Re: Karyn - Fevers after T&A ... are they still as severe?

[Guest guest]

Karyn,

My daughter had T & A out (her 2nd surgery of 10) when she was 3. Not

due to fevers,

but to sleep aphnea. She's 7 now.

She is adopted and has Fetal Alcohol Spectrum Disorder (FASD).

Because of her medical history, I'm not sure if she's had fevers all

along and we didn't notice.

We noticed the fevers this summer, when we took a break from surgeries.

So her's

were not helped with T & A surgery.

Every 3-4 weeks she gets a temp around 102 which lasts for about 3 days.

Sometimes she throws up. Sometimes just sleeps for 3 days and then

is better. If her temp goes to 103 we always take her to the Drs and they

always say she's probably got a virus.

Christmas morning she had a temp of only 100 and threw up when

she woke up. But has been fine since.

I've begun a chart and will seek a dx if the fevers continue

in this pattern.

Elaine

>

>

> Basically, I'm just wondering if anyone else who's child had a T & A had

> a similar experience or if they still fevered after the surgery what

> was it like? Thanks for the help. I appreciate the support of this

> website and all the information we are able to share.

>

> Karyn

> Mom to 2.5 ()

>

>

> ------------------------------------------------------------------------

>

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>

[Guest guest]

Hello everyone -

I don't check in with the group very often anymore but wanted to share our

success once again with the Tonsillectomy.

We saw two specialists after our son suffered with for five years...one

at Children's Memorial and one at University of Chicago. One physician told us

to ignore any research we may find on tonsillectomy being a cure for and

the other physician was much more optimistic and open to the idea.

Additionally, our ENT was fantastic and went ahead and did her own research to

find whether it would be worthwhile to undergo the tonsillectomy. She said the

results were favorable and we decided to pursue it....what did we have to lose?

I'm so happy to say that it's been one year and two months since the surgery

and our son has only had ONE fever. It has been life altering....a miracle.

Please, please do your own research and consider this!!! For five years,

every month, our son suffered for three full days with a fever that spiked to

104 - 105 without Motrin. He was miserable.

If you anyone would like to discuss this with us, please feel free to contact

us at any time.

Sincerely,

The Chiavola family

[Guest guest]

Children under 3 years are handled differently when having a T & A

because of their age. Our daughter was in the hospital for 24 hours.

She refused to drink anything until just a few hours before we left.

They kept her hooked up to IV's so she did not get dehydrated. And,

she did vomit a few times while we were in the hospital so that's a

little scary right after their surgery. It's very difficult to get a

child under 3 to drink like they should post surgery. Do whatever

you can to make it happen ... we offered lots of ice cream, slushes,

anything liquid we thought she may drink/eat. We would make games

out of drinking and after the first couple of days it got much, much

easier to get her to drink. First thing in the morning was the

worst ... She just didn't want to drink a thing. I'm not going to

sugarcoat it, it's going to be hard to watch (as a parent). You feel

horrible for your little one because their throats hurt them so badly

and they cry and just appear miserable. But, slowly you will notice

it gets better. I highly recommend you stick to the diet the doctor

prescribes because you do not want the scabs to breakaway or your

child will end up back in surgery again. We followed orders exactly

and our daughter was back to normal within two weeks ... she has not

had a fever (104+) since before her surgery.

We really had a hard time deciding whether or not to proceed with the

surgery when our docs recommended it. She had never been treated for

throat infections or tonsilitis, so we thought we may be doing

something that was not necessary. All other treatments had not

helped her and she had been suffering with 106+ fevers for over two

years and deep down we really wanted her to have a " normal " childhood

and watching her being sick 5 days every month was just very

difficult to handle. After the surgery the ENT told us how glad he

was we chose to proceed, her tonsils were horribly scarred and he

felt very hopeful removing them would help her fevers. For me, being

told this, helped ease my mind on the choice we made. I knew we had

done the right thing for our daughter. Our ENT has had 100% success

with his periodic fever patients.

Best of luck, if you have any questions, please feel free to ask. We

just went through this surgery three months ago.

Karyn

2 1/2 -

> Hello everyone -

>

> I don't check in with the group very often anymore but wanted to

share our success once again with the Tonsillectomy.

>

> We saw two specialists after our son suffered with for five

years...one at Children's Memorial and one at University of Chicago.

One physician told us to ignore any research we may find on

tonsillectomy being a cure for and the other physician was much

more optimistic and open to the idea.

