it follows the

same pattern as last year it will come back in March.

I hope this helps.

,

Mom to Hieser (3 years - )

>Hi Lori,

I would definitely like the contact information for the specialists

at Stanford, it is a bit of a drive but worth it to be able to see

people who have dealt with .

He started another fever cycle yesterday, and we had trouble

controlling it even with the Motrin and Tylenol last night, so the

doctor had us move up to every two hours and do another luke warm

bath. Doing better this morning.

Thank you for your help,

Robin

>

Hi Robin,

>

> It would be a bit of a drive for you from Sonoma county, but

Stanford has

> excellent pediatric rheumatologists and infectious disease

specialists who treat

> kids with . Let me know if you want specific contact info.

>

> BTW, it has now been 6.5 weeks since Sammy's last fever. The

cimetidine we

> started in September seems to be working great.

>

> --Lori (mom to Sammy, 7, JRA/uveitis/)

>

>

>

[Guest guest]

Hi everybody,

Thank you again for the Dr. Lee reference at Stanford, we are set to

see her on Feb. 1st.

Our son is fevering again starting last night after only about a 1 1/2

week break, we have never had them this close together before. In fact

we had moved from a 2 1/2 week cycle in June to a one month cycle since

then. Has anyone ever had it change to so close together? It's hard on

him being sick so soon again. We are hoping Dr. Lee will be helpful.

Wishing everybody a happy new year,

Robin