RE: Dental problems with PFS

[Guest guest]

Hannah, the cavity problem your school administrator talked about with her

daughter could stem from a weakening of the enamel that occurred because of

the high fevers/illnesses she had when she was younger. My brother-in-law

the dentist (with the 4-year-old son with bad teeth) brushes his son's teeth

after EVERY meal because he says the weakening causes the teeth to be more

susceptible to cavities - there's less protection. When I asked him why it

really mattered - they're just baby teeth - he told me that baby teeth are

crucial as " spacers " for the permanent teeth, and that gingivitis and

infection in baby teeth can cause problems with the growth and proper

development of the permanent teeth.

I have learned more about teeth since my son got sick than I ever wanted to

know! But I'm grateful to have dentists in the family who are concerned for

Ben's welfare...

Kate, Mom to Ben, 3-yrs-old (diagnosed ; possible HIDs)

[Guest guest]

I don't doubt that all that motrin/tylenol could be at least part of the

problem.

My oldest, who is know the healthiest kid I know, had many ear infections

and upper respiratory infections before age 3.

At age three, she had never had candy, not so much as a lollipop (I wish I

could say the same about my other kids!) so I was in utter shock when I

was told she had two cavities. Later I thought about all those doses of

tylenol she had. How many times had a gotten her to wake up just enough

to get the medicine in her. Which I'm sure meant that all that sugar was

just sitting on her teeth, kind of the same as when babies fall asleep

with bottles in their mouths.

I've also heard that medications that cause dry mouth can result in

greater numbers of cavities because of the reduced saliva.

I have to wonder if the high temps. result in dehydration which would also

reduce the saliva.

Ellyn

Mom of (Periodic Fever) (5),

Alyssa(9 in 10 days), and Kate(4)

Philadelphia, PA

" hannahls73 " <hannahlsmith@...>

Sent by:

09/07/2006 03:26 PM

Please respond to

cc:

Subject: Dental problems with PFS

The Administrater at my son's school has a daughter that is about 11

years old and she had fevers from the time that she was a little baby

till right after she started kinder. She had a lot of fevers, canker

sores in her mouth and pussy throats with neg. strep. Sound familiar?

No one ever diagnosed her and the docs just told her that some kids

fever. She out grew it in kinder - but still cycles about once or

twice a year . . .

But here's the thing - she said that her teeth are really bad. And the

pediatric denstist asked her if her child fevered a lot as a child

because they can do damage to her teeth. Tons of cavitys from what she

said . . . which I have also wondered about the amount of sugary

motrin that we give and how much that effects them.

Hannah

Aidan - 3 - fevering for 15 months and a black eye

Sid - 5 - a kinder kid who now wants to be a policeman . . .

[Guest guest]

Is there anything that we can do to avoid the future tooth problems?

My daughter brushes every day and flosses a couple of times a week.

Is that enough?

Mirth

[Guest guest]

My daughter probably does not have , although for a time, I thought she

did. She hasn't fevered in 3 months so I am hopeful that the fevers were

flukes. Anyway... she will be 2 on Saturday, so needless to say I was SHOCKED

when we went to the dentist and was told that she has 4 cavities... one in each

molar. She certainly had had her share of middle of the night tylenol/motrin.

She also has acid reflux and takes meds every 6 hours, including 2 doses while

she is sleeping. Also, the acid can back up into her mouth while she is

sleeping and cause enamel erosion. So.... long story short, our dentist

recommended that she get sealants on all molar surfaces to protect them from

more decay. Unfortunately, at the age of 2 she has to be under general

anesthesia to do so. I really don't want to, but I don't see much choice. My

son (with acid reflux also) was able to get sealants when he was 3, but our

dentist said she had never done them on a child that young who was

awake. I think it just depends on the kid and how much they are willing to do.

So, if you can get sealants, they should do a good job of protecting molars.

mirthwhite22 <mirthw@...> wrote: Is there anything that we can

do to avoid the future tooth problems?

My daughter brushes every day and flosses a couple of times a week.

Is that enough?

Mirth

[Guest guest]

I was also shocked when my daughter was 3 and had a 4 cavities and

other dental problems. The dentist said she needed to floss more. She

was 3, so we didn't really floss much at the time anyway and he said

but it was mostly hereditary. We just blew it off, even though we don't

have a hereditary dental issue in our family.

Tracey

Mom to Maddie, , age 7

Brent age, 11

Texas

[Guest guest]

Sometimes too....children just get cavities! With or

without other illnesses and no matter how well their

teeth are cared for. I almost flipped my lid recently

when our four year old, the non-fevering kid went to

the dentist and he found 4 cavities and he needs oral

surgery...if it had been Nino, the fever kid, would I

have suspected it was the disease?? HHHHMMMM.......

I have heard frequently that kids who get strep often

develop problematic teeth. The question was asked

yesterday of one of the speakers at the Conference and

the response he gave was the same. Sometimes, kids

just get cavities, no commonality. " However, it is

COMMON " , he said, for kids to develop cabities when

they have strep often! " So there you have it...no one

knows for sure! Go figure, huh?

Have a good day.

Lori

--- hannahls73 <hannahlsmith@...> wrote:

> The Administrater at my son's school has a daughter

> that is about 11

> years old and she had fevers from the time that she

> was a little baby

> till right after she started kinder. She had a lot

> of fevers, canker

> sores in her mouth and pussy throats with neg.

> strep. Sound familiar?