>

> Additionally, our ENT was fantastic and went ahead and did her own

research to find whether it would be worthwhile to undergo the

tonsillectomy. She said the results were favorable and we decided to

pursue it....what did we have to lose?

>

> I'm so happy to say that it's been one year and two months since

the surgery and our son has only had ONE fever. It has been life

altering....a miracle.

>

> Please, please do your own research and consider this!!! For five

years, every month, our son suffered for three full days with a fever

that spiked to 104 - 105 without Motrin. He was miserable.

>

> If you anyone would like to discuss this with us, please feel free

to contact us at any time.

>

> Sincerely,

> The Chiavola family

>

>

[Guest guest]

I'm not Leanne, but we also use the ear thermometer and if we

question its accuracy we will use a thermometer under the arm. It is

always within a few points of each other. Our docs have told us that

the ear thermometer is fine. One recommendation is to ensure you do

not check the ear they are laying on ... say they are laying on their

right side in bed, don't check that ear for temp. It can make a

difference of an entire degree.

Our daughter too is small in nature and underweight. Since her T & A

surgery she has grown 1 inch and gained two pounds. She eats so much

better now. She will even tell me, " Mommy, my mouth don't hurt. " and

she's really excited about that. (she suffered with mouth sores with

).

I hope this info helps.

Karyn

2 1/2 -

> Hello everyone -

>

> I don't check in with the group very often anymore but wanted to

share our success once again with the Tonsillectomy.

>

> We saw two specialists after our son suffered with for five

years...one at Children's Memorial and one at University of Chicago.

One physician told us to ignore any research we may find on

tonsillectomy being a cure for and the other physician was much

more optimistic and open to the idea.

>

> Additionally, our ENT was fantastic and went ahead and did her own

research to find whether it would be worthwhile to undergo the

tonsillectomy. She said the results were favorable and we decided to

pursue it....what did we have to lose?

>

> I'm so happy to say that it's been one year and two months since

the surgery and our son has only had ONE fever. It has been life

altering....a miracle.

>

> Please, please do your own research and consider this!!! For five

years, every month, our son suffered for three full days with a fever

that spiked to 104 - 105 without Motrin. He was miserable.

>

> If you anyone would like to discuss this with us, please feel free

to contact us at any time.

>

> Sincerely,

> The Chiavola family

>

>

[Guest guest]

Hi Dawn,

When are you scheduled for your pre-op at Childrens? My daughter

is having her tonsillectomy done on the 8th and her pre-op on

Friday. Maybe we can compare notes!

Armstrong

Mom to (10 1/2 ) and Alec (14)

Mansfield, MA

> Hello everyone -

>

> I don't check in with the group very often anymore but wanted to

share our success once again with the Tonsillectomy.

>

> We saw two specialists after our son suffered with for five

years...one at Children's Memorial and one at University of Chicago.

One physician told us to ignore any research we may find on

tonsillectomy being a cure for and the other physician was

much more optimistic and open to the idea.

>

> Additionally, our ENT was fantastic and went ahead and did her own

research to find whether it would be worthwhile to undergo the

tonsillectomy. She said the results were favorable and we decided to

pursue it....what did we have to lose?

>

> I'm so happy to say that it's been one year and two months since

the surgery and our son has only had ONE fever. It has been life

altering....a miracle.

>

> Please, please do your own research and consider this!!! For five

years, every month, our son suffered for three full days with a

fever that spiked to 104 - 105 without Motrin. He was miserable.

>

> If you anyone would like to discuss this with us, please feel free

to contact us at any time.

>

> Sincerely,

> The Chiavola family

>

>

[Guest guest]

We are using TA Scanner too & have done comparisons for accuracy. Absolutely

love it & would not go back! Melody

Re: Karyn - Fevers after T & A ... are they still as severe?

Posted by: " Azzie F " azzief@... azziefiouzi Tue Jan 2, 2007

12:19 pm (PST) ,

We started using TA Scanner too (a couple of months ago) and oh my god what

a difference. I told my pediatrician about it and he conducted his own

" research " by comparison and he too finds that this is one of the most

accurate reads. I started using it primarily for my newborn, and I'm now

using it on all my children I would highly suggest everyone looking into

this. Its quick and easy! and very accurate.

ps. can you tell how much I love this!

