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During 3 fever episodes (that the doctors noticed, anyway), Spencer had an

enlarged spleen. They did bloodwork, thinking it was mono- tests were negative.

Has anybody else had the same symptom?

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Becky,

My son Nicolas has had that happen a few times along

with the enlarged lymph glands in the abdomin. It is

very frustating and hard to watch our children go

through this and not get no answers. my son Nicolas

has been having more and more attacks that are lasting

longer, and longer each time and the more severe each

time as well. We have been to the NIH and have them

stumped to what is the underlying issue. For now they

are treating me for the FMF with colchine which helps

to an extent, and Nicolas with singlair and

cimetidine, which neither so far is helping Nicolas.

So right now its a waiting game and treating him with

prednisone when he has attacks it seems to help him

more then anything at this point.

I hope your son well, just stay on top of it. I have

to with Nicolas and he started having chest pains

which I kept asking if he had gi issues and the

doctors kept saying no well I through a fit and they

did an upper gi barium study and we found he is

reflaxing, we know are kids more then anyone so stay

on top of things.

Good Luck

Sacora mom of Nicolas 13

--- Becky Shay <buckbuck127@...> wrote:

> During 3 fever episodes (that the doctors noticed,

> anyway), Spencer had an enlarged spleen. They did

> bloodwork, thinking it was mono- tests were

> negative. Has anybody else had the same symptom?

>

> __________________________________________________

>

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My daughter's spleen would become enlarged because she also has

spherocytosis.

The doctors assumed all symptoms were related to one illness but they

were not and she has two seperate things wrong with her.

Tracey

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