Guest guest Posted December 26, 2006 Report Share Posted December 26, 2006 Trish, Out of curiosity why did you use Singulair? Azzie Fiouzi _____ From: [mailto: ] On Behalf Of trish santos Sent: Tuesday, December 26, 2006 11:55 AM Subject: Singulair question... Well, I hope everyone had a better Christmas than us. 5 of the 6 of us were sick and we ended up in the emergency room with my husband and Sami. This was the first time that we tried singulair for Sami's episode, we gave it at the onset of the episode for 5 days, but it didn't seem to make a difference. She caught a bad cold virus on top of an episode. Has anyone else tried this method, or do they use it each day? I thought I would try this method first since our insurance company denied coverage for the singulair. Just wondering if I should try again next time, or switch her to every day. Thanks, Trish __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2006 Report Share Posted December 26, 2006 My understanding from my son's doctors is that the Singulair is like a maintenance drug...needs to be taken every day, regardless of fever episodes... Kate _________________________________________________________________ Your Hotmail address already works to sign into Windows Live Messenger! Get it now http://clk.atdmt.com/MSN/go/msnnkwme0020000001msn/direct/01/?href=http://get.liv\ e.com/messenger/overview Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2006 Report Share Posted December 27, 2006 > Hi Ditto on the Singulair here. Must be taken every day (sorry)! My daughter even had a relapse of fevers when we were without for five days. She has just had another fever (over Christmas of course) but they don't go as high and are only 3 days. I think she got an episode instead of the chest cold the rest of the family has! Lori > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2006 Report Share Posted December 27, 2006 I believe at the Periodic Fever Conference in Hershey, Dr. Holmes Morton said that he had been having success treating his HIDS patients by only using the singulair just before a fever episode. Ellyn Mom of (Periodic Fever) (5), Alyssa(9), and Kate(4) Philadelphia, PA <slsjasrodgers@...> Sent by: 12/27/2006 02:26 PM Please respond to To < > cc Subject Re: RE: Singulair question... > Hi Ditto on the Singulair here. Must be taken every day (sorry)! My daughter even had a relapse of fevers when we were without for five days. She has just had another fever (over Christmas of course) but they don't go as high and are only 3 days. I think she got an episode instead of the chest cold the rest of the family has! Lori > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2006 Report Share Posted December 28, 2006 So is it like Cimetidine? I ask because my daughter has been on Cimetidine and its been great. I thought that Singulair is for alergies? Azzie _____ From: [mailto: ] On Behalf Of Lenz Sent: Tuesday, December 26, 2006 6:23 PM Subject: RE: Singulair question... My understanding from my son's doctors is that the Singulair is like a maintenance drug...needs to be taken every day, regardless of fever episodes... Kate __________________________________________________________ Your Hotmail address already works to sign into Windows Live Messenger! Get it now http://clk.atdmt. <http://clk.atdmt.com/MSN/go/msnnkwme0020000001msn/direct/01/?href=http://ge t.live.com/messenger/overview> com/MSN/go/msnnkwme0020000001msn/direct/01/?href=http://get.live.com/messeng er/overview Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 I don't have the knowledge to respond to your question about any similiarities between Singulair and Cimetidine, Azzie...but I remember we had some discussion about Singulair several months back on this board, I think maybe around August or September. There is an article you can find and read on PubMed that was published by a research team in the Netherlands (Frenkel et al) titled " Increased urinary leukotriene E(4) during febrile attacks in the hyperimmunoglobulinaemia D and periodic fever syndrome " . I'm not a medical professional, but what I get from that article is that leukotrienes are elevated during episodes in HIDS patients. Frenkel et al. postulated that an anti-leukotriene drug, like Singulair, could have a positive effect during fevers. Some doctors are taking that a step further and prescribing also for patients. My son has been diagnosed with and is taking Singulair. Ironically, we discovered Singulair because of some breathing problems/allergy issues he was having this past summer. His pediatrician has continued to prescribe it because it seems to be helping with our son's fevers. You may also have seen the recent posts and the