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In a message dated 12/29/01 12:28:33 PM Eastern Standard Time,

charlyne1121@... writes:

> I am so disappointed with this week. I

> wanted to take Zeb out and maybe ride around to look at the lights, maybe

> go

> to the movies etc. We will probably be all fine just in time for school to

> start again.

Gosh, sorry Charlyne!!!! It's SUCH a bummer being sick during the holidays,

I know. My pink eye got better day after xmas....great timing, eh??? Hope

you are fully on the mend and can at least enjoy ringing in the new year!!!

{{{{{{{{{hugs}}}}}}}}}}

Donna

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  • 2 months later...
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In a message dated 3/11/02 3:55:57 PM US Eastern Standard Time,

KVanRyzin@... writes:

<< ARe they continuing to direct him toward

the original task once he has started acting out? If so it is possibly

escalating him. I know with if I hear that stress rising I find a way

around it rather than trying to push through. >>

Karyn,

I think this happens often in schools. I too have found that the emphasis

needs get " off " the incident that may be causing the behavior. Last year

Gene had an incident where he screamed for an hour straight at school at the

top of his lungs and threw a beanbad chair across the room. He had thrown

some home made french fries on thr floor and his aide told him to pick them

up. He said " no " and she held firm. A person truly understanding of autism

would have tried to figure out " why " he had thrown them. and didn't want to

pick them up..not look at it as an act of belligerence. so it got worse. I

knew that that situation could have been averted in two seconds by

empathizing with him first, asking him why he threw them, offering a

different snack of choice and THEN asking him to pick them up. He would have

done it then. I see it over and over that alot of situations arise that are

avoidable because people dealing with our children often don't know the key

words, phases, approaches or don't know enough about aspects of autism.

Lauri

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In a message dated 3/12/02 10:46:45 PM Central Standard Time,

writes:

>

> Hi Karyn,

> I don't think that Zeb's bio family is functioning to well either. I never

> take my husband because he would probably jack the principal. I am on the

> edge myself. I would like the fly to buzz the team LOL.

> Charlyne

> Mom to Zeb 9 DS/OCD ?

>

You are too funny. I could see Ken (my husband) doing that.

These teachers are really not thinking are they. So, in ignoring it they just

encourage him to raise the stakes. Have they not heard of the phrase " ignore

the behavior, not the person " ? I can't believe he is doing nothing while he

is sitting there that they couldn't reinforce. Heck, just sitting there is

gold in our book. They really are clueless about behavior management.

I'm feeling pretty awesome about things today. Yesterday we had a big upset.

One of those fine one moment and wild the next events over putting on his

socks and shoes. Last night he had difficulty taking his shower (I think he

was having problems with his in home staff person and I got the brunt of it

during the shower) anyway, I was determined that we weren't going to have

another problem this a.m. and with some forthought and planning (and a

Halloween mask to make life fun) we had a beautiful morning and off to school

with no nasty stuff. Now we have had a great morning and something to build

on.

If you want someone to really train them in behavior management I could send

. He is really great at punishing incorrect responses and reinforcing

appropriate behavior in the people around him. LOL!!!!

Karyn

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In a message dated 3/12/02 10:46:45 PM Central Standard Time,

writes:

>

> Hi Karyn,

> I don't think that Zeb's bio family is functioning to well either. I never

> take my husband because he would probably jack the principal. I am on the

> edge myself. I would like the fly to buzz the team LOL.

> Charlyne

> Mom to Zeb 9 DS/OCD ?

>

You are too funny. I could see Ken (my husband) doing that.

These teachers are really not thinking are they. So, in ignoring it they just

encourage him to raise the stakes. Have they not heard of the phrase " ignore

the behavior, not the person " ? I can't believe he is doing nothing while he

is sitting there that they couldn't reinforce. Heck, just sitting there is

gold in our book. They really are clueless about behavior management.

I'm feeling pretty awesome about things today. Yesterday we had a big upset.

One of those fine one moment and wild the next events over putting on his

socks and shoes. Last night he had difficulty taking his shower (I think he

was having problems with his in home staff person and I got the brunt of it

during the shower) anyway, I was determined that we weren't going to have

another problem this a.m. and with some forthought and planning (and a

Halloween mask to make life fun) we had a beautiful morning and off to school

with no nasty stuff. Now we have had a great morning and something to build

on.

If you want someone to really train them in behavior management I could send

. He is really great at punishing incorrect responses and reinforcing

appropriate behavior in the people around him. LOL!!!!

Karyn

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Hi Charlyne,

It sounds like the school staff doesn't know what they are doing, plus

they are making things worse. I am really sorry this is happening. It seems

like they are using time out inappropriately to me. I hope the behavior

specialist can help get things under control. {{{{{{HUGS}}}}}}

Marisa

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  • 4 weeks later...
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Charlyne,

--- I went to

> Klebenoff today. Have you heard of him? I feel so much

better.

Wow, I think you've hired one of the best. He has an excellent

reputation and from what I understand has two kids with

disabilities. He has won a lot of awards for special ed advocacy and

I think autism in particular. Does your son's school know you've

hired him yet? They are going to be very surprised! I hope they

quake in their boots!

I am so sorry that you are going through this and I'm saying lots of

prayers that things get better soon.

Marjorie

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  • 2 weeks later...
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Hey Charlyne,

Don't worry these are the same questions I ask

myself. These are also some of the issue I brought up

in the protocol. It seems that this person just really

likes being in the van. I don't blame him as he has no

work or school at this moment. I think he would just

rather be riding around. When writing the protocol

which is a work in progress I made sure to add that

the staff should reassure him constantly as to the

daily schedule since we all know predictability is a

large part of keeping people happy. He does not do a

lot of walking due to a previous medical issue. He

also does not like to get out of the van in the

community.

I am unsure a lot of the time if or if not staff are

explaining the schedule to him. It is hard to know. I

just hope they are.

I have been working on these protocols for him for him

for about 6 hours now. I think my brain is mushy (ha)

Thanks for the input,

Devrey

>

> Hi Devrey,

> Your right about finding a balance. Does he know

> where he is going when he

> gets in the van? Is it someplace he likes to go? Is

> there a lot of walking?

> Smearing feces, yuk. We have that problem sometimes

> but it has to do with

> more experience wiping. If the hands get it, oh

> well. Is this person happy?

> Sorry for all the questions, just some things to

> think about.

> Charlyne

> Mom to Zeb 9 DS/OCD ?

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

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  • 4 weeks later...
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Hi Charlyne,

I am so sorry you are having to go through this daily battle. I have

been there too so I can really empathize. It is very hard to keep fighting,

but you are doing an amazing job. {{{{{{HUGS}}}}}}

Marisa

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