Azzie

__________________________________________________

[Guest guest]

Hello,

I am so glad I found someone to talk to about all this. My son

Jaeden was diagnosed just last month with . He is 5 years old

now, so for two years my pediatrician thought I was nuts. The

specialist suggest we give him Predisone when fever hits. This

knocks the fevers out right away, but he then got sick two weeks

later then again 3 days later. So now I battle him getting sick

more often but not so severe. The specialist recommend that we get

his tonsils removed also. I was wondering if any of you parents had

trouble as your children were infants with any kind of milk

interlounces?? My pediatriacian could never tell us rather he was

lactose or protein intolerant but he definately had trouble taking

breast milk or formulas. What he could tolerate the best was the

easy to digest protein formulas. He also woke up at night screaming

like something was hurting him until he was about 4 years old. The

doctor said these were just night terrors. Did any of your children

experience any type of formula alergies and inconsisant sleeping?

Also, have your children been tested for HIDS or TRAPS? These are

genetic disorders. These have the same symptons and are very rare

like .

Thank you for all your help.

, " Bisson " <proudmom@...> wrote:

>

> After spending t he last 6 months using this thermometer.. I will

never go back to my ear thermometer again.

> http://www.exergen.com/medical/TAT/2000.htm

>

> it was well well worth the money... and it was cheaper then my ear

thermometer...

> vanessa mom to kiara diagnosed with traps adn familial cold

without the genetics and mccuen albright syndrome..

> Re: Karyn - Fevers after T & A ... are they still

as severe?

>

>

> I'm not Leanne, but we also use the ear thermometer and if we

> question its accuracy we will use a thermometer under the arm.

It is

> always within a few points of each other. Our docs have told us

that

> the ear thermometer is fine. One recommendation is to ensure you

do

> not check the ear they are laying on ... say they are laying on

their

> right side in bed, don't check that ear for temp. It can make a

> difference of an entire degree.

>

> Our daughter too is small in nature and underweight. Since her

T & A

> surgery she has grown 1 inch and gained two pounds. She eats so

much

> better now. She will even tell me, " Mommy, my mouth don't hurt. "

and

> she's really excited about that. (she suffered with mouth sores

with

> ).

>

> I hope this info helps.

>

> Karyn

> 2 1/2 -

>

>

> > Hello everyone -

> >

> > I don't check in with the group very often anymore but wanted

to

> share our success once again with the Tonsillectomy.

> >

> > We saw two specialists after our son suffered with for

five

> years...one at Children's Memorial and one at University of

Chicago.

> One physician told us to ignore any research we may find on

> tonsillectomy being a cure for and the other physician was

much

> more optimistic and open to the idea.

> >

> > Additionally, our ENT was fantastic and went ahead and did her

own

> research to find whether it would be worthwhile to undergo the

> tonsillectomy. She said the results were favorable and we

decided to

> pursue it....what did we have to lose?

> >

> > I'm so happy to say that it's been one year and two months

since

> the surgery and our son has only had ONE fever. It has been life

> altering....a miracle.

> >

> > Please, please do your own research and consider this!!! For

five

> years, every month, our son suffered for three full days with a

fever

> that spiked to 104 - 105 without Motrin. He was miserable.

> >

> > If you anyone would like to discuss this with us, please feel

free

> to contact us at any time.

> >

> > Sincerely,

> > The Chiavola family

> >

> >

[Guest guest]

Hi Dawn,

We had our pre-op today and it all went pretty smoothly. You see at

least three different people there: a nurse who takes a medical

history and does an exam, an anestheologist and another nurse (?)

life specialist (?) who goes over a picture book of what goes on.

Your son may also have to have blood taken, but luckily didn't

(she's old enough to remember exactly how many times they've taken

blood and is really getting bad about needles now). My one

recommendation to you would be to make sure your son is well fed

before you get to the pre-op clinic. Since it's where kids also

wait for surgery, they don't want any food or drink there and the

visit can take 2 hours if they're backed up and you need to see lots

of people.

's surgery is scheduled for 11:15 am and she will be spending

the night - semi private rooms. I'll let you know how it goes.

Feel free to pick my brain and ask any questions you want. Are you

north or south of Boston?

> > Hello everyone -

> >

> > I don't check in with the group very often anymore but wanted to

> share our success once again with the Tonsillectomy.

> >

> > We saw two specialists after our son suffered with for

five

> years...one at Children's Memorial and one at University of

Chicago.

> One physician told us to ignore any research we may find on

> tonsillectomy being a cure for and the other physician was

> much more optimistic and open to the idea.

> >

> > Additionally, our ENT was fantastic and went ahead and did her

own

> research to find whether it would be worthwhile to undergo the

> tonsillectomy. She said the results were favorable and we decided

to

> pursue it....what did we have to lose?