questionnaire from a pediatrician who is interested in hearing about our stories relative to Singulair use. The more anecdotal and scientific information that can be compiled about the success of Singulair in decreasing the severity and frequency of periodic fever episodes, perhaps the more doctors and insurance companies will be willing to look at this as a viable therapy! Kate, Mom to Ben, 3 yrs old _________________________________________________________________ Type your favorite song. Get a customized station. Try MSN Radio powered by Pandora. http://radio.msn.com/?icid=T002MSN03A07001 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2007 Report Share Posted January 2, 2007 Thanks Kate, I'm going to look for the article. Happy new year to all! Azzie, Mom to kianna 9yrs old Fever free for 5 mo! RE: Singulair question... I don't have the knowledge to respond to your question about any similiarities between Singulair and Cimetidine, Azzie...but I remember we had some discussion about Singulair several months back on this board, I think maybe around August or September. There is an article you can find and read on PubMed that was published by a research team in the Netherlands (Frenkel et al) titled " Increased urinary leukotriene E(4) during febrile attacks in the hyperimmunoglobulinaemia D and periodic fever syndrome " . I'm not a medical professional, but what I get from that article is that leukotrienes are elevated during episodes in HIDS patients. Frenkel et al. postulated that an anti-leukotriene drug, like Singulair, could have a positive effect during fevers. Some doctors are taking that a step further and prescribing also for patients. My son has been diagnosed with and is taking Singulair. Ironically, we discovered Singulair because of some breathing problems/allergy issues he was having this past summer. His pediatrician has continued to prescribe it because it seems to be helping with our son's fevers. You may also have seen the recent posts and the questionnaire from a pediatrician who is interested in hearing about our stories relative to Singulair use. The more anecdotal and scientific information that can be compiled about the success of Singulair in decreasing the severity and frequency of periodic fever episodes, perhaps the more doctors and insurance companies will be willing to look at this as a viable therapy! Kate, Mom to Ben, 3 yrs old _________________________________________________________________ Type your favorite song. Get a customized station. Try MSN Radio powered by Pandora. http://radio.msn.com/?icid=T002MSN03A07001 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2007 Report Share Posted January 2, 2007 Thanks Kate, I'm going to look for the article. Happy new year to all! Azzie, Mom to kianna 9yrs old Fever free for 5 mo! RE: Singulair question... I don't have the knowledge to respond to your question about any similiarities between Singulair and Cimetidine, Azzie...but I remember we had some discussion about Singulair several months back on this board, I think maybe around August or September. There is an article you can find and read on PubMed that was published by a research team in the Netherlands (Frenkel et al) titled " Increased urinary leukotriene E(4) during febrile attacks in the hyperimmunoglobulinaemia D and periodic fever syndrome " . I'm not a medical professional, but what I get from that article is that leukotrienes are elevated during episodes in HIDS patients. Frenkel et al. postulated that an anti-leukotriene drug, like Singulair, could have a positive effect during fevers. Some doctors are taking that a step further and prescribing also for patients. My son has been diagnosed with and is taking Singulair. Ironically, we discovered Singulair because of some breathing problems/allergy issues he was having this past summer. His pediatrician has continued to prescribe it because it seems to be helping with our son's fevers. You may also have seen the recent posts and the questionnaire from a pediatrician who is interested in hearing about our stories relative to Singulair use. The more anecdotal and scientific information that can be compiled about the success of Singulair in decreasing the severity and frequency of periodic fever episodes, perhaps the more doctors and insurance companies will be willing to look at this as a viable therapy! Kate, Mom to Ben, 3 yrs old _________________________________________________________________ Type your favorite song. Get a customized station. Try MSN Radio powered by Pandora. http://radio.msn.com/?icid=T002MSN03A07001 Quote Link to comment Share on other sites More sharing options...
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