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Re: Belly pains / Lactose

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The milk thing is strange. My son who is now 11 stopped drinking milk around 1

1/2-2

years of age and has never drank it since. For a while he would drink Chocolate

Milk, but

that didn't last to long. He really doesn't eat/drink any kind of lactose

products, once in a

blue moon he'll have a shake, but very rare and he never finishes it. I'll be

curious to hear

if this is common with others....

mom of

Chance 11

Cadin 13

Keleah 9

>

> Hi Micaela,

>

> My son is only 20 months old and has complained about the belly

> pains during some of his episodes. He pulls down on his diaper and

> always wants me to take it off and his belly goes in and out really

> fast, kind of like a wave. It seems like it does this uncontrollably

> without him trying to do it, strange.

>

> Just curious, what is involved with the Lactose test? I am asking

> because I cannot get to drink milk at all. He just doesn't like

> it. I keep trying because I want to make sure he is getting calcium. I

> have tried regular milk, chocolate milk, strawberry milk, etc. When he

> turned one, he would drink some of the strawberry milk for me, but that

> was all and he refuses all milk now. Also, about a month ago, he

> stopped liking yogurt. I would always make sure he had yogurt once a

> day to make sure he was getting his calcium, but now he won't even eat

> that anymore. When was a baby, he would spit up a lot on the

> regular Enfamil formula, we had to switch him to the Enfamil A.R. LIPIL.

> It is specially formulated with an easy-to-digest rice starch that

> thickens in the stomach to help keep formula down. What are some of the

> signs that they would be Lactose intolerant?

>

> Just curious, are there a lot of kids out there that will not

> drink milk?

>

> Bobbie

> Mother of - 20 months ()

>

>

>

>

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Nikole drinks milk like it's manna. I don't give her any dairy products

during an episode because you can imagine what a fever of 105 would do to milk

in

your stomach. Yuck! She's always ready for more when her fever comes down

though.

Tonya

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My son who turned 3 in September loves milk and has never had a problem

with it. I have to make sure he's not drinking too much, the opposite

problem! When he has a fever, he especially craves milk. He's been

fevering for almost 2 years.

Keri - 3, preliminary diagnosis

Austin, TX

kcclasercreations wrote:

>

> The milk thing is strange. My son who is now 11 stopped drinking milk

> around 1 1/2-2

> years of age and has never drank it since. For a while he would drink

> Chocolate Milk, but

> that didn't last to long. He really doesn't eat/drink any kind of

> lactose products, once in a

> blue moon he'll have a shake, but very rare and he never finishes it.

> I'll be curious to hear

> if this is common with others....

>

> mom of

> Chance 11

> Cadin 13

> Keleah 9

>

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Hi

my son has refused to drink milk right from when he was born as a baby we had to

eye drop his milk into him

he is nine now and very rarely does he drink milk

Anne

mum of Koby-Dean (9)

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  • 4 weeks later...

Hi

I just wanted to let you know that I also have a daughter who REFUSED to drink

milk (it is not my daughter with a PFS, it is my oldest). Just so you know she

is a happy healthy 10 year old. Our pediatrician had always told us that it is

no big deal if we can get other things with calcium into her (such as YOGURT,

cheese , etc) For her we put cheese into about everything. She loved it and

still does. I just thought I would let you know our experience (and she is one

of the tallest in her class!!).

I have not noticed any lactose issues with my daughter with the PFS.

Good luck

Lori Rodgers

mom to four daughters

-10

Jenna - 7

Abby- 5

- 2(?PFS)

>

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Hmmm,

Our son has never been a milk drinker either. He would never take it

and now that he is four he is able to articulate/communicate why he

doesn't like it! It truly hurts his tummy! We just had a lactose

test done and his results did show that he was lactose intolerant. I

wonder if there is a connection or if it is just a side issue he has?

Micaela

(age 4, awaiting diagnosis)

>

> Hi Dawn,

>

> Thank you for your e-mail. I'm sorry to hear your son has

also.

> I must say that this support group is great. You will learn so

much, I

> have. It is nice to know you are not alone out there. I'm sure

> everyone you mention to, they say " what " ? and say they never

heard

> of it before.

