Back for a quick visit

[Guest guest]

Hi Everyone!

I would first like to wish everyone here Happy Holidays!

I have checked in occasionally, but when I find I have over 400

messages, I have to admit I don't read them all. I have not written

in quite some time. It has been extremely hectic here.

is still home on medical leave. His new diet proves to be

complicated; and his tastes are ever changing. You may remember, or

if you are new, has Celiac Spru and thru IGg testing we found

he also can't eat beef, chix, or pork along with eggs, peanuts, soy,

dairy...the list continues. We took him to an allergist who did IGe

testing, and found he is allergic to apples and pears. We had been

giving him applesause 4 times a day as a conveyance for his meds. We

are looking forward to when we can introduce the IGG items, one at a

time to find out if he has a continued reaction to them. Things he

would readily eat before his celiac dx are off limits now, or he has

taken a dislike to them. Where he used to crave salt, he is

requesting it be left off/out. We still can't get a decent

bread/cookies/cake made. He misses these items when the rest of the

family indulges. At first we made them off limits to all, then

gradually started telling him they were made of things not on his

diet. Thanks for your website for medication info. I have

supplied it to the ped who is obtaining the book. For those of you

who are Catholic, do you have a solution to the Communion Wafer?

is everchanging, it is like watching the movie with Robin

and DeNiro....The Awakening. This year was the first

Christmas was REALLY into. He walked up to Santa a dozen times

in the mall to shake his hand and add something else to the list. It

was so neat that Santa remembered him each time, and carried on a

conversation. He even remembered to ask how his sister was after

had brought her up in a previous conversation. As he opened

presents, was very vocal about likes and dislikes, and even

started a return pile! :-) He had three stacks: the fun toys, the

educational toys, and the return pile. :-) I guess all that sorting

at school payed off! We have eliminated 3 capsuls of dep. sprinkle,

going very very slowly. His psych still feels he is ASD, and that

some of the characteristics may lessen in intensity, but will not go

away. He has some truely great days, which makes the bad ones hard

to accept.

's older sister (19) had her second surgery to remove her

ovary and fallopian tube for a form ovarian cancer (the female

version of what Lance Armstrong had) Nov. 1. She recovered nicely,

but she had to start chemotherapy after Thanksgiving. The doctor

that performed the first surgery in Sept. left part of the tumor in

her ovary, not knowing what the tumor was or that it was growing from

the center of the ovary out. Her chemo is extremely intense, but

short in duration. She receives it for 9 weeks only. She is half-way

through. It makes her very sick. She asked me to give her a buzz

when she started to lose her hair and that was one of the hardest

things I have ever done. I have never seen her like that. She was

born with a full head of hair. She has been very brave.

So, I have a question. Is anyone presently enrolled in, or has

anyone been through the school system in North Carolina? I am

considering taking down there for an evaluation for possible

placement in one of their TEACCH classes. Any info, both positive

and negative about experiences would be appreciated.

Deb, mother to , 13, Celiac, ASD and

to , 19, my Angel