> >

> > I'm so happy to say that it's been one year and two months since

> the surgery and our son has only had ONE fever. It has been life

> altering....a miracle.

> >

> > Please, please do your own research and consider this!!! For

five

> years, every month, our son suffered for three full days with a

> fever that spiked to 104 - 105 without Motrin. He was miserable.

> >

> > If you anyone would like to discuss this with us, please feel

free

> to contact us at any time.

> >

> > Sincerely,

> > The Chiavola family

> >

> >

[Guest guest]

Shari,

Thanks! We're scheduled for 11:15 on Monday and will be

spending the night so I'll let everyone know how things went on

Tuesday.

> > Hello everyone -

> >

> > I don't check in with the group very often anymore but wanted to

> share our success once again with the Tonsillectomy.

> >

> > We saw two specialists after our son suffered with for

five

> years...one at Children's Memorial and one at University of

Chicago.

> One physician told us to ignore any research we may find on

> tonsillectomy being a cure for and the other physician was

> much more optimistic and open to the idea.

> >

> > Additionally, our ENT was fantastic and went ahead and did her

own

> research to find whether it would be worthwhile to undergo the

> tonsillectomy. She said the results were favorable and we decided

to

> pursue it....what did we have to lose?

> >

> > I'm so happy to say that it's been one year and two months since

> the surgery and our son has only had ONE fever. It has been life

> altering....a miracle.

> >

> > Please, please do your own research and consider this!!! For

five

> years, every month, our son suffered for three full days with a

> fever that spiked to 104 - 105 without Motrin. He was miserable.

> >

> > If you anyone would like to discuss this with us, please feel

free

> to contact us at any time.

> >

> > Sincerely,

> > The Chiavola family

> >

> >

[Guest guest]

Hi :

We just returned from our ENT who also recommended tonsillectomy for

our 7 1/5 year old son. His experience with 30 or so kids is the same

as your doc's (all were symptom free post op). He believes there is a

type of with a type of throat symptom that leads to a high

degree of success with tonsillectomy. He is preparing to publish his

results.

So we are seriously considering the procedure. Our son, however,

seems to have stomach symptons between fever episodes which makes

things a bit more confusing. Have you experienced this?

Thanks

Corey

> > Hello everyone -

> >

> > I don't check in with the group very often anymore but wanted to

> share our success once again with the Tonsillectomy.

> >

> > We saw two specialists after our son suffered with for five

> years...one at Children's Memorial and one at University of Chicago.

> One physician told us to ignore any research we may find on

> tonsillectomy being a cure for and the other physician was

> much more optimistic and open to the idea.

> >

> > Additionally, our ENT was fantastic and went ahead and did her own

> research to find whether it would be worthwhile to undergo the

> tonsillectomy. She said the results were favorable and we decided to

> pursue it....what did we have to lose?

> >

> > I'm so happy to say that it's been one year and two months since

> the surgery and our son has only had ONE fever. It has been life

> altering....a miracle.

> >

> > Please, please do your own research and consider this!!! For five

> years, every month, our son suffered for three full days with a

> fever that spiked to 104 - 105 without Motrin. He was miserable.

> >

> > If you anyone would like to discuss this with us, please feel free

> to contact us at any time.

> >

> > Sincerely,

> > The Chiavola family

> >

> >

[Guest guest]

Hi Corey,

Were you at Children's Boston? We were there on Monday for 's

tonsillectomy. never had stomach issues during or between

episodes and her major symptom during her episodes was tonsillitis.

> > > Hello everyone -

> > >

> > > I don't check in with the group very often anymore but wanted

to

> > share our success once again with the Tonsillectomy.

> > >

> > > We saw two specialists after our son suffered with for

five

> > years...one at Children's Memorial and one at University of

Chicago.

> > One physician told us to ignore any research we may find on

> > tonsillectomy being a cure for and the other physician was

> > much more optimistic and open to the idea.

> > >

> > > Additionally, our ENT was fantastic and went ahead and did her

own

> > research to find whether it would be worthwhile to undergo the

> > tonsillectomy. She said the results were favorable and we decided

to

> > pursue it....what did we have to lose?

> > >

> > > I'm so happy to say that it's been one year and two months

since

> > the surgery and our son has only had ONE fever. It has been life

> > altering....a miracle.

> > >

> > > Please, please do your own research and consider this!!! For

five

> > years, every month, our son suffered for three full days with a

> > fever that spiked to 104 - 105 without Motrin. He was miserable.