>

> was getting fevers every 2 weeks. He has been on

Cimetidine and

> he is going on 35 days since his last fever, which is great for

us. I

> hope this continues. He has been so happy lately, it is so nice to

see.

> And he has been sleeping through the night for several weeks now :-

) It

> is nice to get a straight night sleep.

>

> As for the milk, I wonder if there is a connection. The

pediatrician

> gets upset with me when I tell him that won't drink milk.

He

> tells me not to give him any fluids at all, and only offer him

milk. He

> says eventually he will take it. I don't agree. just keeps

> crying for another drink. I can't do that to him. Actually, the

past

> two nights, he drank about 4 ounces of milk, so I was happy (it's a

> start). He loves yogurt also, so I usually give him two yogurt

sticks a

> night.

>

> Good luck with your son and I hope he gets better.

>

> Bobbie

>

>

> Re: Belly pains / Lactose

>

> HI Bobbie

>

> We just diagnosed our 5 year old with . He's had fevers since

> infancy. He has also never liked milk. In his episodes, at the

height of

> his fever he usually vomits. Before that he does complain of stomach

> pain. I don't know if there is any connection. He does like other

dairy

> products -- yogurt and cheese, eggs.

>

> hope that gives some support,

> Dawn

> Portland, OR

>

>

>

>

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All my son wants to drink is Milk or water.

Ellyn

Mom of (Periodic Fever) (5),

Alyssa(9), and Kate(4)

Philadelphia, PA

" MicaelaZ " <micaelaz@...>

Sent by:

12/11/2006 04:02 PM

Please respond to

To

cc

Subject

Re: Belly pains / Lactose

Hmmm,

Our son has never been a milk drinker either. He would never take it

and now that he is four he is able to articulate/communicate why he

doesn't like it! It truly hurts his tummy! We just had a lactose

test done and his results did show that he was lactose intolerant. I

wonder if there is a connection or if it is just a side issue he has?

Micaela

(age 4, awaiting diagnosis)

>

> Hi Dawn,

>

> Thank you for your e-mail. I'm sorry to hear your son has

also.

> I must say that this support group is great. You will learn so

much, I

> have. It is nice to know you are not alone out there. I'm sure

> everyone you mention to, they say " what " ? and say they never

heard

> of it before.

>

> was getting fevers every 2 weeks. He has been on

Cimetidine and

> he is going on 35 days since his last fever, which is great for

us. I

> hope this continues. He has been so happy lately, it is so nice to

see.

> And he has been sleeping through the night for several weeks now :-

) It

> is nice to get a straight night sleep.

>

> As for the milk, I wonder if there is a connection. The

pediatrician

> gets upset with me when I tell him that won't drink milk.

He

> tells me not to give him any fluids at all, and only offer him

milk. He

> says eventually he will take it. I don't agree. just keeps

> crying for another drink. I can't do that to him. Actually, the

past

> two nights, he drank about 4 ounces of milk, so I was happy (it's a

> start). He loves yogurt also, so I usually give him two yogurt

sticks a

> night.

>

> Good luck with your son and I hope he gets better.

>

> Bobbie

>

>

> Re: Belly pains / Lactose

>

> HI Bobbie

>

> We just diagnosed our 5 year old with . He's had fevers since

> infancy. He has also never liked milk. In his episodes, at the

height of

> his fever he usually vomits. Before that he does complain of stomach

> pain. I don't know if there is any connection. He does like other

dairy

> products -- yogurt and cheese, eggs.

>

> hope that gives some support,

> Dawn

> Portland, OR

>

>

>

>

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Ellyn

Our daughter also loves milk...only drinks milk and water. She has never shown

any problems with milk products

Peggy

Mom to 6 y.o.

Re: Belly pains / Lactose

>

> HI Bobbie

>

> We just diagnosed our 5 year old with . He's had fevers since

> infancy. He has also never liked milk. In his episodes, at the

height of

> his fever he usually vomits. Before that he does complain of stomach

> pain. I don't know if there is any connection. He does like other

dairy

> products -- yogurt and cheese, eggs.

>

> hope that gives some support,

> Dawn

> Portland, OR

>

>

>

>

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