> No one ever diagnosed her and the docs just told her

> that some kids

> fever. She out grew it in kinder - but still cycles

> about once or

> twice a year . . .

>

> But here's the thing - she said that her teeth are

> really bad. And the

> pediatric denstist asked her if her child fevered a

> lot as a child

> because they can do damage to her teeth. Tons of

> cavitys from what she

> said . . . which I have also wondered about the

> amount of sugary

> motrin that we give and how much that effects them.

>

> Hannah

> Aidan - 3 - fevering for 15 months and a black eye

> Sid - 5 - a kinder kid who now wants to be a

> policeman . . .

>

>

>

>

__________________________________________________

[Guest guest]

Please just keep in mind...kids with the very best

dental care, no meds, no medical condition, etc....get

cavities. It happens. Please don't beat yourself up

about it...Our four year old with NO medical condition

and only used infants tylenol once when he was abt 18

months for a bad flu, has 4 cavities and will be put

under general anisthesia to " FIX " the mess in his

mouth...when I asked the Pediatric Dentist " WHY? " He

answered, " he's just a kid, if I knew the reason why

kids get cavities, I'd be a rich man! " LOL.

Have a good night.

Lori~

--- Dempsey <cindydempsey@...> wrote:

> My daughter probably does not have , although

> for a time, I thought she did. She hasn't fevered

> in 3 months so I am hopeful that the fevers were

> flukes. Anyway... she will be 2 on Saturday, so

> needless to say I was SHOCKED when we went to the

> dentist and was told that she has 4 cavities... one

> in each molar. She certainly had had her share of

> middle of the night tylenol/motrin. She also has

> acid reflux and takes meds every 6 hours, including

> 2 doses while she is sleeping. Also, the acid can

> back up into her mouth while she is sleeping and

> cause enamel erosion. So.... long story short, our

> dentist recommended that she get sealants on all

> molar surfaces to protect them from more decay.

> Unfortunately, at the age of 2 she has to be under

> general anesthesia to do so. I really don't want

> to, but I don't see much choice. My son (with acid

> reflux also) was able to get sealants when he was 3,

> but our dentist said she had never done them on a

> child that young who was

> awake. I think it just depends on the kid and how

> much they are willing to do. So, if you can get

> sealants, they should do a good job of protecting

> molars.

>

> mirthwhite22 <mirthw@...> wrote: Is

> there anything that we can do to avoid the future

> tooth problems?

> My daughter brushes every day and flosses a couple

> of times a week.

> Is that enough?

>

> Mirth

>

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

>>>Please just keep in mind...kids with the very best

dental care, no meds, no medical condition, etc....get

cavities. It happens. >>>

Lori,

Certain genetic disorders such as NOMID will have an effect on the teeth. This

has been documented with CIAS1 gene... and the children are followed at NIH when

this occurs.

Also it is a fact that high fevers will cause enamel problems. May not

specifically be the PFS but it can be the cause of the fever itself.

I know you keep saying it can happen to any child.... however it also can be a

secondary issue in children with fever and it definitely has been told to me

that it is a secondary issue with CIAS1. The children on the NOMID site who I

discuss issues with ARE followed at the NIH.

Just want to let the people here know that yes FEVER can cause these issues.

ph has had 3 pulpotomy procedures and has 3 crowns. I have been TOLD that

these issues he has with the inflammation of the pulp and the inflammation of

his gums are related to the CIAS1 genetic mutation.

Just needed to clarify.

Many signs and symptoms our children get are ALSO seen in the normal

population... too... INCLUDING canker sores and nose bleeds, and rashes etc...

It is the combination of the symptoms and fever onset as well as the

presentation that differs,

Fran

Fran Bulone RN

Mom to ph 7yr

Waxhaw NC

/

__

[Guest guest]

Fran, et all...

It sounded as though many were down on themselves, as

well as really worked up about the dental issues.

There are very real issues with PFS kids...MANY of

them. However, I was sharing the flip side of the

coin. Lori

--- Fran Bulone <fbulone@...> wrote:

> >>>Please just keep in mind...kids with the very

> best

> dental care, no meds, no medical condition,

> etc....get

> cavities. It happens. >>>

>

>

> Lori,

>

> Certain genetic disorders such as NOMID will have an

> effect on the teeth. This has been documented with

> CIAS1 gene... and the children are followed at NIH

> when this occurs.

>

> Also it is a fact that high fevers will cause enamel

> problems. May not specifically be the PFS but it can

> be the cause of the fever itself.

>

> I know you keep saying it can happen to any

> child.... however it also can be a secondary issue

> in children with fever and it definitely has been

> told to me that it is a secondary issue with CIAS1.

> The children on the NOMID site who I discuss issues

> with ARE followed at the NIH.

>

> Just want to let the people here know that yes FEVER

> can cause these issues.

>

> ph has had 3 pulpotomy procedures and has 3

> crowns. I have been TOLD that these issues he has

> with the inflammation of the pulp and the

> inflammation of his gums are related to the CIAS1

> genetic mutation.

>

> Just needed to clarify.

> Many signs and symptoms our children get are ALSO

> seen in the normal population... too... INCLUDING

> canker sores and nose bleeds, and rashes etc... It

> is the combination of the symptoms and fever onset

> as well as the presentation that differs,

>

> Fran

> Fran Bulone RN

> Mom to ph 7yr

> Waxhaw NC

> /

> __

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________