> > >

> > > If you anyone would like to discuss this with us, please feel

free

> > to contact us at any time.

> > >

> > > Sincerely,

> > > The Chiavola family

> > >

> > >

[Guest guest]

Hi Corey,

The doctor we used was Mark Volk and he was wonderful! ( named

her monkey webkinz that we gave her in the hospital " Mark " after

him!) We had been referred to him by our pediatrician three years

ago when we were first considering a tonsillectomy and met him them.

I liked his approach to not do the tonsillectomy immediately, but to

try cimetidine to see if it would work as it was the least invasive

method. We tried the cimetidine and got about two years fever free,

then one episide, then six months later another episode, and then

more in 2 month intervals. We decided to do the tonsillectomy mainly

because the size of her tonsils wasn't going down in between episodes

and tonsillitis was the major problem with . Her fevers

generally were around 102 although a couple of episodes were over 103.

Dr. Volk was familiar with but I know that Dr. Licamelli is

more familiar and others on this site have seen him and he did my

neighbor's ear tubes. Apparently his daughter had and he is

doing a study of kids who have tonsillectomies.

Hope this helps, but feel free to call me if you want (508-339-4525)

PS is doing just fine - lots of drinking, no pain meds and

getting really bored and ready to go back to school!

Armstrong

> >> > > Hello everyone -

> >> > >

> >> > > I don't check in with the group very often anymore but

wanted

> >to

> >> > share our success once again with the Tonsillectomy.

> >> > >

> >> > > We saw two specialists after our son suffered with for

> >five

> >> > years...one at Children's Memorial and one at University of

> >Chicago.

> >> > One physician told us to ignore any research we may find on

> >> > tonsillectomy being a cure for and the other physician

was

> >> > much more optimistic and open to the idea.

> >> > >

> >> > > Additionally, our ENT was fantastic and went ahead and did

her

> >own

> >> > research to find whether it would be worthwhile to undergo the

> >> > tonsillectomy. She said the results were favorable and we

decided

> >to

> >> > pursue it....what did we have to lose?

> >> > >

> >> > > I'm so happy to say that it's been one year and two months

> >since

> >> > the surgery and our son has only had ONE fever. It has been

life

> >> > altering....a miracle.

> >> > >

> >> > > Please, please do your own research and consider this!!! For

> >five

> >> > years, every month, our son suffered for three full days with

a

> >> > fever that spiked to 104 - 105 without Motrin. He was

miserable.

> >> > >

> >> > > If you anyone would like to discuss this with us, please

feel

> >free

> >> > to contact us at any time.

> >> > >

> >> > > Sincerely,

> >> > > The Chiavola family

> >> > >

> >> > >

[Guest guest]

Hi ,

had a very easy time. She's been drinking up a storm and goes

back to school tomorrow. I'm hoping the scabs have come and gone

now. They looked white before but it's looking better now. The end

of the week she was thoroughly bored and pretty much back to her old

self!

THanks for asking. How did NIH go for you?

> > >> > > Hello everyone -

> > >> > >

> > >> > > I don't check in with the group very often anymore but

> wanted

> > >to

> > >> > share our success once again with the Tonsillectomy.

> > >> > >

> > >> > > We saw two specialists after our son suffered with

for

> > >five

> > >> > years...one at Children's Memorial and one at University

of

> > >Chicago.

> > >> > One physician told us to ignore any research we may find

on

> > >> > tonsillectomy being a cure for and the other

physician

> was

> > >> > much more optimistic and open to the idea.

> > >> > >

> > >> > > Additionally, our ENT was fantastic and went ahead and

did

> her

> > >own

> > >> > research to find whether it would be worthwhile to undergo

the

> > >> > tonsillectomy. She said the results were favorable and we

> decided

> > >to

> > >> > pursue it....what did we have to lose?

> > >> > >

> > >> > > I'm so happy to say that it's been one year and two

months

> > >since

> > >> > the surgery and our son has only had ONE fever. It has

been

> life

> > >> > altering....a miracle.

> > >> > >

> > >> > > Please, please do your own research and consider this!!!

For

> > >five

> > >> > years, every month, our son suffered for three full days

with

> a

> > >> > fever that spiked to 104 - 105 without Motrin. He was

> miserable.

> > >> > >

> > >> > > If you anyone would like to discuss this with us, please

> feel

> > >free

> > >> > to contact us at any time.

> > >> > >

> > >> > > Sincerely,

> > >> > > The Chiavola family

> > >> > >

> > >> > >